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Articles 1 - 30 of 132
Full-Text Articles in Medical Education
Advancing Pfac Initiatives, Effectiveness, And Visibility Through Strategic Planning And Assessment, Aimee Williamson, Katherine Litterer
Advancing Pfac Initiatives, Effectiveness, And Visibility Through Strategic Planning And Assessment, Aimee Williamson, Katherine Litterer
Patient Experience Journal
Patient and Family Advisory Councils (PFACs) are a growing approach for engaging patient and family voices into healthcare organization decisions and projects. While their importance is well accepted in the literature, individual councils often grapple with practical challenges and a desire to elevate visibility and impact. Over the last ten years, Boston Children's Hospital's Family Advisory Council (FAC) has embedded strategic planning practices into council governance and operations to elevate council functioning and drive innovation. Beginning with an initial formal strategic planning and visioning process in 2016, followed by annual prioritization and strategic planning refresh sessions every three years, the …
Optimizing `People-Centred Care' Best Practices In A Multi-Site Community Hospital: A Case Study, Kimberly Johnston, Carla Arpa, Mary Jane Mcnally, Veronique Boscart, Shalini Pattabiraman
Optimizing `People-Centred Care' Best Practices In A Multi-Site Community Hospital: A Case Study, Kimberly Johnston, Carla Arpa, Mary Jane Mcnally, Veronique Boscart, Shalini Pattabiraman
Patient Experience Journal
Objective: In 2016, The World Health Organization issued a People-Centred Care Policy Framework highlighting the importance of engaging and empowering people and communities, where care is coordinated around people's unique needs and preferences, is affordable, timely and safe. A multi-site community hospital set out to advance patient and family engagement through the Registered Nurses Association of Ontario (RNAO) Best Practice Guideline (BPG) on People Centred Care (PCC) and a modification of the Health Quality Ontario Patient Family Engagement Framework. Methods: This intervention study implemented the BPG for PCC with several initiatives directed towards improving patients' perception of their involvement in …
Improving Patient Experience Scores Through Patient Experience Coaches: A Case Study, Maryann Bowersox, Patricia Coryea-Hafkey, Kristin Baird, Raime Cendoma, Nancy Borkowski
Improving Patient Experience Scores Through Patient Experience Coaches: A Case Study, Maryann Bowersox, Patricia Coryea-Hafkey, Kristin Baird, Raime Cendoma, Nancy Borkowski
Patient Experience Journal
Patient experience (PEX) is a key healthcare quality metric that may signal safety vulnerabilities by revealing gaps in communication and care processes before adverse events occur. Despite the importance of evidence-based practices (EBPs), maintaining consistent adherence remains a challenge. As a strategy to improve patient experience while reinforcing adherence to EBPs, this case study describes the development, implementation, and evaluation of a Patient Experience Coach (PEXC) program at two hospitals within a large health system. The intervention embedded trained coaches within clinical units to provide real-time observation, feedback, and reinforcement of EBPs. Core EBPs targeted by the program included hourly …
The Global Experience Measure: A Common Ground For Experience Excellence, Jason A. Wolf, Brittany Lax, Karen Walsh
The Global Experience Measure: A Common Ground For Experience Excellence, Jason A. Wolf, Brittany Lax, Karen Walsh
Patient Experience Journal
In 2022, The Beryl Institute community called for a new approach to experience measurement, one that was focused on what truly matters to patients and promoted opportunities for shared learning across borders. Over four years, more than 1,000 community members from six continents co-designed the Global Experience Measure (GXM). Between October 2024 and May 2026, GXM was deployed to healthcare organizations in 12 countries and translated from English into five other languages, capturing over 8,000 diverse voices. The six core questions formed a single, reliable measure overall (Cronbach's α = .95) and held strong in every country surveyed (α …
