Speech and Hearing Science Commons^™

Patterns Of And Experiences With Dysphagia In People With Hypermobile Ehlers Danlos Syndrome (Heds) With Or Without Dysautonomia, Karyssa A. Stonick, Deanna Britton Dr., Emily Goble, Alison Wong, Alena Guggenheim Dr., Donna Graville

Student Research Symposium

Ehlers Danlos Syndromes (EDS) are collagen-based hereditary connective tissue disorders characterized by decreased tissue integrity. Historically, the musculoskeletal and dermatological manifestations have been emphasized. However, EDS is associated with symptoms and conditions affecting nearly all body systems, including swallowing (dysphagia). A Cohort Discovery analysis at Oregon Health & Science University (OHSU) revealed that 14.9% ± 0.3% of patients with an ICD-10 diagnosis of EDS also have an ICD-10 diagnosis of dysphagia in their medical record. Despite only one article in the current literature, the prevalence of dysphagia in EDS is not insignificant and warrants further investigation. Our long-term hypothesis is …