Social and Behavioral Sciences Commons^™

New Measures To Capture End Of Life Concerns In Huntington Disease: Meaning And Purpose And Concern With Death And Dying From Hdqlife (A Patient-Reported Outcomes Measurement System)., N E Carlozzi, N R Downing, M K Mccormack, S G Schilling, J S Perlmutter, E A Hahn, J S Lai, S Frank, K A Quaid, J S Paulsen, D Cella, S M Goodnight, J A Miner, M A Nance

Rowan-Virtua School of Osteopathic Medicine Departmental Research

PURPOSE: Huntington disease (HD) is an incurable terminal disease. Thus, end of life (EOL) concerns are common in these individuals. A quantitative measure of EOL concerns in HD would enable a better understanding of how these concerns impact health-related quality of life. Therefore, we developed new measures of EOL for use in HD.

METHODS: An EOL item pool of 45 items was field tested in 507 individuals with prodromal or manifest HD. Exploratory and confirmatory factor analyses (EFA and CFA, respectively) were conducted to establish unidimensional item pools. Item response theory (IRT) and differential item functioning analyses were applied to …

Hdqlife: Development And Assessment Of Health-Related Quality Of Life In Huntington Disease (Hd), N E Carlozzi, S G Schilling, J-S Lai, J S Paulsen, E A Hahn, J S Perlmutter, C A Ross, N R Downing, A L Kratz, M K Mccormack, M A Nance, K A Quaid, J C Stout, R C Gershon, R E Ready, J A Miner, S K Barton, S L Perlman, S M Rao, S Frank, I Shoulson, H Marin, M D Geschwind, P Dayalu, S M Goodnight, D Cella

Rowan-Virtua School of Osteopathic Medicine Departmental Research

PURPOSE: Huntington disease (HD) is a chronic, debilitating genetic disease that affects physical, emotional, cognitive, and social health. Existing patient-reported outcomes (PROs) of health-related quality of life (HRQOL) used in HD are neither comprehensive, nor do they adequately account for clinically meaningful changes in function. While new PROs examining HRQOL (i.e., Neuro-QoL-Quality of Life in Neurological Disorders and PROMIS-Patient-Reported Outcomes Measurement Information System) offer solutions to many of these shortcomings, they do not include HD-specific content, nor have they been validated in HD. HDQLIFE addresses this by validating 12 PROMIS/Neuro-QoL domains in individuals with HD and by using established PROMIS …

Issue 41, David Bell

NoteBooth

"For All The World To See" exhibit; Dr. Allen Lanham named Illinois Library Association luminary

El Rol De Los Supermercados Chinos En La Integración Social De La Población China En Buenos Aires / The Role Of Chinese Supermarkets In The Social Integration Of The Chinese Population In Buenos Aires, Dana Marrero

Independent Study Project (ISP) Collection

Aunque la inmigración china es algo relativamente nuevo en la historia de Argentina, las personas de aquel país han tenido una presencia fuerte en la sociedad de Buenos Aires, la ciudad Capital. En gran parte, esto es debido al nicho económico en el que muchos de los trabajadores chinos se han concentrado: los supermercados. Los pequeños mercados de barrio manejados por dueños chinos son tan comunes que a menudo los porteños simplemente dicen frases como “voy al chino” para referirse a estos comercios. Y con razón: en el 2011, aproximadamente el 35% de todos los mercados de Argentina pertenecía a …

Fish Diversity And Coral Health Of Tanzania's Reefs: A Comparative Study Between The Ushongo Village Reef And The Fungu Zinga Reef Over Time, Della Turque, Corinne Casper

Independent Study Project (ISP) Collection

The world’s oceans are becoming increasing acidic due to global climate change, posing a threat to marine ecosystems, including coral carbonate systems. Environmental threats are exacerbated by human development stressors as well: growing populations, dependency on marine resources, and unsustainable practices invaluable marine ecosystems at risk. Tanzania’s coral reef system extends for 3580 km2 (Muhando et al. 2008) near the Tanga region, serving over half a million people who are highly dependent on fishing and other marine resources as their livelihoods (Samoilys et. al. 2008). With Tanzania’s population rapidly growing, the unsustainable pressure on coral reefs for sustenance and livelihood …