Does System Structure Affect Organizational Application Of Prems: A Comparative Evaluation Of 5 Countries, Heather Lee, J'Aime C Jennings, Logan R Marler, Raime Cendoma, Amy Yarbrough Landry
Does System Structure Affect Organizational Application Of Prems: A Comparative Evaluation Of 5 Countries, Heather Lee, J'Aime C Jennings, Logan R Marler, Raime Cendoma, Amy Yarbrough Landry
Patient Experience Journal
Patient-reported experience measures (PREMs) are widely used to assess healthcare quality, yet approaches to measurement and data utilization vary significantly across countries. This meta-narrative review examines how health system structure, regulatory context, and market dynamics shape the collection, reporting, and application of PREM data in Canada, Germany, the Netherlands, the United Kingdom, and the United States. Using RAMESES guidelines, we searched PubMed, Web of Science, and ABI/INFORM and identified 58 peer-reviewed studies, primarily from the U.S. and U.K. Studies most frequently examined the relationship between hospital characteristics and patient experience, measurement tools, and quality improvement efforts. Our findings suggest that …
Beyond Borders: A Comparative Analysis Of The Patient Experience Of Kazakh Citizens In Türkiye And Kazakhstan, Azhar Zhaiykkyzy, Harun Kırılmaz
Beyond Borders: A Comparative Analysis Of The Patient Experience Of Kazakh Citizens In Türkiye And Kazakhstan, Azhar Zhaiykkyzy, Harun Kırılmaz
Patient Experience Journal
Patient experience is widely regarded as a core indicator of healthcare quality. Whilst the majority of research focuses on ethnic disparities, there is a paucity of studies that examine structural influences when cultural background is held constant. The present study sought to compare patient-reported experiences of 600 Kazakhstani citizens (n = 300 per country) receiving care in Kazakhstan and as medical tourists in Türkiye. The Picker Patient Experience Questionnaire (PPE-15) was utilised to analyse domain-level problem scores, employing chi-square tests (Cramer's V) and binary logistic regression. The findings indicated significant disparities in several domains, including coordination of care (V = …
Who Is The Patient Trusting? A Scoping Review Of Patient-Physician Trust In The Generative Artificial Intelligence (Genai) Era, Ashleigh M. Allgood, Eugenia B. Yiadom, Michele L. Heath, Geoffrey A. Silvera
Who Is The Patient Trusting? A Scoping Review Of Patient-Physician Trust In The Generative Artificial Intelligence (Genai) Era, Ashleigh M. Allgood, Eugenia B. Yiadom, Michele L. Heath, Geoffrey A. Silvera
Patient Experience Journal
Patients extend trust to physicians whose expertise they cannot fully inspect. Generative artificial intelligence (GenAI) is now part of that exchange. Clinicians use it, organizations deploy it, and patients bring it to appointments themselves. This scoping review asks what is known about GenAI and trust in the patient-physician relationship. Following PRISMA-ScR guidance, we searched PubMed, Scopus, CINAHL, and APA PsycINFO on March 9, 2026, and screened records in Covidence. Twelve studies met inclusion criteria. For each article, we documented how trust was conceptualized and measured, then classified each study by construct fidelity and closeness to an actual care relationship. None …
Care Experiences Of People With Copd During The Covid-19 Pandemic, Judith Kecskemeti, Mausam Vadakkayil, Benson Law, Hengliang Wu, Caitlin Carrigan, Rosa Nguyen, Shannon L Sibbald
Care Experiences Of People With Copd During The Covid-19 Pandemic, Judith Kecskemeti, Mausam Vadakkayil, Benson Law, Hengliang Wu, Caitlin Carrigan, Rosa Nguyen, Shannon L Sibbald
Patient Experience Journal
Although there is a substantial body of literature focused on the pathophysiology regarding chronic obstructive pulmonary disease (COPD) and COVID-19, there remains limited exploration of the healthcare experiences of patients with COPD during the pandemic. This study explores the challenges patients with COPD (PWC) experienced during the pandemic, including access to care, the efficacy of virtual COPD care, and mental health impacts. We performed a cross-sectional survey of 200 individuals with COPD recruited through respirologists' offices and local lung health groups on social media from Southwestern Ontario, Canada, who accessed care since the COVID-19 pandemic. The study included 200 participants, …
