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2022

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Full-Text Articles in Psychology

The Cultic Lifecycle: A Thematic Analysis Of Fulfillment And Fear In Cult Membership, Shaelen Grant Dec 2022

The Cultic Lifecycle: A Thematic Analysis Of Fulfillment And Fear In Cult Membership, Shaelen Grant

Student Theses

Prior research on susceptibility to cult recruitment has focused predominately on psychopathological risk factors, such as a prior personality disorder diagnosis and psychiatric and addictive disorders (Feldman & Johnson, 1995; Rousselet et al., 2017). While such studies contribute valuable information, they also inadvertently pathologize cult members. Furthermore, this focus has led to the overlooking of a more crucial question: what basic human desires does cult membership fulfill that cult leaders and recruiters exploit, to recruit and keep members in cults? To address this dearth, research team members interviewed 52 former cult members (N=52) from a variety of groups (e.g., Christian-based, …


Prior Experiences Of Racial Discrimination Impact Acute Resting-State Connectivity Of The Bnst As A Predictor Of Ptsd In Black Adults, Kevin Petranu Dec 2022

Prior Experiences Of Racial Discrimination Impact Acute Resting-State Connectivity Of The Bnst As A Predictor Of Ptsd In Black Adults, Kevin Petranu

Theses and Dissertations

Altered resting-state activity of the bed nucleus of the stria terminalis (BNST) – which mediates anxious arousal and threat monitoring – is implicated in the etiology of posttraumatic stress disorder (PTSD). Experiences of racial discrimination can also increase one’s risk for developing PTSD by eliciting chronic states of hypervigilance, which impair essential resting-state processes related to fear extinction. Considering the frequency in which Black Americans experience racial discrimination, the current study investigated acute BNST resting-state functional connectivity as a predictor of future PTSD symptoms, as well as the impact of racial discrimination on the BNST as a predictor of PTSD. …


Prior Experiences Of Racial Discrimination Impact Acute Resting-State Connectivity Of The Bnst As A Predictor Of Ptsd In Black Adults, Kevin Petranu Dec 2022

Prior Experiences Of Racial Discrimination Impact Acute Resting-State Connectivity Of The Bnst As A Predictor Of Ptsd In Black Adults, Kevin Petranu

Theses and Dissertations

Altered resting-state activity of the bed nucleus of the stria terminalis (BNST) – which mediates anxious arousal and threat monitoring – is implicated in the etiology of posttraumatic stress disorder (PTSD). Experiences of racial discrimination can also increase one’s risk for developing PTSD by eliciting chronic states of hypervigilance, which impair essential resting-state processes related to fear extinction. Considering the frequency in which Black Americans experience racial discrimination, the current study investigated acute BNST resting-state functional connectivity as a predictor of future PTSD symptoms, as well as the impact of racial discrimination on the BNST as a predictor of PTSD. …


Methods For Teaching Mindfulness Within The Workplace, Gerrel March Dec 2022

Methods For Teaching Mindfulness Within The Workplace, Gerrel March

UNLV Theses, Dissertations, Professional Papers, and Capstones

Over the past few years, the world has been shaken by the COVID-19 pandemic and technological advancements that have contributed towards work-life imbalances. Now more than ever, organizations are focusing on improving mental health and well-being. This understanding holds value towards the hospitality industry as employee wellbeing has a direct link towards consumer experience. Considering the nature of the business, employees endure distress resulting from emotional labor, long work hours, etc, understanding how organizations can improve well-being is critical. This paper attempts to make significant contribution towards understanding both individual and organizational outcomes of mindfulness, best practices, and potential limitations …


Childhood Adversities And The Impact On Development, Karey Womack Dulaney Nov 2022

Childhood Adversities And The Impact On Development, Karey Womack Dulaney

Doctoral Dissertations and Projects

Experiences in life are crucial in determining how one’s development will progress throughout their lifespan, with many of the factors occurring in early childhood. The factors include but are not limited to adversities experienced at an early age, toxic stress, and childhood trauma. Childhood adversities can impact a child’s cognitive development and biological systems. Children living in adverse situations are at a greater risk of not reaching their full developmental potential in life. Although previous research and literature discuss and demonstrate the cruciality of early childhood interventions to mitigate adverse childhood experiences, gaps in the research exist for individual interventions, …