Proxy Dating In Iceland Testing The Validity Of Silene Acaulis As A Phytometric Proxy, Madelyn Grant

Independent Study Project (ISP) Collection

Climate change is causing drastic changes in the cryosphere, particularly in the Arctic region where average warming is 1.9 times greater than in the rest of the world due to Arctic amplification. Understanding the response of essential climate variables such as glaciers and ice caps to rapid Arctic warming is essential to predicting future changes in the Arctic region and around the world. Proxy dating methods can help construct a record of warming-induced glacial retreat in areas where long-term monitoring systems are not in place. In Arctic regions, the cushion plant Silene acaulis represents one of the only feasible proxies …

Tomando En Cuenta: Perspectivas Sobre Las Tomas Del Movimiento Estudiantil Chileno / Taking Into Consideration: Perspectives On The Tomas Of The Chilean Student Movement, María Navarro-Gutiérrez

Independent Study Project (ISP) Collection

Hoy día, actores en el movimiento estudiantil de Chile utilizan varias formas de protesta para comunicar sus deseos e ideas. Entre ellos, la toma de la escuela chilena, durante la cual los estudiantes “ocupan” a su escuela por un periodo de tiempo, se ha convertido en una de las formas de protesta más comunes y emblemáticas del movimiento. Muchas tomas ofrecen un espacio seguro, fuera de las calles, donde los estudiantes pueden instigar un dialogo entre ellos y la administración sobre sus preocupaciones. Sin embargo, aunque las tomas seguidas producen resultados positivos para ambos lados, acusaciones de la pérdida de …

Live And Dead Coral Cover On Three Reefs And Public Perceptions Of Degradation Around Almirante Bay, Bocas Del Toro, Phoebe Thompson

Independent Study Project (ISP) Collection

Almirante Bay is a lagoonal body of water off the western Caribbean coast of Panama. The islands within the bay are popular tourist destinations, drawing visitors from around the world to explore beaches and coral reefs. However, the reefs in Almirante Bay are continually exposed to both natural and anthropogenic stressors, such as temperature inversions, boat pollution, sedimentation from dredging, and chemical runoff from coastal banana plantations. Because the economy of the area is heavily dependent on tourism, this creates an interesting dynamic in that the main source of income (tourism) could be detrimental to a main attraction of the …

Reef Fish And Coral Assemblages On Hospital Point And Near Bastimentos Island, Panama, Elaine Shen

Independent Study Project (ISP) Collection

Because worldwide declines coral reef health are of major concern, studying coral reefs through the lens of conservation efforts at local scales is essential for determining and monitoring effective policy measures. In the Bocas del Toro Archipelago, there are conflicts of interest between exploitative rapid tourism development, overfishing practices, and national efforts to conserve the local marine biodiversity. Coral and reef fish species abundance richness, diversity, evenness, and similarity were measured to see how coral and reef fish assemblages changed between protected and unprotected areas. A total of 329 fish and 322.5 square meters of benthos were analyzed using underwater …

Realizing Urban Water Pollution Impact In Melbourne, Australia Through Painting, Gregory Suplinskas

Independent Study Project (ISP) Collection

Throughout the month of November 2016, I undertook a creative environmental art project in Melbourne, Australia. I chose to create a water-soluble oil painting (dimensions 3 ft. x 4 ft.) that represents water pollution problems in the city of Melbourne, particularly in Port Phillip Bay. These problems include toxic stormwater runoff, plastics pollution and plastic nurdles, as well as nutrient buildup and algal overgrowth. The painting includes messages regarding sustainability; sustainable action limits the use of our natural resources so that humans can preserve the environment for future generations rather than degrade it. In the painting, I combine conceptual and …

Demise From Within: Factionalism In Maoist Parliamentary Politics In Nepal, Jehdeiah Mixon

Independent Study Project (ISP) Collection

Over the last decade, the Communist Party of NepalMaoists Center (CPNMaoist Center) has suffered from fragmentation. Currently led by Prime Minister and chairman Prachanda, tensions within the CPNMaoist Center have resulted in former CPNMaoist Center chairman Mohan Baidya splitting with the party in 2012, followed by former Prime Minister Dr. Baburam Bhattarai in 2015. Prachanda, Baidya and Bhattarai, who are credited for igniting the Maoist People’s War (19962006), now lead three separate political factions within parliament. Standard explanations for the splits point to ideological differences as the basis of the splits, due to the CPNMaoist Center’s history of factionalism along …

