Social and Behavioral Sciences Commons^™

Clinicians’ Views On A Patient Decision Aid For Deep Brain Stimulation In Parkinson’S Disease, Hillary S King, Jennifer Blumenthal-Barby, Benjamin H Levi, Sol De Jesus, Harini Sarva, Laura Y Cabrera

Center for Medical Ethics and Health Policy Staff Publications

Introduction: For people with Parkinson's disease (PD), deciding whether to pursue deep brain stimulation (DBS) has become increasingly complex. Evidence suggests current approaches to collaborative decision-making may fall short of accepted standards. Thus, a decision support intervention, such as a patient decision aid (PtDA) may be warranted. PtDAs have been shown to improve patients' knowledge, expectations, and participation in decision-making for other, similar healthcare decisions. We therefore sought to assess neurologists' awareness of, and experience using, PtDAs, and to solicit their opinions on the ideal features of a PtDA for PD patients considering DBS.

Methods: Sixteen United States-based neurology clinicians …

Organizational Causes Of Chronic Absenteeism: Unpacking The Conditions For Learning To Increase Regular Attendance, Melissa Glover

Educational Leadership Professional Doctorate Dissertations

This study employed an improvement science methodology, using plan-do-study-act (PDSA) cycles of improvement, to address the persistent problem of chronic absenteeism within the Gateway School District, where annual absentee rates hovered around 45% and were historically 10% higher for students with disabilities compared to their nondisabled peers. The leadership team engaged in a thorough review of parent and student perceptions of school and aligned findings with Chang’s (2019) conditions for learning framework to pinpoint actionable areas for growth. These findings were then organized into a theory of action using a driver diagram approach. This foundational work led to the identification …

From Measuring Clicks To Inclusion: Coverage Of Digital Adolescent Sexual And Reproductive Health Programs, Miriam Temin, Christabel Gero

Adolescents and Young People

Digital platforms have become popular tools to address adolescents’ sexual and reproductive health and rights (ASRHR) in low- and middle-income countries. Digital programming has the potential to bridge the SRHR information gap, especially for adolescents who face SRHR risks. Given what is known about the digital divide, it is essential to understand who digital ASRHR programming reaches, who is excluded, and how coverage aligns with risk. This brief summarizes an exploration that aims to stimulate interest and seed research on issues of coverage of digital programming for adolescents and its public health importance.

Inferential Statistics For Industrial Organizational Psychologists: A Practical Guide For Testing Hypotheses Using R, Caitlin Lapine

Open Touro Created

2026

This text aims to provide a practical guide for students in industrial organizational psychology or related fields to complete inferential statistics using R open-source programming language. It provides information about when to use particular statistical analyses and how to perform those with statistical software.

Engage & Empower Vol. 2, Elhanan Marvit

Open Touro Created

2026

Engage & Empower, Volume 2 is the second installment in the “Engage & Empower” OER series by Elhanan Marvit LCSW. It serves as the logical next step following Volume 1 (Spring 2025). While the first volume introduced foundational concepts in social work practice, ethics, and generalist skills This volume guides students and readers deeper into the applied, interpersonal, and reflective dimensions of becoming a competent practitioner.

Students begin their reading journey as they strengthen their understanding of professional competence. They achieve this by learning how to navigate field placements, engage in supervision, manage boundaries, and integrate feedback. The text …

Organ Chips And Translational Research: Identifying And Examining New Ethical Issues, Melanie Jeske

Center for Medical Ethics and Health Policy Staff Publications

Organ chips, also known as organ-on-a-chip devices, tissue chips, or microphysiological systems, have emerged over the last decade as a promising translational technology amidst growing concern about the translational crisis between laboratory research and patient bedside. Pointing to high rates of failure between nonhuman animal models and safety and efficacy in humans, organ chips and similar new approach methods have attracted substantial public and private investment. As human-cell-based alternatives to animal models, organ chips promise more predictive, efficient, and ethical platforms for pharmaceutical and toxicity testing. Engineered cultivation systems that enable cells to assemble into tissue-like structures (e.g. kidney, brain, …

Putting The L In Elsi: Legal Methods For Bioethics Research, Anya E R Prince, Benjamin Berkman, Donald Ford, Dov Fox, Christi Guerrini, Amy Koopmann, Natalie Ram, Jessica L Roberts, Kayte Spector-Bagdady, Sonia Suter

