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Articles 1 - 30 of 59
Full-Text Articles in Disability Studies
From Crip Time To Care Time: How Library Administrators Can Support Professional Development Of Disabled Employees, Leah T. Dudak, Rhys Dreeszen Bowman Dr.
From Crip Time To Care Time: How Library Administrators Can Support Professional Development Of Disabled Employees, Leah T. Dudak, Rhys Dreeszen Bowman Dr.
School of Information Studies - Post-doc and Student Scholarship
Building on our 2025 In the Library with the Lead Pipe article "Cripping Conferences", this piece moves from naming the problem to offering solutions to library administrators. Disabled library workers face significant barriers to professional development, including the financial cost of attendance, the physical and mental toll of navigating inaccessible spaces, and the conflict between crip time and the neoliberal clock time that governs academic and library culture. While accommodations are needed, they are not enough; we need to interrogate the systems that exclude disabled employees. Written by two disabled LIS scholars, this piece offers library administrators practical guidance, from …
Disability Rates Among South Asian Immigrants In The U.S. Vary By Country Of Origin, Sobia Mushtaq, Marc A. Garcia
Disability Rates Among South Asian Immigrants In The U.S. Vary By Country Of Origin, Sobia Mushtaq, Marc A. Garcia
Population Health Research Brief Series
South Asian immigrants are often grouped together in U.S. health data, masking significant differences in health outcomes across subgroups. This brief uses data from the American Community Survey (ACS) 5-Year Public Use Microdata Sample (N = 6,643,738; 2020–2024) to describe disability rates among foreign-born adults from India, Pakistan, and Bangladesh residing in the U.S. The authors find that while South Asian immigrants as a group have lower disability rates than U.S.-born adults, this average is driven largely by Indian immigrants, who make up about 79% of South Asians in the U.S. Among adults aged 65 and older, Bangladeshi immigrants have …
How Do State Labor Policies Impact Disability For Latino Adults In The U.S.?, Marc A. Garcia, Blakelee R. Kemp, Erin Bisesti
How Do State Labor Policies Impact Disability For Latino Adults In The U.S.?, Marc A. Garcia, Blakelee R. Kemp, Erin Bisesti
Population Health Research Brief Series
Latino adults in the United States experience a greater burden of disability than non-Latino White adults. This brief summarizes findings from a study using data from the 2000-2016 American Community Surveys (ACS) linked to annual state policy data (1998-2014) on Latino adults ages 45-85 across 25 U.S. states (N=1,183,438). The authors describe how state labor policies (i.e., disability insurance, minimum wage protections, paid sick leave, unemployment compensation) predict disability among Latino adults. The authors find that disability rates among Latino adults are lower in states with more liberal labor policy contexts. Liberal state policies appear protective for both U.S.-born and …
Disability As A Critical Element In Exploring The Racial Wealth Gap, Nanette Goodman, Montserrat Avila-Acosta, Fitore Hyseni, Peter Blanck
Disability As A Critical Element In Exploring The Racial Wealth Gap, Nanette Goodman, Montserrat Avila-Acosta, Fitore Hyseni, Peter Blanck
The Lender Center for Social Justice
This report examines the racial wealth gap for people with disabilities in the United States. While the racial wealth gap is well-documented, with the median White household having a net worth 7-10 times higher than the median Black household, the wealth gap experienced by people with disabilities remains less explored. Recent data show that households without disabilities possess, on average, 6 times the net worth of households led by a working-age person with a disability. Wealth, defined as total household assets minus total liabilities, is a comprehensive measure of economic well-being and social stratification, and it has wide implications, including …
Dysconscious Ableism In The Public Library Advancing Disabled Patron And Staff Experiences Toward More Inclusive Programs And Services, William N. Myhill
Dysconscious Ableism In The Public Library Advancing Disabled Patron And Staff Experiences Toward More Inclusive Programs And Services, William N. Myhill
Dissertations - ALL
This dissertation investigates the operation of dysconscious ableism in public librarianship and its impact on disabled patrons and staff. Drawing on critical disability studies, critical theory, and ethnographic methods, the study explores how public library policies, practices, and professional beliefs perpetuate ableist norms and marginalize disabled individuals. The research is grounded in three central questions: (1) How does dysconscious ableism operate in public librarianship? (2) What are the lived experiences of disabled patrons and staff in public library spaces? (3) What strategies can disrupt dysconscious ableism and promote a more inclusive, anti-ableist praxis? Data were collected through interviews with librarians …
The Disability Squeeze: Out-Of-Pocket Expenses And Unmet Needs For Disability-Related Goods And Services In The U.S, Nanette Goodman, Daniel Mont, Zachary Morris, Ghenet Weldeslassie
The Disability Squeeze: Out-Of-Pocket Expenses And Unmet Needs For Disability-Related Goods And Services In The U.S, Nanette Goodman, Daniel Mont, Zachary Morris, Ghenet Weldeslassie
The Lender Center for Social Justice
This article documents the “disability squeeze,” where individuals face high out-of-pocket costs and unmet needs for disability supports. It calls for policy reforms to reduce inequities.
