Family, Life Course, and Society Commons^™

People With Early Stage Alzheimer's Disease As Mentors: Developing A Truly Collaborative Research Process, Phyllis Harris

Phyllis Braudy Harris

Mentoring can take many shapes and forms. However, rarely in the research arena is the participant of a study ever considered as being a mentor, a person capable of providing advice and guidance, and certainly not a participant who has a diagnosis of Alzheimer's disease (AD). Because of the progressive debilitating nature of the condition and the resulting stigmatization and marginalization of the person, someone with AD is not often thought of in the role of a mentor. Yet, this article focuses on such a mentoring relationship, which developed by happenstance, in the process of doing research on and with …