Rehabilitation and Therapy Commons^™

Caregiver Selection Of Treatments For Their Child With Autism, Amy Kurowski-Burt

Graduate Theses, Dissertations, and Problem Reports (ETD)

This project was completed to understand what treatments caregivers are selecting for their child with autism and why treatments were selected and discontinued. Caregivers of children with autism participated in a mixed methods study. An online survey was completed (N=127) to identify treatments used for their child. Interviews were completed (n=14) to understand why treatments were selected and discontinued. Selection of medical, dietary, therapeutic, complimentary/ alternative medicine, community-based, behavioral, and educational treatments were mostly influenced by recommendations of others. Caregivers reported discontinuing because relationships and professionalism were lacking between provider and family. Providers must consider all the variables that influence …

Dementia: Incorporating Families And Caregivers In Direct Speech-Language Intervention, Jocelyn Hartley

Online Theses and Dissertations

In a survey, 50% of 1,000 caregivers reported that they received no information on dementia at the time of diagnosis (Thompson & Pulsford, 2012). This statistic provides strong evidence as to why caregivers feel ill-prepared to care for individuals with dementia. The role of a speech-language pathologist (SLP) is suggested to not only treat the individual with dementia, but consider the role and perspective of the caregiver (Watson, Aizawa, Savundranayagam & Orange, 2013). Providing education and training to caregivers of individuals with dementia is within the scope of practice of speech-language pathologists (Watson et al., 2013).

A survey design for …

In The Information Age, Do Dementia Caregivers Get The Information They Need? Semi-Structured Interviews To Determine Informal Caregivers’ Education Needs, Barriers, And Preferences, Kendra Peterson, Howard Hahn, Amber J. Lee, Catherine A. Madison, Alireza Atri

Dartmouth Scholarship

Most patients with dementia or cognitive impairment receive care from family members, often untrained for this challenging role. Caregivers may not access publicly available caregiving information, and caregiver education programs are not widely implemented clinically. Prior large surveys yielded broad quantitative understanding of caregiver information needs, but do not illuminate the in-depth, rich, and nuanced caregiver perspectives that can be gleaned using qualitative methodology. We aimed to understand perspectives about information sources, barriers and preferences, through semi-structured interviews with 27 caregivers. Content analysis identified important themes

Living With Traumatic Brain Injury In A Rural Setting: Supports And Barriers Across The Continuum Of Care, Anne L. Harrison, Elizabeth G. Hunter, Heather Thomas, Paige Bordy, Erin Stokes, Patrick H. Kitzman

Physical Therapy Faculty Publications

Purpose: Traumatic brain injury (TBI) is prevalent in Kentucky and comes with a high cost in care and quality of life for individuals and caregivers affected. Many people living with the condition of TBI have unmet needs. Research among people living with TBI in rural areas is limited. The purposes of this study were to (1) increase understanding of the lived experience of people with TBI and caregivers in rural regions of Kentucky across the continuum of their care and (2) provide their perspectives on barriers and facilitators of optimal function and well-being.

Methods: A qualitative descriptive interview study was …

The Lived Experience Of Informal Caregivers Of Chronic Stroke Patients, Ann Snider Wigginton

Online Theses and Dissertations

The purpose of this phenomenological study is to contribute to the literature surrounding stroke-survivor caregivers and to understand the caregivers’ perspective on leisure participation and quality of life. Four caregivers of clients with chronic stroke were recruited for the study via convenience sampling. Participants were audio-recorded during a semi-structured interview lasting 60-80 minutes. The interview guide was consistent across participants and included open-ended questions about the caregiver’s leisure participation and quality of life. Recorded data was transcribed and in-vivo coding was completed. Eight categories were developed from the identified codes and narrowed into primary meaning units: role shift, loss of …

The Perceived Impacts Of Disability On Family By Individuals With Disabilities In Vr Services: A Multivariate Analysis, Benjamin C. Jenkins

Theses and Dissertations - UTB/UTPA

The purpose of this study was to explore the perceptions of individuals with disabilities regarding the impact of disability on family as encountered in the literature. Despite an abundance of research and literature documenting the experience of disability in the family the individual with the disability has largely been excluded from this research. This study investigated perceptions of individuals with disabilities regarding the impacts their disabilities have on their family that have been documented in the literature. Specific demographic variables were examined to determine any differences in perceptions based on these variables. Lastly, the underlying concepts of the perceptions of …

Dementia In The Context Of Disability, Rosanne Dizazzo-Miller, Fredrick D. Pociask

Department of Health Care Sciences

Patients and caregivers often associate dementia with devastation and a loss of productive contribution to society. People with dementia are often depicted as confused individuals struggling through embarrassing episodes, followed by a loss of independence. The burden and devastation of the diagnosis on the families of people with dementia is exacerbated by their assumption of the role of caregiver with inadequate preparation or training. Disability scholars, in contrast, offer physical and occupational therapists a nontragic view of disability that recognizes the importance of countering the stigma and discrimination that too often accompany dementia. This case example of a woman diagnosed …

