Digital Commons Network^™

Patient And Parent Knowledge, Understanding, And Concerns After A New Diagnosis Of Ehlers Danlos Syndrome., Jordan T. Jones, Lora L. Black, William R. Black

Manuscripts, Articles, Book Chapters and Other Papers

INTRODUCTION: After diagnosis of Ehlers Danlos Syndrome (EDS), it is unclear what information patients and parents need and understand about EDS. The objective of this study is to characterize patient and parent knowledge and concerns about EDS after a diagnosis of EDS is made to determine patient and parent concerns and identify barriers that cause discomfort with the diagnosis.6 METHODS: A convenience sample of patient and parent dyads were recruited after new diagnosis of EDS. Patients and parents completed questionnaires that assessed knowledge, comfort, and barriers of EDS before and after diagnosis, EDS education materials accessed, and additional clinical needs …

Effectiveness Of An Online Food Shopping Intervention To Reduce Salt Purchases Among Individuals With Hypertension - Findings Of The Saltswitch Online Grocery Shopping (Ogs) Randomised Trial, Jason Hy Wu, Damian Maganja, Liping Huang, Kathy Trieu, Fraser Taylor, Eden M Barrett, Clare Arnott, Xiaoqi Feng, Aletta E Schutte, Gian Luca Di Tanna, Cliona Ni Mhurchu, Adrian J Cameron, Mark D Huffman, Bruce Neal

2020-Current year OA Pubs

BACKGROUND: Online grocery shopping is a growing source of food purchases in many countries. We investigated the effect of nudging consumers towards purchases of lower sodium products using a web browser extension.

METHODS: This trial was conducted among individuals with hypertension who shopped for their groceries online in Australia. From July 2021 to June 2023, participants were randomised to use the SaltSwitch Online Grocery Shopping web browser extension or continue their usual grocery shopping for 12 weeks. The SaltSwitch extension modified a retailer's online shopping interface to suggest similar but lower sodium alternative products to those initially selected. The primary …

Dlk-Dependent Axonal Mitochondrial Fission Drives Degeneration After Axotomy, Francisco M Nadal-Nicolás, Preethi Somasundaram, Anastasia L Slavutsky, Wei Li, Michael E Ward, Trent A Watkins, Claire E Le Pichon

Faculty, Staff and Students Publications

Currently there are no effective treatments for an array of neurodegenerative disorders to a large part because cell-based models fail to recapitulate disease. Here we develop a reproducible human iPSC-based model where laser axotomy causes retrograde axon degeneration leading to neuronal cell death. Time-lapse confocal imaging revealed that damage triggers an apoptotic wave of mitochondrial fission proceeding from the site of injury to the soma. We demonstrate that this apoptotic wave is locally initiated in the axon by dual leucine zipper kinase (DLK). We find that mitochondrial fission and resultant cell death are entirely dependent on phosphorylation of dynamin related …

How Does Climate Risk Affect Employment Adjustment? Firm-Level Evidence From China, Dongmin Kong, Zihan Xiong, Ni Qin

Bulletin of Monetary Economics and Banking

In recent years, global climate risk has been on the rise, with extreme weather and climate-related events becoming more frequent and severe, garnering increased attention. We explore the impact of climate risk on employment adjustments using a dataset of small, medium and micro enterprises in China. Our findings indicate that as climate risk increases, employment adjustment rates increase, net employment growth rates decrease, and job destruction intensifies. These results remain robust in tests for endogeneity and robustness tests. Specifically, extreme weather events impact companies’ factories and production facilities, increasing operating costs and affecting overall production and sales. As a result, …

Promotion Of Overall Health During The Adolescent Period For Adolescent Girls Through Teaching Program – A Quasi-Experimental Study, Anusuya V. Prabhu Mrs., Sangeetha Priyadarshini, Mamatha Shivananda Pai Dr., Yashoda Sathish Dr.

