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Articles 31 - 60 of 311
Full-Text Articles in Health Policy
The Ethical Data Practices Framework And Its Implications For Data Privacy Relations Between The United States And The European Union, Vasiliki Rahimzadeh
The Ethical Data Practices Framework And Its Implications For Data Privacy Relations Between The United States And The European Union, Vasiliki Rahimzadeh
Center for Medical Ethics and Health Policy Staff Publications
No abstract provided.
Deactivation Of Left Ventricular Assist Devices At The End Of Life: Narrative Review And Ethical Framework, Danish Zaidi, James N Kirkpatrick, Savitri E Fedson, Sarah C Hull
Deactivation Of Left Ventricular Assist Devices At The End Of Life: Narrative Review And Ethical Framework, Danish Zaidi, James N Kirkpatrick, Savitri E Fedson, Sarah C Hull
Center for Medical Ethics and Health Policy Staff Publications
Left ventricular assist devices (LVADs) have become an increasingly common advanced therapy in patients with severe symptomatic heart failure. Their unique nature in prolonging life through incorporation into the circulatory system raises ethical questions regarding patient identity and values, device ontology, and treatment categorization; approaching requests for LVAD deactivation requires consideration of these factors, among others. To that end, clinicians would benefit from a deeper understanding of: 1) the history and nature of LVADs; 2) the wider context of device deactivation and associated ethical considerations; and 3) an introductory framework incorporating best practices in requests for LVAD deactivation (specifically in …
Comparison Of Hospital Online Price And Telephone Price For Shoppable Services, Merina Thomas, James Flaherty, Jiefei Wang, Morgan Henderson, Vivian Ho, Mark Cuban, Peter Cram
Comparison Of Hospital Online Price And Telephone Price For Shoppable Services, Merina Thomas, James Flaherty, Jiefei Wang, Morgan Henderson, Vivian Ho, Mark Cuban, Peter Cram
Center for Medical Ethics and Health Policy Staff Publications
Importance: US hospitals are required to publicly post their prices for specified shoppable services online. However, the extent to which a hospital's prices posted online correlate with the prices they give to a telephone caller is unknown.
Objective: To compare hospitals' online cash prices for vaginal childbirth and brain magnetic resonance imaging (MRI) with prices offered to secret shopper callers requesting price estimates by telephone.
Design, setting, and participants: This cross-sectional study included cash online prices from each hospital's website for vaginal childbirth and brain MRI collected from representative US hospitals between August and October 2022. Thereafter, again between August …
J Mich Dent Assoc November 2023
J Mich Dent Assoc November 2023
The Journal of the Michigan Dental Association
Every month, The Journal of the Michigan Dental Association brings news, information, and features about Michigan dentistry to our state's oral health community and the MDA's 6,200+ members. No publication reaches more Michigan dentists!
In this issue, the reader will find the following original content:
- A cover story on The University of Michigan's Gordon H. Sindecuse Museum of Dentistry.
- News you need, Editorial and regular department articles on MDA Foundation activities, Dentistry and the Law, Staff Matters, and component news.
This issue also includes two articles reprinted with permission.
- A feature from Ontario Dentist on The Challenge of False Belief: …
Advocacy Spotlight: Important: State Issues Changes To Delegation Of Duties Rules, Neema Katibai Jd
Advocacy Spotlight: Important: State Issues Changes To Delegation Of Duties Rules, Neema Katibai Jd
The Journal of the Michigan Dental Association
The Michigan Board of Dentistry has introduced changes to the rules governing the delegation of duties to dental auxiliaries, including the reclassification of "dental assistants" (those not formally trained or licensed) as "unregistered dental auxiliaries" (UDAs). The classification Registered Dental Assistant (RDA) remains. Changes involve the supervision levels for specific tasks and guiding training UDAs for orthodontic duties. Notable changes include allowing UDAs to perform certain orthodontic tasks and expanding their scope of work to include duties such as taking impressions, polishing, and providing nutritional counseling. Dental professionals should know these changes and the supervision required for delegation to UDAs …
Clinically Indicated Genomic Sequencing Of Children In Foster Care: Legal And Ethical Issues, Hadley Stevens Smith, Emily S Bonkowski, Madison R Hickingbotham, Stacey Pereira, Thomas May, Christi J Guerrini
Clinically Indicated Genomic Sequencing Of Children In Foster Care: Legal And Ethical Issues, Hadley Stevens Smith, Emily S Bonkowski, Madison R Hickingbotham, Stacey Pereira, Thomas May, Christi J Guerrini
Center for Medical Ethics and Health Policy Staff Publications
There are approximately 400 000 children in foster care in the US, approximately one-half of whom have chronic health problems and approximately 10% of whom have complex healthcare needs. Given the increasing relevance of genomic sequencing to guide clinical care for children with rare, chronic, and undiagnosed conditions, it may be an important component of diagnostic evaluation for children in foster care. Clinically indicated genomic sequencing may provide information that has health implications for children in foster care, as well as for their biological parents and other relatives. Whether and how genomic sequencing results impact legal decision making and family …
Mountain West State Health System Rankings, 2023, Julia Salangsang, Ivan Sun, Caitlin J. Saladino, William E. Brown Jr.
