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Articles 31 - 60 of 33759

Full-Text Articles in Social and Behavioral Sciences

Pilot Medical Student Greeters For Pediatric Cystic Fibrosis Patient-Centering, Katherine Schoeffler, Mulan Tang, Jennifer Dannelley, Nighat Mehdi, Dee Wu Nov 2026

Pilot Medical Student Greeters For Pediatric Cystic Fibrosis Patient-Centering, Katherine Schoeffler, Mulan Tang, Jennifer Dannelley, Nighat Mehdi, Dee Wu

Patient Experience Journal

This pilot study assessed the impact of a medical student-led volunteer and companionship program on anxiety during annual phlebotomy in children aged 3–7 with cystic fibrosis. Pediatric cystic fibrosis patients undergo frequent medical procedures that may lead to anxiety and distress during clinical encounters. The medical student volunteer met with patients prior to phlebotomy, providing companionship and encouragement using 360 degree animal-themed videos before and during phlebotomy, and collected responses via surveys from patients and their parents. Children rated nervousness using a five-point cartoon-face scale, while parents used a 1–4 rating and qualitative comments to assess the intervention. Twelve patients …

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Health Justice Education To Enhance Overall Patient Experience In The Context Of Acute-Care Hospitals, A Sivasubramaniam, C. Blanchard, S Pattabiraman, C Uzoh, Y Khalid Nov 2026

Health Justice Education To Enhance Overall Patient Experience In The Context Of Acute-Care Hospitals, A Sivasubramaniam, C. Blanchard, S Pattabiraman, C Uzoh, Y Khalid

Patient Experience Journal

Within our healthcare system today, the prevalence of biomedical traditions and notions of health and well-being greatly shape how care is provided and perceived. Less apparent, however, is their histories and their manifestations today.14 Our healthcare system is rooted in systems of oppression such as colonialism, racism and capitalism; that perpetuate violence, barriers and inequities, and maintain hierarchies of dominating and non-dominating groups that have become commonplace. There is a need for radical change, and critical measures are underway to create a more equitable healthcare system. With the increased recognition of equity, diversity and inclusion (EDI), concepts like cross-cultural …

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`Bridging The Gap': A Directed Content-Analysis Evaluating Regulatory Guidance For Education In Person Centred Care For Heatlhcare-Professional Students, Lindsay Harrison, Vivienne Byers, Damon Berry Nov 2026

`Bridging The Gap': A Directed Content-Analysis Evaluating Regulatory Guidance For Education In Person Centred Care For Heatlhcare-Professional Students, Lindsay Harrison, Vivienne Byers, Damon Berry

Patient Experience Journal

Background: Person-centred care (PCC) is a values-based approach which is central in international and Irish healthcare-policy due to its association with improved health and social outcomes. Research indicates that healthcare-professional (HCP) students struggle to implement PCC, prompting calls for education in PCC. While HCP registration boards play a key governance role in professional HCP education, it is unclear whether or how they support education in PCC. Objective: To evaluate whether medical, nursing and HCP registration boards in Ireland promote PCC within standards for professional education and competence. Methods: Directed content-analysis was conducted with 33 publicly available regulatory documents governing pre-registration …

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Healthcare Provider Communication Training: The Influence Of Training Participation On Engagement And Patient Experience, Amanda Woods Herron, Phoebe Hessen, Katelyn J. Cavanaugh, Reeni J. Luke, Courtney L. Holladay Nov 2026

Healthcare Provider Communication Training: The Influence Of Training Participation On Engagement And Patient Experience, Amanda Woods Herron, Phoebe Hessen, Katelyn J. Cavanaugh, Reeni J. Luke, Courtney L. Holladay

Patient Experience Journal

Communication is essential to healthcare leadership. The challenges healthcare providers face are growing in breadth and complexity, and providers rely on effective communication to face many of these challenges. Training is one avenue commonly invested in by organizations to provide resources to grow critical skills, such as communication. The present investigation leverages the Job Demands-Resources model to explore the impact of healthcare provider participation in communication training on organizational outcomes at the individual level. The study was conducted in a healthcare organization, wherein 65 healthcare providers participated in a communication training centered around the personality framework Real Colors® , and …