An Exploration Of Volition: Caregiver Perceptions Of Persons With Dementia, Christine Raber, Mikel Stone

The Open Journal of Occupational Therapy

The purpose of this study was to understand what formal caregivers know about the volition of older adults with moderate dementia. A qualitative approach was used at one assisted living facility. Semi-structured interviews were conducted with formal caregivers to gain their perceptions of residents’ volition or motivation for occupation. Volition of resident participants was assessed using the Volitional Questionnaire (VQ). Caregiver interviews and resident VQ’s were analyzed using van Manen’s phenomenological approach to examine their congruence with regard to the volitional abilities of residents. Thematic analysis yielded two broad themes: (a) Caregivers possess varying layers of insight regarding the volitional …

A Community Grant Application To Support People With Dementia And Their Caregivers, Jessica Montomery

Occupational Therapy Capstones

In upcoming years, the population of older adults with dementia is expected to rise exponentially, with the expectation that the majority of these individuals will choose to age in place with increased caregiver support (AARP, 2011; National Alliance for Caregiving, 2009; Vincent & Velkoff, 2010). Without adequate education to prepare for the caregiving role, education, instruction, and support, informal caregivers are at an increased risk for caregiving burden, stress, and mortality rates (Morimoto, Schreiner, & Asano, 2003; Schulz & Beach, 1999; Thinnes & Padilla, 2011). The goal for this scholarly project was to create a home and community-based program for …

Between Wind And Water: Experiences Of Mothers Of Adolescents With Autism During The Post-High School Transition, Devon R. Casey

Honors Theses and Capstones

Research Question: How do mothers of adolescents with autism experience and prepare for their child's post- high school transition?

Cross-Cultural Comparison Of Sensory Behaviors In Children With Autism., Kristina G Caron, Roseann C Schaaf, Teal W. Benevides, Eynat Gal

Department of Occupational Therapy Faculty Papers

Parents of children with autism frequently report that their children exhibit unusual responses to sensory experiences. Little research is available, however, describing how parents' and children's culture and environment might influence parents' reports of their children's behaviors. This study compared the frequency of parent-reported responses to sensory experiences in children from two countries-Israel and the United States. We administered the Short Sensory Profile to primary caregivers of children with autism spectrum disorders (ASD) and typically developing peers. Results indicate that Israeli parents reported unusual responses to sensory experiences less frequently than U.S. parents for both ASD and typically developing children. …

A Qualitative Study Of Coping In Mothers Of Children With An Autism Spectrum Disorder, Heather Miller Kuhaneck, Tajhma Burroughs, Jamie Wright, Theresa Lemanczyk, Amy Rowntree Darragh

Occupational Therapy Faculty Publications

A significant body of research exists that explores the stressors of raising a child with an autism spectrum disorder (ASD). There are fewer studies, however, that examine specific effective coping strategies of mothers of children with an ASD. This qualitative study explored mothers’ perceptions of effective coping strategies for their parenting stressors. In-depth interviews were conducted with 11 mothers to inquire about their personal coping methods. Interviews were coded and emergent themes identified which included coping strategies such as “me time,” “planning,” “knowledge is power,” “sharing the load,” “lifting the restraints of labels,” and “recognizing the joys.” The information from …

Identifying Strategies Early Intervention Occupational Therapists Use To Teach Caregivers., Jessica L. Colyvas, L Brook Sawyer, Philippa H. Campbell

Department of Occupational Therapy Faculty Papers

This study investigated early intervention occupational therapists' use of strategies to teach caregivers. A sample of 40 videotapes made by early intervention occupational therapists was randomly selected from an archival videotape data set of provider home visits. The sample included 20 videotapes illustrating traditional services and 20 videotapes illustrating therapists providing participation-based services. Videotapes were rated using the Teaching Caregivers Scale, which rates three variables on 30-s intervals: (1) routine, (2) provider role, and (3) strategies used to teach caregivers during early intervention home visits. Regardless of the model of service, explicit teaching strategies were rarely used during home visits.

Occupational Therapy Caregiver's Guide To Spinal Cord Injury, Kelsey Berg, Amanda Larson

Occupational Therapy Capstones

In 2006, it was estimated that there were 253,000 Americans living with spinal cord injuries (SCI) (Spinal Cord Injury Information Network, 2003, p. 1). Current literature suggests that individuals are transitioning into the community earlier with the majority of care being provided by informal caregivers (Boschen, Tonack, & Gargaro, 2005). These caregivers are often unprepared for the major role they will be assuming in the care of their loved one and often their health and well-being is compromised due to the overwhelming nature of caregiving.

A comprehensive literature review was conducted to explore and identify the needs of caregivers. Topics …

Caregiver Activity Guide To Promote Occupational Function In Individuals With Alzheimer's Disease, Lacey Konickson

Occupational Therapy Capstones

No abstract provided.