Manipal Journal of Nursing and Health Sciences

Background

Adolescence, characterized by physical, psychological, and behavioral transformations, often elicits varied responses from girls. Adequate data can aid them in navigating these changes effectively. The study aimed to assess adolescent girls' understanding of puberty, psychological transitions, reproductive health, and the importance of a balanced diet during this developmental stage.

Method:

In this quasi-experimental investigation, purposive sampling was utilized to gather data. The study comprised 184 teenage girls aged between 10 and 19, with 92 participants assigned to both the intervention and control groups. Data were collected using a pre-designed questionnaire consisting of thirty-one questions aimed at assessing knowledge of …

Amplifying Ratego Stories And Knowledges: A Co-Research Initiative With Young Mothers In Social Movements In East Africa, Deborah Mrema, Patricia Nudi Orawo, Lydia Otieno, Juhi Jha, Joseph Kalisa, Serge Nyirinkwaya

The Qualitative Report

Young mothers can be negatively affected by dominant and degrading cultural narratives; their stories of resistance and activism are often rendered invisible in broader social contexts. Informed by collective narrative practice methodologies, we undertook a counter-storytelling research project to elicit and acknowledge the stories of survival and sustenance of young mothers in social movements responding to sexual and gender-based violence in East Africa. We facilitated storytelling circles, incorporating various story and knowledges collection methods. Our approach involved documenting collective experiences and counter-narratives, exchanging stories between communities, and inviting young mothers to respond to other participants’ stories. The telling and retelling …

Combining Direct Black Hole Mass Measurements And Spatially Resolved Stellar Kinematics To Calibrate The Mbh–Σ⋆ Relation Of Active Galaxies, Nico Winkel, Vardha N. Bennert, Raymond P. Remigio, Tommaso Treu, Knud Jahnke, Vivian U, Aaron J. Barth, Matthew Malkan, Bernd Husemann, Xuheng Ding

Physics

The origin of the tight scaling relation between the mass of supermassive black holes (SMBHs; MBH) and their host-galaxy properties remains unclear. Active galactic nuclei (AGNs) probe phases of ongoing SMBH growth and offer the only opportunity to measure MBH beyond the local Universe. However, determining an AGN's host galaxy's stellar velocity dispersion, σ⋆, and its galaxy dynamical mass, Mdyn, is complicated by AGN contamination, aperture effects, and different host-galaxy morphologies. We select a sample of AGNs for which MBH has been independently determined to high accuracy by state-of-the-art techniques: dynamical modeling of the reverberation …

Evaluasi Ekonomi Total Hip Arthroplasty Protokol Enhance Recovery After Surgery Dibandingkan Konvensional Di Rsup Fatmawati Jakarta, Hanna Elisabet Lumbangaol, Mardiati Nadjib

Jurnal Ekonomi Kesehatan Indonesia

Total hip arthroplasty (THA) is a common orthopedic procedure performed to replace damaged hip joints with prostheses. The demand for this procedure is expected to rise in the future. Enhanced Recovery After Surgery (ERAS) has been introduced as an evidence-based, multidisciplinary approach aimed at optimizing postoperative recovery and reducing hospital length of stay. This study aims to evaluate the costs and effectiveness, including hospital stay duration and surgical success rates, of THA using the ERAS protocol compared to conventional approaches. This cross-sectional study involved data collection from healthcare providers between January 2020 and May 2023. The analysis showed that both …

Be An Advocate For Caring Children In Pain, Rashal Rashmi Martis Ms, Mamatha Shivananda Pai

Manipal Journal of Nursing and Health Sciences

No abstract provided.

