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School of Social Work Faculty Publications and Presentations

Autism -- Research -- Citizen participation

2013

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Full-Text Articles in Social Work

Comparison Of Healthcare Experiences In Autistic And Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated By An Academic-Community Partnership, Christina Nicolaidis, Dora Raymaker, Katherine E. Mcdonald, Sebastian Dern, Cody Boisclair, Elesia Ashkenazy, Amelia E.V. Baggs Jan 2013

Comparison Of Healthcare Experiences In Autistic And Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated By An Academic-Community Partnership, Christina Nicolaidis, Dora Raymaker, Katherine E. Mcdonald, Sebastian Dern, Cody Boisclair, Elesia Ashkenazy, Amelia E.V. Baggs

School of Social Work Faculty Publications and Presentations

BACKGROUND

Little is known about the healthcare experiences of adults on the autism spectrum. Moreover, autistic adults have rarely been included as partners in autism research.

OBJECTIVE

To compare the healthcare experiences of autistic and non-autistic adults via an online survey.

METHODS

We used a community-based participatory research (CBPR) approach to adapt survey instruments to be accessible to autistic adults and to conduct an online cross-sectional survey. We assessed preliminary psychometric data on the adapted scales. We used multivariate analyses to compare healthcare experiences of autistic and non-autistic participants.

RESULTS

Four hundred and thirty-seven participants completed the survey (209 autistic, …