Diseases Commons^™

Parents' Experiences Of Children With A Rare Disease Attending A Mainstream School: Australia, Mandie Foster, Esther Adama, Diana Arabiat, Kevin Runions, Rena Vithiatharan, Maggie Zgambo, Ashleigh Lin

Research outputs 2022 to 2026

Purpose:

To explore the perceptions of parents who had a child or adolescent (6-18 years) diagnosed with a rare disease who attended a mainstream school in Western Australia.

Design and methods:

A cross-sectional online survey was conducted with 41 parents of children with a rare disease. Here we report the findings of 14 open-ended questions on their experience of illness-related factors and impact on school-related social activities, such as sports, school camps and leadership roles whilst their child with a rare disease attended a mainstream school in Australia. Responses were analysed using an inductive thematic content approach.

Results:

We identified …

Coronavirus Update 4-28-22, The Coronavirus Planning Team

University Briefings & Virtual Events

With the semester coming to a close, there are a few things we wanted to share with you about testing. This week will be the last week of mandatory testing.

Development Of Evidence-Based Covid-19 Management Guidelines For Local Context: The Methodological Challenges, Sarah Nadeem, Salima Saleem Aamdani, Bushra Ayub, Nashia Ali Rizvi, Fatima Safi Arslan, Russell Seth Martins, Maria Khan, Syed Faisal Mahmood

Section of Diabetes, Endocrinology and Metabolism

Background: The coronavirus disease 2019 (COVID-19) pandemic has presented as a therapeutic challenge for clinicians worldwide due to its rapid spread along with evolving evidence and understanding of the disease. Internationally, recommendations to guide the management of COVID-19 have been created and updated continuously by the WHO and CDC, which have been locally adapted by different countries. Similarly, Pakistan's National Command Operation Center (NCOC), in its national COVID-19 management strategy, generated guidelines for national implementation. Keeping the guidelines updated has proved challenging globally and locally. Here, we present a summary of the process to assess the evidence, including a time-restricted …

Coronavirus Update 4-5-22, The Coronavirus Planning Team

University Briefings & Virtual Events

Based on current numbers and trends and in accordance with CDC guidance, we will recommend vaccination, but not require it, for the fall. Vaccination has been one component of our strategy, along with testing, tracing, isolation, quarantine, masking, hygiene and social distancing. We will continue to follow the way the virus evolves and listen to the advice of state and local health officials, and we will let you know over the summer as decisions are made on our testing, isolation and other strategies for the fall.

A Quantitative Analysis Of The Efficacy Of Various Essential Oils Against The Sars Cov-2 Virus, Elizabeth Wagstaff, Chandrelyn Kraczek, Jack Brandon Lopez

Annual Research Symposium

A poster presentation and abstract for the Roseman Symposium. The project focuses on testing 3 essential oil blends and two disinfectants containing an essential oil blend against SARS CoV-2 in response to the COVID-19 pandemic. The project procedure involves plaque assays, disinfection, and neutralization techniques.

Coronavirus Update 3-23-22, The Coronavirus Planning Team

University Briefings & Virtual Events

There will be a booster clinic on campus this coming Saturday, March 26, from 10 a.m. to 2 p.m. in the Edgerton Center atrium. The clinic will be open to SHU community members and their family and friends.

The Last Conversation, Muhammad Ismail Khalid Yousaf

Journal of Wellness

The brain-death exam is one of the most sensitive undertakings for a physician, especially a neurologist, because of its social and legal implications. It is the vital examination establishing a clear lack of meaningful vitals, allowing a family to mark the end of a journey and a life finally complete. Physicians who perform and establish this death-decision must ensure they are au courant with the family's sentiments and concerns. It would behoove this obligated physician to bear in mind that it is a human being who will go through this invasive and rough exam. This comatose person is a father …

Coronavirus Update 3-10-22, The Coronavirus Planning Team

University Briefings & Virtual Events

As you know, the deadline for employees to receive a booster shot was March 1, and the deadline for students is March 15. Anyone who has received an exemption or has not complied with the booster deadline will need to be tested weekly throughout the remainder of the semester. We also recommend that those who have not been vaccinated and/or received a booster wear a mask indoors.