Center for Medical Ethics and Health Policy Staff Publications

Lawyers and law professors are increasingly involved in interdisciplinary scientific teams and grant research to answer ethical, legal and policy questions related to biomedical topics. Yet, the methods that lawyers use to conduct legal research and analysis are not always familiar to scientists and social scientists conducting peer review of a proposed project with legal aims or a publication reporting a legal study. To better facilitate interdisciplinary ethical, legal, and social implications collaboration, there is a need to better explain how legal research methodologies can provide robust tools to address a range of nuanced biomedical questions. This paper explores …

Differences Between Government, Consortium, And Private Database Stewards Impacting The Genomic Data Market: A Survey Of U.S. Academic Genetic Researchers., Amanda K Greene, J Denard Thomas, Kaitlyn Jaffe, Luyun Chen, Kerry A Ryan, Brian J Zikmund-Fisher, J Scott Roberts, Amy L Mcguire, Katherine Hendy, Kayte Spector-Bagdady

Center for Medical Ethics and Health Policy Staff Publications

Background: Despite major shifts in U.S. federal government data sharing requirements, their impact, and relation to researcher choice of database, are underexplored. This study surveyed genetic researchers regarding trends, priorities, perceptions of quality, impact on research outcomes, and genomic data sharing and use across government, consortium, and private databases.

Methods: As part of an exploratory sequential mixed methods project, we surveyed 294 U.S.-based genomic academic researchers.

Results: Genetic researchers generally have a choice between databases, which allows them to prioritize data quality. This might explain recent trends toward the use of government and consortium databases away from private ones. Respondents …

Can I Get A Witness? The Ethical Dimensions Of Family Presence In Patient Suffering, Jennifer Blumenthal-Barby, Trevor M Bibler, Holland Kaplan, Adam Omelianchuk, Joanna Smolenski

Center for Medical Ethics and Health Policy Staff Publications

For patients who are suffering, the bedside presence of a family member can provide comfort, and many people hold that there is moral value in being present with a conscious, suffering patient. Yet what is the moral significance of the absence of family members when a patient is minimally conscious or unconscious and not aware of their absence? Clinicians are often troubled when family members and surrogate decision-makers who are able to spend a significant amount of time at an unconscious, seriously ill patient's bedside do not do so. Clinicians feel frustrated that they must bear the burden of witnessing …

Anything But Endo: Diagnostic Buck-Passing In Endometriosis Diagnosis, Rita Dexter, Megan Kitts, Heather Welty, Melanie Jeske

Center for Medical Ethics and Health Policy Staff Publications

People living with endometriosis, a disease in which tissue similar to the lining of the uterus grows elsewhere in the body, often experience prolonged diagnostic journeys because of symptom variability, normalisation of period pain and other symptoms, and lack of awareness of the condition. In this article, we analyse the endometriosis diagnostic journey through the lens of epistemic injustice. Drawing on in-depth interviews with 52 people living with endometriosis in the United States, we introduce the concept of diagnostic buck-passing to characterise the phenomenon wherein individuals who seek treatment for their symptoms end up stuck in a cycle of seeing …

Access To Digital Health Technologies: Personalized Framework And Global Perspectives, Sanjiv M Narayan, Mina K Chung, Demilade Adedinsewo, Luisa C C Brant, Leslie L Davis, David Duncker, Jennifer L Hall, Janet K Han, Carolyn S P Lam, Eldrin Lewis, Joseph Loscalzo, Manlio F Márquez, Vasiliki Rahimzadeh, Fatima Rodriguez, Prashanthan Sanders, Emma Svennberg, Kenneth Stein, Mintu Turakhia, Clyde Yancy, Antonis A Armoundas

Center for Medical Ethics and Health Policy Staff Publications

The emergence and rapid adoption of digital health technologies (DHT) present unprecedented opportunities to democratize and reduce disparities in health care by monitoring health and disease at the point of care in all patients. However, limited access to DHT is becoming a major obstacle to realizing these goals. Access to DHT is influenced not only by well-recognized social determinants of health, but also by digital determinants of health, such as digital literacy and the need for broad access to digital infrastructure, as well as commercial and economic factors. Addressing these challenges and designing unbiased systems of care are essential to …

Toward Ethical Provenance Tracking: The Ga4gh Model Data Access Agreement (Daa), Alexander Bernier, Bartha Maria Knoppers, Jonathan Lawson, Robyn Mcdougall, Maili Raven-Adams, Vasiliki Rahimzadeh

Center for Medical Ethics and Health Policy Staff Publications

Purpose: Standardizing contractual clauses that govern data access enables research institutions to responsibly steward genomic and related health data while enabling its efficient downstream reuse.