Mountain West State Health System Rankings, 2023, Julia Salangsang, Ivan Sun, Caitlin J. Saladino, William E. Brown Jr.
Health
This fact sheet presents data from the “2023 Scorecard on State Health System Performance” published by The Commonwealth Fund. The original report includes data from all 50 states and measures health system performance based on health care access, quality, use of services, costs, health disparities, reproductive care and women’s health, and health outcomes.
An Integrated Evidence-Based Approach To Provide A Practicum-Based Learning Experience To Students, Dziyana Nazaruk, Joseph Telfair, Jamie S. Cromley, Joanne Chopak-Foss, Ana M. Palacios
An Integrated Evidence-Based Approach To Provide A Practicum-Based Learning Experience To Students, Dziyana Nazaruk, Joseph Telfair, Jamie S. Cromley, Joanne Chopak-Foss, Ana M. Palacios
Health Policy & Community Health: Faculty Publications
Background
Due to the challenges created by the COVID-19 pandemic, the public health field has an exceptional opportunity not only to address current challenges but also to rebuild and expand the workforce. Objectives
The main objective of this presentation is to highlight the 2018-2022 academic year's progress of the practice-based learning experience of the JPH College of Public Health at Georgia Southern University in Georgia, USA. The College serves more than 59, mostly rural counties, and involves diverse practicum preceptors, students, and existing professionals from the USA and other countries. The College provides a unique opportunity for students to develop …
Strengths, Weaknesses, Opportunities And Threats Of A Community-Based Egg Program In Rural Honduras, Lilly Karsa, Dziyana Nazaruk, G. Ramos, L. Manship, Ana M. Palacios
Strengths, Weaknesses, Opportunities And Threats Of A Community-Based Egg Program In Rural Honduras, Lilly Karsa, Dziyana Nazaruk, G. Ramos, L. Manship, Ana M. Palacios
Health Policy & Community Health: Faculty Publications
Background
Young children living in poor rural areas in Honduras are susceptible to suffering from undernutrition. About 1 in every 4 children under age 5 have stunting. Stunting during early childhood has negative consequences on an individual's life that can have short-term and lasting effects. This study's purpose was to explore the perceptions of the mothers of children that participate in a community-based nutrition-agriculture program that offers 1 egg daily to all children ages 6 to 24 months in 13 communities. Methods
Using community-engaged methods, we implemented a SWOT analysis to identify strengths, weaknesses, opportunities, and threats using a semi-structured …
Road Maintenance Challenges: The Greatest Obstacle To Sustainable Development In South Sudan, Gai Chol Paul
Road Maintenance Challenges: The Greatest Obstacle To Sustainable Development In South Sudan, Gai Chol Paul
Journal of Sustainable Social Impact
Road infrastructure plays a crucial role in the sustainable development of any nation. It connects communities, facilitates trade, and enables essential service delivery. However, road maintenance is one of the most significant challenges hindering sustainable development in South Sudan. The poor roads hinder economic growth, access to essential services, and social cohesion and are in dire need of repair and upkeep. Thus, I developed this qualitative multiple-case study to explore challenges that hinder road maintenance in South Sudan. I collected data through document review and semi-structured interviews with four road engineers, and then thematically analyzed the gathered data. Three themes …
Women’S Empowerment As A Determinant Of Child’S Nutrition: Evidence From A Cambodia Demographic And Health Survey, Vatana Chea, Socheata Sar
Women’S Empowerment As A Determinant Of Child’S Nutrition: Evidence From A Cambodia Demographic And Health Survey, Vatana Chea, Socheata Sar
Journal of Demography
Does the empowerment of women improve a child’s long-term health outcome? Although the relationship seems intuitive in daily life, most studies done globally have found no association. This paper explicates the relationship between women’s empowerment and children’s malnutrition by taking Cambodia as a case study and adding new empirical evidence to the debate. Data were drawn from the Cambodia Demographic and Health Survey (DHS) 2014, with a sample of 4,118 children nationwide. To measure children’s nutritional status, this study employed the WHO’s height-for-age (HFA) and weight-for-age (WFA) metrics, and at the same time, used the Survey-Based Women’s emPowERment Index (SWPER), …