The Experiences Of Nurses Caring For Patients During The Initial Outbreak Of The Covid-19 Pandemic In The Maldives: A Phenomenological Study, Khadiyya Simany, Asiya Ibrahim

Manipal Journal of Nursing and Health Sciences

The experience of nurses caring for patients with COVID-19 in the Maldives may have been unique and at the same time similar to the global nursing situation during the initial outbreak of the COVID-19 pandemic. This research aimed to explore nurses’ experiences in providing nursing care for COVID-19 patients in one of the facilities in the Maldives. A descriptive phenomenological approach of inquiry was employed to explore the new phenomenon of the nursing experience during the early COVID-19 pandemic. Using purposive convenience sampling, six nurses were interviewed in depth via semi-structured face‒to-face interviews. The interviews were analysed through modified principles …

Assessment Of Examination Anxiety Among Secondary School Students In Selected Private High Schools In Udupi, Kotian Smitha Sanjeeva, Akshara N

Manipal Journal of Nursing and Health Sciences

ABSTRACT :Examination anxiety is considered a situation specific trait which predisposes the students to respond with increasing anxiety to an exam. A Study to Assess the Level of Examination Anxiety among 10th Standard School Students in Selected Private High Schools in Udupi” The sample consisted for this study are 312 high school students of 10th standard of state board and CBSE where 156 boys and girls are selected from private high school. The Descriptive research design was used and samples are selected by using Convenience Non-Random Sampling. The standardized tool was used for assessing the anxiety by using Westside test …

Application Of Transformational Leadership In Nursing-An Integrative Review, Sudha R, Dhanalakshmi R

Manipal Journal of Nursing and Health Sciences

Nurses play a crucial role as leaders in healthcare and have the ability to turn their vision into reality. The different styles of leadership directly or indirectly affect both nursing and patient outcomes. Among these styles, Transformational Leadership (TFL) is the most preferred. Transformational leaders empower individuals to believe in themselves and have been found to have numerous benefits in nursing and other fields. As a result, this study aims to gather evidence for its application in nursing. The study employed an integrative review approach and searched literature from online databases such as PubMed and Google Scholar. Additionally, articles were …

Pandysautonomia - A Rare Disorder., Leena Sequira, Arvind N. Prabhu, Surekha Samanth, Janet Prameela D'Souza, Sharmila Prabhu

Manipal Journal of Nursing and Health Sciences

Pandysautonomia is an idiopathic, acute, or subacute autoimmune neuropathy, which diffusely affects the autonomic nervous system. A previously healthy 39-year-old woman, presented with a history of giddiness, pushing to one side while walking, and slurring of speech, and was diagnosed with pandysautonomia. Antibodies to gAChR (nicotinic acetylcholine receptors) in the serum of the patient were tested and the report was negative. The patient was treated with steroids and symptomatically and recovered within two weeks. Initially, the patient was symptomatically managed with medications as the diagnosis was not confirmed. Hence, she had to undergo many investigations to confirm the diagnosis. Mainly, …

Framing Palestine Celebgrams On Instagram Social Media Post The Events Of October 7 2023, Labiq Yafuz, Subaidi Subaidi

Journal of Middle East and Islamic Studies

This research examines the framing conducted by Palestinian influencers on the social media platform Instagram following the Hamas attack on Israel on October 7, 2023. The study analyzes how these influencers use the platform to convey information about the conditions in Gaza after the attack. The methodology used is content analysis of several Palestinian influencers' accounts to observe differences in their content presentation. The findings indicate that the content uploaded by these influencers focuses on daily life, social impacts, and geographical conditions post-attack. This content aims to provide information and education to viewers about the current situation in Gaza. The …

Scheme For The Development Of Sharia-Compliant Financial Inclusion For Farmers On Dryland Area Through The Optimization Of Biological Assets, Kartika Nur Rakhman, Nur Fatwa

Journal of Middle East and Islamic Studies

Farmers in the Gunungkidul Regency are mostly categorized as impoverished. Resource constraints make it challenging for them to progress. One of the problems they face is the lack of capital for their businesses and daily needs. To meet these needs, they often resort to borrowing from loan sharks. This occurs partly due to the absence of assets they can use to access financing from Sharia-compliant financial institutions. This research aimed to assess the feasibility of biological assets, particularly teak trees (Tectona grandis), to be accepted as collateral in Sharia-compliant financing. Additionally, this study aimed to provide an alternative …