Methods: We describe a document analysis study using both qualitative and comparative law analytical approaches to identify the most common categories of clauses from 29 different data access agreements used by human biomedical research consortia globally. We furthermore characterized the legal positions and standard practices for each common element of the agreement and synthesized across them to develop model clauses. A total of 3 discussion sessions were organized virtually to refine the clauses among members …

The Open Knowledge Fellowship: An Opportunity For Transformative Learning At The Doctoral Level, Elvis Bakaitis, Jill Cirasella, Patrick Mcgee

Publications and Research

How can we integrate the principles, practicalities, and complexities of open educational resources (OER) and open access scholarly literature into graduate-level education? At the Graduate Center of the City University of New York (CUNY), the popular and successful Open Knowledge Fellowship offers a much-needed intervention in doctoral education by addressing these topics and associated debates. Between 2020 and 2025, the intensive six-week Fellowship program was offered 12 times and trained over 200 doctoral students from across the disciplines in the selection and use of openly licensed resources in the courses they teach. These 200+ students then taught their revamped courses …

All Games Have Equilibria, M. Ali Khan, Arthur Paul Pedersen, Maxwell B. Stinchcombe

Publications and Research

Research on Nash equilibrium existence for infinite games has grown into a patchwork of technical preconditions and counterexamples. This paper presents a unified program in equilibrium theory by revising the predominant model of mixed strategies based on countable additivity. A game is specified by a nonempty set of players and, for each player, a nonempty action set and a bounded von Neumann-Morgenstern utility function. Every such game is shown to admit a Nash equilibrium in finitely additive mixed strategies. In addition, the equilibrium correspondence for any such game is shown to be nonempty, compact-valued, and upper hemicontinuous, and the same …

Resilience For Whom? A Study In Pathways And Production Of Unequal Risk In The Rockaways, Aaryan M. Nair

Publications and Research

This paper investigates how climate adaptation policies in the Rockaway Peninsula of New York City produce unequal outcomes despite their ostensibly neutral design, framing resilience as an environmental and climate justice problem. Situated within a landscape marked by stark socioeconomic disparities, aging housing stock, and high exposure to coastal flooding, the study demonstrates that existing adaptation strategies—centered on uniform technical standards, insurance frameworks, and large-scale coastal infrastructure—systematically advantage actors with greater financial and institutional capacity while leaving low-income residents, particularly renters, disproportionately vulnerable.

The analysis identifies three core dynamics underlying this “unequal-by-design” resilience regime: (1) the stratified feasibility of compliance …

Gendered Resistance: Women’S Strategies Against Military Dictatorships, Argentina And Chile, Maricarmen Canales-Moreno

Publications and Research

This article compares the Madres de Plaza de Mayo in Argentina and the Agrupación de Familiares de Detenidos Desaparecidos (AFDD) in Chile to examine how women transformed their identities as mothers, wives, and daughters into strategies of political resistance under military dictatorship. It argues that maternal imagery, public mourning, and the transformation of private grief into collective defiance enabled women-led human rights organizations to challenge authoritarian regimes while strategically drawing on gender roles those regimes sought to enforce. The article traces the emergence of both organizations, their occupation of public space, hunger strikes, legal action, and engagement with international human …

2025 Oregon Statewide Homelessness Estimates, Minji Cho, Jacen Greene, Marisa Zapata, Franklin H. Spurbeck

Homelessness Research & Action Collaborative Publications and Presentations

The Point-in-Time (PIT) Count is a census of people experiencing both sheltered and unsheltered homelessness on a single night in January. The federal government requires this at least every other year as a condition of funding it distributes to Continuums of Care (CoCs), networks of government agencies and service providers that manage homelessness services and funding in specific regions. In 2025, all Oregon CoCs conducted an unsheltered count and submitted both unsheltered and sheltered PIT Counts data.