Patient Experience With Insulin Pump Therapy And Health-Related Quality Of Life In Adults With Type 1 Diabetes: A Cross-Sectional Survey, Miriam Cruz-Andina, Juan Pablo Hervás-Pérez, Raquel Moreno-Sánchez, Raquel Caballero De La Calle, Eduardo Cimadevilla Fernández-De Pola, Clara Lucas-Guerra, Carlos Ruíz-Núñez, Ivan Herrera-Peco
Patient Experience With Insulin Pump Therapy And Health-Related Quality Of Life In Adults With Type 1 Diabetes: A Cross-Sectional Survey, Miriam Cruz-Andina, Juan Pablo Hervás-Pérez, Raquel Moreno-Sánchez, Raquel Caballero De La Calle, Eduardo Cimadevilla Fernández-De Pola, Clara Lucas-Guerra, Carlos Ruíz-Núñez, Ivan Herrera-Peco
Patient Experience Journal
Objective: To examine patient experience with continuous subcutaneous insulin infusion (CSII) and its association with health-related quality of life (HRQoL) in adults with type 1 diabetes (T1D), incorporating experiential and equity-related dimensions. Methods: We conducted a cross-sectional online survey in Spain (February-March 2025) among adults with T1D using CSII (n = 107). An ad hoc 26-item patient-reported experience measure assessed daily-life domains using 0–10 scales, from which a Global Quality of Life index (G-QoL) was computed. Additional items examined access to CSII, education, and ongoing professional support. Group differences were analyzed using non-parametric tests, and experience-based predictors of HRQoL were …
The Patient Experience Across The Care Continuum: Inpatient Rehabilitation, Discharge Preparedness, And Community Reintegration After Spinal Cord Injuries/Disorders, Sherri L. Lavela, Myrissa Le, Ibuola O. Kale, Ashley Craig, Jane Duff, Marcel Post, Sara Ahmed, Allen W. Heinemann
The Patient Experience Across The Care Continuum: Inpatient Rehabilitation, Discharge Preparedness, And Community Reintegration After Spinal Cord Injuries/Disorders, Sherri L. Lavela, Myrissa Le, Ibuola O. Kale, Ashley Craig, Jane Duff, Marcel Post, Sara Ahmed, Allen W. Heinemann
Patient Experience Journal
The objective was to describe patient experiences, barriers, and facilitators of inpatient rehabilitation, discharge preparedness, and community reintegration after spinal cord injury and disorders (SCI/D) from the perspectives of Veterans with SCI/D. Methods included a descriptive qualitative design using a virtual focus group analyzed via reflexive thematic analysis. Focus group participants (n = 7) were mostly male, white, injured for 1-10 years, with mean age of 52 years. Two domains were identified. The first domain, Barriers and ways rehabilitation could have improved patient experience, included five themes: (1) insufficient preparation for psychological impacts; (2) inadequate preparation for relationship changes; (3) …
The Patient Voice In Rehabilitation: Experiences With High-Intensity Gait Training In A Student-Run Pro Bono Clinic, Amy M. Yorke, Emma Cleason, Drew Uhlmeyer, Sidney Kulhanek, Brookelyn Stafford, Tracy Koepplin, Leslie M. Smith, Suzanne Trojanowski, Beverly Dabney
The Patient Voice In Rehabilitation: Experiences With High-Intensity Gait Training In A Student-Run Pro Bono Clinic, Amy M. Yorke, Emma Cleason, Drew Uhlmeyer, Sidney Kulhanek, Brookelyn Stafford, Tracy Koepplin, Leslie M. Smith, Suzanne Trojanowski, Beverly Dabney
Patient Experience Journal
Improved walking ability is a common goal for people with chronic stroke; however, access to skilled physical therapy is often limited. Student-run pro bono clinics (SRPBCs) address this care gap. Despite evidence supporting high aerobic intensity walking training for chronic stroke, the patient perspective on its delivery within SRPBCs remains underexplored. This qualitative study explored the experiences of persons with chronic stroke participating in MoveMore, an intensive walking program delivered by physical therapy students in a SRPBC. Semi-structured interviews were conducted with five individuals with chronic stroke (4–7 years post-stroke, ages 53–70) and four caregivers, all of whom contributed perspectives …
Health Justice Education To Enhance Overall Patient Experience In The Context Of Acute-Care Hospitals, A Sivasubramaniam, C. Blanchard, S Pattabiraman, C Uzoh, Y Khalid