Disability Measures Used In U.S. Federal Surveys Significantly Underreport Disability Status, Nastassia Vaitsiakhovich, Scott D. Landes, Jean P. Hall, Bonnielin K. Swenor
Disability Measures Used In U.S. Federal Surveys Significantly Underreport Disability Status, Nastassia Vaitsiakhovich, Scott D. Landes, Jean P. Hall, Bonnielin K. Swenor
Population Health Research Brief Series
U.S. federal surveys commonly use two question sets to measure disability: the American Community Survey (ACS-6) and the Washington Group Short Set (WG-SS). This data slice uses data from the 2011-2012 National Health Interview Survey to examine the percentage of disabled people captured by these two different survey sets. The authors find that both sets of questions significantly underreport disability statuses that are not directly addressed in their question prompts, including intellectual disability, developmental disability, birth defects, mental health disability, diabetes, and cancer.
Letter To The Editor In Response To Performance Of The Washington Group Questions In Measuring Blindness And Deafness By Landes Et Al., Nanette Goodman, Daniel Mont, Jennifer Madans
Letter To The Editor In Response To Performance Of The Washington Group Questions In Measuring Blindness And Deafness By Landes Et Al., Nanette Goodman, Daniel Mont, Jennifer Madans
The Lender Center for Social Justice
This letter critiques the application of Washington Group survey questions for assessing blindness and deafness. The authors highlight limitations and suggest methodological refinements.
Disabilities Studies In Nursing Education – “Walking The Walk” Of Disability In Healthcare And Nursing, Clara Vesterman-Starr
Disabilities Studies In Nursing Education – “Walking The Walk” Of Disability In Healthcare And Nursing, Clara Vesterman-Starr
Dissertations - ALL
This dissertation critically examines the integration of disability studies into nursing education and its potential to address healthcare disparities faced by people with disabilities (PWDs). Despite the increasing visibility of disability rights and advocacy, nursing education continues to implicitly define disability as a deficit, focusing on PWD’s limitations rather than capabilities. This research highlights the pressing need for a paradigm shift toward incorporating disability studies frameworks, which emphasize disability as a cultural identity and social construct, into nursing curricula to better prepare nurses for equitable, patient-centered care. This study employs two research methods: autoethnography and survey. The autoethnography, rooted in …
Disability And Transformation: Exploring The Lived Experiences Of Students With Disabilities In South African Higher Education, Hester (Hetsie) Petronella Veitch
Disability And Transformation: Exploring The Lived Experiences Of Students With Disabilities In South African Higher Education, Hester (Hetsie) Petronella Veitch
Dissertations - ALL
In this dissertation, I explore the lived experiences of students with disabilities in South African higher education within the context of post-apartheid transformation. Using constructivist grounded theory and drawing on Critical Disability Studies, Dis/ability Critical Race Studies (DisCrit), Critical Whiteness Studies, and decolonizing methodologies, in this study, I examine how students make meaning of their educational experiences and how these align with transformation ideals. Through interviews with 16 students, the research reveals the complexities of disability identity, disclosure, institutional support, and the impact of intersecting marginalized identities. Findings highlight a disconnect between institutional rhetoric and students' realities, particularly in creating …
It Is Time To Stop Using The Washington Group Questions To Measure Disability In U.S. Federal Surveys, Scott D. Landes, Bonnielin K. Swenor, Jean P. Hall
It Is Time To Stop Using The Washington Group Questions To Measure Disability In U.S. Federal Surveys, Scott D. Landes, Bonnielin K. Swenor, Jean P. Hall
Population Health Research Brief Series