Re-Joining Formal Schooling After A Postpartum Hiatus: Experiences Of Teenage Mothers Of Zanzibar, Elliott P. Niboye

Journal of Humanities and Social Sciences

The lack of nuanced understanding of how teens undertake their triple roles as mothers, parents and student is prevalent in Tanzania. This article highlights the plight of teenage mothers who are readmitted back to formal schooling in Zanzibar. Four objectives guided this study. The first was to determine the age at which most teenage girls fall pregnant,; second, how long do teen mothers take to return to school after delivery; third, the challenges that teenage mothers encounters when they re-join schooling; and lastly, the coping strategies used by teen mothers to overcome challenges encountered after re joining school. Public rapid …

Coronavirus Update 3-3-22, The Coronavirus Planning Team

University Briefings & Virtual Events

We have scheduled a booster clinic on campus on Saturday.

We want to remind you to make sure you have picked up your at-home COVID test before you leave for break. Please take the test the morning that you first plan to return to campus.

Coronavirus Update 2-24-22, The Coronavirus Planning Team

University Briefings & Virtual Events

Given the low numbers of positive cases on campus and the trends at other campuses and in towns and cities in the area, we are modifying our indoor mask mandate, effective March 1.

The Day The World Shut Down, Anonymous

Community Reflections

If I could tell only one thing to future generations about the hardships of the pandemic, I would tell them that no one thing in life is permanent. Things you could never imagine being temporary can be taken from you in an instant. The pandemic has taught me how to adapt during difficult times.

It Was Friday March 13th, Anonymous

Community Reflections

The Coronavirus is very similar to both “The Plague” and “The Black Death” in numerous ways. The spread of infection, self-quarantine, travel bans, and lack of a cure, are all qualities that these diseases share.

Challenging And Eye-Opening, Anonymous

Community Reflections

Standing next to us at the store was a man wearing a mask and gloves. Little did I know that that would be my attire for the next year.

Covid Pushed Me To Want To Be A Nurse Even More, Anonymous

Community Reflections

The biggest adjustment for other High school students as well as myself was switching from in-person to remote learning.

A Time Of Growth And Learning, Anonymous

Community Reflections

I spent most of my time reflecting, and I learned to appreciate what I already had and set new goals for myself.

Coronavirus Update 2-10-22, The Coronavirus Planning Team

University Briefings & Virtual Events

The Connecticut Governor’s state-wide mask mandate for K-12 schools is set to expire at the end of this month, leaving the decision up to local communities. Because the CDC still lists Fairfield County as a high-transmission area and, on the advice of state and local health officials, Sacred Heart will continue to require indoor masking for the time being.

Life During The Covid-19 Pandemic Was, And Still Is, Dispiriting, Anonymous

Community Reflections

For me personally, I did not enjoy quarantining at all. I did enjoy seeing my family every day, however, I was very lonely. I couldn’t see any of my friends, which was very disappointing. Thankfully with social media I could facetime them and text them, but face-to-face contact with other people is very necessary; it is something you wouldn’t normally think is important, but when you are unable to physically be with other people, you realize how lonely you feel.

Coronavirus Update 2-3-22, The Coronavirus Planning Team

University Briefings & Virtual Events

There will be two booster clinics on campus this weekend that will be open to students, faculty and staff and their family members.

It’S About Lyme: Why Congress Must Enact Medical Insurance Coverage Laws For Lyme Disease Patients Now, Jennifer Barrett

Seattle University Law Review Online

The Centers for Disease Control and Prevention (CDC) estimates approximately 476,000 people are diagnosed with Lyme disease in the United States each year. While many will recover with a short course of antibiotics, up to 35% will suffer from persistent symptoms after initial treatment. Despite scientific evidence showing the infection can persist long after initial treatment, most insurance companies restrict access to treatment beyond twenty-eight days, leaving patients to bear much of the financial burden. To limit crippling out-of-pocket expenses, Congress must enact legislation mandating coverage for the treatment of clinically diagnosed Lyme disease and co-infections based on the International …

Coronavirus Update 1-27-22, The Coronavirus Planning Team

University Briefings & Virtual Events

Today’s dashboard shows 57 positive cases. We are lifting the additional restrictions that we announced at the beginning of the semester. To help with the severe shortage of blood on-campus blood drives are planned.

