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Quality Of Life Among Young Adults With Spina Bifida, Leah B. Colsch

Electronic Theses and Dissertations

Approximately 1,500 infants born in the United States each year are diagnosed with Spina Bifida. Spina Bifida is a congenital disorder that affects the spinal cord and neurological function. Improved medical treatment has allowed a longer life expectancy for patients with Spina Bifida, and an increasing rate of these patients are surviving through pediatric clinics and preparing for the transition into adult care. Although the number of patients preparing for the transition into adult care continues to increase, there continues to be a scarcity of literature relevant to this population. Furthermore, there is currently no systematic, evidence-based method that reliably …