Health Information Technology Commons^™

Passive Sensing Of Mobile Media Use In Children And Families: A Brief Commentary On The Promises And Pitfalls., Brandon T. Mcdaniel Phd

Health Services and Informatics Research

No abstract provided.

Uncertainty Management Among Older Adults With Heart Failure, Carly Daley, Victor Cornet, Gauri Patekar, Swapnil Kosarabe, Davide Bolchini, Tammy Toscos Phd, Michael Mirro Md, Shauna Wagner, Elizabeth Martin, Romisa Rohani Ghahari, Ryan Ahmed, Amy Miller, Richard J. Holden

Health Services and Informatics Research

Heart failure (HF) is a complex chronic illness that affects the older adult population, requiring medical therapy and day-to-day management to prevent worsening and exacerbation. Patients with HF are often treated with cardiac implanted electronic devices (CIEDs) which capture diagnostic and predictive parameters for HF. In this work we explore how patients would respond to receiving data from an implanted device, using a fictitious scenario interview method with 24 older adults with HF. We applied an uncertainty management lens to better understand how patients face uncertain outcomes and integrate novel data into their decision making. The findings provide insight into …

Patient-Centered Design Grounded In User And Clinical Realities Towards Valid Digital Health, Victor P. Cornet, Carly Daley, Davide Bolchini, Tammy Toscos Phd, Michael Mirro Md, Richard J. Holden

Health Services and Informatics Research

Valid design of patient-centered digital health or health information technology (IT) systems is based on a thorough and accurate understanding of both “user reality” and “clinical reality.” Type 1 Design Error (User-Reality Error) occurs when designers do not accommodate user characteristics, tasks, context of use, needs, or preferences. Type 2 Design Error (Clinical-Reality Error) occurs when designers do not accommodate the clinical reality, including biomedical knowledge, clinical workflows, and organizational requirements. Both types of errors can invalidate the design, leading to products being rejected by patient end-users or their healthcare delivery systems, product non-use or inappropriate use, and risk of …

Visualization Of Cardiac Implantable Electronic Device Data For Older Adults Using Participatory Design., Ryan Ahmed, Tammy Toscos Phd, Romisa Rohani Ghahari, Richard J Holden, Elizabeth Martin, Shauna Wagner, Carly Daley, Amanda Coupe, Michael Mirro Md

Health Services and Informatics Research

Patients with heart failure (HF) are commonly implanted with cardiac resynchronization therapy (CRT) devices as part of their treatment. Presently, they cannot directly access the remote monitoring (RM) data generated from these devices, representing a missed opportunity for increased knowledge and engagement in care. However, electronic health data sharing can create information overload issues for both clinicians and patients, and some older patients may not be comfortable using the technology (i.e., computers and smartphones) necessary to access this data. To mitigate these problems, patients can be directly involved in the creation of data visualization tailored to their preferences and needs, …

Selection Biases In Technology-Based Intervention Research: Patients' Technology Use Relates To Both Demographic And Health-Related Inequities., Tammy Toscos Phd, Michelle Drouin, Jessica Pater, Mindy Flanagan, Rachel Pfafman, Michael Mirro Md, Facc, Fhrs, Faha

Health Services and Informatics Research

OBJECTIVE: Researchers conduct studies with selection biases, which may limit generalizability and outcomes of intervention research. In this methodological reflection, we examined demographic and health characteristics of implantable cardioverter defibrillator patients who were excluded from an informatics intervention due to lack of access to a computer and/or the internet.

MATERIALS AND METHODS: Using information gathered from surveys and electronic health records, we compared the intervention group to excluded patients on demographic factors, computer skills, patient activation, and medical history.

RESULTS: Excluded patients were older, less educated, less engaged and activated in their health, and had worse health (ie, more medical …

Audience Response Systems And Missingness Trends: Using Interactive Polling Systems To Gather Sensitive Health Information From Youth., Tammy Toscos, Michelle Drouin, Mindy Flanagan, Maria D. Carpenter, Connie Kerrigan, Colleen Carpenter, Cameron Mere Mba, Marcia Haaff

Health Services and Informatics Research

BACKGROUND: The widespread availability and cost-effectiveness of new-wave software-based audience response systems (ARSs) have expanded the possibilities of collecting health data from hard-to-reach populations, including youth. However, with all survey methods, biases in the data may exist because of participant nonresponse.

OBJECTIVE: The aims of this study were to (1) examine the extent to which an ARS could be used to gather health information from youths within a large-group school setting and (2) examine individual- and survey-level response biases stemming from this Web-based data collection method.