The Covid-19 Pandemic: The New Way Of Living, Anonymous

Community Reflections

The coronavirus came to America in the beginning of the year, 2021. My contribution is based on the virus's peak and how it affected my family. My essay ranges from what life was like as a high school student in New York witnessing the pandemic to my family being exposed. It touches on the important features of being in lockdown and the adjustment society had to make that still exists today. A common theme throughout my assessment is the development of fear from the coronavirus. It discusses how fear has driven many of the restrictions that my community has had …

Coronavirus Update 1-21-22, The Coronavirus Planning Team

University Briefings & Virtual Events

Students who are unvaccinated and those who have been randomly selected will need to register for testing next week.

Coronavirus Update 1-20-22, The Coronavirus Planning Team

University Briefings & Virtual Events

There has been some confusion about the process if you test positive through a test not administered by the University. The graphic below explains the process.

We have partnered with our public health program to facilitate COVID-related communications.

Sacred Heart University is becoming a JED Campus.

Coronavirus Update 1-13-2022, The Coronavirus Planning Team

University Briefings & Virtual Events

As you know, we have been extremely successful keeping the community safe and the number of COVID cases low. This has been a result of vaccinations, testing and your diligence with masking and other safety protocols. Because the omicron variant is so highly transmissible, it presents some different challenges than we have previously faced, but nothing that we can’t handle.

A Nationwide Virtual Research Education Program For Medical Students In Pakistan: Methodological Framework, Feasibility Testing, And Outcomes, Ali Aahil Noorali, Maha Inam, Hamna Shahbaz, Hareem Rauf, Faiqa Binte Aamir, Farah Khalid, Saadia Abbas, Abdullah Saeed, Muhammad Daniyal Musharraf, Asma Altaf Hussain Merchant, Babar Hasan, Muneera A. Rasheed, Fyezah Jehan, Muhammad Tariq, Adil Hussain Haider

Medical College Documents

Introduction: Equipping young medical trainees with fundamental research skills can be a promising strategy to address the need for professionals who can understand and responsibly communicate evolving scientific evidence during a pandemic. Despite an ardent interest to partake in research, most educational institutions in Pakistan and other low-middle income countries have not yet adopted a comprehensive strategy for research skills education. The authors aimed to design and assess the feasibility of implementing the first nation-wide virtual research workshop for medical students in Pakistan.
Methods: The course "Beginners Guide to Research," designed as a nation-wide virtual research workshop series, was conducted …

Coronavirus Update 1-6-22, The Coronavirus Planning Team

University Briefings & Virtual Events

Updated CDC Guidelines for Quarantining and Isolating

The CDC recently updated its guidelines for quarantining and isolating. We delayed implementing the new guidelines, because we expected the CDC to release more specific guidance for institutions of higher education. After consulting with state and local health officials, we have decided to move forward with the new guidelines. When the CDC does release guidelines for higher education, we will review them and may update our protocols accordingly. We are sharing some highlights of the new guidelines below, but the guidance is constantly changing, and you can find the most up-to-the-minute decisions on …

Coronavirus Update 1-4-22, The Coronavirus Planning Team

University Briefings & Virtual Events

We are continuing to review new guidance from the CDC and the transmission of omicron in the state and in the University community. We will have more information for you later this week.

Experiences In Remote Learning: Perceptions Of West Virginia Educators During The Covid-19 Pandemic, Craig Edward Arch

Theses, Dissertations and Capstones

In March 2020, the threat of illness caused by Covid-19 prompted West Virginia Governor Jim Justice to abruptly close public schools statewide. Instruction was delivered remotely for the remainder of the 2019 – 2020 school year and sporadically across the state during the 2020-2021 school year with educators holding class meetings and delivering instruction where technology and a reliable internet connection were available. Gaining understanding as it relates to a teacher’s remote learning experience may provide insight into how administrators can prepare for future interruptions in in-person instruction. Identifying specific areas teachers felt were challenging or stressful may provide a …

Quarantine Was Very Productive But Lonely, Anonymous

Community Reflections

Class assignment for HI-102-P. No two people’s experiences with Covid-19 are the same, and in February of 2022, it is still a very relevant issue.