This report provides county-level unsheltered and sheltered totals for all Oregon counties and across the state, as well as the Housing Inventory Count …

Density Dependence During Evolutionary Rescue Increases Extinction Risk But Does Not Prevent Adaptation, Laure Olazcuaga, Brett A. Melbourne, Scott W. Nordstrom, Ruth A. Hufbauer

Publications, Reports and Presentations

Evolutionary rescue allows populations to adapt and persist despite severe environmental change. While well studied under density-independent conditions, the role of density dependence, including competition, remains unclear. Theoretical models offer conflicting predictions, with density dependence either increasing extinction risk or enhancing adaptation. We empirically tested how density dependence influences evolutionary rescue by exposing experimental populations to a stressful environment for six generations under density-dependent or independent conditions, with populations where either evolution was possible or was prevented by replacing individuals each generation. Density dependence suppressed population size and increased extinction risk, whereas density independence enabled rapid growth, especially in genetically …

Subjective Glib Dynamics: Using An Alien Society To Investigate Reactions To Leader And Member Norm Deviance, Catie Burtch

Cal Poly Humboldt theses and projects

Social groups are built by members and leaders who form consensus on the defining attributes of their groups. Individual group members look to senior members and leaders to learn what it means to be a member of that group. Thus, norm maintenance is an important aspect of group health. The subjective group dynamics model details the specific group contexts under which people derogate ingroup members for transgressing norms. However, ingroup leaders are treated differently from regular group members and are given leniency for their transgressions. The current research extends these two bodies of work by directly comparing the consequences of …

Navigating Liminality: Building Resources For And With Undocumented Students, Yaneyry Delfin Martinez

Cal Poly Humboldt theses and projects

Rooted in Community-Based Participatory Research (CBPR) and Liberation Sociology, this project outlines an institutional blueprint for the resources and support systems needed to address the lived realities of undocumented students at Cal Poly Humboldt (CPH). Conducted during the second Trump Administration amidst escalating hostility towards immigrants and attacks on DEI initiatives, this work documents both the structural conditions shaping undocumented students’ lives and the collective resistance that emerged in response. Furthermore, it examines how immigration policy, access to and restrictions on federal and state aid, geographic conditions, and on-campus barriers reproduce and maintain legal liminality within higher education. Grounded in …

Repairing Estranged Death: Care, Politics And Ecology In The Us Funeral Industry, Cecilia Catherine Rodriguez

Cal Poly Humboldt theses and projects

The industrialization of death practices in the US has separated humanity from natural cycles while centering white settler colonial norms that marginalize other cultural ways of caring for the dead. Through necropolitics, the contemporary death industry embodies capitalist values of commodification and a monopolization of care, separating death from community and its ecological cycles. Black and Indigenous feminist knowledges understand death as not a discrete event but instead as an ongoing process that shapes our relationships with both the human and more-than-human worlds. Engaging with feminist political ecologies, I extend a conversation about care and repair to contemporary death practices …

Decolonizing Restorative Justice: A Teaching Development Project, Lacy Felice Mitchell

Cal Poly Humboldt theses and projects

The coloniality of power serves as a central axis within the matrix of domination that characterizes global capitalist modernity, as Anibal Quijano famously argued. This power is rooted in particular ways of looking, seeing, and understanding social reality, anchored in Eurocentrism as an epistemological paradigm for the hegemonic discourse produced by the West against both internal and external categories of “other.” Such categories still inform the production of knowledge in educational settings. In this project, I engage in a critique of the coloniality of power to explore its implications and potential for critical pedagogical practice within the context of sociology …

Examining The Physiological Stress-Reducing Effects Of Virtual Nature Exposure And Slow Breathing, Jesse Benefiel

Cal Poly Humboldt theses and projects

In a time of excess stress, it is essential to examine accessible stress-reduction methods. Research has demonstrated that virtual nature exposure and slow breathing can independently reduce stress, but the literature is lacking with regard to their combined effects. The present study aimed to replicate independent effects of breathing and nature on stress and to test for potential effects, including whether their combination would produce an interaction effect. Using a 2 Environment (Natural v. Control) by 2 Breathing (Slow v. Normal) between-subjects design, 63 participants completed a modified color-word Stroop task to induce stress and were then exposed to either …

Rethinking Belonging In First-Year Student Support: A Mixed-Methods Evaluation Of Eop/Sss Programing At Cal Poly Humboldt, Elizabeth Rose Silver

Cal Poly Humboldt theses and projects

This mixed-methods project examines the role of the Educational Opportunity Program and Student Support Services (EOP/SSS) first-year orientation programs, particularly STEM Summer Bridge, in supporting feelings of belonging and persistence. While institutional efforts often frame student success through metrics such as retention and concepts like sense of belonging, this project interrogates how these are experienced and understood by students themselves. Quantitative analyses compared one-year persistence rates between STEM Summer Bridge participants and multiple comparison groups across three cohorts (2022–2024). Results showed no statistically significant differences in persistence; however, STEM Summer Bridge participants demonstrated persistence rates comparable to or slightly higher …