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Interpreter Use, Code-Switching, And Patient Outcomes In U.S. Clinics: A Narrative Review For Graduate Medical Education, Ruth Ese Otaigboria, Kenneth Anaeto Nwankwo, Mishael Ifeanyi Nonyelum, Ayodele Blessing Ayo-Ige, Aliaa Mohammed Soliman, Tumoe Heni Nov 2026

Interpreter Use, Code-Switching, And Patient Outcomes In U.S. Clinics: A Narrative Review For Graduate Medical Education, Ruth Ese Otaigboria, Kenneth Anaeto Nwankwo, Mishael Ifeanyi Nonyelum, Ayodele Blessing Ayo-Ige, Aliaa Mohammed Soliman, Tumoe Heni

Patient Experience Journal

Language discordance between clinicians and patients in U.S. clinics is a recognized driver of communication-sensitive adverse events, yet the synthesis linking specific linguistic practices to clinical outcomes remains incomplete, and graduate medical education programs lack a unified evidence base on which to build interpreter-mediated competencies. This narrative review evaluates whether interpreter use, translanguaging, and code-switching constitute an interactional pathway through which cultural and explanatory models shape outcomes for limited-English-proficient (LEP) patients, and derives recommendations for graduate medical education. Searches across MEDLINE/PubMed, Embase, CINAHL, PsycINFO, and Scopus covered January 2000–September 2025 and prioritized U.S. immigrant and LEP encounters that linked language …

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A Qualitative Phenomenological Study On The Perceived Impact Of Health Literacy On Health Care Experiences Among Haitian Immigrant Adults In The U.S., Tanya Bouchette, Laurie Latvis Nov 2026

A Qualitative Phenomenological Study On The Perceived Impact Of Health Literacy On Health Care Experiences Among Haitian Immigrant Adults In The U.S., Tanya Bouchette, Laurie Latvis

Patient Experience Journal

Several important aspects of health care leadership include improving patient health literacy, patient health care experiences, quality of patient care, efficiency of care, and access to health education. This qualitative research study was aimed to understand the perceived effects of health literacy on the Haitian immigrants' health care experiences. A self-administered survey was used to collect primary demographic and qualitative data. The survey consisted of 12 questions, 9 demographic questions and 3 open-ended qualitative questions. Validity and reliability were ensured by thoroughly reviewing the survey instrument, consulting with three subject matter experts, and completing three cognitive interviews. Demographic and qualitative …

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Evaluating Patient Experience And Access To Eye Care For Underserved Populations At Orange County Eye Project Free Clinic: Survey Study, Negin Hadjiabdolhamid, Khuong Trong Dinh, Yurixi Lopez-Miranda, Rajat Agrawal Nov 2026

Evaluating Patient Experience And Access To Eye Care For Underserved Populations At Orange County Eye Project Free Clinic: Survey Study, Negin Hadjiabdolhamid, Khuong Trong Dinh, Yurixi Lopez-Miranda, Rajat Agrawal

Patient Experience Journal

Underserved populations in the United States face persistent barriers to eye care. This cross-sectional survey study assessed patient experience and ophthalmic care access at a free clinic serving medically underserved adults. A mixed-methods survey was conducted at the Orange County Eye Project, which provides comprehensive ophthalmology care to underserved residents of Southern California. Surveys were distributed through convenience sampling to 32 adult patients between January and February 2025, and all submitted surveys were included. Offered in English and Spanish, the survey included structured and open-ended questions addressing appointment scheduling, transportation, wait times, understanding of eye health, and overall satisfaction. Survey …

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Patient-Reported Experiences Of Communication In Tertiary Otorhinolaryngology Outpatient Care: An Exploratory Cross-Sectional Study, Jasna Mesarić, Iva Lončarić Kelečić, Maroje Višić Nov 2026

