Rehabilitation and Therapy Commons^™

Caregiver Burden And Health-Related Quality Of Life Among Parents Of Children With Duchenne Muscular Dystrophy, Ahmed K. Bamaga Bamaga

Journal of Medical Rehabilitation Science

Background: Caring for a child with Duchenne muscular dystrophy (DMD) places significant physical and emotional demands on parents and may negatively affect caregiver quality of life (QoL). This study assessed caregiver burden and QoL among parents of children with DMD.

Methods: This study included 77 parents of children with genetically confirmed DMD recruited from two pediatric neurology and pediatric neuromuscular clinics (King Abdulaziz University Hospital and Alsalama Hospital, Jeddah, Saudi Arabia). Caregiver burden was assessed using the 22-item Zarit Burden Interview (ZBI), and caregiver QoL using the Short Form-36 (SF-36) physical and mental component summary scores (PCS, MCS). Group comparisons, …

The Forgotten Adl: An Educational Program Addressing Personal Hygiene And Grooming For Older Adults​, Ashlee D. Moten, Becky King

Summer 2026 OTD Capstone Symposium

Some older adults have difficulty completing personal hygiene and grooming tasks independently and require assistance from an informal caregiver. However, informal caregivers often become stressed and overwhelmed due to limited educational resources and support available. These tasks include all oral, skin, nail, and hair care, such as brushing hair, applying deodorant, clipping nails, or brushing teeth (AOTA, 2020). OTs can help develop interventions to enhance participation in personal hygiene and grooming tasks. The purpose of this capstone project was to create an educational program to equip older adults and their informal caregivers with strategies for participating in personal hygiene and …

Aquatic Therapy And Its Impact On Perceived Caregiver Strain, Amanda J. Carter, Cynthia Haynes, Katherine O'Hara

Summer 2026 OTD Capstone Symposium

Children with Autism Spectrum Disorder (ASD) frequently experience sensory dysregulation that significantly impairs their participation in daily occupations and increases caregiver strain (Lawson et al., 2020; Passarello et al., 2022). Although aquatic therapy has shown promise in improving sensory processing, motor skills, and social participation, there is limited research examining its specific impact on the caregivers’ ability to provide support at home (Butzman et al., 2022; Caputo et al., 2018; Güeita-Rodríguez et al., 2021).

This study is a mixed-methods, quasi-experimental pre/post-design. This study sought to investigate the impact of six weeks of aquatic therapy intervention on sensory regulation and its …

A Mixed-Methods Study Of Patient And Caregiver Experiences With Home Health Occupational Therapy, Peyton A. Mendias, Cassandra Nelson, Gwen Morris

Summer 2026 OTD Capstone Symposium

Home health occupational therapy (HHOT) promotes independence and safety within the home, yet patients and caregivers often experience challenges implementing therapy recommendations after discharge. This mixed-methods study explored the lived experiences of patients and caregivers who participated in HHOT to identify barriers and facilitators to implementing occupational therapy recommendations and inform the development of a caregiver education toolkit. Adults who received HHOT within the previous six months and informal caregivers completed an online survey, with a subset participating in semi-structured interviews. Quantitative data were analyzed using descriptive statistics, and qualitative interview data were analyzed using reflexive thematic analysis. Findings emphasized …

Cortical Visual Impairment (Cvi) In Children: An Educational Video Series For Caregivers, Melody Brown, Zeida Gutierrez

Spring 2026 OTD Capstone Symposium

This capstone project focused on the development and dissemination of educational video series designed to increase awareness and understanding of CVI among parents, caregivers, and professionals. The project aimed to improve knowledge of CVI, support caregiver confidence in advocacy, and highlight the importance of coordinated care for children with CVI. Overall, the results of this project indicate that the video series was effective in increasing participant-reported understanding of CVI, confidence in supporting children, and awareness of available resources and interdisciplinary coordination. These findings support the use of accessible, video-based educational resources as a valuable tool for caregivers of CVI, and …

Understanding Post-Nicu Caregiver Mental Health And Occupational Participation: Implications For Healthcare Practice, Emily S. Knight