METHODS: We used an ARS to deliver a mental health survey to 3418 youths …

Teens Using Screens For Help: Impact Of Suicidal Ideation, Anxiety, And Depression Levels On Youth Preferences For Telemental Health Resources., Tammy Toscos Phd, Amanda Coupe, Mindy Flanagan, Michelle Drouin, Maria D. Carpenter, Lauren Reining, Amelia Roebuck, Michael Mirro Md, Facc, Fhrs, Faha

Health Services and Informatics Research

BACKGROUND: High rates of mental illness, stress, and suicidality among teens constitute a major public health concern in the United States. However, treatment rates remain low, partially because of barriers that could be mitigated with tech-based telemental health (TMH) resources, separate from or in addition to traditional care.

OBJECTIVE: This study aimed to analyze TMH resource usage by high school students to establish current user characteristics and provide a framework for future development.

METHODS: A total of 2789 students were surveyed regarding demographics, recent anxiety and depression symptoms, suicidality, and stress; people with whom they could openly and honestly discuss …

"Notjustgirls": Exploring Male-Related Eating Disordered Content Across Social Media Platforms, Jessica Pater, Lauren Reining, Andrew D. Miller, Tammy Toscos Phd, Elizabeth D. Mynatt

Mirro Center Articles

ABSTRACT: Eating disorders (EDs) are a worldwide public health concern that impact approximately 10% of the U.S. population. Our previous research characterized these behaviors across online spaces. These characterizations have used clinical terminology, and their lexical variants, to identify ED content online. However, previous HCI research on EDs (including our own) suffers from a lack of gender and cultural diversity. In this paper, we designed a follow-up study of online ED characterizations, extending our previous methodologies to focus specifically on male/masculine-related content. We highlight the similarities and differences found in the terminology utilized and media archetypes associated with the social …

The Protective Influence Of Relationship Commitment On The Effects Of Facebook Addiction On Marital Disaffection, Irum Saeed Abbasi, Michelle Drouin, Jayson L. Dibble, Brandon T. Mcdaniel Phd

Health Services and Informatics Research

ABSTRACT Previous research has suggested that Facebook use can lead to adverse romantic relationship outcomes due to interpersonal conflicts, interactions with potential romantic alternatives, and jealousy. However, these associations have been explored mainly with undergraduates, focusing primarily on conflict rather than emotional disengagement. The current study examined the associations between Facebook addiction and marital disaffection (e.g., loss of love, emotional disengagement) amongst 138 (95 females and 43 males) cohabiting married Facebook users residing in the United States. The results revealed that Facebook addiction and marital disaffection were positively related, even after controlling for relationship commitment. Additionally, greater relationship commitment weakened …

Cross-Day Influences Between Couple Closeness And Coparenting Support Among New Parents., Yunying Le, Steffany J Fredman, Brandon T. Mcdaniel Phd, Jean-Philippe Laurenceau, Mark E Feinberg

Health Services and Informatics Research

The couple and coparenting relationships are demonstrated to be prospectively and bidirectionally associated over months to years during the early parenting years. However, little is known about these associations at the daily level within the first year of parenthood, when coparenting first emerges. The goal of the current study was to examine the association between couples' daily feelings of relationship closeness and coparenting support in first-time parents and determine directionality of these effects using a dyadic daily diary design. At 10 months postpartum, heterosexual couples (

Data Integration And Interoperability For Patient-Centered Remote Monitoring Of Cardiovascular Implantable Electronic Devices, Carly Daley, Tammy Toscos Phd, Michael Mirro

Mirro Center Articles

Abstract: The prevalence of cardiovascular implantable electronic devices with remote monitoring capabilities continues to grow, resulting in increased volume and complexity of biomedical data. These data can provide diagnostic information for timely intervention and maintenance of implanted devices, improving quality of care. Current remote monitoring procedures do not utilize device diagnostics to their potential, due to the lack of interoperability and data integration among proprietary systems and electronic medical record platforms. However, the development of a technical framework that standardizes the data and improves interoperability shows promise for improving remote monitoring. Along with encouraging the implementation of this framework, we …

Computational Exploration Of Gerontology-Related Topics Shared On Social Media Platform Twitter, Victor P. Cornet Ms, Michin Hong