Relationship Between Individual Characteristics And Received Social Support Among People With Serious Mental Illness, Samantha Dicorte Nov 2022

Relationship Between Individual Characteristics And Received Social Support Among People With Serious Mental Illness, Samantha Dicorte

USF Tampa Graduate Theses and Dissertations

Past research on social support has mainly focused on perceived social support. Relatively less research has been done on received social support and how it can promote positive behavior outcomes. This study examines the importance of received social support, including background on social support, social support outcomes, and a theoretical foundation overview of the social stress model. In addition to a literature review, this study investigates the association between individual characteristics (i.e., diagnosis and substance abuse including alcohol, race/ethnicity, gender, age, and marital status) and different types of received social support (i.e., daily, mental health, and adherence support). Simple linear …


Expatriate Adolescents’ Resilience: Risk And Protective Factors In The Third Culture Context, Jorunn Jo Holmberg, Lilly Augustine, Sahil Datta, Toshie Imada Nov 2022

Expatriate Adolescents’ Resilience: Risk And Protective Factors In The Third Culture Context, Jorunn Jo Holmberg, Lilly Augustine, Sahil Datta, Toshie Imada

Papers from the International Association for Cross-Cultural Psychology Conferences

Expatriate children and adolescents typically spend several of their formative years moving from country to country, frequently having to adapt to new cultures, making new friends, and fit into new school systems. It has been established in literature that such frequent changes may cause increased and prolonged risk of developing internalizing behavior problems such as depression and anxiety. However, little is still known regarding which protective factors serve as buffer towards the increased risk within the expatriate demographic. This study examined risk and protective factors among a group of expatriates, adolescents, and their parents, originating from 21 countries on five …


Leadership Behavior, Stress, And Presenteeism: A Cross-Cultural Comparison, Jan Philipp Czakert, Julia A. M. Reif, Rita Berger Nov 2022

Leadership Behavior, Stress, And Presenteeism: A Cross-Cultural Comparison, Jan Philipp Czakert, Julia A. M. Reif, Rita Berger

Papers from the International Association for Cross-Cultural Psychology Conferences

Presenteeism is the behavior of working with ill-health. Due to associated productivity losses and substantial transmission risks during the ongoing COVID-19 pandemic, presenteeism is gaining increased attention in occupational psychological research. To understand the complexity of this phenomenon, research on contextual influences is needed. Our study investigated positive leadership behavior (transformational leadership, TFL) and negative leadership behavior (passive-avoidant leadership, PAL) as social-contextual predictors, next to stress. We hypothesized that in countries with high masculine values, presenteeism is more likely to occur. Our study involved 979 employees from the different cultural contexts of Germany, Ireland, Latvia and Spain that answered an …


Early Life Exposure To Unpredictable Parental Sensory Signals Shapes Cognitive Development Across Three Species, Elyssia Poggi Davis, Kari Mccormack, Hina Arora, Desiree Sharpe, Annabel K. Short, Jocelyne Bachevalier, Laura M. Glynn, Curt A. Sandman, Hal S. Stern, Mar Sanchez, Tallie Z. Baram Oct 2022

Early Life Exposure To Unpredictable Parental Sensory Signals Shapes Cognitive Development Across Three Species, Elyssia Poggi Davis, Kari Mccormack, Hina Arora, Desiree Sharpe, Annabel K. Short, Jocelyne Bachevalier, Laura M. Glynn, Curt A. Sandman, Hal S. Stern, Mar Sanchez, Tallie Z. Baram

Psychology Faculty Articles and Research

Exposure to early life adversity has long term consequences on cognitive function. Most research has focused on understanding components of early life adversities that contribute to later risk, including poverty, trauma, maltreatment, and neglect. Whereas these factors, in the aggregate, explain a significant proportion of emotional and cognitive problems, there are serious gaps in our ability to identify potential mechanisms by which early life adversities might promote vulnerability or resilience. Here we discuss early life exposure to unpredictable signals from the caretaker as an understudied type of adversity that is amenable to prevention and intervention. We employ a translational approach …


Impact Of Stress And Decision Fatigue On Parenting Practices Related To Food And Physical Activity During Covid‐19, Harrison D. Angoff, Lauren A. Dial, Aniko V. Varga, Sneha Kamath, Dara Musher-Eizenman Oct 2022

Impact Of Stress And Decision Fatigue On Parenting Practices Related To Food And Physical Activity During Covid‐19, Harrison D. Angoff, Lauren A. Dial, Aniko V. Varga, Sneha Kamath, Dara Musher-Eizenman

Psychology Faculty Publications

Background

The COVID-19 pandemic has resulted in substantial disruptions to daily functioning and lifestyle behaviours, with negative health consequences for youth. Parents play a large role in their children's health behaviour; yet changes to parenting behaviours during the pandemic related to food and physical activity remain relatively unexplored. The present study is the first to our knowledge to examine specific changes in American parents' parenting behaviours related to food and physical activity during COVID-19, and potential correlates of such changes, including perceived stress and decision fatigue.

