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Full-Text Articles in Psychology
Parents' Coping With Children's Newly Diagnosed Long-Qt Syndrome: A Qualitative Study Of The Function And Utilization Of An Online User Group, Allison Burns-Pentecost
Parents' Coping With Children's Newly Diagnosed Long-Qt Syndrome: A Qualitative Study Of The Function And Utilization Of An Online User Group, Allison Burns-Pentecost
PCOM Psychology Dissertations
Long QT syndrome is a sudden death syndrome that occurs in about 1 in 2,000 births. LQTS is caused by genetic mutations that affect the electrophysiology of the heart, resulting in a prolonged QT interval and possible cardiac arrhythmia, syncope or sudden death. Treatments include medications, implantable cardioverter defibrillators and activity restrictions. Little research exists regarding the psychosocial factors of the illness or the ways in which families cope with diagnosis and management of the chronic illness. The current study used archival data from an online user group. Participants were members of the group who discussed concerns related to LQTS. …
Traumatic Stress Responses In Mothers And Fathers To Pediatric Intensive Care Treatment: The Role Of Beliefs, Carla Cirilli
Traumatic Stress Responses In Mothers And Fathers To Pediatric Intensive Care Treatment: The Role Of Beliefs, Carla Cirilli
PCOM Psychology Dissertations
The aim of this study was to examine the prevalence of traumatic stress responses in parents of children treated in a pediatric intensive care unit, specifically parental beliefs about their child’s illness and their own coping self-efficacy as related to the severity of parental acute and posttraumatic stress. Archival data from a study conducted August 2004 through July 2005 in the Children’s Hospital of Philadelphia PICU were used. Two hundred and forty-five parents were assessed at 48 hours after admission, and 180 parents were assessed 3 months postdischarge. At Time 1, parents completed a screening measure assessing psychosocial factors and …
Confronting The Unknown: Mothers’ Reactions, Challenges, And Ways Of Coping With A Child's Diagnosis Of Long Qt Syndrome, Twain Gonzales
Confronting The Unknown: Mothers’ Reactions, Challenges, And Ways Of Coping With A Child's Diagnosis Of Long Qt Syndrome, Twain Gonzales
PCOM Psychology Dissertations
Long QT syndrome (LQTS) is a life-threatening inherited cardiac condition. It is caused by a disturbance in the ion channel genes that control cardiac repolarization, resulting in ventricular arrhythmias that can lead to syncope, sudden cardiac arrest (SCA), or sudden cardiac death (SCD). Most deaths occur in children, adolescents, and young adults. Although congenital LQTS occurs in 1/3000 to 1/5000 individuals, to date, little research has been conducted on the psychosocial effects of LQTS. Mothers who are confronted with a new diagnosis of their children’s LQTS are likely to have never heard of the disease prior to diagnosis, and few …