Student Capstone Papers

This capstone project explored the mental health challenges experienced by caregivers following their infant’s discharge from the neonatal intensive care unit (NICU) and the resulting impact on occupational participation. Using a mixed-methods design, data was collected through an anonymous survey of 46 post-NICU caregivers, incorporating both quantitative and qualitative responses. Findings revealed that caregivers commonly experienced significant mental health concerns, including stress, anxiety, and depressive symptoms, particularly within the first year following discharge. Although results demonstrated a statistically significant improvement in mental health over time, many caregivers reported limited access to mental health resources and professional support. Importantly, the study …

Shift In Caregivers Occupations For Patients With Cerebrovascular Accidents, Hannah M. Ninan, Zeida Gutierrez

Spring 2026 OTD Capstone Symposium

The purpose of this capstone is to research the impact of assuming the caregiver role for individuals recovering from a CVA on the caregivers’ occupations and their occupational balance. Acquiring this information allows for a deeper understanding of its impacts and informs the implementation of support strategies and interventions to mitigate burnout within the first year of caregiving.

Understanding Post-Nicu Caregiver Mental Health And Occupational Participation: Implications For Healthcare Practice, Emily S. Knight, Zeida Gutierrez, Maureen Fischer

Spring 2026 OTD Capstone Symposium

This capstone project explored the mental health challenges experienced by caregivers following their infant’s discharge from the neonatal intensive care unit (NICU) and the resulting impact on occupational participation. Using a mixed-methods design, data was collected through an anonymous survey of 46 post-NICU caregivers, incorporating both quantitative and qualitative responses. Findings revealed that caregivers commonly experienced significant mental health concerns, including stress, anxiety, and depressive symptoms, particularly within the first year following discharge. Although results demonstrated a statistically significant improvement in mental health over time, many caregivers reported limited access to mental health resources and professional support. Importantly, the study …

Cognition And Mental Health: Addressing The Impact Of Traumatic Brain Injuries (Tbi) On Adults, Hannah E. Smith, Lesley Khan-Farooqi, Anne Mcdonnell, Mpa, Otr/L, Cbist

Spring 2026 OTD Capstone Symposium

This project addresses cognitive and mental health challenges in adults with traumatic brain injuries (TBI). It developed evidence-based resources, including a clinician handbook and user-friendly survivor guidebook - using research, interviews, and observations. The materials were refined with expert feedback and support improved interventions, education, and quality of life for individuals with TBIs, and their caregivers.

Cognitive And Mental Health Challenges: Addressing The Impact Of Traumatic Brain Injuries In Adults, Hannah E. Smith, Lesley Khan-Farooqi, Phd, Otd, Otr, Anne Mcdonnell, Mpa, Otr/L, Cbist

Student Capstone Papers

This capstone examined the challenges adults face following traumatic brain injuries (TBIs) and explored interventions aimed at enhancing cognitive functioning and mental health. This capstone also aimed to reduce caregiver stress and burnout by expanding knowledge and resources focused on cognitive and mental health within the population. TBIs can result from a variety of causes, affecting cognitive abilities, mental health, and functional outcomes. This capstone shows evidence-based interventions designed to improve cognitive functioning, facilitate engagement in meaningful activities to improve mental health, and enhance overall quality of life for adults recovering from TBI. This also will demonstrate potential for occupational …

Occupational Therapy’S Role In Supporting Caregivers Of Children And Adolescents With Type 1 Diabetes, Ania G. Millan

Student Capstone Papers

Caregivers of children and adolescents with Type 1 Diabetes (T1D) often experience increased stress, occupational imbalance, and challenges related to maintaining their own health and wellness while managing their child’s complex daily care needs. Despite the significant impact caregiving responsibilities may have on daily routines, self-care, and overall quality of life, occupational therapy’s (OT) role in supporting caregivers within endocrinology settings remains underrecognized. The purpose of this capstone project was to explore caregivers’ perceptions of their health and wellness and examine the differences and similarities between caregivers’ and occupational therapy practitioners’ (OTPs) perspectives regarding OT’s role in supporting caregivers of …

Ready, Set, Play! Empowering Caregivers Through Adaptive Playground Resources, Makenna Thigpen, Angela Blackwell, Brianne Harryman

Spring 2026 OTD Capstone Symposium

This doctoral capstone project addressed the need for accessible, caregiver-friendly education to support inclusive play opportunities for children of diverse abilities. Guided by occupational therapy frameworks emphasizing participation, environmental supports, and family-centered care, this project involved collaboration with the local Parks and Recreation Department to better understand community needs and existing inclusive playground resources. Through this partnership, the project supported efforts to promote awareness and accessibility of inclusive play spaces within the community.