Methods

A total of 140 parents (88.57% female; 88.41% White; 87.59% married; with one …


The Relationship Between Chronic Pain And Stress, Anxiety, And Depression In College Students Oct 2022

The Relationship Between Chronic Pain And Stress, Anxiety, And Depression In College Students

Journal of Interdisciplinary Undergraduate Research

The purpose of this study was to measure chronic pain levels as they relate to stress, anxiety, and depression in college students. This is a non-experimental, correlational research design, using a survey methodology. Eighty-four participants, over the age of 18, were recruited (men = 33.3%, women = 66.6%) to participate in this study. The participants were asked to complete a questionnaire which was a compilation of the Chronic Pain Grade Questionnaire (CPGQ) (Von Korff et al., 1992), the Perceived Stress Scale (Wickrama et al., 2013), the Beck Anxiety Inventory (BAI) (Beck et al., 1988), the Beck Depression Inventory-II (BDI-II) (Beck …


Memory And Attention While Scuba Diving At Shallow And Deep Depths: An Open Water Study, Leanne Boucher, Joshua Feingold, Kelly Concannon, Stephanie Talavera, Jaime Tartar, W. Matthew Collins Sep 2022

Memory And Attention While Scuba Diving At Shallow And Deep Depths: An Open Water Study, Leanne Boucher, Joshua Feingold, Kelly Concannon, Stephanie Talavera, Jaime Tartar, W. Matthew Collins

Journal for Sports Neuroscience

SCUBA diving requires a high level of cognitive functioning, however, many divers anecdotally report poor memory and attentional skills while underwater. Few studies have documented cognitive deficits resulting from an open-water dive. Here, 23 divers completed both shallow (8 m) and deep (28 m) dives over two days in the open-water. The order of the dives was counterbalanced across participants. While at depth, they completed the State-Trait Anxiety Inventory to assess anxiety levels, learned and were tested on a list of 36 words, and completed the trail making task (TMT) to assess executive functioning. They also gave saliva samples to …


No Association Between Perinatal Mood Disorders And Hypertensive Pregnancies, Sarah Araji, Ashley Griffin, Wondwosen Kassahun-Yimer, Laura Dixon, Shauna Kay Spencer, Sheila Belk, Gail Ohaegbulam, Kedra Wallace Aug 2022

No Association Between Perinatal Mood Disorders And Hypertensive Pregnancies, Sarah Araji, Ashley Griffin, Wondwosen Kassahun-Yimer, Laura Dixon, Shauna Kay Spencer, Sheila Belk, Gail Ohaegbulam, Kedra Wallace

Faculty and Student Publications

Mental health disorders such as anxiety and/or depression are the most common mental health disorders seen among reproductive aged women and can increase during pregnancy. Many sociodemographic risk factors have been associated with anxiety and/or depression in pregnancy, which can lead to adverse maternal and infant outcomes including the risk of a hypertensive pregnancy. The current study prospectively examined self-reported anxiety, depression and stress in pregnant women without a history of fetal loss or mood disorders beginning at 20–26 weeks. At each study visit, circulating immune factors associated with perinatal mood disorders were measured in blood samples that were collected. …


Let’S Talk: The Dual Process Model Of Supportive Communication In Peers, Erica Marie Szkody Aug 2022

Let’S Talk: The Dual Process Model Of Supportive Communication In Peers, Erica Marie Szkody

Theses and Dissertations

Supportive messages occur within most relationships. Researchers have found strong relationships between social support and various physical and psychological health outcomes, but the specific mechanisms at work have yet to be fully explored. Many factors contribute to whether a supportive interaction is processed as helpful or supportive by the recipient including relational factors, message content, past experiences, etc. For peer dyads, the context and supportive messages individuals provide their peer may inhibit or contribute to their perception of their peer’s supportive behavior. The current study examined the impact of contextual factors (such as family communication patterns and relationship quality) on …


