Social Work Commons^™

Shifting The System: Aaspire And The Loom Of Science And Activism, Dora Raymaker

School of Social Work Faculty Publications and Presentations

In 2006 Dora Raymaker, Autistic person and autistic rights activist, co-founded the Academic Autism Spectrum Partnership in Research and Education (AASPIRE) with Christina Nicolaidis, a physician-researcher and parent of an autistic child. AASPIRE works within the sphere of academic health and social services research to conduct projects the A/autistic community wants done. It endeavors to return power to communities that experience oppression to make their voices heard in research and policy settings. For example, its website autismandhealth.org offers resources for autistic adults, their supporters, and healthcare providers to improve the healthcare of autistic adults in the US. AASPIRE has served …

"I Wouldn't Know Where To Start": Perspectives From Clinicians, Agency Leaders, And Autistic Adults On Improving Community Mental Health Services For Autistic Adults, Brenna B. Maddox, Samantha Crabbe, Rinad S. Beidas, Lauren Brookman-Frazee, Carolyn Cannuscio, Judith Miller, Christina Nicolaidis, David Mandell

School of Social Work Faculty Publications and Presentations

Most autistic adults struggle with mental health problems, and traditional mental health services generally do not meet their needs. This study used qualitative methods to identify ways to improve community mental health services for autistic adults for treatment of their co-occurring psychiatric conditions. We conducted semistructured, open-ended interviews with 22 autistic adults with mental healthcare experience, 44 community mental health clinicians, and 11 community mental health agency leaders in the United States. The participants identified clinician-, client-, and systems-level barriers and facilitators to providing quality mental healthcare to autistic adults. Across all three stakeholder groups, most of the reported barriers …

The Development And Evaluation Of An Online Healthcare Toolkit For Autistic Adults And Their Primary Care Providers, Christina Nicolaidis, Dora Raymaker, Katherine E. Mcdonald, Steven K. Kapp, Michael Weiner, Elesia Ashkenazy, Martha Gerrity, Clarissa Kripke, Laura Platt, Amelia E.V. Baggs

School of Social Work Faculty Publications and Presentations

BACKGROUND: The healthcare system is ill-equipped to meet the needs of adults on the autism spectrum.

OBJECTIVE: Our goal was to use a community-based participatory research (CBPR) approach to develop and evaluate tools to facilitate the primary healthcare of autistic adults. DESIGN: Toolkit development included cognitive interviewing and test–retest reliability studies. Evaluation consisted of a mixed-methods, single-arm pre/postintervention comparison.

PARTICIPANTS: A total of 259 autistic adults and 51 primary care providers (PCPs) residing in the United States.

INTERVENTIONS: The AASPIRE Healthcare toolkit includes the Autism Healthcare Accommodations Tool (AHAT)—a tool that allows patients to create a personalized accommodations report for …

Conceptualization Of Autism In The Latino Community And Its Relationship With Early Diagnosis, Katharine E. Zuckerman, Brianna Sinche, Martiza Cobian, Marlene Cervantes, Angie Mejia, Thomas Becker, Christina Nicolaidis

School of Social Work Faculty Publications and Presentations

Objective—Early identification of autism spectrum disorders (ASD) has been linked to improved long-term developmental outcomes. However, Latino children are diagnosed later than white non- Latino children. We aimed to qualitatively assess the understanding and conceptualization of ASD in the Latino community in order to understand potential community barriers to early diagnosis.

Method—We conducted 5 focus groups and 4 qualitative interviews with 30 parents of typicallydeveloping Latino children in Oregon. Participants were asked structured questions concerning video vignettes that follow a Latina mother from the time she begins to worry about her 3-year-old son's behaviors to the time he receives an …

Latino Parents' Perspectives On Barriers To Autism Diagnosis, Katharine Zuckerman, Brianna Sinche, Angie Pamela Mejia, Martiza Cobian, Thomas Becker, Christina Nicolaidis

School of Social Work Faculty Publications and Presentations

Recent estimates suggest that Autism Spectrum Disorders (ASDs) affect more than 1% of U.S. children over age 3, and rates ASD diagnosis may be increasing.1 ASDs can be reliably diagnosed,2 and early diagnosis is associated with improved long-term developmental and family outcomes.3 However, many children meeting ASD diagnostic criteria are never diagnosed4 or are diagnosed years after onset of symptoms.4,5 Delayed diagnosis is a particular problem among Latino children:6,7 Latino children receive a diagnosis of an ASD 2.5 years later than white non-Latino children.8 Latino children are also less likely to carry an ASD diagnosis; however, when diagnosed, they are …

Getting The Most Out Of Healthcare As An Autistic Adult, Dora Raymaker, Christina Nicolaidis, Amelia E.V. Baggs, Cody Boisclair, Clarissa Kripke, Elesia Ashkenazy, Katie Mcdonald, Kirby Erickson, Marcie Tedlow

School of Social Work Faculty Publications and Presentations

The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE), a partnership between academic researchers and members of the Autistic community, has conducted a series of studies to understand the healthcare experiences of autistic adults. We are using what we learned from these studies, as well as the lived experiences of our team members, to create information and tools to improve healthcare for autistic adults. After sharing what we learned from our studies, we will offer tips, ideas, information, and tools that may enable more effective self-advocacy in healthcare settings and reduce barriers to healthcare, including care for acute and …

What Can Physicians Learn From The Neurodiversity Movement?, Christina Nicolaidis

School of Social Work Faculty Publications and Presentations

An op-ed piece that describes the author's experiences parenting an autistic child, describing how her thinking and opinions of autism and autistic individuals have changed over time.

The Dynamics Of Autistic-Academic Partnerships, Dora Raymaker, Christina Nicolaidis

School of Social Work Faculty Publications and Presentations

Traditionally, research about autistics has been developed without autistics, leading to systemic problems that reinforce stereotypes and divide communities. Some academics find the idea of autistics contributing meaningfully to research unthinkable, while the autistic community is often angered by research which holds no potential benefit, or is even directly harmful, to community aims. Problematic dynamics between academics and minority populations are neither new nor specific to autism research. Research approaches involving academic-community partnerships can change these dynamics to benefit all partners. Academic-community partnerships empower minorities to execute research relevant to community priorities and enable academics to perform high-quality, ethical science. …