Health Services and Informatics Research

Twitter, a popular Internet social media platform, has become a significant medium for sharing information and ideas about various topics, including aging and older adults. While studies have been conducted to examine stigma or perception about specific diseases such as Alzheimer’s disease and seizure on Twitter, there has been little effort to identify general themes of Twitter posts related to aging and older adults. This exploratory study attempts to answer this need by conducting a topic analysis of posts shared on Twitter posts about aging and older adults in English. We collected 328,568 English posts from Twitter posted between 07/01/18 …

A Patient-Centered Approach Towards Designing A Novel Cied Remote Monitoring Report, Michael J. Mirro, Romisa Rohani Ghahari, R Ahmed, Lauren Reining, Shauna Wagner, Gavin Lehmann, Jaime Heller, Melissa Omlor, Tammy Toscos

Presentations and Events

Objective: We sought to identify the CIED remote monitoring device report content for delivery to patients via a Personal Health Record that encompasses all available device data and is responsive to user information needs and preferences.

Conclusions: 1. Patients do not wish to receive all RM data 2. Interested in receiving device activity and cardiac episode data 3. Not interested in device settings or information 4. Shared preferences are useful for a novel patient-centered RM report 5. Current study extends our previous work confirming the patient desire for RM data

Technoference: Longitudinal Associations Between Parent Technology Use, Parenting Stress, And Child Behavior Problems., Brandon T. Mcdaniel Phd, Jenny S Radesky

Health Services and Informatics Research

BACKGROUND AND OBJECTIVES: Heavy parent digital technology use has been associated with suboptimal parent-child interactions and internalizing/externalizing child behavior, but directionality of associations is unclear. This study aims to investigate longitudinal bidirectional associations between parent technology use and child behavior, and understand whether this is mediated by parenting stress.

METHODS: Participants included 183 couples with a young child (age 0-5 years, mean = 3.0 years) who completed surveys at baseline, 1, 3 and 6 months. Cross-lagged structural equation models of parent technology interference during parent-child activities, parenting stress, and child externalizing and internalizing behavior were tested.

RESULTS: Controlling for potential …

2018 July Parkview Signature Care Thought Leader Forum, Jeanne Wickens, Jason Row Md, Mark Pierce Md

Presentations and Events

No abstract provided.

Adult Experts' Perceptions Of Telemental Health For Youth: A Delphi Study., Abigail Howard, Mindy Flanagan, Michelle Drouin, Maria D. Carpenter, Elizabeth Chen, Catherine Duchovic, Tammy Toscos

Health Services and Informatics Research

OBJECTIVES: Our objectives were to measure experts' opinions and develop consensus via the Delphi process on the barriers, applications, and concerns associated with telemental health (TMH) for youth.

MATERIALS AND METHODS: We delivered 3 online surveys over 2 months in Summer, 2016-2025 adult experts, including adults who experienced youth depression or suicidality, parents of youth with lived experience, and professionals (ie youth mental health researchers, clinicians/staff, or educators). We used the Delphi method to construct Likert and open-ended questions, developing expert consensus over 3 iterative surveys on the barriers and benefits of TMH for youth.

RESULTS: Adult experts identified stigma …

2018 May Parkview Signature Care Thought Leader Forum, Jeanne Wickens, Sue Ehinger Phd, Jolynn Suko

Presentations and Events

No abstract provided.

14th Annual Parkview Research Symposium, Michael J. Mirro, Neil Sharma, Tammy Toscos, Roy Robertson Md, Micah Smith Md, Jason Voorhies Md

Presentations and Events

14th Annual Parkview Research Symposium: Innovative Interventions in Healthcare

Objectives

* Discuss latest innovative interventions in informatics, oncology, cardiology, orthopedids and neurosurgery.

* Develop a strategy for efficient diagnosis and treatment planning using the latest innovative techniques and research findings in informatics, oncology, cardiology, orthopedics and neurosurgery.

"Technoference" And Implications For Mothers' And Fathers' Couple And Coparenting Relationship Quality., Brandon T. Mcdaniel Phd, Adam M Galovan, Jaclyn D Cravens, Michelle Drouin

Health Services and Informatics Research

Technology devices are widely used today, creating opportunities to connect and communicate with distant others while also potentially disrupting communication and interactions between those who are physically present (i.e., technoference or phubbing). These disruptions in couple and coparenting relationships have the potential to negatively impact relationship outcomes. In this two-part study of 182 married/cohabiting couples from the Daily Family Life Project and 239 couples from the Couple Well-Being Project, we examined the role of technoference in couple and coparenting relationship quality and potential gender differences utilizing dyadic data. We found that greater technoference related to greater conflict over technology …

Systematic Review Of Smartphone-Based Passive Sensing For Health And Wellbeing., Victor P. Cornet Ms, Richard J. Holden

Health Services and Informatics Research

OBJECTIVE: To review published empirical literature on the use of smartphone-based passive sensing for health and wellbeing.