The Puerto Rico Children Vulnerability Index, 2021, Jennifer Hinojosa, Laura Colon-Melendez, Jorge Soldevilla-Irizarry, Damayra I. Figueroa-Lazu
The Puerto Rico Children Vulnerability Index, 2021, Jennifer Hinojosa, Laura Colon-Melendez, Jorge Soldevilla-Irizarry, Damayra I. Figueroa-Lazu
CUNY Centro, The Center for Puerto Rican Studies
Recent natural hazards and resulting disasters in Puerto Rico have drawn attention to the social vulnerability of children in the archipelago. We created the Child Vulnerability Index (CVI) to identify the scale and patterns of child vulnerability in the archipelago, and provide insights to mitigate the effects that hazardous events may cause. The index was created using 2017-2021 American Community Survey (ACS) data pertaining to three broad themes: Personal characteristics of children, Characteristics of households with children, and Overall household characteristics for all Municipios, Barrios, and Census Tracts in Puerto Rico. The CVI is a two-pronged tool consisting of an …
Healthy Acadia Prosper Program: Key Informant Interview Findings, Mary Lindsey Smith Phd, Evelyn Ali Bs, Katharine Knight
Healthy Acadia Prosper Program: Key Informant Interview Findings, Mary Lindsey Smith Phd, Evelyn Ali Bs, Katharine Knight
Substance Use Research & Evaluation
The PROSPER initiative is a collaborative effort of Healthy Acadia and its regional healthcare and nonprofit partners designed to support pregnant women, mothers, and families with Substance Use Disorder (SUD). The project is funded by a four-year HRSA Outreach grant from 2021 to 2025. Through grant funding, PROSPER provides personal care planning, navigation support, and parenting and life skills training to clients at no cost to them. The partners also work to alleviate regional barriers to care and reduce stigma and discrimination of women seeking treatment to benefit their families.This summary presentation is a brief summary of key findings from …
Financial Alignment Initiative: New York Fully Integrated Duals Advantage For Individuals With Intellectual And Developmental Disabilities: Preliminary Third Evaluation Report, Kimberly I. Snow Mhsa, Elizabeth Gattine Jd, Amy Kandilow Phd, Matthew Toth Phd, Amy Chepaitis Phd
Financial Alignment Initiative: New York Fully Integrated Duals Advantage For Individuals With Intellectual And Developmental Disabilities: Preliminary Third Evaluation Report, Kimberly I. Snow Mhsa, Elizabeth Gattine Jd, Amy Kandilow Phd, Matthew Toth Phd, Amy Chepaitis Phd
Disability & Aging
The New York FIDA-IDD demonstration was launched in 2016 in nine downstate counties and was the first comprehensive managed care demonstration exclusively serving individuals with intellectual and developmental disabilities (IDD) in the nation. Due at least in part to a lack of provider participation, less than 8 percent of eligible beneficiaries enrolled. Beneficiaries who did enroll reported high levels of satisfaction, especially with care coordination and the ease of obtaining durable medical equipment. The MedicareMedicaid Plan’s (MMP) assessment and care coordination model provided person-centered care planning that identified goals and helped to achieve them, improving enrollees’ quality of life. The …
Estimating The Impacts Of Legislation To Expand Affordable Quality Child Care And Early Education In Massachusetts: Initial Findings On Utilization, Employment, And Financial Assistance. Research Brief #1, Randy Albelda, Alan Clayton-Matthews, Anne Douglass, Christa Kelleher, Songtian Zeng, Laurie Nsiah-Jefferson
Estimating The Impacts Of Legislation To Expand Affordable Quality Child Care And Early Education In Massachusetts: Initial Findings On Utilization, Employment, And Financial Assistance. Research Brief #1, Randy Albelda, Alan Clayton-Matthews, Anne Douglass, Christa Kelleher, Songtian Zeng, Laurie Nsiah-Jefferson
Publications from the Center for Women in Politics and Public Policy
The UMass Boston Early Education CUSP is led by a multidisciplinary team that designed the simulator and uses it to produce current, relevant, accurate, and responsive estimates about the key impacts of proposed legislation to expand access to affordable, quality child care and early education. One of the simulator’s valuable features is that it can produce estimates for a range of policy parameters and provisions. The team will release additional briefs in the coming months to offer a more detailed look at the impacts outlined in this initial publication. Other planned briefs will examine key topics, such as impacts related …
