Social Work Commons^™

Differences Among Family And Professional Guardians: A Statewide Survey Of Characteristics, Training, And Practices Related To Decision-Making, Kristin Hamre, Derek Nord

Developmental Disabilities Network Journal

This cross-sectional study sought to examine the differences between family and professional guardians across personal and role characteristics, training received, and their inclusion of people they serve in decision making. A total of 237 subjects serving as guardian to adults in the state of Indiana completed an online survey. Results showed group differences across race, education, as well as diagnosis and age of those served. Overall, training was limited across both groups, and family guardians received significantly less training across several topics. Finally, family and professional guardians were found to significantly differ in their willingness to allow people they serve …

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

Assessing Professionals Working With Latinx Families With Special Needs In Monterey County, Jose Francisco Hernandez Rivera

Capstone Projects and Master's Theses

Special Kids Connect (SKC) is a nonprofit organization serving children with disabilities and their families in Monterey County. This capstone project concentrated on the professionals working with children as part of SKC’s Early Start Intervention Program. The project’s objective was to discover local agencies' professional development training needs that serve Latinx families with disabled children between 2 to 8 years. Seventy-five child-care providers, early intervention service professionals, regional center staff, and school district personnel responded to the survey. They indicated an overall 60 % needed an understanding of systems related to IEPs, Early Start Services, Developmental Screenings, Social-Emotional Screenings, Regional …

Tahapan Dan Proses Pendidikan Pelatihan Pada Balai Rehabilitasi Vokasional Bagi Penyandang Disabilitas, Farhan Mursalin, Sari Viciawati Machdum

Jurnal Pembangunan Manusia

Competition in the world of work that is getting tougher requires everyone to have good abilities in a certain field, especially in the era of the Asian economic community like now, competition with workers from other countries is inevitable. To answer this challenge, the government through the Ministry of Social Affairs established a Rehabilitation Center which is focused on providing skills training for persons with disabilities. The training conducted specifically for preparing persons with disabilities for the world of work by providing training and social guidance. However, in its implementation, there are various obstacles so that organizations need innovation. These …

It’S Like I Have An Advantage In All This: Experiences Of Advocacy By Parents Of Children With Disabilities From Professional Backgrounds, Sarah Taylor, Amy Conley Wright, Holly Pothier, Chellsee Hill, Meredith Rosenberg

The Journal of Sociology & Social Welfare

Supports and services for children with disabilities are not distributed equitably. There are disparities in access to and quality of services for children with disabilities from low-income and ethnic minority groups. There are likely many contributors to these disparities, but one factor may be barriers to access that require parents to advocate to obtain services for their children. This qualitative study explores advocacy experiences of parents of children with disabilities (n=40) who have a high level of education and/or professional achievement. Parents described relying heavily on their professional and educational backgrounds in advocacy, and some commented upon the “advantage” they …

Poverty And Disability: A Vicious Circle? Evidence From Afghanistan And Zambia, Jean-Francois Trani, Mitchell M. Loeb

Brown School Faculty Publications

Disability and poverty have a complex and interdependent relationship. It is commonly understood that persons with disabilities are more likely to be poor and that poverty may contribute to sustaining disability. This interdependency is revealed not only through an examination of poverty in terms of income but also on a broader scale through other poverty related dimensions. Just how robust is this link? This paper compares data collected from household surveys in Afghanistan and Zambia, and explores the potential link between multidimensional poverty and disability. We find evidence of lower access to health care, education and labour market for people …

It's Not So Simple: Understanding Participant Involvement In The Design, Implementation, And Improvement Of Cash & Counseling Programs, Erin E. Mcgaffigan

Graduate Doctoral Dissertations

For more than three decades, the United States federal government and the states have worked to restructure the long-term care system to be more community based and responsive to personal preferences. Some argue that those who seek such services should be actively engaged in their design (Morris, 2008; Priester, Hewitt, & Kane, 2006). While many who design and implement home and community-based services may believe that participant engagement could be beneficial, most plans move forward with little to no provision for such engagement. The existing literature provides very little insight into the implications of such decisions.

The Cash & Counseling …

Response To The Data Challenges Of The Affordable Care Act: Surveys Of Providers To Assess Access To Care For People With Disabilities And The Presence Of Accessible Exam Equipment, Nancy R. Mudrick, Mary Lou Breslin, June Isaacson Kailes

Nancy R. Mudrick

No abstract provided.