As part of the project, educational video resources were developed to increase caregiver knowledge of inclusive playground equipment, play strategies, and environmental modifications. Content focused on promoting …

Spiritual And Religious Lay Community Support For Informal Caregivers Of Adults At The End Of Life: A Literature Review, Rachel Lenko

University Faculty Publications and Creative Works

• Informal caregivers of adults at the end of life often experience significant physical, psychological, and economic burden because of their caregiving and bereavement (Schulz et al., 2003; Skantharajah et al., 2022) 
• Prior evidence suggests that spirituality and/or religiosity contribute to positive religious coping and improved adjustment to bereavement (Damianakis et al., 2012; Stelzer et al., 2020) 
• Spiritual and religious communities often provide practical and social, in additional to spiritual/religious, support to their members 
• There is limited evidence describing practical and social support from spiritual/religious lay communities for informal caregivers of patients in the terminal phase of a disease

Caring For The Caregiver: Implementing An Occupational Therapy-Tailored Educational Program To Alleviate Caregiver Burden, Lura Elizabeth Simons

Graduate Theses, Dissertations, and Problem Reports (ETD)

Caregivers of traumatic brain injury (TBI) survivors experience caregiver burden, which is a prevalent issue. The most significant concern is for symptoms of burden affecting mental health and sleep quality. This doctoral capstone project addressed the knowledge gap regarding programs that alleviate these signs and symptoms through evidence-based interventions. The objective was to create an educational program with modules that demonstrated improvement in satisfaction and content understanding through in-person sessions and individualized interviews with staff members. This project aimed to reduce perceived burden by conducting in-person sessions to implement interventions through an occupational therapy (OT) lens and by using educational …

Integrative Neural Networks: A Novel Frame Of Reference To Support Occupational Engagement In Caregivers, Glenda E. Hux, Sarah A. Schoen

The Open Journal of Occupational Therapy

The Integrative Neural Networks (INN) frame of reference is an integrated approach to support occupational engagement in parents and primary caregivers of children and youth with complex health care needs (CYSHCN) guided by principles of family-centered care. Given the potential influence of prolonged, cumulative, and or repeated stress on physiological, affective/cognitive, and social/spiritual health, it is imperative that occupational therapists partner with parents and primary caregivers to positively impact occupational engagement across contexts. Further, this frame of reference provides an avenue to identify potential health and occupational disparities historically under-recognized as independent from the needs of the child. Based on …

Bridging Sensory Processing And Community Integration For Adults With Idd: A Bilingual Approach, Stephanie J. Newman, Cynthia Haynes

Fall 2025 OTD Capstone Symposium

The capstone project included creation, implementation, and evaluation of an educational program. The program provided education for adults with intellectual and developmental disabilities and their respective caregivers. The educational materials included development and implementation of educational workshops of sensory processing strategies in the community, work, and social settings for adults with IDD and bilingual home programs created for caregiver education. The program was evaluated through pre- and post-surveys administered to caregivers to demonstrate changes in knowledge of sensory processing strategies, as well as client assessments administered to assess changes in client understanding of sensory strategies.

Caregiver Training Program For Optimal Recovery Of Neuro Accidents: An Occupational Therapy Approach, Bennie L. Huitt Jr., Jennifer Featheringham, Cassandra Nelson

Summer 2025 OTD Capstone Symposium

Caregivers of individuals recovering from stroke, traumatic brain injury (TBI), or experiencing onset of dementia often are provided limited education and support after discharge, negatively impacting confidence and recovery outcomes. The Caremaster program was designed to bridge the educational gap between occupational therapists in the clinical setting and caregivers in the home settings through accessible online modules, support groups, and in-person demonstrations. Module topics included understanding neuro accidents and role of the caregiver, returning home (transition and adaptation), ADLs and Mobility, returning to roles, and social reintegration. This program aims to guide future development of scalable, community-based caregiver education that …