Assessing Stress In College Students After Breathing Meditation With And Without Music, Joshua L. Le Clerg Aug 2022

Assessing Stress In College Students After Breathing Meditation With And Without Music, Joshua L. Le Clerg

Graduate Theses

College students face increased levels of stress due to the COVID-19 pandemic, which can adversely affect their academic performance. Therefore, it is critical for students to have access to practices that reduce stress, such as breathing meditations and listening to calming music, which are cost effective and require minimal time commitment. This study aimed to examine the efficacy of combining breathing meditation and listening to music for five minutes a day, five days a week, for two weeks. Fifteen undergraduate students completed the study and were randomly assigned to a control group who completed the breathing meditation without music (n=8) …


Lifetime Racism And John Henryism On Cognition And Cardiovascular Health In Black Men, Roy Mitchell Aug 2022

Lifetime Racism And John Henryism On Cognition And Cardiovascular Health In Black Men, Roy Mitchell

Dissertations

Lifetime racism is a type of chronic stress that is often accompanied by depression. Racism is the experience of many Black men because of several psychosocial stressors such as reduced resources and institutional barriers, to name a few. Active coping is typically utilized by Black men as a consistent means to reduce the negative outcomes linked to racism, however, this up-tempo coping style can contribute to poor cardiovascular health and cognitive impairment over time. The present study aimed to provide data to support the effects of lifetime racism and active coping on cardiovascular health and cognition. There were three hypotheses …


Depression, Anxiety, And Stress Severity Impact Social Media Use And Tiktok Addiction, Skylar L. Maguire, Hollie Pellosmaa Aug 2022

Depression, Anxiety, And Stress Severity Impact Social Media Use And Tiktok Addiction, Skylar L. Maguire, Hollie Pellosmaa

Chancellor’s Honors Program Projects

No abstract provided.


A Comparison Of Psychological Stress And Sleep Problems In Undocumented Students, Daca Recipients, And U.S. Citizens, Andy Torres, Jordan Kenemore, Grant Benham Aug 2022

A Comparison Of Psychological Stress And Sleep Problems In Undocumented Students, Daca Recipients, And U.S. Citizens, Andy Torres, Jordan Kenemore, Grant Benham

Psychological Science Faculty Publications and Presentations

Amidst the uncertainty of a shifting political landscape, our study examined stress and sleep problems experienced by both Deferred Action for Childhood Arrivals (DACA) undergraduates and non-DACA undocumented immigrants in an undergraduate population, in relation to students who were US citizens. We surveyed 969 students (93% Hispanic; 69% female) in 2017 or 2019 using established measures of stress, sleep quality, and insomnia. Collapsed across years, undocumented students reported significantly greater stress than citizens and DACA students, but DACA students did not differ from citizens. No differences were found in sleep for either quality or insomnia. Additionally, DACA student stress was …


Pandemic Pressure: Race, Job Insecurity, And Stress During The Covid-19 Pandemic, David B. Taullahu, Jason S. Snyder, Alyssa R. Minton, Brooke Nyberg, Joseph A. Mikels Jul 2022

Pandemic Pressure: Race, Job Insecurity, And Stress During The Covid-19 Pandemic, David B. Taullahu, Jason S. Snyder, Alyssa R. Minton, Brooke Nyberg, Joseph A. Mikels

DePaul Discoveries

With the ongoing pressure of the COVID-19 pandemic, the working world has been drastically altered. Additionally, pandemic related pressures are not evenly distributed across racial groups–with negative outcomes being exacerbated as a byproduct of structural inequities for people of color (Seldan & Berdahl, 2020). Using the Perceived Stress Scale (Cohen et al., 1983), and Job Insecurity Scale (Ashford et al., 1989), we aimed to determine how various work-related factors such as job insecurity, essential worker status, and race relate to overall perceived stress in daily life. Participants (n = 266; Mage = 50.56 years, SD = 7.83; age …