Patient-Reported Experiences Of Communication In Tertiary Otorhinolaryngology Outpatient Care: An Exploratory Cross-Sectional Study, Jasna Mesarić, Iva Lončarić Kelečić, Maroje Višić

Patient Experience Journal

Objective: Patient experience (PE) is a key healthcare quality indicator, particularly in tertiary and specialised outpatient settings where organisational complexity increases communication demands. This study examined patient-reported experiences of communication in a tertiary otorhinolaryngology (ORL) outpatient clinic and their association with sociodemographic characteristics. Methods: This exploratory cross-sectional study analysed survey data from adult patients attending a tertiary ORL outpatient clinic in Croatia between April and May 2025 (N = 189). PE was assessed by analysing 21 items grouped into three communication-related domains: communication and relationship, non-verbal communication, and treatment information. All items were rated on a 5-point Likert scale. Composite …

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Patient Reported Experiences Of Anxiety And Depression Screenings In A Canadian Adult Cystic Fibrosis Clinic, Pat Macdiarmid, April Tanzler, Waqar Younas, Terra Stephenson, Nick Kanaan, Bradley S. Quon Nov 2026

Patient Reported Experiences Of Anxiety And Depression Screenings In A Canadian Adult Cystic Fibrosis Clinic, Pat Macdiarmid, April Tanzler, Waqar Younas, Terra Stephenson, Nick Kanaan, Bradley S. Quon

Patient Experience Journal

The International Depression Epidemiological Study (TIDES) found rates of anxiety and depression 2–3 times higher in the cystic fibrosis (CF) population than in community samples. Following recommendations of the International Committee on Mental Health in CF we began conducting screenings at our Canadian Adult CF Clinic using the GAD-7 and PHQ-9, referring patients to mental health (MH) supports within and outside the clinic. Our aim was to provide a service patients themselves experienced as supportive of their MH. We found few studies on patient reported experiences of MH screening programs in CF clinics, and none in the Canadian context. Patients …

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Patient Reported Experiences Of Mental Health And Substance Use In British Columbia Emergency Departments: A Patient-Oriented Exploration Of Survey Data, Ross Duncan, Ed Martin, Louise Yeoh, John Grogan, Riyad B. Abu-Laban Nov 2026

Patient Reported Experiences Of Mental Health And Substance Use In British Columbia Emergency Departments: A Patient-Oriented Exploration Of Survey Data, Ross Duncan, Ed Martin, Louise Yeoh, John Grogan, Riyad B. Abu-Laban

Patient Experience Journal

Project Title: Patient reported experiences of mental health and substance use in British Columbia Emergency Departments: A patient-oriented exploration of survey data. Background: Existing surveys of BC EDs have failed to engage patients to guide research. A provincial level survey of patient experiences in emergency departments was identified as a rich source of data for collaboration level patient-oriented research, with patient partners co-developing research questions and focus of data analysis. Methods: This Patient Oriented Research recruited three patient partners who, through a co-creation process, prioritized dimensions and questions on communication with providers, culturally safe and compassionate care, overall ED rating, …

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Implementation Of An Integrated Prems-Proms Survey In Saudi Arabia: A Cross-Sectional Pilot Study, Muhammad Waseem Shahzad, Adel Al-Shabaan, Ammar Mattar, Eman Alturaiki, Naseem Almulla, Daniel Hage, Dragana Gough, Michael Foytik, Adam Higman Nov 2026

Implementation Of An Integrated Prems-Proms Survey In Saudi Arabia: A Cross-Sectional Pilot Study, Muhammad Waseem Shahzad, Adel Al-Shabaan, Ammar Mattar, Eman Alturaiki, Naseem Almulla, Daniel Hage, Dragana Gough, Michael Foytik, Adam Higman

Patient Experience Journal

PROMs capture health-related quality of life from the patient's perspective, while PREMs assess how patients experience care delivery. Although each measure provides distinct insights, their integration into a single survey offers a more comprehensive view of care quality, enabling healthcare systems to understand not only what outcomes patients achieve, but how they experience receiving care. Despite growing international momentum for combined PREMs-PROMs measurement, their integrated use has not been systematically assessed in Saudi Arabia. This pilot study evaluated the feasibility and psychometric properties of two internationally validated PROMs tools, EQ-5D-5L and PROMIS-10 Global Health, when administered within an existing nationally …