Water Resource Change And Management: Implications Of Climate Change And Water Resource Management For Pastoral Herders In Bayan Ulgii, Rachel Ryan

Independent Study Project (ISP) Collection

Mongolia is the 8th most vulnerable country in the world to climate change. The water regime of Mongolia is therefore experiencing intensive change with significant effects in the availability, distribution, and security of water resources. The implications of this change are exacerbated when aligned with poor water resource management, an issue that is prevalent as water regime change challenges current water management systems. These implications specifically affect the vulnerable rural population of Mongolian herders who maintain the practice of nomadic pastoralism. In the western province of Bayan Ulgii, the change in the numerous glaciers and other water resources that are …

Multi-Sector Analysis Of The Progress And Challenges Of Soil-Transmitted Helminth Eradication In Rural Udaipur, Jessica Ellis

Independent Study Project (ISP) Collection

India is home to 240 million children currently at risk of Soil-Transmitted Helminthiasis, which is spread via unclean water, soil, and food, and causes acute pain and malnutrition. While acknowledging the research debates over WASH and mass drug administration, this study seeks to identify the systemic multidisciplinary issues affecting STH elimination efforts in rural Udaipur. Twenty-three interviews were conducted in villages, government departments, NGOs, and medical sectors to identify the challenges within each approach to deworming, and their experiences with multi-sectoral collaboration. The most recurring issues across disciplines were need for invested local leadership, increase in health literacy of adults, …

Welcome To The Streets: Tracing The Development Of Street Art In Nepal Since 2010, Malik Earle

Independent Study Project (ISP) Collection

Graffiti is a process. There really is no beginning or ending to a piece. Graffiti art is practicing a design, bringing it to a wall, letting it take shape, and allowing it to interact with the environment. What makes graffiti unique, among other things, is its interaction with the environment. When international graffiti influences and local conditions drove inspired artists to bring their art to the streets, a new art form emerged in Nepal. “Local conditions” labels the forces ranging from personal drive to the history of public art in Nepal, which fuel the movement. The present study aims at …

Why Has “Development” Become A Political Issue In Indian Politics?, Aseema Sinha

CMC Faculty Publications and Research

Most observers of India have an implicit model of how Indians vote. They assume that voters in India act on their primary identities, such as caste or community, and that parties seek votes based on group identities—called vote banks—that can be collated into majorities and coalitions. K.C. Suri articulates the logic of this dominant model:

People of this country vote more on the basis of emotional issues or primordial loyalties, such as caste, religion, language or region and less on the basis of policies. The victory or defeat of a party depends on how a party or leaders marshal support …

Our Silent News, October-December 2016

Our Silent News

A newsletter published for Deaf Catholics in Fort Worth, TX

Our Silent News Finding Aid

Office Of Ministry With The Deaf Newsletter, October 2016

Office of Ministry with the Deaf Newsletter

A newsletter published for Deaf Catholics in Springfield, MA

Office of Ministry with the Deaf Newsletter Finding Aid

St. Francis Of Assisi Catholic Church And Center For The Deaf Sunday Bulletin, October 1, 2016

Saint Francis of Assisi Catholic Church and Center for the Deaf Sunday Bulletin

A newsletter published for Deaf Catholics in Landover Hills, MD

St. Francis of Assisi Catholic Church and Center for the Deaf Sunday Bulletin Finding Aid

Catholic Deaf Circle Newsletter, October-November-December 2016

Catholic Deaf Circle Newsletter

A newsletter published for Deaf Catholics in Sante Fe, NM

Catholic Deaf Circle Newsletter Finding Aid

St. Dominic Deaf Center, October-November 2016

Saint Dominic Deaf Center

A newsletter published for Deaf Catholics in Houston, TX

Saint Dominic Deaf Center Finding Aid

Newsletter Catholic Deaf Of Detroit, October 2016

Newsletter Catholic Deaf of Detroit

A newsletter published for Deaf Catholics in Detroit, MI

Newsletter Catholic Deaf of Detroit Finding Aid

Santa Clara Magazine, Volume 57 Number 4, Fall 2016, Santa Clara University

Santa Clara Magazine

3 - MISSION MATTERS

4 - THE BEST RUGBY TEAM EVER. By Sam Scott '96.