Assessing Nutrition Intake, Participation, And Education Retention: Among Middle School Participants Of A 12-Week Culinary Nutrition Program, Kathryn Antonopulos

Electronic Theses and Dissertations Archive

Abstract According to the World Health Organization, over 39 million children are categorized as obese.1 Several factors contribute to obesity: diet, lifestyle, environment, genetics, and socioeconomic factors.2 The most effective form of eradicating obesity is through preventative measures.2 Prevention through early exposure to nutrition education can build healthy habits and reduce the likelihood of obesity related comorbidities.3 This study’s aim was to determine if children who participate in a 12-week nutrition education program could sustain similar eating patterns, participation in meal preparation, and nutrition knowledge 6 months post program. Outcomes were assessed using quantitative and qualitative survey research. 13 participants …

Volume 33, Number 3, Winter 2024/25, Office Of Communications, Illinois Wesleyan University

Illinois Wesleyan University Magazine, 2018-present

VOLUME 33 | NUMBER 3 | Winter 2024/25

ON OUR COVER:

Lauren Giannini '08 and Andrew Herrington-Gilmore '09 are the founders of the The Gilmore Family Foundation, which has raised more than half a million dollars to support research for rare diseases.

22 A Family for Care, For Lauren Giannini '08 and Andrew Herrington-Gilmore '09, receiving their children's diagnoses of rare and life threatening diseases became their life's greatest challenge and their new inspiration to help others.

Deadly Deterrence: Border Patrol Authority, Pursuits, And Deported Witnesses, Shaw Drake

San Diego Law Review

Since 1994, the United States has perpetrated a border policy based on the idea that tougher enforcement will mean fewer people will cross the border—termed “prevention through deterrence.” But this idea has never fulfilled its stated aim and has turned into something resembling a border ideology rather than a border policy based in fact and reality. The results have been deadly.

This Article examines a small slice of the results of this deadly border policy as it looks at Border Patrol vehicle pursuits and the deportation of those who witness Border Patrol misconduct. It also provides an overview of the …

Assessing Parental Stress And Self-Efficacy: A Multisite Feasibility Study Of Parent-Mediated Physical Activity Interventions For Children With Developmental Disabilities, Luis Columna, Scott Mcnamarra, Beth A. Myers, Nienke Dosa, Ashlyn Barry, Kristi Roth, Christine E. Ashby, Byungmo Ku, Timothy Davis, Nikkia Borowski, Lisa M. Hooper

Faculty Publications

Background: Children with developmental disabilities often face barriers to engaging in physical activity (PA), impacting their health and quality of life. Parent-mediated interventions (PMIs) have shown promise to reduce these barriers, but little research explores online PMIs for parents of children with developmental disabilities. Thus, the purpose of this study was to assess the feasibility and impact of a multi-site collaborative online parent-mediated PA intervention on stress levels and self-efficacy among parents of children with developmental disabilities over a 12-week period.

Methods: Participants (n=55) were parents of children with developmental disabilities, randomly assigned to intervention (n=27) or control (n=28) groups. …

Research As Respect: Elevating The Knowledge And Stories Of Men At An Aboriginal-Controlled Residential Alcohol And Drug Recovery Service, Mark J. Hammersley, Uncle Les Stanley, Greg J. Smith Dr

The Qualitative Report

This conversation between an Aboriginal Elder, an Aboriginal senior manager/practitioner, and a non-Aboriginal narrative therapist/groupworker centres on a social research project they undertook with men residing in an Aboriginal men’s alcohol and other drug recovery service in Melbourne, Australia. The men were invited to contribute accounts of what was important in their lives and the practices that supported positive developments in their time at the facility. The men, manager, and a community Elder directed a research process that prioritised the use of these accounts to contribute to the lives of other men. The men resident at the facility provided access …

