Medicine and Health Sciences Commons^™

Tailored, Theory-Based Strategies For Engaging Low-Income Populations With A Personal Health Record, Tammy Toscos Phd, Maria Wright Rn, Bsn, Mindy Flanagan Phd, Kislaya Kunjan Ms, Mba, Amy Olson-Miller Ms, Bradley N. Doebbeling Md, Ms

Health Services and Informatics Research

There remain significant barriers to the use of personal health records (PHRs), which limit potential benefits in underserved patient populations. Novel strategies must be developed to achieve the desired impact of PHRs on patient engagement and health outcomes. This paper describes the health information needs and technology preferences of adults seeking care in Community Health Centers (CHCs), which provide care to low-income, uninsured and underinsured patients. We offer design suggestions emerging from interviews with 43 CHC patients and 49 CHC staff members that explored many themes including: patient barriers to accessing health care, health information needs of patients between clinic …

Access Is Meaningful (Aim): Working With Community Health Centers To Improve Access To Care., Tammy Toscos Phd, Maria D. Carpenter Rn, Bsn, Kislaya Kunjan Ms, Mba, Iman Mohammadi Ms, Amy Miller, Brad N. Doebbeling Md, Ms, Huanmei Wu Phd

Health Services and Informatics Research

Presented in 9th Annual Conference on the Science of Dissemination and Implementation

Background:

We are partnering with community health centers (CHCs) and their patients to redesign systems to deliver timely care to underserved populations in Indiana. Our Delphi study was designed to address two questions: 1) what solutions (e.g. organizational factors, processes, procedures) serve as facilitators to accessing care?; and 2) what organizational strategies might work to implement solutions in CHC environments?

Methods:

We used a modified Delphi method, bringing experts together in one room for a face-to-face meeting to prioritize solutions for reducing access barriers and strategies to implement …

Missing Links: Challenges In Engaging The Underserved With Health Information And Communication Technology, Maria D. Wright, Mindy Flanagan, Kislaya Kunjan, Bradley N. Doebbeling, Tammy Toscos Phd

Health Services and Informatics Research

PervasiveHealth '16: Proceedings of the 10th EAI International Conference on Pervasive Computing Technologies for Healthcare

We sought to understand underserved patients' preferences for health information technology (HIT) and examine the current use of personal health records (PHRs) in Community Health Centers (CHCs) serving low-income, uninsured, and underinsured patients. Forty-three patients and 49 clinic staff, administrators, and providers from these CHC systems were interviewed using open-ended questions assessing patient experience, perceptions of the CHC, access barriers, strategies used to overcome access barriers, technology access and use, and clinic operations and workflow. All seven CHC systems were at some stage of implementing …

Young Children’S Tablet Use And Associations With Maternal Well-Being, Tiffany Pempek, Brandon T. Mcdaniel Phd

Health Services and Informatics Research

While recent research has documented a rapid increase in the use of new technologies such as touchscreen tablets early in life, little is known about how young children use tablets, what activities they engage in, and whether family demographic and maternal well-being are associated with early use. Guided by Bronfenbrenner’s bioecological theory of human development, the current study addressed these questions with a cross-sectional, online survey of mothers with children between 12 and 48 months of age. Mothers reported on their child’s tablet use as well as their own personal well-being (depressive symptoms and role overload) and relational well-being (relationship …

Challenges And Futures For Ethical Social Media Research, Casey Fiesler, Stevie Chancellor, Anna Lauren Hoffmann, Jessica Pater, Nicholas Proferes

Health Services and Informatics Research

In AAAI Conference on Web and Social Media ICWSM Workshop:

Social media and user-generated content platforms have opened up new possibilities for communication and creativity while also providing huge amounts of information about people and their online behavior. The evolution of technology and research methods presents ongoing ethical challenges to studying people and their digital traces. These challenges are a continuing source of discussion within the research community and also a topic of public discourse as social media scholarship gains greater visibility. This workshop is aimed at exploring difficult and unanswered ethical questions, touching on issues such as consent, privacy, …

#Thyghgapp: Instagram Content Moderation And Lexical Variation In Pro-Eating Disorder Communities, Stevie Chancellor, Jessica Pater, Trustin Clear, Eric Gilbert, Munmun De Choudhury

Health Services and Informatics Research

CSCW '16, FEBRUARY 27–MARCH2, 2016, SAN FRANCISCO, CA, USA

In Proceedings of the 19th ACM conference on computer-supported cooperative work & social computing.

Pro-eating disorder (pro-ED) communities on social media encourage the adoption and maintenance of disordered eating habits as acceptable alternative lifestyles rather than threats to health. In particular, the social networking site Instagram has reacted by banning searches on several proED tags and issuing content advisories on others. We present the first large-scale quantitative study investigating pro-ED communities on Instagram in the aftermath of moderation – our dataset contains 2.5M posts between 2011 and 2014. We find that …

Sexting Among Married Couples: Who Is Doing It, And Are They More Satisfied?, Brandon T. Mcdaniel Phd, Michelle Drouin

Health Services and Informatics Research

This study examined the prevalence and correlates of sexting (i.e., sending sexual messages via mobile phones) within a sample of married/cohabiting couples (180 wives and 175 husbands). Married adults do sext each other, but it is much less common than within young adult relationships, and consists mainly of sexy or intimate talk (29% reported engaging in sexy talk with partners) rather than sexually explicit photos or videos (12% reported sending nude or nearly-nude photos). Sending sexy talk messages was positively related to relationship satisfaction only among those with high levels of avoidance, and sending sexually explicit pictures was related to …

This Digital Life: A Neighborhood-Based Study Of Adolescents' Lives Online, Jessica Pater Phd, Andrew D. Miller, Elizabeth Mynatt

Health Services and Informatics Research

In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems.

