Open Access. Powered by Scholars. Published by Universities.®
- Discipline
Articles 1 - 2 of 2
Full-Text Articles in Psychology
Parents' Coping With Children's Newly Diagnosed Long-Qt Syndrome: A Qualitative Study Of The Function And Utilization Of An Online User Group, Allison Burns-Pentecost
Parents' Coping With Children's Newly Diagnosed Long-Qt Syndrome: A Qualitative Study Of The Function And Utilization Of An Online User Group, Allison Burns-Pentecost
PCOM Psychology Dissertations
Long QT syndrome is a sudden death syndrome that occurs in about 1 in 2,000 births. LQTS is caused by genetic mutations that affect the electrophysiology of the heart, resulting in a prolonged QT interval and possible cardiac arrhythmia, syncope or sudden death. Treatments include medications, implantable cardioverter defibrillators and activity restrictions. Little research exists regarding the psychosocial factors of the illness or the ways in which families cope with diagnosis and management of the chronic illness. The current study used archival data from an online user group. Participants were members of the group who discussed concerns related to LQTS. …
Examination Of Physician Decision Making With Children And Adolescents Diagnosed With Long Qt Syndrome: A Qualitative Study, Julie Radico
Examination Of Physician Decision Making With Children And Adolescents Diagnosed With Long Qt Syndrome: A Qualitative Study, Julie Radico
PCOM Psychology Dissertations
Physicians are faced with ongoing challenges in diagnosing long QT syndrome (LQTS) and the uncertainty regarding treatment for specific genotypes and prescription of restrictions regarding physical activity. This study explored what impacts physicians’ decision making with regard to treatment and recommendations for children and adolescents with LQTS. Semi-structured interviews were conducted with pediatric cardiologists who were currently treating this population. Several themes regarding physician decision making were identified: constant reevaluation of decisions, impact of years of experience/number of LQTS patients treated, differentiating from versus joining with other physicians, variations in recommending patient sports involvement and activity level, and physicians as …