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Full-Text Articles in Social Work
The Aaspire Practice-Based Guidelines For The Inclusion Of Autistic Adults In Research As Co-Researchers And Study Participants, Christina Nicolaidis, Dora M. Raymaker, Steven K. Kapp, Amelia E.V. Baggs, Elesia Ashkenazy, Katherine E. Mcdonald, Michael Weiner, Joelle Maslak, Morrigan Hunter, Andrea Joyce
The Aaspire Practice-Based Guidelines For The Inclusion Of Autistic Adults In Research As Co-Researchers And Study Participants, Christina Nicolaidis, Dora M. Raymaker, Steven K. Kapp, Amelia E.V. Baggs, Elesia Ashkenazy, Katherine E. Mcdonald, Michael Weiner, Joelle Maslak, Morrigan Hunter, Andrea Joyce
School of Social Work Faculty Publications and Presentations
As interest in autism in adulthood grows, so does the need for methods to promote the inclusion of autistic adults in research. Our objective was to create practice-based guidelines for the inclusion of autistic adults, both as research team members and as study participants. We conducted an institutional ethnography of three closely related research partnerships that used participatory methods with autistic adults over the years 2006–2018. We used an iterative approach which combined discussions with community and academic partners and artifact review. Guidelines to promote the inclusion of autistic adults as co-researchers focus on being transparent about partnership goals, clearly …
The Dynamics Of Autistic-Academic Partnerships, Dora Raymaker, Christina Nicolaidis
The Dynamics Of Autistic-Academic Partnerships, Dora Raymaker, Christina Nicolaidis
School of Social Work Faculty Publications and Presentations
Traditionally, research about autistics has been developed without autistics, leading to systemic problems that reinforce stereotypes and divide communities. Some academics find the idea of autistics contributing meaningfully to research unthinkable, while the autistic community is often angered by research which holds no potential benefit, or is even directly harmful, to community aims. Problematic dynamics between academics and minority populations are neither new nor specific to autism research. Research approaches involving academic-community partnerships can change these dynamics to benefit all partners. Academic-community partnerships empower minorities to execute research relevant to community priorities and enable academics to perform high-quality, ethical science. …