Role Stress, Sarah Stepanek, Megan Paul Jul 2022

Role Stress, Sarah Stepanek, Megan Paul

Umbrella Summaries

What is role stress? A work role consists of “a pattern of behaviors perceived by an employee as behaviors that are expected” (Tubre & Collins, 2000, p. 156). When perceived work role expectations are unclear, incompatible with other expected behaviors, or too much to handle, role stress is said to occur (Tubre & Collins, 2000). Role stress is typically broken down into three main types: role ambiguity, role conflict, and role overload. Role ambiguity refers to a situation in which employees are unsure about what their responsibilities are, what behaviors are expected of them, and what the standards are for …


The Interplay Between Parental Executive Functioning, Parental Stress, And Parenting Skills Across A Parenting Intervention, Taylor Landis Jun 2022

The Interplay Between Parental Executive Functioning, Parental Stress, And Parenting Skills Across A Parenting Intervention, Taylor Landis

FIU Electronic Theses and Dissertations

Behavioral parent training (BPT) interventions are the gold standard treatment for preschoolers with Attention-Deficit/Hyperactivity Disorder (ADHD), and have been shown to improve parenting, and therefore children’s behavior. However, treatment outcomes are dependent upon various child and parent factors. Less research has examined predictors of treatment response in preschoolers, including parental factors, which is important given the known benefits of early intervention.

This dissertation is comprised of three manuscripts focused on parent and child executive functioning (EF), and intervention outcomes for children with ADHD and their parents. Study I examined the extent to which individual differences in EF and emotion regulation …


Changes In Cognitive Control Following A Novel Resilience-Focused Nursing Educational Program: An Exploratory Study, Shannon Dames, Wendy Young, Olave Krigolson, Kelly Zhang, Lincoln Stoller, Robyn Bartle Jun 2022

Changes In Cognitive Control Following A Novel Resilience-Focused Nursing Educational Program: An Exploratory Study, Shannon Dames, Wendy Young, Olave Krigolson, Kelly Zhang, Lincoln Stoller, Robyn Bartle

Quality Advancement in Nursing Education - Avancées en formation infirmière

Patient care is currently challenged by various factors including stress and nurse fatigue that can negatively impact nurses’ health and patient safety. Emotional exhaustion and burnout among nurses are at an all-time high. Canadian nurses are reporting clinical rates of depression, anxiety, and panic at disproportionately higher rates than other public safety personnel. Innovative educational programs are desperately needed to mitigate stress and relieve distress, which will ultimately promote a healthier and more productive workforce. Little is known about the effectiveness of research informed cognitive control education within a community of practice (COP) to help nurses and nursing students process …


The Relationship Between Grit And Growth Mindset In Professional Athletic Training Students, Haleigh M. Gray, Ryan Moran, Danae Delfin Jun 2022

The Relationship Between Grit And Growth Mindset In Professional Athletic Training Students, Haleigh M. Gray, Ryan Moran, Danae Delfin

Journal of Sports Medicine and Allied Health Sciences: Official Journal of the Ohio Athletic Trainers Association

Purpose: The demands of athletic training students are substantial between academic and clinical responsibilities creating problems with commitment and retention. Grit and growth mindset have been associated with academic achievement and success; however, little research has assessed the presence of grit and growth mindset within athletic training students. Therefor the purpose of this study was to investigate the differences in grit and growth mindset between athletic training students and non-athletic training students majoring in general health sciences and to assess the relationship between grit and growth mindset in both athletic training students and non-athletic training students. Methods: A cross-sectional study …


Understanding And Working Through Self-Harm, Maya Wilde Jun 2022

Understanding And Working Through Self-Harm, Maya Wilde

Student Works

Self-harm is a coping strategy used by many adolescents dealing with mental disorders. Fifteen articles from academic journals published between 2012 and 2022 were examined. Those who struggle with non-suicidal self-injury (NSSI) experience overactivation in the fronto-limbic system of the brain, which includes the amygdala (Kaess et al., 2021). Self-harm decreases activity and stress in the amygdala and increases the amount of dopamine in the brain (Kaess et al., 2021; Reitz et al., 2015). Self-harm may be used as a way to regulate negative affect. Seeing blood might be a significant part of an episode of NSSI, but it is …


The Role Of The Sibling Relationship During Stressful Life Events, Brianna Weissel Jun 2022

The Role Of The Sibling Relationship During Stressful Life Events, Brianna Weissel

Honors Theses

Siblings play a major role in each other’s lives. If a child has a sibling, they experience life together often going through similar struggles, events, or joys. As siblings grow up, they often disclose information to each other and why or how they disclose life events to one another can depend on many factors. The disclosure levels will likely shift as siblings grow older and move through life. The current study focused on levels of disclosure between siblings and how disclosure is related to the gender of the siblings and the degree of warmth and emotional support in their relationships. …