Alzheimer's Toolbox: A Caregiver's Guide, Kristen Eastwood, Gerry Smith

Occupational Therapy Capstones

“Alzheimer’s disease is the most common cause of dementia in North America and Europe” and “accounts for sixty percent of all irreversible dementia cases” (Moore, 2003, p. 50,126). Along with the 4.5 million Americans who suffer from Alzheimer’s, there are also the caregivers who are suffering alongside their loved one. The stress of caring for a loved one with Alzheimer’s can be overwhelming. This affects the quality of life for those with Alzheimer’s and the health of the caregiver.

A comprehensive literature review was conducted to explore and identify effective techniques and interventions, pertinent to both the caregiver and patient's …

Traumatic Brain Injury (Tbi): Caregiver And Family Education Handbook, Heather Yekel, Breana Medlock

Occupational Therapy Capstones

Life can be very confusing for the friends, family member(s), and caretaker(s) of those individuals who are diagnosed with a Traumatic Brain Injury (TBI). The people who live with and care for the individual with a TBI want to know how they can help and what they can do to speed up the recovery. They also want to know what they can expect from their loved one, how much time the recovery will take, and what is causing the changes in their behavior?

A review of the literature was conducted and professionals, who are currently providing services to individuals diagnosed …

Recreational Manual For Caregivers Of Individuals With Cerebral Palsy, Erica Bucher

Occupational Therapy Capstones

A brief literature review was conducted on cerebral palsy to gain general information and statistics. After reviewing the literature, it was noted that there is a significantly high number of children diagnosed with cerebral palsy each year. These individuals are at a high risk to experience the lack of opportunity for a wide choice of recreational activities. To understand the magnitude of the problem an extensive literature review was done on this topic. It was found that the lack of access and participation in independent recreational opportunities may lead to the development of dependent behavioral patterns, learned helplessness and depression. …

Maintaining A Balanced And Healthy Lifestyle For Caregivers, David Nelson

Occupational Therapy Capstones

No abstract provided.

Providing Services To Family Caregivers At Home: Challenges And Recommendations For Health And Human Service Professions, Susan Toth-Cohen, Laura N. Gitlin, Mary Corcoran, Susan Eckhardt, Pamalyn Kearney, Rosalyn Lipsitt

Department of Occupational Therapy Faculty Papers

The home represents a relatively new arena for practice for most service providers, especially those working with families of persons with dementia. This article describes four key factors to consider when working with caregivers of persons with dementia in their homes. The authors also discuss seven common challenges of service provision in the home and recommend strategies for addressing these challenges.

Role Perceptions Of Occupational Therapists Providing Support And Education For Caregivers Of Persons With Dementia., Susan Toth-Cohen

Department of Occupational Therapy Faculty Papers

OBJECTIVE: This pilot study explored occupational therapists' perceptions of their roles as interventionists providing education and support for caregivers of persons with dementia. The intervention was provided in caregivers' homes as part of a larger funded study.

METHOD: Interviews were conducted with four occupational therapists to elicit their reflections on practice and their views on occupational therapy services on the basis of their experiences providing support and education for caregivers in the funded study.

RESULTS: Key themes consisted of the contrasts between the therapists' roles in the study and their customary practices and the professional and personal impact of their …

Management Decisions Made By Caregiver Spouses Of Persons With Alzheimer's Disease., Mary A. Corcoran

Department of Occupational Therapy Faculty Papers

OBJECTIVES: As the incidence of Alzheimer's disease increases, so does the effect on families and friends who assume caregiving responsibilities. Despite the proliferation of caregiving studies reported in the literature, little is known of the day-to-day management styles and preferences of caregivers. To develop, implement, and test interventions designed to sustain caregivers in their role, more information is needed about the caregiving experience. Results of a descriptive study are presented as a first step in understanding the complex process of choosing, organizing, and implementing everyday caregiving tasks.

METHOD: Subjects of the study were 26 persons who provide care for a …

Gender Differences In Dementia Management Plans Of Spousal Caregivers: Implications For Occupational Therapy., Mary A. Corcoran

Department of Occupational Therapy Faculty Papers

Occupational therapists treating older people with Alzheimer disease know that they must also consider the others who are affected by the disease, the informal caregivers. Intervention is most effective when it enables both the impaired person and the primary caregiver to manage the secondary symptoms of dementia. Unfortunately, little is understood about how caregivers approach and carry out their tasks and about why male and female caregivers respond differently to their caregiving role in terms of depression, burden, stress, and substance abuse. This paper discusses the effects of gender on dementia management plans of spousal caregivers. Husbands and wives have …

Dementia Management: An Occupational Therapy Home-Based Intervention For Caregivers., Mary A. Corcoran, Laura N. Gitlin

Department of Occupational Therapy Faculty Papers

This paper describes an occupational therapy intervention designed for family caregivers of persons with dementia. The intervention, based on the framework of a competence-environmental press model and the principle of collaboration, was implemented during 5 home visits. Each visit was designed to build caregiving skills through collaboration in identifying problem areas, developing and implementing environmental strategies, and modifying management approaches. A case vignette illustrates the therapeutic process and outcomes. The theoretical rationale and structure of the intervention and innovative documentation for evaluation of the theoretic process are also presented.