6 - QUESTIONS

Creating A Diversity Audit & Web Audit To Address The Current Fundraising Issues Of The Veteran Sports Association, Steven Shirokikh

Capstone Projects 2015-Present

The Veteran Sports Association was founded in June 2003 in Brooklyn, NY by current Executive Director Eduard Luchin.The mission of the Veteran Sports Association is“To provide helpful and useful resources to any and all former professional athletes from overseas who have recently immigrated to the United States.” Veteran Sports Association is interested in restoring its current fundraising efforts by increasing the number of attendees at their events.This project will look at why the Veteran Sports Association feels the need to restore its fundraising efforts and what can be done to push them in the

Creating An Agency Coordination Plan For Care Compass Network, Megan E. Griffiths

Capstone Projects 2015-Present

Care Compass Network (CCN) is a new non-profit organization that partners with local hospitals, community based organizations, and local government units whose aim is to transform the way Medicaid beneficiaries receive benefits from New York State. As a part of New York State’s Delivery System Reform Incentive Program (DSRIP), Care Compass Network collaborates with various agencies throughout a nine- county Performing Provider System (PPS) in the Southern Tier of New York. My capstone project is to develop an Agency Coordination Plan for CCN, which the organization must submit to New York State in order to meet requirements. This plan will …

Smoothing And Standardizing The Hiring Process: A Panel Interview Summary Sheet, Pascal E. Trappe

Capstone Projects 2015-Present

HRA/DSS currently helps over three million New Yorkers through the administration of more than 12 major public assistance programs and has an operating budget of $9.7 billion. The specific department that I worked in was the Office of Staff Resources (OSR).

Exploring Length-Based Vehicle Count Data, Byad Ahmed

Civil and Environmental Engineering Master's Project Reports

The development of Intelligent Transportation Systems (ITS) requires high-quality traffic information within most urban areas worldwide, and under growing pressure for improving traffic management, there has been an increasing urge to collecting and monitoring of traffic data. One of the most reliable and recommended technology for drive thru or traffic control is the loop vehicle detection system. On the Portland freeway system, new software has been installed that allows the reporting of vehicle length in bins. This research investigates the use of this data (length based) by exploring time series analyses of the vehicle counts as freight and non-freight movement.

Ethical Leadership: Not Everyone Responds Equally, W. Randy Evans, Richard S. Allen, Russell W. Clayton

Organization Management Journal

Theoretical frameworks associated with ethical leadership have not fully considered the nature of the leader–follower exchange, and, in addition, few studies have considered the impact of follower individual differences in reactions to ethical leadership. Our research extends the customary social exchange perspective of transactional and relational resources by accounting for the ideological resources (i.e., value-oriented principles) that can also imbue the leader–subordinate relationship. Second, differences in equity sensitivity are hypothesized to moderate the influence of ethical leadership on employee attachment to the organization. We predicted that the impact of ethical leadership on organizational commitment, job satisfaction, and organizational identification is …

The Benefits Of Attending The Annual Biomedical Research Conference For Minority Students (Abrcms): The Role Of Research Confidence, Bettina J. Casad, Amy L. Chang, Christine M. Pribbenow

Psychology Faculty Works

The Annual Biomedical Research Conference for Minority Students (ABRCMS) is designed to support undergraduate students’ professional development as future scientists. Juniors, seniors, and postbaccalaureates who attended ABRCMS during 2008–2011 were emailed a link to an online questionnaire in which they reported their experiences at the conference. Attendees reported many ABRCMS-provided benefits. Frequency of attending or presenting at ABRCMS is positively related to science self-efficacy, research confidence, sense of belonging in science, and intentions to pursue a research degree in graduate school. Increased research confidence predicts graduate school plans and intentions for a research career in science; however, men were slightly …

How We’Ll Fight The Next Deadly Virus Ted Talk Annotated Resource List, Susie Roy

Undergraduate Research Award

No abstract provided.

Manufacturing And Engineering [Career Paper], Mahdi Alawami

Undergraduate Research Award

No abstract provided.