Response To The Data Challenges Of The Affordable Care Act: Surveys Of Providers To Assess Access To Care For People With Disabilities And The Presence Of Accessible Exam Equipment, Nancy R. Mudrick, Mary Lou Breslin, June Isaacson Kailes

Social Work - All Scholarship

No abstract provided.

Disabilities Through The Capability Approach Lens: Implications For Public Policies Handicap Au Travers De L’Approche Par Les Capabilités: Quelles Implications Pour Les Politiques Publiques ?, Jean-Francois Trani, Parul Bakhshi, Nicol Bellanca, Mario Biggeri, Francesca Marchetta

Brown School Faculty Publications

This paper explores the contribution of the capability approach of Amartya Sen and other authors to policy making in the specific case of disability policy. After reviewing existing models, their translation into action and their limitations in this regard, the paper introduces a new policy framework based on the capability approach. In particular, we introduce a new measure of functionings and capabilities. We investigate ways of measuring the gap between functionings, what people are able to do and be, and capabilities – the valuable practical opportunities people have and choose from. The possibility of the elaboration of such a disability …

Accessibility Of Primary Health Care Settings For People With Disabilities, Nancy R. Mudrick, Mary Lou Breslin, Mengke Liang, Silvia Yee

Nancy R. Mudrick

People with disabilities report physical barriers in doctors’ offices that affect the quality of care. The analysis seeks to describe overall primary care office physical accessibility and identify (1) in which areas offices meet access criteria, (2) which accessibility criteria are most often not met, and (3) whether there are urban/non-urban differences.

Accessibility Of Primary Health Care Settings For People With Disabilities, Nancy R. Mudrick, Mary Lou Breslin, Mengke Liang, Silvia Yee

Social Work - All Scholarship

People with disabilities report physical barriers in doctors’ offices that affect the quality of care. The analysis seeks to describe overall primary care office physical accessibility and identify (1) in which areas offices meet access criteria, (2) which accessibility criteria are most often not met, and (3) whether there are urban/non-urban differences.

Vulnerability And Disability In Darfur, Maria Kett, Jean-Francois Trani

Brown School Faculty Publications

The difficulties faced by persons with disabilities throughout the displacement process contribute to their increased vulnerability.

Lack Of A Will Or Of A Way? Taking A Capability Approach For Analysing Disability Policy Shortcomings And Ensuring Programme Impact In Afghanistan, Jean-Francois Trani, Parul Bakhshi, Ayan A. Noor, Ashraf Mashkoor

Brown School Faculty Publications

The present paper attempts to analyse some of the shortcomings that have impeded efforts in the field of disability in Afghanistan. After an overview of recent disability initiatives, this article presents elements that have contributed to the limited impact. The context of a Conflict Affected Fragile State (CAFS) makes particularly intricate the development of state-capacity as well as the delivery of basic services for the population. To overcome identified gaps, it is argued that Amartya Sen’s Capability Approach (CA) constitutes a relevant framework for designing disability policy and implementation. While the definition of human development has evolved considerably over the …

Long-Term Tanf Participants And Barriers To Employment: A Qualitative Study In Maine, Sandra S. Butler, Janine Corbett, Crystal Bond, Chris Hastedt

The Journal of Sociology & Social Welfare

Although welfare rolls have declined dramatically since the passage of the Personal Responsibility and Work Opportunity Reconciliation Act (PRWORA) in 1996, many of those parents still receiving Temporary Assistance for Needy Families (TANF) face multiple barriers to employment. In response to a proposed state bill increasing work requirements and imposing stricter time limits, the authors conducted focus groups and interviews in order to learn about the experiences of long-term recipients of TANF in Maine. Domestic violence, children's disabilities, and health issues for the mother emerged as key obstacles to meeting TANF work requirements for the 28 women participating in the …

Challenges For Assessing Disability Prevalence: The Case Of Afghanistan = Les Défis De La Mesure De La Prévalence Du Handicap : Le Cas De L’Afghanistan, Jean-Francois Trani, Parul Bakhshi

Brown School Faculty Publications

This article attempts to examine the methodological intricacies of measuring prevalence rate of disability through a population based survey using the International Classification of Functioning, Disability and Health of the WHO and the Capability framework, developed by Amartya Sen and others. After a rapid overview of the Afghan context and the process leading to the research programme, it presents the example of the methodology used in the NDSA and the survey protocol. The authors argue that prevalence rates can be measured using different instruments in terms of impairments, activity limitations or in terms of well-being. Thus, the disability experience is …