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Evaluating Quality Of Care Under Nigeria's National Health Insurance Scheme: A Thematic Analysis Of Patient Narratives At A Tertiary Care Public Hospital, Nkiru Nwamaka Ezeama, Nene Okunna, Chukwuemeka Okwudili Ezeama Nov 2026

Evaluating Quality Of Care Under Nigeria's National Health Insurance Scheme: A Thematic Analysis Of Patient Narratives At A Tertiary Care Public Hospital, Nkiru Nwamaka Ezeama, Nene Okunna, Chukwuemeka Okwudili Ezeama

Patient Experience Journal

Objective: Patient narratives provide in-depth insights of user quality ratings of healthcare delivery but are underutilized. The assessment of patient satisfaction often relies on survey data based on quantifiable indicators. While quantifiable indicators provide a snapshot of patient perceptions of the care they receive, they tend to gloss over pertinent details to understand their experiences and perceptions of the quality of care they received. This study assessed patients' narratives to better understand patient satisfaction ratings of healthcare services provided under the National Health Insurance Scheme (NHIS) in Nigeria. Method: A cross-sectional survey using semi-structured interviews of 406 participants was conducted …

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Evaluation Of Patient And Patient Relative Complaints From The Perspective Of Patient Rights, Hilal Kamer, Öznur Karaoğlu, Oya Sancar Nov 2026

Evaluation Of Patient And Patient Relative Complaints From The Perspective Of Patient Rights, Hilal Kamer, Öznur Karaoğlu, Oya Sancar

Patient Experience Journal

This study seeks to analyze patient and patient-relative grievances from a patient rights standpoint and to pinpoint significant issues in healthcare service provision. A qualitative research design was utilized, and data were gathered via an online grievance forum. The analysis encompassed 1,731 complaints from patients and their relatives. Concurrent thematic and content analysis methodologies were employed, resulting in the development of themes and subthemes derived from the Turkish Patient Rights Regulation. All analyses were performed utilizing NVivo software. The results reveal that grievances were mostly focused on the issue of the Right to Access Health Services. Principal concerns encompassed insufficient …

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Beyond Survival: A Qualitative Study Of Recovery Barriers And Facilitators Following Emergency Laparotomy, Christie L Martin, Samuel Sn Theesfeld, Genevieve B Melton, Elizabeth C Wick, Lindsay L Welton, Samuel E O'Brien, Miranda K Considine, Jenna L Marquard Nov 2026

Beyond Survival: A Qualitative Study Of Recovery Barriers And Facilitators Following Emergency Laparotomy, Christie L Martin, Samuel Sn Theesfeld, Genevieve B Melton, Elizabeth C Wick, Lindsay L Welton, Samuel E O'Brien, Miranda K Considine, Jenna L Marquard

Patient Experience Journal

This mixed-methods study aimed to identify multi-level barriers, facilitators, and actionable interventions for recovery following emergency laparotomy, a high-acuity event where traditional clinical metrics often fail to capture the nuances of patients' lived experience during convalescence. We conducted semi-structured interviews and surveys with 15 adults recovering from emergency laparotomy and subsequently completed human-in-the-loop AI-assisted thematic analysis. Findings reveal a ``satisfaction paradox'': despite 93.4% satisfaction with acute hospital care, patients experienced a protracted recovery marked by significant distress across 5 themes: (1) Quality and Coordination of Care; (2) Life Impact and Financial Burden; (3) Patient Education and Information Modalities; (4) Environmental …

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Centering Torture Survivor Voices From Their Experiences, Linda Piwowarczyk, Nandini Agarwal, Kathryn Price, Dmitrii Krivorotko, Arslan Kasimov, Alexandra Brinker, Suzanne Wilson, Salma Amin, Tithi D. Baul Nov 2026