MATERIAL AND METHODS: A systematic review of the English language literature was performed following PRISMA guidelines. Papers indexed in computing, technology, and medical databases were included if they were empirical, focused on health and/or wellbeing, involved the collection of data via smartphones, and described the utilized technology as passive or requiring minimal user interaction.

RESULTS: Thirty-five papers were included in the review. Studies were performed around the world, with samples of up to 171 (median n = 15) representing individuals with bipolar disorder, …

Maintaining Relationship Alternatives Electronically: Positive Relationship Maintenance In Back Burner Relationships, Jayson L. Dibble, Narissra M. Punyanunt-Carter, Michelle Drouin

Health Services and Informatics Research

Back burners are desired prospective romantic/sexual partners that people communicate with to establish a future romantic or sexual relationship. We surveyed 658 college students about the extent to which they reported using various positive relationship maintenance strategies (positivity, openness, assurances) during communication with their most important back burner. Consistent with previous research, singles did not differ from those in committed romances in the number of back burners reported; however, singles and casual daters utilized the positive maintenance strategies to a greater extent than did those in committed relationships. Men reported using more assurances than did women, but the sexes did …

Technoference: Parent Distraction With Technology And Associations With Child Behavior Problems., Brandon T. Mcdaniel Phd, Jenny S Radesky

Health Services and Informatics Research

Heavy parent digital technology use has been associated with suboptimal parent-child interactions, but no studies examine associations with child behavior. This study investigates whether parental problematic technology use is associated with technology-based interruptions in parent-child interactions, termed "technoference," and whether technoference is associated with child behavior problems. Parent reports from 170 U.S. families (child age = 3.04 years) and actor-partner interdependence modeling showed that maternal and paternal problematic digital technology use predicted greater technoference in mother-child and father-child interactions; then, maternal technoference predicted both mothers' and fathers' reports of child externalizing and internalizing behaviors. Results suggest that technological interruptions are …

“I Don’T Know How You Can Be The Decision Maker When You Don’T Understand”: Designing A Tailored E-Health Intervention To Empower Patients Living With Non-Valvular Atrial Fibrillation, Amelia Roebuck, Shauna Wagner, Ryan Ahmed, Romisa Rohani Ghahari, Carly Daley, Maria D. Carpenter, Tammy Toscos, Michael Mirro Md, Facc, Fhrs, Faha

Health Services and Informatics Research

Background: Prevention of thromboembolism is key in individuals with non-valvular atrial fibrillation (NVAF) and nonadherence to oral anticoagulant (OAC) therapy is a frequent causative factor of stroke. Many factors contribute to the complexity of medication nonadherence. Thus, education aimed at changing health behaviors must be tailored to address the unique internal motivations and information needs of those confronted with the daily choice to take a medication to prevent stroke. Delivery of tailored health education and medication reminders may be an effective way to empower individuals with NVAF and in consequence, improve OAC adherence.

Methods: We applied a patient-centered approach and …

The Double-Edged Sword: A Mixed Methods Study Of The Interplay Between Bipolar Disorder And Technology Use, Mark Matthews, Elizabeth Murnane, Jaime Snyder, Shion Guha Phd, Pamara Chang, Gavin Doherty, Geri Gay

Health Services and Informatics Research

Human behavior is increasingly reflected or acted out through technology. This is of particular salience when it comes to changes in behavior associated with serious mental illnesses including schizophrenia and bipolar disorder. Early detection is crucial for these conditions but presently very challenging to achieve. Potentially, characteristics of these conditions’ traits and symptoms, at both idiosyncratic and collective levels, may be detectable through technology use patterns. In bipolar disorder specifically, initial evidence associates changes in mood with changes in technology-mediated communication patterns. However much less is known about how people with bipolar disorder use technology more generally in their lives, …

Tailored, Theory-Based Strategies For Engaging Low-Income Populations With A Personal Health Record, Tammy Toscos Phd, Maria Wright Rn, Bsn, Mindy Flanagan Phd, Kislaya Kunjan Ms, Mba, Amy Olson-Miller Ms, Bradley N. Doebbeling Md, Ms