Examining The Buffering Effect Of Mindfulness On The Relationship Between Stress And Ethical Decision Making, Irina Kuzmich Jun 2022

Examining The Buffering Effect Of Mindfulness On The Relationship Between Stress And Ethical Decision Making, Irina Kuzmich

Dissertations, Theses, and Capstone Projects

Poor ethical decision making is an issue in many modern-day organizations. Academic research and the popular press have shown that failures in ethical decision making have resulted in harm to organizations, their employees, and the societies in which they exist. While there is much research into what may impact ethical decision making, this paper examined the effects of two understudied factors, stress and mindfulness, within a self-regulatory framework. A 2x2 experimental design with undergraduate student participants was used in which each participant was randomly assigned to a mindfulness training condition and a stress condition. Trait mindfulness was also measured as …


Exploring The Impact Of Stress On Healthcare Student Competency: A Cognitive Model For Self-Regulating Performance During High-Stakes Scenarios, Michael J. Teachey May 2022

Exploring The Impact Of Stress On Healthcare Student Competency: A Cognitive Model For Self-Regulating Performance During High-Stakes Scenarios, Michael J. Teachey

Critical and Creative Thinking Capstones Collection

Stress and anxiety are part of healthcare and are experienced not only by patients but also by clinicians. This work explores an issue prevalent in healthcare education, outlining the detrimental effects of stress-induced anxiety on student performance during practical assessments. Included in this paper are the research and investigative details that elaborate on the process taken towards resolving the issue. Research conducted in the fields of education, law, and medicine is used to explore how these areas address stress with regard to performance. Through the various processes of research and engagement, this action research project uncovers the underlying issue of …


Toward A Co-Working Posture In Global Mental Health: A Literature Review On The Use Of Photovoice In Partnership With Forcibly Displaced Populations, Bethany Randolph May 2022

Toward A Co-Working Posture In Global Mental Health: A Literature Review On The Use Of Photovoice In Partnership With Forcibly Displaced Populations, Bethany Randolph

Expressive Therapies Capstone Theses

Abstract

As of 2020, the number of forcibly displaced people in the world numbered 82.4 million. This radically diverse population, approximately one in every 95 people, only continues to burgeon as wars and conflicts send millions fleeing for their lives. Sadly, on top of the massive allostatic load endured by the forcibly displaced, many are then doubly harmed by global mental health professionals who lack insight into the culture and worldview of the fellow humans they serve. In an effort to support meaningful therapeutic work in the cross-cultural milieu, this paper presents a literature review inquiry into the purpose and …


Stress And Retrieval-Enhanced Suggestibility, Amanda Capriglione May 2022

Stress And Retrieval-Enhanced Suggestibility, Amanda Capriglione

Seton Hall University Dissertations and Theses (ETDs)

Research has demonstrated that when witnesses are immediately questioned following an event, they can become even more susceptible to later presented misinformation and false memory production. This test-enhanced memory impairment is known as retrieval-enhanced suggestibility (RES; Chan, Thomas, & Bulevich, 2009). Research has also demonstrated that the experience of stress produces a reduced misinformation effect and better ability to discriminate accurate from inaccurate information (Nitschke et al., 2019). The primary goal of the current study was to explore the effects of stress and repeated testing on misinformation susceptibility in the RES paradigm. Participants engaged in an eyewitness memory paradigm in …


An Interpretative Phenomenological Analysis Of The Lived Experience Of Parental Caregivers For Children With Severe Epidermolysis Bullosa, Michael J. Valentine May 2022

An Interpretative Phenomenological Analysis Of The Lived Experience Of Parental Caregivers For Children With Severe Epidermolysis Bullosa, Michael J. Valentine

Theses and Dissertations

Providing care to child with a chronic, rare diseases has been identified as a major life stressor with a myriad of negative physical and mental health consequences. These stresses have previously been found to create burden that may impair caregiving efforts and increase the risk of mortality for both the caregiver and affected child. Many rare diseases affect children. It is not known how caregiver burden and the source of stress varies by disease. Qualitative methods have been used to understand caregiver experience with the rare disease, epidermolysis bullosa (EB), but no such studies have occurred in the United States. …