Centering Torture Survivor Voices From Their Experiences, Linda Piwowarczyk, Nandini Agarwal, Kathryn Price, Dmitrii Krivorotko, Arslan Kasimov, Alexandra Brinker, Suzanne Wilson, Salma Amin, Tithi D. Baul

Patient Experience Journal

Background: Human rights violations persist globally, with torture routinely utilized as a mechanism to repress democratic expression and silence social movements. The Boston Center for Refugee Health and Human Rights (BCRHHR) is a hospital-based program providing services to refugees, survivors of torture (SOT), and asylum seekers. Emerging evidence suggests that circumstances encountered after resettlement may exert a greater traumatogenic effect than those experienced in the country of origin or along the migration journey. We performed a qualitative needs assessment interviewing 22 randomly selected patients who received BCRHHR services at least twice between January 1, 2021, and December 31, 2021. SOT …

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Exploring Lived Experiences To Gain Insight Into The Support Needs Of People Following Stoma Surgery: A Qualitative Study, Julia Kittscha, Val Wilson, Vida Bliokas, Greg Fairbrother Nov 2026

Exploring Lived Experiences To Gain Insight Into The Support Needs Of People Following Stoma Surgery: A Qualitative Study, Julia Kittscha, Val Wilson, Vida Bliokas, Greg Fairbrother

Patient Experience Journal

Aim To describe the supports that are important to people in the early weeks after stoma surgery and explore participants' thoughts and feelings about these supports. Design A consumer-researcher co-design approach was used to design and undertake a qualitative patient interview study among people who have had stoma surgery. People who had an existing stoma were trained as co-researchers to work alongside the clinician researcher. Method Semi-structured interviews were conducted with consenting participants 6-8 weeks after stoma surgery. Thematic data analysis was conducted by the research team using Braun, Clarke\citealpbib1 six step-phase reflexive thematic analysis, members of the team initially …

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What Matters To Patients When Preparing For A Colonoscopy: A Mixed-Methods Study Of Needs And Worry, Louise Bang Grode, Anne Højager Nielsen, Anette Viftrup, Lene Lehmkuhl, Hejdi Gamst-Jensen, Brigitta R Villumsen, Malene Kaas Larsen, Lone Dragnes Brix Nov 2026

What Matters To Patients When Preparing For A Colonoscopy: A Mixed-Methods Study Of Needs And Worry, Louise Bang Grode, Anne Højager Nielsen, Anette Viftrup, Lene Lehmkuhl, Hejdi Gamst-Jensen, Brigitta R Villumsen, Malene Kaas Larsen, Lone Dragnes Brix

Patient Experience Journal

Background: Colonoscopy is essential for diagnosing, treating, and preventing colorectal cancer, and many patients experience considerable procedure worry. Limited evidence exists on which aspects of preparation and the procedure matter most to patients or how these relate to their Degree-of-Worry (DOW). Understanding these factors is important for improving patient readiness and care quality. This study explores what matters to patients when preparing for colonoscopy, including how they prepare, their perceived readiness, and their DOW. Method: A flash-mob study with a convergent mixed methods was conducted, collecting quantitative and qualitative data simultaneously across multiple sites. Results: Among 203 patients completing the …

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What Patients Wear Matters: Evidence On Adaptive Hospital Wear, Dignity, And Care Experience, Akhilesh Kumar, Sukhvir Singh Nov 2026

What Patients Wear Matters: Evidence On Adaptive Hospital Wear, Dignity, And Care Experience, Akhilesh Kumar, Sukhvir Singh

Patient Experience Journal

Traditional hospital gowns can compromise dignity, comfort, and care efficiency by prioritizing procedural access over the lived experience of hospitalization. This narrative review synthesizes interdisciplinary literature published between 2000 and 2025 across patient experience research, nursing, medical textiles, apparel design, and disability studies, with searches conducted in Scopus, Web of Science, and Google Scholar. Across settings, evidence indicates that patient-centered hospital wear—using breathable and antimicrobial textiles, ergonomic closure systems (eg, hook-and-loop, magnetic snaps, modular access flaps), and inclusive sizing—can reduce unwanted exposure, improve perceived dignity and autonomy, simplify dressing for patients and caregivers, and support clinical access when aligned with …

