Psychology Commons^™

Parenting-Related Stress, Parental Distress, And Youth Health-Related Quality Of Life In Families Of Youth With Spina Bifida: Parenting Behaviors As Mediators, Colleen F. Bechtel

Master's Theses

Research has shown that youth with spina bifida (SB) have poorer psychosocial outcomes, including health-related quality of life (HRQOL), compared to typically developing youth. Demographic and illness-severity factors that may affect HRQOL have been identified, but modifiable factors affecting HRQOL have not yet been identified in this population. Potential modifiable factors include parent factors. In fact, in other pediatric populations, parent factors have been found to impact HRQOL above and beyond illness-severity. This impact may be especially salient for youth with SB, as these youth are more socially isolated and depend on parents for both medical and non-medical caregiving needs. …