El Programa Ampliado De Inmunización (Pai) Y La Confianza En La Vacunación De La Población En Argentina: Estudio De Caso En La Vacunación Contra El Virus Del Papiloma Humano (Vph). The Expanded Program On Immunization (Epi) And Vaccine Confidence In Argentina’S Population: A Case Study On The Human Papillomavirus (Hpv) Vaccine., Ana Tiscareño
Independent Study Project (ISP) Collection
En este estudio, se realizó una exploración del Programa Ampliado de Inmunización (PAI) en Argentina y como sus estrategias afectan los motivos a vacunarse o no en el país. Con un sistema de salud universal y gratuito, la gente en Argentina tiene el derecho a la salud que incluye la vacunación gratuita y obligatoria. Pero en el campo de la inmunización, no hay estudios sobre los otros factores que llevaban a las personas a adherir o no a la vacunación. Para cumplir los objetivos de la investigación, se utilizó un abordaje descriptivo cualitativo con un análisis de fuentes secundarias y …
Centros De Inclusión Social Bajo Gestión Asociada Y La Salud Mental De Las Personas En Situación De Calle, Kien Phan
Independent Study Project (ISP) Collection
Esta investigación se enfoca en analizar las acciones del gobierno de la Ciudad Autónoma de Buenos Aires (CABA) para abordar la salud mental de las personas en situación de calle en 2023. Se examina el estado actual de esta población, identificando factores clave y evaluando las medidas gubernamentales. El marco teórico aborda determinantes sociales y derechos humanos, subrayando la importancia de cambios legislativos para abordar la falta de vivienda. La metodología combina análisis de datos gubernamentales, estudios previos y entrevistas con profesionales de Centros de Inclusión Social. Las organizaciones de la sociedad civil, como Cáritas y la Asociación Civil Isauro …
Un Análisis De Los Programas De Asistencia Para Varones Que Han Ejercido Violencia De Género En La Área Metropolitana De Buenos Aires (Amba). An Analysis Of Programs Of Assistance For Men Who Have Committed Gender Violence In The Metropolitan Area Of Buenos Aires., Shreya Shrestha
Independent Study Project (ISP) Collection
La violencia de género es una forma de opresión que tiene graves consecuencias para mujeres, niños y niñas y personas LGBTQ+ tanto en Argentina como en el resto del mundo. Históricamente, las iniciativas de prevención en este tema se han centrado en la asistencia destinada a las víctimas de situaciones de violencia, incluyendo apoyo económico y legal. Sin embargo, el hecho de que casi todos los casos de violencia están cometidos por varones ha iniciado una nueva discusión en las últimas décadas sobre los vínculos entre la masculinidad hegemónica y la violencia, junto con estrategías preventivas con el objetivo de …
Surveillance Systems In Western Kenya: Methods, Perceptions, And Effectiveness, Marissa Duffy
Surveillance Systems In Western Kenya: Methods, Perceptions, And Effectiveness, Marissa Duffy
Independent Study Project (ISP) Collection
Surveillance is an important tool in monitoring and evaluating infectious disease patterns and trends. Surveillance is vital because it aids public health officials and medical professionals in creating better prevention methods and efficiently managing outbreaks. Kenya is home to many noncommunicable diseases making it an important location to conduct disease surveillance. Within Kenya, each county has its own surveillance unit which tracks and controls outbreaks. In addition, government run surveillance systems were established to determine disease burden, incidence, and patterns in specific at-risk communities around Kenya. One of these major surveillance systems is Population-Based Infectious Disease Surveillance (PBIDS) which has …
Climate Change, Malnutrition, And Hiv: The Impact Of Food Insecurity On Hiv Response In Sub-Saharan Africa, Olivia Walshak
Climate Change, Malnutrition, And Hiv: The Impact Of Food Insecurity On Hiv Response In Sub-Saharan Africa, Olivia Walshak
Independent Study Project (ISP) Collection
Climate change is a key driver of an unprecedented global food crisis, exacerbated by rising temperatures and the vulnerability of crop yields. Sub-Saharan Africa is particularly susceptible, and case studies demonstrate the fragility of food systems in the region, leading to severe food insecurity and famine in the face of climate shocks.
