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Full-Text Articles in Psychology
Family Functioning Guidelines For The Care Of People With Spina Bifida, Tessa K. Kritikos, Grayson Holmbeck
Family Functioning Guidelines For The Care Of People With Spina Bifida, Tessa K. Kritikos, Grayson Holmbeck
Psychology: Faculty Publications and Other Works
Research supports a resilience-disruption model of family functioning in families with a child with spina bifida. Guidelines are warranted to both minimize disruption to the family system and maximize family resilience and adaptation to multiple spina bifida-related and normative stressors. This article discusses the spina bifida family functioning guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida, and reviews evidence-based directions with the intention of helping individuals with spina bifida achieve optimal mental health throughout their lifespan. Guidelines address clinical questions pertaining to the impact of having a child …
Trajectories Of Adaptive Functioning Among Youth With Spina Bifida: The Influence Of Neurocognitive Functioning And Parental Scaffolding, Adrien Winning
Trajectories Of Adaptive Functioning Among Youth With Spina Bifida: The Influence Of Neurocognitive Functioning And Parental Scaffolding, Adrien Winning
Master's Theses
Youth with spina bifida (SB), a congenital birth defect affecting the central nervous system, are at risk of experiencing an array of psychosocial and functional deficits (Copp et al., 2015; Holmbeck et al., 2003). Indeed, previous research has documented difficulties across the three adaptive functioning domains outlined by the American Association on Intellectual and Developmental Disabilities (AAIDD): conceptual (e.g., communication, self-direction, functional academics), social (e.g., interpersonal skills), and practical (e.g., self-care, navigating health-care; Copp et al., 2015). Despite this evidence, whether or not children with SB typically acquire skills across development is largely unknown. Additionally, little is known about risk …
Condition Severity And Parent Psychosocial Functioning In Families Of Youth With Spina Bifida: The Role Of Parental Attitudes And Beliefs, Elicia Wartman
Condition Severity And Parent Psychosocial Functioning In Families Of Youth With Spina Bifida: The Role Of Parental Attitudes And Beliefs, Elicia Wartman
Master's Theses
Past research suggests that parents of youth with spina bifida (SB) have worse psychosocial outcomes than parents of typically developing youth. SB is a complex medical condition that is accompanied by varying degrees of physical disability and cognitive deficits. Research on stress and coping suggests that parents' attitudes and beliefs may contribute to their own psychosocial adjustment. This study unpacks condition severity and examines the role of severity of condition-related factors in predicting parental adjustment and parental attitudes and beliefs. Participants were recruited as part of a larger longitudinal study. Information on condition severity, including type of SB, lesion level, …
Self-Management In Youth With Spina Bifida: Associations With Parent Factors In The Context Of A Summer Camp Intervention, Colleen F. Bechtel Driscoll
Self-Management In Youth With Spina Bifida: Associations With Parent Factors In The Context Of A Summer Camp Intervention, Colleen F. Bechtel Driscoll
Dissertations
Achieving condition-related independence is an important developmental milestone for youth with spina bifida (SB) that can be impacted by a variety of parent factors. This study aimed to investigate (1) the cross-sectional associations between parent factors (adjustment, perceptions, attitudes, behaviors) and youth self-management (e.g., youth's condition-related responsibility and mastery), (2) relations between these same parent factors and changes in youth self-management following participation in a summer camp intervention for one summer, and (3) associations between parent factors and growth in self-management variables over two summers. Participants were 89 camper-parent dyads recruited at a summer camp for youth with SB (Myouth …