In this paper, we present the results of a multi-year study of the social computing practices of 179 adolescents (Mage=12.4 years, SD=1.3; range: 10-14) living in a majority-minority lower-income urban neighborhood in the Southeast U.S. We investigate shifting social media practices using annual surveys and focus groups. We describe participants’ social media use and motivations and show how that use has shifted over time. We show how participants identify social pressures and influences as well as specific behaviors including computer-mediated risky behaviors and self-harm. We discuss …

Missing Photos, Suffering Withdrawal, Or Finding Freedom? How Experiences Of Social Media Non-Use Influence The Likelihood Of Reversion, Eric P.S. Baumer, Shion Guha Phd, Emily Quan, David Mimno, Geri K. Gay

Health Services and Informatics Research

This article examines social media reversion, when a user intentionally ceases using a social media site but then later resumes use of the site. We analyze a convenience sample of survey data from people who volunteered to stay off Facebook for 99 days but, in some cases, returned before that time. We conduct three separate analyses to triangulate on the phenomenon of reversion: simple quantitative predictors of reversion, factor analysis of adjectives used by respondents to describe their experiences of not using Facebook, and statistical topic analysis of free-text responses. Significant factors predicting either increased or decreased likelihood of reversion …

Patient-Centered Appointment Scheduling Using Agent-Based Simulation., Ayten Turkcan, Tammy Toscos Phd, Brad N Doebbeling

Health Services and Informatics Research

Enhanced access and continuity are key components of patient-centered care. Existing studies show that several interventions such as providing same day appointments, walk-in services, after-hours care, and group appointments, have been used to redesign the healthcare systems for improved access to primary care. However, an intervention focusing on a single component of care delivery (i.e. improving access to acute care) might have a negative impact other components of the system (i.e. reduced continuity of care for chronic patients). Therefore, primary care clinics should consider implementing multiple interventions tailored for their patient population needs. We collected rapid ethnography and observations to …

Integrating An Automated Diabetes Management System Into The Family Management Of Children With Type 1 Diabetes: Results From A 12-Month Randomized Controlled Technology Trial., Tammy Toscos Phd, Stephen W Ponder, Barbara J Anderson, Mayer B Davidson, Martin L Lee, Elaine Montemayor-Gonzalez, Patricia Reyes, Eric Link, Kevin L Mcmahon

Health Services and Informatics Research

OBJECTIVE: The study objective was to evaluate how the use of a pervasive blood glucose monitoring (BGM) technology relates to glycemic control, report of self-care behavior, and emotional response to BGM of children with type 1 diabetes and their parents.

RESEARCH DESIGN AND METHODS: Forty-eight children aged less than 12 years (mean 8.8 years) with type 1 diabetes were randomly assigned to one of two study groups, a control group (conventional care without technology) or an experimental group (conventional care with technology), and followed for 12 months. Families in the experimental group were given the Automated Diabetes Management System (ADMS), …

Encouraging Physical Activity In Teens. Can Technology Help Reduce Barriers To Physical Activity In Adolescent Girls?, Tammy Toscos Phd, Anne Faber, Kay Connelly, Adity Mutsuddi Upoma

Health Services and Informatics Research

Physical activity levels of girls decline dramatically during adolescence and may be a contributor to the increasing number of obese teens in the United States. Research has shown that social support is positively correlated with physical activity levels in adolescents, particularly girls. We present the findings from a three week field study of a mobile phone application designed to create a support group for physical activity within an existing social network of adolescent girls. Our findings suggest design considerations for technologies that encourage physical activity for this user group.

Presented at 2008 Second International Conference on Pervasive Computing Technologies for …

Why It’S Worth The Hassle: The Value Of In-Situ Studies When Designing Ubicomp., Yvonne Rogers, Kay Connelly, Lenore Tedesco, William Hazlewood, Andrew Kurtz, Robert E. Hall, Josh Hursey, Tammy Toscos Phd

Health Services and Informatics Research

How should Ubicomp technologies be evaluated? While lab studies are good at sensing aspects of human behavior and revealing usability problems, they are poor at capturing context of use. In-situ studies are good at demonstrating how people appropriate technologies in their intended setting, but are expensive and difficult to conduct. Here, we show how they can be used more productively in the design process. A mobile learning device was developed to support teams of students carrying out scientific inquiry in the field. An initial in-situ study showed it was not used in the way envisioned. A contextualized analysis led to …

Mobile Applications That Empower People To Monitor Their Personal Health, Kay Connelly, A M. Faber, Y Rogers, Katie Siek, Tammy Toscos Phd

Health Services and Informatics Research

Researchers have an opportunity to develop assistive applications that empower people to change unhealthy habits through monitoring their behavior. Mobile applications can enhance self-monitoring by providing real-time feedback and employing persuasive technology. The projects presented demonstrate the potential of persuasive, assistive applications for both chronically ill and healthy individuals.