There are a variety of health implications, particularly the syndemic relationship between malnutrition and HIV. HIV interacts bidirectionally with malnutrition, creating a vicious cycle of poor clinical outcomes. Expanding access to antiretroviral therapy in Sub-Saharan Africa is hindered by rampant food insecurity, including inadequate food intake, reduced dietary …
Universal Health Coverage: A Basis For Pandemic Preparedness?, Merline Feero
Universal Health Coverage: A Basis For Pandemic Preparedness?, Merline Feero
Independent Study Project (ISP) Collection
Amid extensive research and reporting on the effects of COVID-19 on Universal Health Coverage (UHC) progress, this study explores an often neglected topic: the potential of UHC to contribute to the foundations of pandemic preparedness. Herein, quantitative analysis reveals that countries with higher UHC coverage tend to exhibit greater pandemic preparedness (as determined by the UHC Service Coverage Index and the Global Health Security Index). Complementary qualitative analysis is used to further illustrate and explain the correlation between UHC and pandemic preparedness using four case study countries, integrating literature reviews and relevant expert interviews. Through these methods, a clear tie …
Hidden Hurdles: Evaluating Informal Barriers To Primary Healthcare Access Among Undocumented Migrants In Switzerland, Arantxa Bonifaz Rosas
Hidden Hurdles: Evaluating Informal Barriers To Primary Healthcare Access Among Undocumented Migrants In Switzerland, Arantxa Bonifaz Rosas
Independent Study Project (ISP) Collection
Undocumented migrants face heightened difficulties in accessing healthcare due to a combination of legal, financial, and social challenges. Informal barriers to accessing healthcare further exacerbate poor health outcomes among undocumented migrants. In Switzerland, where undocumented migrants have the right to health insurance, barriers to receiving healthcare continue to restrict their access to essential services, such as primary healthcare (PHC). Employing a meta-analysis approach, this qualitative study aimed to broaden existing research on informal barriers hindering access to PHC for undocumented migrants, with a particular focus on the Swiss context. The identified informal barriers centered around health insurance, fear of deportation, …
The Implications Of Politicizing Global Health Diplomacy In A Multipolar World, Haley Stock
The Implications Of Politicizing Global Health Diplomacy In A Multipolar World, Haley Stock
Independent Study Project (ISP) Collection
This research paper is the result of an independent study project that details the implications of politicizing global health diplomacy. With a mixture of interviews, primary sources, and secondary sources, this project aims to explain how and why global health has become entrenched in politics in the world today. This paper explores the intersection between global health and foreign policy and analyzes the extent to which countries use medical interventions to achieve political and economic success. Medical interventions, like vaccines, have become increasingly significant, especially looking back at the recent pandemic. Therefore, this paper will also explore the complex nature …
The Legacy Of War: A Holistic Analysis Of Socio-Economic And Healthcare Resources For People Affected By Agent Orange In Việt Nam, Ashley Malone
The Legacy Of War: A Holistic Analysis Of Socio-Economic And Healthcare Resources For People Affected By Agent Orange In Việt Nam, Ashley Malone
Independent Study Project (ISP) Collection
The war between the United States of America and Northern Việt Nam lasting from 1955 to 1975 did not end with the removal of American troops from Vietnamese soil, but it rears its ugly head daily in the lives of those affected by Agent Orange and other various Rainbow Dioxins utilized as herbicides. This paper delves into the enduring legacy of the Resistance War Against America, specifically focusing on the socio-economic and medical ramifications for families and individuals affected by Agent Orange that persist half a century after its prohibition. The study scrutinizes the disparities in aid between American veterans …
A Special Message To You From Your Mda Dental Pac Chair, Elizabeth Ralstrom Dds, Ms
A Special Message To You From Your Mda Dental Pac Chair, Elizabeth Ralstrom Dds, Ms
The Journal of the Michigan Dental Association
This article is a message from the chair of the Michigan Dental Association’s political action committee thanking members for their contributions and encouraging them to make a contribution with their 2024 dues statement. It includes a listing of all contributors to the PAC over the past year.