Neoliberalism And The Crimes Of The Powerful: Transforming The State During The First Trump Era (2017-2021), Charles Brandon Lonon

Cal Poly Humboldt theses and projects

This thesis examines the way the American capitalist state transformed during Donald Trump’s first presidential term (2017-2021), especially focusing on neoliberal policy and the framework of the crimes of the powerful. This thesis aims to answer the question of how neoliberalism transformed the state under Donald Trump. Drawing on Nicos Poulantzas’ theory of authoritarian statism and Frank Pearce’s conception of crimes of the powerful, this thesis examines how the state becomes more authoritarian to protect capital accumulation and the capitalist class. The research shows that Trump weaponized authoritarian populist rhetoric that targeted women, immigrants, and vulnerable populations to build support …

Taking A Seat In The Circle: Decolonizing Gender Roles That Argue Against The Participation Of Feminine Bodies At The Big Drum, Juli Suzukawa

Cal Poly Humboldt theses and projects

The origins of the Big Drum can be traced back to the 1860s when Tail Feather Woman, a Dakota woman, had a vision of its creation as a tool of resistance. The Big Drum has since expanded and can now be seen at various Indigenous ceremonies and social events. However, there has been controversy regarding the participation of feminine and queer bodies. While reasons for this vary, it has also contributed to harm amongst Indigenous youths that have a more fluid stand on gender identity and may not conform to colonial “gender norms”. In this paper, I will explore how …

Reclaiming Presence: An Anthropological Study Of Digital Disconnection And Meaning-Making, Leslie De Paz

Cal Poly Humboldt theses and projects

Human attention is increasingly at risk in an unregulated digital ecosystem where overconsumption shapes neurological function, social interaction, and the ways people make meaning of everyday life. Dominant discourse around digital overuse tends to medicalize the problem, framing it as individual addiction or clinical dysfunction. In this thesis, I argue that such framing obscures what a cultural phenomenon is fundamentally, one in which people are actively questioning their relationship with technology, building awareness, and developing practices that help them slow down and reclaim agency within algorithmically mediated environments. This study draws on 22 semi-structured interviews with Gen Z and millennial …

Endocranial Lesions: A Paleopathological Study Of Late Medieval Skeletal Remains From Żelewo Poland, Francesca Aleen Meyer

Cal Poly Humboldt theses and projects

The site of Żelewo is located in a rural area of northwestern Poland, a region historically known as Pomerania. Skeletal remains from the cemetery associated with the archaeological site Żelewo 1-3, dating mostly to the 13th-15th centuries, are likely associated with a nearby Cistercian monastery. Numerous individuals from this site show evidence of endocranial lesions. To evaluate potential factors associated with the lesions, a differential diagnosis was performed based on macroscopic observations of endocranial lesion morphology and distribution. This study takes into account estimated age at death, biological sex, and other signs of pathology in the body. Potential confounding factors, …

“Thank You For Listening To Us”: Incorporating Community Context And Perspectives Into Sea-Level Rise Adaptation Planning For Fields Landing & King Salmon, California, Clara Riggio

Cal Poly Humboldt theses and projects

Fields Landing and King Salmon, California are two low-lying, coastal communities on Humboldt Bay (Wigi). These communities already experience coastal flooding during the highest astronomical tides each year, and flood conditions are expected to worsen as sea levels continue to rise. The Fields Landing & King Salmon (FLKS) Living with Water Project was created as a partnership between Humboldt County departments of Planning & Building and Public Works, along with support from social science researchers at Cal Poly Humboldt, including the author. In Chapter 1, I describe the co-production approach used throughout the project, including analysis of four dilemmas that …

Living With Water In Fields Landing & King Salmon: Community Knowledge Of Flooding And Adaptation Strategies In Coastal California, Kailin Sepp

Cal Poly Humboldt theses and projects

Known as “ground zero,” Humboldt Bay is among the most vulnerable areas to sea-level rise (SLR) due to geological and tectonic factors on the West Coast. While the land subsides, oceans rise, resulting in an area with one of the highest recorded rates of relative SLR on the West Coast. The residential communities of Fields Landing and King Salmon in South Humboldt Bay already experience regular coastal flooding. There is a need for better information and planning to understand the vulnerability to flooding/SLR and plan for adaptation. Typically, studies addressing flooding, such as vulnerability assessments and adaptation plans, are developed …