Maximizing Functional Independence And Well-Being: The Impact Of Sensory Impairments On Iadls And Functional Mobility Skills, Jessica L. Ryan

UNLV Theses, Dissertations, Professional Papers, and Capstones

Objective: Sensory impairments involving vision and hearing among the adult population are predicted to double by 2030 (Gutherie et al., 2018). Individuals with experiences of sensory impairments like low vision are at risk of decreased functional participation in their homes and communities, which often leads to mental health concerns due to social withdrawal, experiences with environmental barriers, and limited occupational engagement (Bezyak et al., 2017; Gerami et al., 2015; Pfeiffer et al., 2020; Vreeken et al., 2020). This doctoral capstone focused on program evaluation to support adults with low vision and blindness in transferring learned skills from a simulated environment …

An Ot Web-Based Program For Assessing And Treating Vision Deficits In Tbis, Brooklynn Bycott, Rebecca King, Jaimee Fielder

Spring 2025 OTD Capstone Symposium

This capstone project supported occupational therapists in addressing vision deficits associated with traumatic brain injuries (TBIs) through a web-based educational program. The program focused on assessment strategies, intervention techniques and strategies, and caregiver education. Guided by the Person-Environment-Occupation-Performance model and the Occupational Adaptation frame of reference, the project promoted occupational engagement and improved quality of life for individuals with vision deficits associated with TBIs and their caregivers by increasing clinicians’ confidence and knowledge.

The Empowerment Through Assistive Devices: A Program For Older Adults Post-Stroke And Their Caregivers, Gillian L. Cole, Cassandra Nelson

Spring 2025 OTD Capstone Symposium

This capstone project aimed to develop a holistic and sustainable educational program for post-stroke adults using mobility devices in long-term care at CC Young. The program was to empower stroke survivors to regain independence, enhance their quality of life, and reduce caregiver burden by focusing on functional mobility, safety, caregiver support, device adherence, and multiple other factors that increase functional independence and safety. The program achieved significant outcomes through in-depth training, consistent education, feedback incorporation, and ongoing follow-up. Device usage rates were notably increased, helping participants continue using mobility aids effectively and consistently. Additionally, the program played a critical role …

Adolescents Undergoing Back Surgery & Caregiver Support Needed Before & After Surgery, Kayla R. Jaacks, Mary Jan Greer, Lee Ann Hoffman

Spring 2025 OTD Capstone Symposium

Adolescents with spinal conditions such as scoliosis, kyphosis, or fractures may require surgical intervention, with spinal fusion being the most common procedure. While these surgeries can significantly improve outcomes, parents and caregivers often feel unprepared for the responsibilities and emotional demands that follow. This lack of knowledge and support can lead to caregiver stress, feelings of isolation, and unmet self-care needs, highlighting the urgent need for better education and resources.

Safe Lift System: In-Bed Repositioning Assistive Device, Mariah Sparkman, Cassandra Nelson, Lee Ann Hoffman

Spring 2025 OTD Capstone Symposium

Bedridden patients require frequent repositioning toward the head of the bed. The current Safe Lift System prototype was revised and surveyed to address the gap in effective methods for in-bed repositioning of this patient population and to improve its efficacy in meeting the needs of bedridden patients, caregivers, and healthcare staff members.

An Ot Program For Amputation Individuals And Their Caregiver, Ashley Hradecky, Cassandra Nelson

Spring 2025 OTD Capstone Symposium

Amputation individuals and their caregivers currently lack sufficient education regarding residual limb management, limb positioning, mental health, and phantom limb pain. These gaps in health management skills ultimately result in relationship strains, technology abandonment, and decreased independence. The goal was to develop and implement an educational program for new amputation individuals and their caregivers targeting these topics. Six pairs successfully completed this four-week program, with each pair responding to pre and post surveys. Interventions included lower extremity positioning, prosthetic care management, residual limb management, mirror therapy, transcutaneous electrical nerve stimulation, and tactile point discrimination. When comparing the pre and post …

Development Of A Mobile App For Parents And Caregivers Of Children With Autism, Laurie Tison

Post-Professional Occupational Therapy Doctorate - Innovations in OT Symposium: Transforming Possibilities into Practice

Background: Caring for children with autism who experience sensory challenges often leads to increased caregiver stress and reduced self-efficacy. Research suggests that smartphone apps can effectively mitigate stress and empower parents. A needs assessment highlighted the necessity for an app centered on sensory processing tools and strategies, considering the limited resources available for addressing children’s emotions and behaviors.

