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Full-Text Articles in Social Work
Advance Care Planning Within Individualized Care Plans: A Component Of Emergency Preparedness, Heather L. Church, Christina Marsack-Topolewski, Jacqueline M. Mcginley, Victoria Knoke
Advance Care Planning Within Individualized Care Plans: A Component Of Emergency Preparedness, Heather L. Church, Christina Marsack-Topolewski, Jacqueline M. Mcginley, Victoria Knoke
Developmental Disabilities Network Journal
Federally-legislated Medicaid requirements for recipients with intellectual and/or developmental disabilities (IDD) to have a person-centered plan (PCP) do not specifically require that advanced care plans (ACP) be a component of the plan. However, coronavirus disease 2019 (COVID-19) has provided a salient reminder of the importance of incorporating ACP within the PCP for people who have IDD. As demonstrated by situations arising from COVID-19, emergencies and crises can dramatically alter access to care for people with IDD. This paper synthesizes results from an environmental scan related to ACP for adults with IDD. Findings suggest that the use of ACP, particularly when …
It’S Like I Have An Advantage In All This: Experiences Of Advocacy By Parents Of Children With Disabilities From Professional Backgrounds, Sarah Taylor, Amy Conley Wright, Holly Pothier, Chellsee Hill, Meredith Rosenberg
It’S Like I Have An Advantage In All This: Experiences Of Advocacy By Parents Of Children With Disabilities From Professional Backgrounds, Sarah Taylor, Amy Conley Wright, Holly Pothier, Chellsee Hill, Meredith Rosenberg
The Journal of Sociology & Social Welfare
Supports and services for children with disabilities are not distributed equitably. There are disparities in access to and quality of services for children with disabilities from low-income and ethnic minority groups. There are likely many contributors to these disparities, but one factor may be barriers to access that require parents to advocate to obtain services for their children. This qualitative study explores advocacy experiences of parents of children with disabilities (n=40) who have a high level of education and/or professional achievement. Parents described relying heavily on their professional and educational backgrounds in advocacy, and some commented upon the “advantage” they …