Disabled people are a population with health disparities, so accurate data on disability status is required to fully understand and mitigate these disparities. The National Health Interview Survey (NHIS) is the primary survey used to monitor the health of the U.S. population. Currently, the NHIS uses the Washington Group Short Set on Functioning (WGSS) questions to create a disability indicator that can be used to estimate the size of the disabled population and ascertain the severity of a person’s level of functional limitations. This study used data on U.S. adults ages 18+ from the 2010-2018 NHIS to determine how accurately …
Differences In Happiness And Perceived Meaning In Life Between U.S. Working-Age Adults With Versus Without A Self-Care Disability, Nastassia Vaitsiakhovich, Scott D. Landes, Shannon M. Monnat
Differences In Happiness And Perceived Meaning In Life Between U.S. Working-Age Adults With Versus Without A Self-Care Disability, Nastassia Vaitsiakhovich, Scott D. Landes, Shannon M. Monnat
Population Health Research Brief Series
Subjective wellbeing (SWB) - being happy or perceiving one’s life has meaning, is critical to good physical health. People who are happier and who report that their lives have meaning are healthier and live longer. In general, individuals with disabilities have worse SWB compared to those without disabilities. This brief summarizes findings from a study that used data from the National Wellbeing Survey collected in early-2021 to examine differences in happiness and perceived meaning in life between U.S. working-age adults (ages 18-64) with versus without a self-care disability (such as difficulty eating, using the toilet, or dressing without assistance) and …
Implications Of Childhood Autism Spectrum Disorder For Maternal Employment: United States Vs. Norway, Idunn Brekke, Andreea Alecu, Celestia Ohrazda, Jiwon Lee
Implications Of Childhood Autism Spectrum Disorder For Maternal Employment: United States Vs. Norway, Idunn Brekke, Andreea Alecu, Celestia Ohrazda, Jiwon Lee
Burton Blatt Institute
Objectives A country’s social welfare system may play an important role in maternal employment. This study compared the labor market participation of mothers of children within the United States (U.S.) and Norway to examine whether the child’s age and severity of the ASD affected mothers’ employment differently between the two countries. Methods The 2019 National Survey of Children’s Health was used for the U.S. analysis, and the 2019 administrative register data were used for the Norwegian analysis. A logit model was used to analyze the impact of a child’s age and ASD severity on maternal employment in the U.S. and …
Perceptions And Bias Of Small Business Leaders In Employing People With Different Types Of Disabilities, Nanette Goodman, Fitore Hyseni, Gary Shaheen, Peter Blanck
Perceptions And Bias Of Small Business Leaders In Employing People With Different Types Of Disabilities, Nanette Goodman, Fitore Hyseni, Gary Shaheen, Peter Blanck
Burton Blatt Institute
Purpose Despite existing employment-related legislation and governmental programs, people with disabilities continue to face significant barriers to competitive employment. These obstacles are partially due to biases among employers regarding the contributions of people with disabilities and perceptions about accommodation costs, which can affect their hiring decisions. Existing research on employment barriers and facilitators often treats people with disabilities homogenously and focuses mainly on large companies. This study helps to fill these gaps by exploring the motivations and challenges small employers face when hiring people with disabilities and how their attitudes and willingness to hire vary based on disability type. Methods …
Disability And Sibling Identity: An Arts-Based Inquiry, Linnea Franits
Disability And Sibling Identity: An Arts-Based Inquiry, Linnea Franits
Dissertations - ALL
This exploration into how sibling disability impacts identity utilizes qualitative, arts-based methodologies to generate data and situates this knowledge in an examination of other text-based and visually-based sibling memoirs. I rely on autoethnographic techniques with photography, assemblage and photo-elicitation using family photographs and medical images to explore my narrative identity and how my sister’s impairments and disability have impacted that. Five themes became crystalized as I recursively examined the data, led by the most expansive finding that sibling disability can create an epistemology or unique way of knowing that is different from other examples of embodied knowledge. Qualities of this …