Research As Seeking Help: Searching For Liberative Knowledge - An Interview With Taimalieutu Kiwi Tamasese, Taimalieutu Kiwi Tamasese, David Denborough

The Qualitative Report

Indigenous methodologies have been transforming social science research. In this interview, Pasifika researcher, policy analyst, and community worker, Taimalieutu Kiwi Tamasese, speaks with narrative therapist David Denborough about the Just Therapy Team’s significant contributions to developing Pasifika research methods that resist colonizing assumptions and honour culture and relationship. Rather than seeking to establish the researcher as knowledge holder, The Just Therapy Team’s research is guided by values of liberation, sacredness, and belonging to seek solutions to issues affecting communities. Taimalieutu describes the development of innovative research methods capable of eliciting Indigenous knowledges about gender relations and mental health in Samoa …

Effective Revenue Growth Strategies For Nonprofit Organizations, Girum Assefa Gebretsadik

Walden Dissertations and Doctoral Studies

Nonprofit organizations serving under-resourced communities often face persistent challenges in securing sustainable revenue streams for fulfilling their mission and maintaining essential services, which can negatively impact vulnerable populations. Using the Baldrige excellence framework (BEF) as a conceptual lens, this qualitative single case study was conducted to explore effective revenue growth strategies to enhance financial stability, reduce financial uncertainty, strengthen resilience, and enhance community service delivery. Data collection included in-depth interviews with client leadership in the northeastern United States, an analysis of organizational documents, and financial data to support methodological triangulation. Thematic analysis using Yin’s 5-step process led to four core …

Peran Guru Olahraga Dalam Meningkatkan Kegiatan Ekstrakurikuler Sepak Bola Di Sekolah Dasar, Fiorentina Salsa Arbadini, Mu'arifin Mu'arifin

Journal of Innovation and Teacher Professionalism

Schools as educational institutions or academic institutions are expected to be good and appropriate facilities for every student. Both during study hours and outside study hours (extracurricular activities). The role of the Sports Teacher in increasing extracurricular football activities at SDN Percobaan 1 Malang City should be carried out well. The school should have provided sufficient facilities and infrastructure for extracurricular football activities for each student. SDN Percobaan 1 Malang City should be present as a facilitator and supporter in developing the sustainability of extracurricular football activities. This research aims to find out how big the role of sports teachers …

Pendekatan Berdiferensiasi Pada Pelajaran Pendidikan Jasmani Olahraga Dan Kesehatan, Fatih Iqbal Maulana, Febrita Paulina Heynoek

Journal of Innovation and Teacher Professionalism

Differentiated learning particularly in health, sport and physical education is limited and rarely practiced by educators. Therefore, here we would like to evaluate research through a literature review on the use of differentiated instruction in teaching physical education, sport, and health. Then the purpose of writing this literature review is to (1) explain how the differentiated approach is done, (2) what happens when the differentiated approach is applied and why, and (3) the possibilities that arise when the differentiated approach is used in physical education, sports, and health education. After the scientific publications were analyzed, researchers used Google Scholar to …

Inovasi Pengelolaan Kelas: Strategi Meningkatkan Disiplin Dan Keterlibatan Peserta Didik, Nisda Nabilatul Izzah, Bayu Koen Anggoro

Journal of Innovation and Teacher Professionalism

This study aims to describe the implementation of differentiated learning based on learning styles in the Arts and Culture subject for 7th-grade students at SMPN 14 Malang, and to assess its impact on students' learning outcomes and motivation. The research employed a qualitative method using descriptive research. The findings indicate that differentiated learning based on learning styles can be effectively implemented in 7th-grade classes at SMPN 14 Malang in the Arts and Culture subject. The implementation of differentiated learning based on learning styles positively influences students' learning outcomes and motivation. During the semester-long implementation of differentiated learning, the focus was …