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Unlocking Healthcare Navigation: Key Tasks, Challenges, And Facilitators – A Narrative Review, John Zaki Nov 2026

Unlocking Healthcare Navigation: Key Tasks, Challenges, And Facilitators – A Narrative Review, John Zaki

Patient Experience Journal

Background: Healthcare is a complex and costly system that often creates distressing experiences for individuals managing their own or their family's health. Introduced in the United States around 1990 to reduce healthcare disparities, healthcare navigation aims to support patients and caregivers in navigating healthcare systems effectively and efficiently. This review explores the scope and importance of healthcare navigation services across clinical settings. Methods: This narrative review was informed by a broader literature search conducted as part of the author's thesis work, which included database searches, grey literature exploration, and manual screening of key medical journals. However, all studies that met …

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Navigating Emergency Care: Understanding Older Adults' Experiences At The Kingston Health Sciences Centre, Nilany Thanabalasinham, Susan A. Bartels, Melanie Walker Nov 2026

Navigating Emergency Care: Understanding Older Adults' Experiences At The Kingston Health Sciences Centre, Nilany Thanabalasinham, Susan A. Bartels, Melanie Walker

Patient Experience Journal

Objectives: Older adults (65+) in Ontario have the highest emergency department (ED) visit rates, yet often face delayed care and unmet healthcare needs. This study investigates how older adults perceive and navigate their ED care experiences at the Kingston Health Sciences Centre (KHSC), compared to younger adults and identifies factors driving their positive and negative care experiences. Methods: A secondary mixed-methods analysis was conducted using cross-sectional data on ED care experiences at the KHSC. Qualitative data included anonymously recorded micronarratives describing participants' ED experiences. Quantitative data included patients' numerical interpretations of their shared experiences through sensemaking triad questions. Quantitative descriptive …

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Partnering With Patients: Perspectives Of Doctors, Nurses, And Managers Regarding Patient Participation And Feedback In Hospital Settings In Jamaica, Camelia Thompson, Desmalee Holder Nevins, Dawn Walters, Cameal Chin-Bailey, Elon Thompson, Minerva Thame, Kenneth James Nov 2026

Partnering With Patients: Perspectives Of Doctors, Nurses, And Managers Regarding Patient Participation And Feedback In Hospital Settings In Jamaica, Camelia Thompson, Desmalee Holder Nevins, Dawn Walters, Cameal Chin-Bailey, Elon Thompson, Minerva Thame, Kenneth James

Patient Experience Journal

This study assesses the perspective of doctors and nurses regarding participation of patients in care delivery and explores perspectives of managers on patient feedback mechanisms in two Jamaican hospitals. A mixed-methods convergent parallel design study was employed. The quantitative component involved a cross-sectional survey of 328 doctors and nurses, selected through stratified random sampling, using a self-administered questionnaire assessing patient participation. Qualitative data were collected through semi-structured interviews with 17 senior managers, which were analyzed thematically. Quantitative and qualitative findings were integrated during interpretation. The majority of respondents (90.8%) reported that they very often or always respected and encouraged patient …

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Understanding Patient And Family Experience In Pediatric Hemato-Oncology: A Cross-Sectional Study From Morocco, Boujemaa El Marnissi, Sanae Bouramdane, Moussa Benboubker, Fouad Abbas, Salma Chahid, Jalal Dahmani, Khalid Moubtahij, Kenza Elmkadem, Sarra Benmiloud Nov 2026

Understanding Patient And Family Experience In Pediatric Hemato-Oncology: A Cross-Sectional Study From Morocco, Boujemaa El Marnissi, Sanae Bouramdane, Moussa Benboubker, Fouad Abbas, Salma Chahid, Jalal Dahmani, Khalid Moubtahij, Kenza Elmkadem, Sarra Benmiloud