Mda Advocacy Report: 2023 To Date, And What’S Next, Jason Mashni Dds
Mda Advocacy Report: 2023 To Date, And What’S Next, Jason Mashni Dds
The Journal of the Michigan Dental Association
This article is a recap of MDA legislative advocacy accomplishments and what is on the horizon for the remainder of 2023, written by the chair of the MDA Committee on Governmental and Insurance Affairs.
J Mich Dent Assoc October 2023
J Mich Dent Assoc October 2023
The Journal of the Michigan Dental Association
The October 2023 issue of the Journal of the Michigan Dental Association provides: A message from the chair of the Michigan Dental Association political action committee with a listing of donors and a report on MDA advocacy during 2023, which are this month’s cover stories. Also included is a Q&A feature on dealing with dental benefits companies. This month’s clinical article is a discussion of the management of a failing implant using guided bone regeneration and esthetic crown lengthening. Other features include a listing of 2023 MDA life members and a President’s Message on the dental workforce crisis in Michigan. …
Professional Virtue Of Civility And The Responsibilities Of Medical Educators And Academic Leaders, Laurence B Mccullough, John Coverdale, Frank A Chervenak
Professional Virtue Of Civility And The Responsibilities Of Medical Educators And Academic Leaders, Laurence B Mccullough, John Coverdale, Frank A Chervenak
Center for Medical Ethics and Health Policy Staff Publications
Incivility among physicians, between physicians and learners, and between physicians and nurses or other healthcare professionals has become commonplace. If allowed to continue unchecked by academic leaders and medical educators, incivility can cause personal psychological injury and seriously damage organisational culture. As such, incivility is a potent threat to professionalism. This paper uniquely draws on the history of professional ethics in medicine to provide a historically based, philosophical account of the professional virtue of civility. We use a two-step method of ethical reasoning, namely ethical analysis informed by pertinent prior work, followed by identifying the implications of clearly articulated ethical …
Spanish-Language Communication Of Covid-19 Information Across Us Local Health Department Websites, Isabelle S Kusters, Amanda M Gutierrez, Julianna M Dean, Mark Sommer, Anna Klyueva
Spanish-Language Communication Of Covid-19 Information Across Us Local Health Department Websites, Isabelle S Kusters, Amanda M Gutierrez, Julianna M Dean, Mark Sommer, Anna Klyueva
Center for Medical Ethics and Health Policy Staff Publications
The COVID-19 pandemic has brought new urgency to a longstanding problem: the US health system is not well-equipped to accommodate the country's large limited English proficient (LEP) population in times of national emergency. We examined the landscape of Spanish-language COVID-19 website information compared to information in English provided by health departments of the top 10 cities by population in the USA. For each city, coders evaluated three score measures (amount of information, presentation quality, and ease of navigation) for six content types (general information, symptoms, testing, prevention, vaccines, and live statistics) across six delivery modes (print resources, website text, videos, …
Hope And Optimism In Pediatric Deep Brain Stimulation: Key Stakeholder Perspectives, Natalie Dorfman, Lilly Snellman, Ynez Kerley, Kristin Kostick-Quenet, Gabriel Lazaro-Munoz, Eric A Storch, Jennifer Blumenthal-Barby
Hope And Optimism In Pediatric Deep Brain Stimulation: Key Stakeholder Perspectives, Natalie Dorfman, Lilly Snellman, Ynez Kerley, Kristin Kostick-Quenet, Gabriel Lazaro-Munoz, Eric A Storch, Jennifer Blumenthal-Barby
Center for Medical Ethics and Health Policy Staff Publications
Introduction: Deep brain stimulation (DBS) is utilized to treat pediatric refractory dystonia and its use in pediatric patients is expected to grow. One important question concerns the impact of hope and unrealistic optimism on decision-making, especially in "last resort" intervention scenarios such as DBS for refractory conditions.
Objective: This study examined stakeholder experiences and perspectives on hope and unrealistic optimism in the context of decision-making about DBS for childhood dystonia and provides insights for clinicians seeking to implement effective communication strategies.
Materials and methods: Semi-structured interviews with clinicians (n = 29) and caregivers (n = 44) were conducted, …