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University at Albany, State University of New York

2010

Disabilities

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Full-Text Articles in Social Work

Decision-Making Processes Among Siblings Caring For Adults With Intellectual Or Developmental Disabilities, Anna L. Zendell Jan 2010

Decision-Making Processes Among Siblings Caring For Adults With Intellectual Or Developmental Disabilities, Anna L. Zendell

Legacy Theses & Dissertations (2009 - 2024)

Sibling caregivers comprise a population of increasing significance to intellectual/developmental disabilities (I/DD) policy and practice. As persons with I/DD and their caregiving parents age, more families are relying on adult siblings to provide care. Today, 70% of persons with I/DD live with family members; estimates indicate that up to 20% may reside with siblings. Sibling caregiving has potential to meet some of the growing social need for later life care of individuals with I/DD. However, the needs of siblings providing care are often not addressed by the service system. Inadequate knowledge about how siblings come to be caregivers and their …