Health Justice Education To Enhance Overall Patient Experience In The Context Of Acute-Care Hospitals, A Sivasubramaniam, C. Blanchard, S Pattabiraman, C Uzoh, Y Khalid
Patient Experience Journal
Within our healthcare system today, the prevalence of biomedical traditions and notions of health and well-being greatly shape how care is provided and perceived. Less apparent, however, is their histories and their manifestations today.14 Our healthcare system is rooted in systems of oppression such as colonialism, racism and capitalism; that perpetuate violence, barriers and inequities, and maintain hierarchies of dominating and non-dominating groups that have become commonplace. There is a need for radical change, and critical measures are underway to create a more equitable healthcare system. With the increased recognition of equity, diversity and inclusion (EDI), concepts like cross-cultural …
Healthcare Provider Communication Training: The Influence Of Training Participation On Engagement And Patient Experience, Amanda Woods Herron, Phoebe Hessen, Katelyn J. Cavanaugh, Reeni J. Luke, Courtney L. Holladay
Healthcare Provider Communication Training: The Influence Of Training Participation On Engagement And Patient Experience, Amanda Woods Herron, Phoebe Hessen, Katelyn J. Cavanaugh, Reeni J. Luke, Courtney L. Holladay
Patient Experience Journal
Communication is essential to healthcare leadership. The challenges healthcare providers face are growing in breadth and complexity, and providers rely on effective communication to face many of these challenges. Training is one avenue commonly invested in by organizations to provide resources to grow critical skills, such as communication. The present investigation leverages the Job Demands-Resources model to explore the impact of healthcare provider participation in communication training on organizational outcomes at the individual level. The study was conducted in a healthcare organization, wherein 65 healthcare providers participated in a communication training centered around the personality framework Real Colors® , and …
Interpreter Use, Code-Switching, And Patient Outcomes In U.S. Clinics: A Narrative Review For Graduate Medical Education, Ruth Ese Otaigboria, Kenneth Anaeto Nwankwo, Mishael Ifeanyi Nonyelum, Ayodele Blessing Ayo-Ige, Aliaa Mohammed Soliman, Tumoe Heni
Interpreter Use, Code-Switching, And Patient Outcomes In U.S. Clinics: A Narrative Review For Graduate Medical Education, Ruth Ese Otaigboria, Kenneth Anaeto Nwankwo, Mishael Ifeanyi Nonyelum, Ayodele Blessing Ayo-Ige, Aliaa Mohammed Soliman, Tumoe Heni
Patient Experience Journal
Language discordance between clinicians and patients in U.S. clinics is a recognized driver of communication-sensitive adverse events, yet the synthesis linking specific linguistic practices to clinical outcomes remains incomplete, and graduate medical education programs lack a unified evidence base on which to build interpreter-mediated competencies. This narrative review evaluates whether interpreter use, translanguaging, and code-switching constitute an interactional pathway through which cultural and explanatory models shape outcomes for limited-English-proficient (LEP) patients, and derives recommendations for graduate medical education. Searches across MEDLINE/PubMed, Embase, CINAHL, PsycINFO, and Scopus covered January 2000–September 2025 and prioritized U.S. immigrant and LEP encounters that linked language …
A Qualitative Phenomenological Study On The Perceived Impact Of Health Literacy On Health Care Experiences Among Haitian Immigrant Adults In The U.S., Tanya Bouchette, Laurie Latvis
A Qualitative Phenomenological Study On The Perceived Impact Of Health Literacy On Health Care Experiences Among Haitian Immigrant Adults In The U.S., Tanya Bouchette, Laurie Latvis
Patient Experience Journal
Several important aspects of health care leadership include improving patient health literacy, patient health care experiences, quality of patient care, efficiency of care, and access to health education. This qualitative research study was aimed to understand the perceived effects of health literacy on the Haitian immigrants' health care experiences. A self-administered survey was used to collect primary demographic and qualitative data. The survey consisted of 12 questions, 9 demographic questions and 3 open-ended qualitative questions. Validity and reliability were ensured by thoroughly reviewing the survey instrument, consulting with three subject matter experts, and completing three cognitive interviews. Demographic and qualitative …