Patient Experience Journal

Background. Patient- and family-reported experience is a vital indicator of healthcare quality, particularly in pediatric hematology-oncology. This study assessed patient- and family-reported experience and identified its sociodemographic, clinical, and organizational determinants in a newly established pediatric hemato-oncology department of a tertiary university hospital in Morocco. Methods. A cross-sectional survey was conducted between November 2023 and January 2024. Experience was assessed using a validated multidimensional questionnaire covering reception and access, information and communication, human and relational aspects of care, therapeutic management and pain control, accommodation conditions, and logistical and administrative processes. Sociodemographic and clinical variables were collected; bivariate analyses and multivariate …

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Challenges Of Family Members Of Admitted Patients In Relationship With Medical Staff In Kurdistan Region: Cross-Sectional Study, Khalid Khudhur Faris, Zuhair Rushdi Mustafa, Hadi Haji Hussain, Ibrahim Baker Khudida, Deldar Morad Abdulah Nov 2026

Challenges Of Family Members Of Admitted Patients In Relationship With Medical Staff In Kurdistan Region: Cross-Sectional Study, Khalid Khudhur Faris, Zuhair Rushdi Mustafa, Hadi Haji Hussain, Ibrahim Baker Khudida, Deldar Morad Abdulah

Patient Experience Journal

Families often play a significant role in advocating for and supporting their patients during illness or hospitalization. Understanding the challenges between family members of patients and medical staff is crucial for improving communication, patient care, and the overall healthcare experience. This study aimed to investigate and understand the challenges and difficulties experienced by family members when dealing with the medical staff. This cross-sectional study conducted at a local teaching hospital in Kurdistan Region. A total of 400 family members of admitted patients from various medical departments were included in this study. Companions reported generally positive interactions with healthcare providers (HCPs). …

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Parallel Realities: A Narrative Review Of Differences Between Patients And Their Care Providers, Umair Majid, Hazeema Haq, Ziyad Yahmad Nov 2026

Parallel Realities: A Narrative Review Of Differences Between Patients And Their Care Providers, Umair Majid, Hazeema Haq, Ziyad Yahmad

Patient Experience Journal

Differences in how patients and healthcare providers perceive, experience, and deliver care can undermine patient-centered care and health outcomes. Yet, few syntheses have examined these divergences as a primary focus. This narrative review aimed to identify and synthesize evidence on the differences between patients and their providers in terms of priorities, expectations, and experiences of care, and to explore how these differences can potentially influence relationships and outcomes. A database search was conducted to identify English-language studies published from January 2019 to January 2025 that included both patients and providers in the same sample and compared their perspectives. Data from …

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Exploring The Lived Experiences Of Familial Caregivers To Individuals With Prader-Willi Syndrome: The Impact Of Caregiver Burden, Louisa Williams, Eden Morley Nov 2026

Exploring The Lived Experiences Of Familial Caregivers To Individuals With Prader-Willi Syndrome: The Impact Of Caregiver Burden, Louisa Williams, Eden Morley

Patient Experience Journal

Caregiver burden (CB) is an under-researched topic among familial caregivers (parents, siblings, aunts, uncles and grandparents) supporting someone with Prader-Willi Syndrome (PWS). CB is defined as the physical and mental toll resulting from caring for someone with additional needs, which has not yet been explored in PWS familial caregivers. PWS causes hyperphagia (insatiable hunger) and violent behaviours that can be hard to manage. Research demonstrates primary caregivers have a decreased quality of life and increased mental health (MH) problems, with quantitative literature highlighting the risk of CB. This study aimed to qualitatively highlight the experiences of CB in familial caregivers …

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Information Continuity And Experiences Of Mental Healthcare: A Conceptual Framework, Timothy Kariotis, Megan Prictor, Kathleen Gray, Shanton Chang Nov 2026

Information Continuity And Experiences Of Mental Healthcare: A Conceptual Framework, Timothy Kariotis, Megan Prictor, Kathleen Gray, Shanton Chang