(Crip)Ping Art Therapy: Imagining Alternatives To Ableism In Mental Health Treatment, Sara Bessette
(Crip)Ping Art Therapy: Imagining Alternatives To Ableism In Mental Health Treatment, Sara Bessette
Theses - ALL
This paper explores how the lived experiences of disabled art therapists can inform, through a qualitative and arts-based research approach, a theory and possible applications for improving accessibility within the field of art therapy for both disabled persons seeking intervention and for disabled professionals working in the field. The student researcher collected data through interviews with three self-identifying disabled art therapists or art therapists in training. The interviews were transcribed, coded and analyzed to develop a definition of accessibility, along with a grounded theory on how accessibility can be improved within the field of art therapy. The study explored possible …
Learning In Relation: The Experiences Of Disabled Genderqueer Youth Learning In Nature, Emilee Baker
Learning In Relation: The Experiences Of Disabled Genderqueer Youth Learning In Nature, Emilee Baker
Dissertations - ALL
Summer camps span the United States, with approximately 26 million children attending overnight or “stay away” summer camps when not in school (ACA as cited in Gay, 2022). Twenty-six million children attending summer camps is approximately half the number of children attending public school during the school year, which was approximately 49.4 million in 2021 (NCES, 2023). Arguably, summer camp should be for all kids (Gay, 2022), but these numbers represent that not all kids have access to summer camp. Camp is not school, but that does not mean the knowledge located and curated outside of schools is not beneficial …
Disability Inclusion In Corporate Supplier Diversity Initiatives, Nanette Goodman, Fatma Altunkol Wise, Fitore Hyseni, Peter Blanck
Disability Inclusion In Corporate Supplier Diversity Initiatives, Nanette Goodman, Fatma Altunkol Wise, Fitore Hyseni, Peter Blanck
Burton Blatt Institute
Purpose Since the 1960s, federal and state governments and private-sector companies have used supplier diversity initiatives to ensure their supply chains include businesses owned by traditionally economically disadvantaged or underrepresented groups. Originally concentrated on racial and ethnic minority groups, programs have expanded to include businesses owned by women, veterans, LGBTQ+ individuals, and, in some cases, people with disabilities. This study investigates the extent to which disability is included in supplier diversity initiatives of Fortune 500 companies. Methods This paper uses a novel data set created by the authors with information on supplier diversity initiatives and Disability, Equity, and Inclusion (DEI) …
Are We Accurately Counting The Disabled Population In The United States?, Nastassia Vaitsiakhovich, Scott D. Landes, Bonnielin K. Swenor
Are We Accurately Counting The Disabled Population In The United States?, Nastassia Vaitsiakhovich, Scott D. Landes, Bonnielin K. Swenor
Population Health Research Brief Series
Over 1 in 4 Americans are disabled (26.8%), yet health disparities for this subpopulation remain under-addressed. Tackling health disparities for people with disabilities requires effective public health and disability policies that cannot be developed without standardized and accurate disability data. The National Health Interview Survey (NHIS) annually collects data on health outcomes for the non-institutionalized U.S. population, including those with disabilities. The questions to measure disability in the NHIS have changed over time, raising concerns about how these changes affect the accuracy of the count of people with disabilities in the U.S. This brief summarizes findings from a recent study …
The Americans With Disabilities Act And Equal Access To Public Spaces, Barry A. Whaley, Jonathan Martinis, Giuseppe Pagano, Peter Blanck
The Americans With Disabilities Act And Equal Access To Public Spaces, Barry A. Whaley, Jonathan Martinis, Giuseppe Pagano, Peter Blanck
Burton Blatt Institute
No abstract provided.