Patient-Reported Experiences Of Communication In Tertiary Otorhinolaryngology Outpatient Care: An Exploratory Cross-Sectional Study, Jasna Mesarić, Iva Lončarić Kelečić, Maroje Višić
Patient-Reported Experiences Of Communication In Tertiary Otorhinolaryngology Outpatient Care: An Exploratory Cross-Sectional Study, Jasna Mesarić, Iva Lončarić Kelečić, Maroje Višić
Patient Experience Journal
Objective: Patient experience (PE) is a key healthcare quality indicator, particularly in tertiary and specialised outpatient settings where organisational complexity increases communication demands. This study examined patient-reported experiences of communication in a tertiary otorhinolaryngology (ORL) outpatient clinic and their association with sociodemographic characteristics. Methods: This exploratory cross-sectional study analysed survey data from adult patients attending a tertiary ORL outpatient clinic in Croatia between April and May 2025 (N = 189). PE was assessed by analysing 21 items grouped into three communication-related domains: communication and relationship, non-verbal communication, and treatment information. All items were rated on a 5-point Likert scale. Composite …
Patient Reported Experiences Of Anxiety And Depression Screenings In A Canadian Adult Cystic Fibrosis Clinic, Pat Macdiarmid, April Tanzler, Waqar Younas, Terra Stephenson, Nick Kanaan, Bradley S. Quon
Patient Reported Experiences Of Anxiety And Depression Screenings In A Canadian Adult Cystic Fibrosis Clinic, Pat Macdiarmid, April Tanzler, Waqar Younas, Terra Stephenson, Nick Kanaan, Bradley S. Quon
Patient Experience Journal
The International Depression Epidemiological Study (TIDES) found rates of anxiety and depression 2–3 times higher in the cystic fibrosis (CF) population than in community samples. Following recommendations of the International Committee on Mental Health in CF we began conducting screenings at our Canadian Adult CF Clinic using the GAD-7 and PHQ-9, referring patients to mental health (MH) supports within and outside the clinic. Our aim was to provide a service patients themselves experienced as supportive of their MH. We found few studies on patient reported experiences of MH screening programs in CF clinics, and none in the Canadian context. Patients …
Patient Reported Experiences Of Mental Health And Substance Use In British Columbia Emergency Departments: A Patient-Oriented Exploration Of Survey Data, Ross Duncan, Ed Martin, Louise Yeoh, John Grogan, Riyad B. Abu-Laban
Patient Reported Experiences Of Mental Health And Substance Use In British Columbia Emergency Departments: A Patient-Oriented Exploration Of Survey Data, Ross Duncan, Ed Martin, Louise Yeoh, John Grogan, Riyad B. Abu-Laban
Patient Experience Journal
Project Title: Patient reported experiences of mental health and substance use in British Columbia Emergency Departments: A patient-oriented exploration of survey data. Background: Existing surveys of BC EDs have failed to engage patients to guide research. A provincial level survey of patient experiences in emergency departments was identified as a rich source of data for collaboration level patient-oriented research, with patient partners co-developing research questions and focus of data analysis. Methods: This Patient Oriented Research recruited three patient partners who, through a co-creation process, prioritized dimensions and questions on communication with providers, culturally safe and compassionate care, overall ED rating, …
Evaluating Quality Of Care Under Nigeria's National Health Insurance Scheme: A Thematic Analysis Of Patient Narratives At A Tertiary Care Public Hospital, Nkiru Nwamaka Ezeama, Nene Okunna, Chukwuemeka Okwudili Ezeama
Evaluating Quality Of Care Under Nigeria's National Health Insurance Scheme: A Thematic Analysis Of Patient Narratives At A Tertiary Care Public Hospital, Nkiru Nwamaka Ezeama, Nene Okunna, Chukwuemeka Okwudili Ezeama
Patient Experience Journal