Patient Experience Journal

Objectives: Information continuity is a key element of continuity of care and service users' experience of care. However, models of continuity of care have not considered how to operationalise information continuity and balance it with service users' privacy concerns. The aim of this paper was to develop a conceptual framework of the information practices that contribute to service users' experience of information continuity in the mental healthcare system. Methods: We undertook a narrative review to identify studies on service users' experiences of mental healthcare and analysed them using a thematic synthesis method to identify the information practices of care professionals …

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Health Information For Patients And Families: Sources, Data Types, And Tools For Evaluating Accessibility, Preeti Pandey, Richard I. Zraick, Vinaya Manchaiah Nov 2026

Health Information For Patients And Families: Sources, Data Types, And Tools For Evaluating Accessibility, Preeti Pandey, Richard I. Zraick, Vinaya Manchaiah

Patient Experience Journal

This review summarizes key sources and formats of health information for patients and families, and outlines tools used to evaluate their accessibility. Health information appears across online and offline platforms in formats such as text, images, and video. Evaluation tools assess dimensions like readability, accuracy, quality, suitability, and actionability, though they vary in validity and scope. This paper offers guidance for healthcare professionals and researchers aiming to improve the accessibility and effectiveness of patient-facing health materials.

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When Decision-Making Styles Do Not Predict Communication Preferences: Rethinking Personalization In Healthcare Experience, Victoria Sze Min Ekstrom Nov 2026

When Decision-Making Styles Do Not Predict Communication Preferences: Rethinking Personalization In Healthcare Experience, Victoria Sze Min Ekstrom

Patient Experience Journal

Background: Healthcare systems increasingly attempt to personalize risk communication by matching messages to patients' decision-making styles. This approach is resource intensive, yet evidence that it improves patient experience or decision quality remains limited. Methods: We conducted a cross-cultural experimental study with adults from the UK (n=330, recruited via Prolific) and Singapore (n=220, recruited via professional networks). Participants viewed three healthcare scenarios with risks of 1%, 10%, and 20%, presented in either positive (``99% no complications'') or negative (``1% complications'') frames displayed side-by-side in randomized order. Decision-making styles were assessed using the Control Preferences Scale, categorizing participants as information-seeking, shared decision-making, …

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Reflections On Factors That Led To A Dehydration Hospitalization: Lived Experience To Inform Systems Change For Nursing Home Residents, Lucas Kandia, Jodi Dunmeyer Stookey Nov 2026

Reflections On Factors That Led To A Dehydration Hospitalization: Lived Experience To Inform Systems Change For Nursing Home Residents, Lucas Kandia, Jodi Dunmeyer Stookey

Patient Experience Journal

This personal narrative describes a family's journey through a preventable dehydration crisis during the COVID-19 pandemic. When a 93-year-old nursing home resident tested positive for COVID-19, her family prepared for the worst. Instead, she nearly died from severe dehydration, not the virus, and was hospitalized for hypovolemic shock, only to be discharged four and a half days later, still COVID-positive, having recovered with rehydration alone. Medical documentation reveals deterioration from inadequate oral intake (300 mL per day) to pre-shock hypotension to frank shock (72/56 mmHg at 17:20), while oxygen saturation remained normal throughout. The admission diagnosis hierarchy (Acute Kidney Injury, …

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15 October 2021: Living With The Consequences Of A Cardiac Event — A Patient Perspective, Bruce H. Knox Nov 2026

15 October 2021: Living With The Consequences Of A Cardiac Event — A Patient Perspective, Bruce H. Knox

Patient Experience Journal

This first-person narrative explores the long-term consequences of a rare but catastrophic complication during a premature ventricular contraction (PVC) ablation, resulting in left ventricular rupture, acute cardiac tamponade, and emergency open-heart surgery. While the surgical intervention was life-saving, the subsequent years were marked by profound changes in autonomic function, multisystem instability, and a sustained alteration in quality of life. The account reflects on living with cardiac autonomic vulnerability before the event, the immediate crisis, and the prolonged recovery that followed—characterized not by restoration, but by renegotiation of capacity, identity, and participation. Particular emphasis is placed on the experience of navigating …

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