Economic Equity And People With Disabilities: Development And Characterization Of A Novel Index, Bhavneet Walia, Katherine Mcdonald, Barry Whaley, Vinh Nguyen
Economic Equity And People With Disabilities: Development And Characterization Of A Novel Index, Bhavneet Walia, Katherine Mcdonald, Barry Whaley, Vinh Nguyen
Burton Blatt Institute
Here, we develop two new social indices: the ADA PARC Absolute Economic Opportunity Index and the ADA PARC Relative Economic Opportunity Index. These indices allow us novel examinations of economic equity between people with and without disabilities within a U.S. state and between people with disabilities in different states using aggregations of multiple component economic indicators. These represent the first efforts to offer U.S. indices of this focus, an important development given the distinct economic needs of people with disabilities and the value in accounting for distinct national policies. The indices rely on U.S. Census and other data on economic …
How Did Healthcare Affordability Change For U.S. Adults With Intellectual Disability After The Implementation Of The Affordable Care Act?, Nastassia Vaitsiakhovich
How Did Healthcare Affordability Change For U.S. Adults With Intellectual Disability After The Implementation Of The Affordable Care Act?, Nastassia Vaitsiakhovich
Center for Policy Research
Individuals with intellectual disabilities are marginalized in the United States and have worse health outcomes than their peers without disabilities. Lower socioeconomic status and a reliance on social welfare benefits and public health insurance programs often create barriers to access to care. In 2010, the Affordable Care Act (ACA) aimed to make healthcare services more accessible. This brief summarizes the findings from a recent study that examined patterns in healthcare affordability under the ACA or noninstitutionalized adults ages 18-64 with intellectual disabilities. The findings suggest that the ACA increased the likelihood that adults with intellectual disabilities would access medical, specialty, …
How Did Healthcare Affordability Change For U.S. Adults With Intellectual Disability After The Implementation Of The Affordable Care Act?, Nastassia Vaitsiakhovich
How Did Healthcare Affordability Change For U.S. Adults With Intellectual Disability After The Implementation Of The Affordable Care Act?, Nastassia Vaitsiakhovich
Population Health Research Brief Series
Individuals with intellectual disabilities are marginalized in the United States and have worse health outcomes than their peers without disabilities. Lower socioeconomic status and a reliance on social welfare benefits and public health insurance programs often create barriers to access to care. In 2010, the Affordable Care Act (ACA) aimed to make healthcare services more accessible. This brief summarizes the findings from a recent study that examined patterns in healthcare affordability under the ACA or noninstitutionalized adults ages 18-64 with intellectual disabilities. The findings suggest that the ACA increased the likelihood that adults with intellectual disabilities would access medical, specialty, …
Cdc Guidelines Hide The Alzheimer Disease Mortality Burden Among Adults With Down Syndrome, Scott D. Landes
Cdc Guidelines Hide The Alzheimer Disease Mortality Burden Among Adults With Down Syndrome, Scott D. Landes
Population Health Research Brief Series
Alzheimer's disease is much more common among adults with than without Down syndrome. While an estimated 11.3% of adults in the general population over age 65 have Alzheimer's disease, nearly all adults with Down syndrome have Alzheimer's neuropathology by age 40, and half develop Alzheimer's disease by age 60. However, CDC guidelines for completing death certificates hide the actual Alzheimer's disease mortality burden among adults with Down syndrome. This brief summarizes results from a recent study seeking to accurately measure the disparity in the Alzheimer's disease mortality burden between adults with versus without Down syndrome for the years 2005-2019.