Health Services and Informatics Research

There remain significant barriers to the use of personal health records (PHRs), which limit potential benefits in underserved patient populations. Novel strategies must be developed to achieve the desired impact of PHRs on patient engagement and health outcomes. This paper describes the health information needs and technology preferences of adults seeking care in Community Health Centers (CHCs), which provide care to low-income, uninsured and underinsured patients. We offer design suggestions emerging from interviews with 43 CHC patients and 49 CHC staff members that explored many themes including: patient barriers to accessing health care, health information needs of patients between clinic …

Access Is Meaningful (Aim): Working With Community Health Centers To Improve Access To Care., Tammy Toscos Phd, Maria D. Carpenter Rn, Bsn, Kislaya Kunjan Ms, Mba, Iman Mohammadi Ms, Amy Miller, Brad N. Doebbeling Md, Ms, Huanmei Wu Phd

Health Services and Informatics Research

Presented in 9th Annual Conference on the Science of Dissemination and Implementation

Background:

We are partnering with community health centers (CHCs) and their patients to redesign systems to deliver timely care to underserved populations in Indiana. Our Delphi study was designed to address two questions: 1) what solutions (e.g. organizational factors, processes, procedures) serve as facilitators to accessing care?; and 2) what organizational strategies might work to implement solutions in CHC environments?

Methods:

We used a modified Delphi method, bringing experts together in one room for a face-to-face meeting to prioritize solutions for reducing access barriers and strategies to implement …

Missing Links: Challenges In Engaging The Underserved With Health Information And Communication Technology, Maria D. Wright, Mindy Flanagan, Kislaya Kunjan, Bradley N. Doebbeling, Tammy Toscos Phd

Health Services and Informatics Research

PervasiveHealth '16: Proceedings of the 10th EAI International Conference on Pervasive Computing Technologies for Healthcare

We sought to understand underserved patients' preferences for health information technology (HIT) and examine the current use of personal health records (PHRs) in Community Health Centers (CHCs) serving low-income, uninsured, and underinsured patients. Forty-three patients and 49 clinic staff, administrators, and providers from these CHC systems were interviewed using open-ended questions assessing patient experience, perceptions of the CHC, access barriers, strategies used to overcome access barriers, technology access and use, and clinic operations and workflow. All seven CHC systems were at some stage of implementing …

Young Children’S Tablet Use And Associations With Maternal Well-Being, Tiffany Pempek, Brandon T. Mcdaniel Phd

Health Services and Informatics Research

While recent research has documented a rapid increase in the use of new technologies such as touchscreen tablets early in life, little is known about how young children use tablets, what activities they engage in, and whether family demographic and maternal well-being are associated with early use. Guided by Bronfenbrenner’s bioecological theory of human development, the current study addressed these questions with a cross-sectional, online survey of mothers with children between 12 and 48 months of age. Mothers reported on their child’s tablet use as well as their own personal well-being (depressive symptoms and role overload) and relational well-being (relationship …

Challenges And Futures For Ethical Social Media Research, Casey Fiesler, Stevie Chancellor, Anna Lauren Hoffmann, Jessica Pater, Nicholas Proferes

Health Services and Informatics Research

In AAAI Conference on Web and Social Media ICWSM Workshop:

Social media and user-generated content platforms have opened up new possibilities for communication and creativity while also providing huge amounts of information about people and their online behavior. The evolution of technology and research methods presents ongoing ethical challenges to studying people and their digital traces. These challenges are a continuing source of discussion within the research community and also a topic of public discourse as social media scholarship gains greater visibility. This workshop is aimed at exploring difficult and unanswered ethical questions, touching on issues such as consent, privacy, …

#Thyghgapp: Instagram Content Moderation And Lexical Variation In Pro-Eating Disorder Communities, Stevie Chancellor, Jessica Pater, Trustin Clear, Eric Gilbert, Munmun De Choudhury

Health Services and Informatics Research

CSCW '16, FEBRUARY 27–MARCH2, 2016, SAN FRANCISCO, CA, USA

In Proceedings of the 19th ACM conference on computer-supported cooperative work & social computing.

Pro-eating disorder (pro-ED) communities on social media encourage the adoption and maintenance of disordered eating habits as acceptable alternative lifestyles rather than threats to health. In particular, the social networking site Instagram has reacted by banning searches on several proED tags and issuing content advisories on others. We present the first large-scale quantitative study investigating pro-ED communities on Instagram in the aftermath of moderation – our dataset contains 2.5M posts between 2011 and 2014. We find that …