Cultural Adaptation And Environmental Challenges: A Case Study Of Nubian Communities In Egypt Through The Lens Of Cultural Ecology Theory, Imam Wicaksono, Sherif Sa’Ad Algayyar, Ahmed Hassan Mohammad Hassan

Journal of Middle East and Islamic Studies

The purpose of this study is to investigate how the ecological changes brought about by the building of the Aswan Dam have affected the Nubian community's social structure, cultural identity, and coping mechanisms. The study emphasizes how important it is to comprehend how people interact with their surroundings considering modernization, which frequently jeopardizes the viability of regional customs. In addition to a literature review approach, a thematic analysis grounded in Julian Steward's cultural ecology theory—which highlights how societies adjust to changes in their physical surroundings—was used. The results show that ecological changes have profoundly impacted the Nubian people's cultural rites, …

Exploring The Impact Of Self-Control, Motivation, And Resilience On Students' Self-Compassion, Diani Akmalia Apsari, Adi Atmoko, Ika Andrini Farida, Nur Eva, Augusto Da Costa, Aidah Fuadiyah

Jurnal Kajian Bimbingan dan Konseling

The core purpose of Pendidikan Profesi Guru Prajabatan (PPG) is to educate prospective teachers to become professional teachers. To achieve this goal, students requires psychological abilities when facing challenges such as dense and demanding tasks based on the curriculum that must be completed in 2 semesters. This study aims to (1) test the theoretical model of regression of self-compassion, and (2) determine the contribution of self-control, motivation, and resilience to self-compassion in PPG students. This study used a causal relationship design. Data were collected with (1) Brief Self Control Scale, (2) The Academic Motivation Scale, (3) The Connor-Davidson Resilience Scale, …

The Voice Of The Voiceless: Countering The Festival And Elevating Reyog Obyokan As Cultural Capital, Albert Tallapessy, Ikwan Setiawan

Paradigma: Jurnal Kajian Budaya

This article examines two performance models of Reyog Ponorogo: the festival model and the obyokan model. These two competing models represent differing perspectives on one side, the interests of the artists and the community, and on the other, the interests of the state. By applying cultural studies theories, particularly those of representation and hegemony, this study analyzes data collected through observations of Reyog performances at both festival and obyokan events, as well as interviews with artists and community members. The findings reveal that the obyokan model emphasizes an egalitarian spirit, allowing artists greater aesthetic freedom and providing the community with …

Pancasila As The Philosophical Foundation Of The Indonesian Curriculum, Nurbaya Pulhehe, Babang Robandi

Paradigma: Jurnal Kajian Budaya

The philosophical foundation of Pancasila, comprised of five principles, plays a significant role in shaping Indonesia's education system. These principles guide curriculum design, implementation, and evaluation, reflecting the nation's educational goals and desired student outcomes. This paper examines the philosophical underpinnings of Pancasila, with a focus on content and graduate competence standards, examining their relationship with educational objectives and their implications for the national curriculum. Utilizing a literature review methodology, the research highlights the critical influence of Pancasila on curriculum development and educational planning in Indonesia. The findings indicate that Pancasila serves as a central philosophical framework guiding Indonesia's national …

Symbolic Cultural Value: Creativity And Counterproductivity In Citayam Fashion Week 2022 In Indonesia, Fuad Noorzeha, Agus Sutono, John Abraham Ziswan Suryosumunar

Paradigma: Jurnal Kajian Budaya

The phenomenon of Citayam Fashion Week has symbolically influenced the way lower-class youth dress in central Jakarta. What was once an urban area in Sudirman has transformed into a fashion arena after videos of young people sporting distinctive clothing styles went viral. More than just a social gathering, this occurrence has attracted significant attention on social media, showcasing unique fashion expressions. However, this spontaneous and instantaneous trend has sparked a wide range of responses, with opinions varying from viewing it as a creative expression to considering it counterproductive. This study employs Jean Baudrillard’s theory as its formal framework in qualitative …