Objective: Patient narratives provide in-depth insights of user quality ratings of healthcare delivery but are underutilized. The assessment of patient satisfaction often relies on survey data based on quantifiable indicators. While quantifiable indicators provide a snapshot of patient perceptions of the care they receive, they tend to gloss over pertinent details to understand their experiences and perceptions of the quality of care they received. This study assessed patients' narratives to better understand patient satisfaction ratings of healthcare services provided under the National Health Insurance Scheme (NHIS) in Nigeria. Method: A cross-sectional survey using semi-structured interviews of 406 participants was conducted …
Centering Torture Survivor Voices From Their Experiences, Linda Piwowarczyk, Nandini Agarwal, Kathryn Price, Dmitrii Krivorotko, Arslan Kasimov, Alexandra Brinker, Suzanne Wilson, Salma Amin, Tithi D. Baul
Centering Torture Survivor Voices From Their Experiences, Linda Piwowarczyk, Nandini Agarwal, Kathryn Price, Dmitrii Krivorotko, Arslan Kasimov, Alexandra Brinker, Suzanne Wilson, Salma Amin, Tithi D. Baul
Patient Experience Journal
Background: Human rights violations persist globally, with torture routinely utilized as a mechanism to repress democratic expression and silence social movements. The Boston Center for Refugee Health and Human Rights (BCRHHR) is a hospital-based program providing services to refugees, survivors of torture (SOT), and asylum seekers. Emerging evidence suggests that circumstances encountered after resettlement may exert a greater traumatogenic effect than those experienced in the country of origin or along the migration journey. We performed a qualitative needs assessment interviewing 22 randomly selected patients who received BCRHHR services at least twice between January 1, 2021, and December 31, 2021. SOT …
Exploring Lived Experiences To Gain Insight Into The Support Needs Of People Following Stoma Surgery: A Qualitative Study, Julia Kittscha, Val Wilson, Vida Bliokas, Greg Fairbrother
Exploring Lived Experiences To Gain Insight Into The Support Needs Of People Following Stoma Surgery: A Qualitative Study, Julia Kittscha, Val Wilson, Vida Bliokas, Greg Fairbrother
Patient Experience Journal
Aim To describe the supports that are important to people in the early weeks after stoma surgery and explore participants' thoughts and feelings about these supports. Design A consumer-researcher co-design approach was used to design and undertake a qualitative patient interview study among people who have had stoma surgery. People who had an existing stoma were trained as co-researchers to work alongside the clinician researcher. Method Semi-structured interviews were conducted with consenting participants 6-8 weeks after stoma surgery. Thematic data analysis was conducted by the research team using Braun, Clarke\citealpbib1 six step-phase reflexive thematic analysis, members of the team initially …
What Matters To Patients When Preparing For A Colonoscopy: A Mixed-Methods Study Of Needs And Worry, Louise Bang Grode, Anne Højager Nielsen, Anette Viftrup, Lene Lehmkuhl, Hejdi Gamst-Jensen, Brigitta R Villumsen, Malene Kaas Larsen, Lone Dragnes Brix
What Matters To Patients When Preparing For A Colonoscopy: A Mixed-Methods Study Of Needs And Worry, Louise Bang Grode, Anne Højager Nielsen, Anette Viftrup, Lene Lehmkuhl, Hejdi Gamst-Jensen, Brigitta R Villumsen, Malene Kaas Larsen, Lone Dragnes Brix
Patient Experience Journal
Background: Colonoscopy is essential for diagnosing, treating, and preventing colorectal cancer, and many patients experience considerable procedure worry. Limited evidence exists on which aspects of preparation and the procedure matter most to patients or how these relate to their Degree-of-Worry (DOW). Understanding these factors is important for improving patient readiness and care quality. This study explores what matters to patients when preparing for colonoscopy, including how they prepare, their perceived readiness, and their DOW. Method: A flash-mob study with a convergent mixed methods was conducted, collecting quantitative and qualitative data simultaneously across multiple sites. Results: Among 203 patients completing the …