The Association Between Child Behavior Problems And Parenting Stress In Families Of Children With Disabilities In The United Arab Emirates (Uae): Family Resilience Processes As Protective Factors, Sara Alansaari
Theses - ALL
No abstract provided.
Critical Aspirations: Disability, Education, And Community Cultural Wealth In A Sanctuary City, Chelsea Stinson
Critical Aspirations: Disability, Education, And Community Cultural Wealth In A Sanctuary City, Chelsea Stinson
Dissertations - ALL
This study explores the needs and experiences of refugee parents of emergent bilingual students labeled as disabled (EB/LADs) and their networks of interpreters and community-based educators. This investigation focuses on the relationships (and disconnects) within these networks related to language, migration, culture, race, disability, and special education experiences in formal and community-based schooling contexts. The bulk of extant scholarship regarding parental experiences in special education typically centers school-based experiences rather than community- and home-based experiences, such as daily acts of nurturing and communication (e.g., Cioè-Peña, 2018). However, school-based spaces, processes, and resources are in many ways inaccessible to EB/LAD families …
Presence Of Large Racial-Ethnic Differences In Adhd Prevalence Among U.S. Children, Ashlyn W.W.A Wong
Presence Of Large Racial-Ethnic Differences In Adhd Prevalence Among U.S. Children, Ashlyn W.W.A Wong
Population Health Research Brief Series
This data slice compares adolescent ADHD diagnoses across racial-ethnic groups. It shows large racial/ethnic differences, with the highest rates among Non-Hispanic (NH) Alaskan Native/American Indian children, followed by NH White, NH Black, and NH Other Race children. Rates were substantially lower for Hispanic and NH Asian.
Racial-Ethnic Disparities In Educational Attainment Among Adults With Intellectual Disability, Erin Bisesti
Racial-Ethnic Disparities In Educational Attainment Among Adults With Intellectual Disability, Erin Bisesti
Population Health Research Brief Series
Racial-ethnic minorities with intellectual disability experience compound disadvantage because of the intersection of their disability and racial minority group status. This research brief examines whether birth cohort trends (from the early-1900s to late-1990s) in educational attainment among adults with intellectual disability differed among non-Hispanic Whites, non-Hispanic Blacks, and Hispanics. Results show that although all racial-ethnic groups saw a substantial increase in the probability of attaining a high school degree or more over subsequent birth cohorts, the timing and amount of education attained varied across racial-ethnic groups.
Introducing The Intellectual And Developmental Disability (Idd) Age-At-Death Data Tracker, Scott Landes, Nader Mehri, Janet Wilmoth
Introducing The Intellectual And Developmental Disability (Idd) Age-At-Death Data Tracker, Scott Landes, Nader Mehri, Janet Wilmoth
Population Health Research Brief Series
Adults with intellectual and developmental disabilities (IDD) die younger than those without such disabilities in the U.S. This data slice introduces a new data tracking tool that shows age-at-death trends for adults with intellectual disability, Down syndrome, cerebral palsy, and other rare developmental disabilities, as well as those without IDD. The website, which will be updated annually, allows users to compare age-at-death patterns for each IDD group by U.S. state, year, biological sex, and race-ethnicity.
More Uncertainty Leads To Less Accuracy On Death Certificates For Adults With Intellectual Disability, Erin Bisesti, Scott D. Landes
More Uncertainty Leads To Less Accuracy On Death Certificates For Adults With Intellectual Disability, Erin Bisesti, Scott D. Landes
Population Health Research Brief Series
Causes of death are often inaccurately reported on death certificates for individuals with intellectual disability. This research brief examines whether uncertainty surrounding the death is associated with the inaccurate reporting of intellectual disability as the underlying cause of death. Results show that increased uncertainty surrounding deaths, especially in instances of choking related deaths, increases the probability that intellectual disability is inaccurately reported as the underlying cause of death.