Objective: This project aimed to develop and evaluate a comprehensive app to support parents and caregivers of children with autism, focusing on reducing stress and enhancing parental efficacy. Objectives included: 1) designing the app with relevant resources, 2) assessing the app’s content, …

Lived Experience Of Caregivers Of Individuals Labeled With Schizophrenia, Nicolette C. Hamilton, Susan Macdermott

Spring 2025 OTD Capstone Symposium

The purpose of the capstone project was to explore the experience of caregivers of an individual labeled with schizophrenia and create educational materials beneficial to caregivers at partnering site. Caregivers of individuals labeled with schizophrenia can face mental health concerns, such as anxiety, stress, or depression, which may or may not be due to the demands of being a caregiver. The occupational impact of these mental health concerns is noted in literature, but the potential for occupational therapy to address these occupational concerns has not been identified for this caregiver population specifically. The purpose of the project was to learn …

Parenting With Peace: A Childhood Anxiety Education Program, Grace Arnold, Angela Blackwell, Teri Jetter, Msot

Spring 2025 OTD Capstone Symposium

The Parenting with Peace education program offers a comprehensive education program to parents of children with Anxiety. The program delves into the topics of self-regulation, emotional regulation, etc. The program offers parents information on each topic, information on how parenting impacts the topic, and at-home interventions that parents can engage in to help support their child. The program can help parents address the goal of improving competency about childhood anxiety symptoms and self-regulation techniques, improving their ability to engage in the occupation of caregiver.

Graded Habilitation Activities For Direct Support Professionals: An Educational Video Series, Christi Cantu, Steven M. Gerardi, Daniel J. Burt

Spring 2025 OTD Capstone Symposium

This capstone project was created for direct support professionals (DSPs) to have a new resource for education and training on how to properly apply the concept of graded habilitation activities based on the Allen’s cognitive levels to the DSPs sessions. This capstone project was a need in the DSP community for DSPs provide direct care to people with intellectual or development disabilities (IDD). Therefore, this capstone project supports education and training DSPs need to optimally apply graded habilitation activities, based on participants’ cognitive level, to provide optimal services for people with IDD. Problem: DSPs lack knowledge of and education/training …

Fostering Autonomy And Self Efficacy: An Informal Caregiver's Guide To Encouraging Participation In Self-Care, Jade A. Evans, Steven M. Gerardi, Precious Osuoha

Spring 2025 OTD Capstone Symposium

Helping Hands and Active Lives is a practical guidebook designed to empower informal caregivers to support senior independence and well-being. It offers evidence-based strategies to enhance communication, mobility, and daily function while emphasizing the impact of caregiving approaches on occupational success.

Caregiver Perspectives On Sensory Diets, Naomi Sosa, Catharina Smith, Skylar Simpson, Giavanna Stavros

Occupational Therapy | OTD Research Papers

A sensory diet, a targeted sensory intervention designed to address an individual’s sensory needs, requires a child to engage in frequent, brief activities throughout their day that promote an adaptive response and improve occupational performance. While occupational therapists formulate the sensory diet, the role of administering the sensory diet ultimately lies with the child’s caregiver. Several studies have examined the effectiveness of sensory-based interventions and how caregivers support children with sensory processing disorders; however, caregiver perspectives on implementing sensory diets for their children have yet to be studied. Methods: This study used a descriptive, mixed-methods survey approach capturing quantitative data …

Occupational Therapy In Caregiver Education And Dementia Care, Sophie Winter

Entry Level Occupational Therapy Doctoral Capstone Projects Class of 2025

The doctoral capstone project addresses education on optimal care for individuals with dementia to increase occupational performance and limit excess disability through training sessions with caregivers. The community program created took place at a community memory care adult day program. The bulk of the project focuses on education for caregivers of those with dementia through creating educational handouts, practicing through trainings, and creating personally tailored activities for cognition maintenance and participation. Caregiver manuals were made to address caregiver burnout, education, and competency. The other major part of this capstone was program development assessing the needs of the population and creating …