What Patients Wear Matters: Evidence On Adaptive Hospital Wear, Dignity, And Care Experience, Akhilesh Kumar, Sukhvir Singh
What Patients Wear Matters: Evidence On Adaptive Hospital Wear, Dignity, And Care Experience, Akhilesh Kumar, Sukhvir Singh
Patient Experience Journal
Traditional hospital gowns can compromise dignity, comfort, and care efficiency by prioritizing procedural access over the lived experience of hospitalization. This narrative review synthesizes interdisciplinary literature published between 2000 and 2025 across patient experience research, nursing, medical textiles, apparel design, and disability studies, with searches conducted in Scopus, Web of Science, and Google Scholar. Across settings, evidence indicates that patient-centered hospital wear—using breathable and antimicrobial textiles, ergonomic closure systems (eg, hook-and-loop, magnetic snaps, modular access flaps), and inclusive sizing—can reduce unwanted exposure, improve perceived dignity and autonomy, simplify dressing for patients and caregivers, and support clinical access when aligned with …
Navigating Emergency Care: Understanding Older Adults' Experiences At The Kingston Health Sciences Centre, Nilany Thanabalasinham, Susan A. Bartels, Melanie Walker
Navigating Emergency Care: Understanding Older Adults' Experiences At The Kingston Health Sciences Centre, Nilany Thanabalasinham, Susan A. Bartels, Melanie Walker
Patient Experience Journal
Objectives: Older adults (65+) in Ontario have the highest emergency department (ED) visit rates, yet often face delayed care and unmet healthcare needs. This study investigates how older adults perceive and navigate their ED care experiences at the Kingston Health Sciences Centre (KHSC), compared to younger adults and identifies factors driving their positive and negative care experiences. Methods: A secondary mixed-methods analysis was conducted using cross-sectional data on ED care experiences at the KHSC. Qualitative data included anonymously recorded micronarratives describing participants' ED experiences. Quantitative data included patients' numerical interpretations of their shared experiences through sensemaking triad questions. Quantitative descriptive …
Understanding Patient And Family Experience In Pediatric Hemato-Oncology: A Cross-Sectional Study From Morocco, Boujemaa El Marnissi, Sanae Bouramdane, Moussa Benboubker, Fouad Abbas, Salma Chahid, Jalal Dahmani, Khalid Moubtahij, Kenza Elmkadem, Sarra Benmiloud
Understanding Patient And Family Experience In Pediatric Hemato-Oncology: A Cross-Sectional Study From Morocco, Boujemaa El Marnissi, Sanae Bouramdane, Moussa Benboubker, Fouad Abbas, Salma Chahid, Jalal Dahmani, Khalid Moubtahij, Kenza Elmkadem, Sarra Benmiloud
Patient Experience Journal
Background. Patient- and family-reported experience is a vital indicator of healthcare quality, particularly in pediatric hematology-oncology. This study assessed patient- and family-reported experience and identified its sociodemographic, clinical, and organizational determinants in a newly established pediatric hemato-oncology department of a tertiary university hospital in Morocco. Methods. A cross-sectional survey was conducted between November 2023 and January 2024. Experience was assessed using a validated multidimensional questionnaire covering reception and access, information and communication, human and relational aspects of care, therapeutic management and pain control, accommodation conditions, and logistical and administrative processes. Sociodemographic and clinical variables were collected; bivariate analyses and multivariate …
Parallel Realities: A Narrative Review Of Differences Between Patients And Their Care Providers, Umair Majid, Hazeema Haq, Ziyad Yahmad
Parallel Realities: A Narrative Review Of Differences Between Patients And Their Care Providers, Umair Majid, Hazeema Haq, Ziyad Yahmad
Patient Experience Journal
Differences in how patients and healthcare providers perceive, experience, and deliver care can undermine patient-centered care and health outcomes. Yet, few syntheses have examined these divergences as a primary focus. This narrative review aimed to identify and synthesize evidence on the differences between patients and their providers in terms of priorities, expectations, and experiences of care, and to explore how these differences can potentially influence relationships and outcomes. A database search was conducted to identify English-language studies published from January 2019 to January 2025 that included both patients and providers in the same sample and compared their perspectives. Data from …
When Decision-Making Styles Do Not Predict Communication Preferences: Rethinking Personalization In Healthcare Experience, Victoria Sze Min Ekstrom
When Decision-Making Styles Do Not Predict Communication Preferences: Rethinking Personalization In Healthcare Experience, Victoria Sze Min Ekstrom
Patient Experience Journal
Background: Healthcare systems increasingly attempt to personalize risk communication by matching messages to patients' decision-making styles. This approach is resource intensive, yet evidence that it improves patient experience or decision quality remains limited. Methods: We conducted a cross-cultural experimental study with adults from the UK (n=330, recruited via Prolific) and Singapore (n=220, recruited via professional networks). Participants viewed three healthcare scenarios with risks of 1%, 10%, and 20%, presented in either positive (``99% no complications'') or negative (``1% complications'') frames displayed side-by-side in randomized order. Decision-making styles were assessed using the Control Preferences Scale, categorizing participants as information-seeking, shared decision-making, …
Reflections On Factors That Led To A Dehydration Hospitalization: Lived Experience To Inform Systems Change For Nursing Home Residents, Lucas Kandia, Jodi Dunmeyer Stookey
Reflections On Factors That Led To A Dehydration Hospitalization: Lived Experience To Inform Systems Change For Nursing Home Residents, Lucas Kandia, Jodi Dunmeyer Stookey
Patient Experience Journal
This personal narrative describes a family's journey through a preventable dehydration crisis during the COVID-19 pandemic. When a 93-year-old nursing home resident tested positive for COVID-19, her family prepared for the worst. Instead, she nearly died from severe dehydration, not the virus, and was hospitalized for hypovolemic shock, only to be discharged four and a half days later, still COVID-positive, having recovered with rehydration alone. Medical documentation reveals deterioration from inadequate oral intake (300 mL per day) to pre-shock hypotension to frank shock (72/56 mmHg at 17:20), while oxygen saturation remained normal throughout. The admission diagnosis hierarchy (Acute Kidney Injury, …
15 October 2021: Living With The Consequences Of A Cardiac Event — A Patient Perspective, Bruce H. Knox
15 October 2021: Living With The Consequences Of A Cardiac Event — A Patient Perspective, Bruce H. Knox
Patient Experience Journal
This first-person narrative explores the long-term consequences of a rare but catastrophic complication during a premature ventricular contraction (PVC) ablation, resulting in left ventricular rupture, acute cardiac tamponade, and emergency open-heart surgery. While the surgical intervention was life-saving, the subsequent years were marked by profound changes in autonomic function, multisystem instability, and a sustained alteration in quality of life. The account reflects on living with cardiac autonomic vulnerability before the event, the immediate crisis, and the prolonged recovery that followed—characterized not by restoration, but by renegotiation of capacity, identity, and participation. Particular emphasis is placed on the experience of navigating …
The Phantom Fifth Chair Of Patient Experience, Kathy Saldana
The Phantom Fifth Chair Of Patient Experience, Kathy Saldana
Patient Experience Journal
Over the past three years, the author has openly shared her journey as a certified patient experience professional facing triple negative breast cancer. The firsthand gravity of treatment became instantly apparent to her in the chemo chair. Resisting the temptation to crumble under the fear of it, she chose to view treatment as an unwanted yet precious opportunity to study her profession of patient experience from a deeply personal space. Determined not to waste the difficult long-term experience of treatment, she was compelled to write and speak about her convictions regarding the necessity of honoring patients by soliciting, documenting, believing, …