Social and Behavioral Sciences Commons^™

Investigating Nonverbal Strategies To Support Communication With Persons Living With Dementia, Emma Bender

Electronic Thesis and Dissertation Repository

Many persons living with dementia experience difficulties comprehending language and benefit from nonverbal communication (NVC). This research aimed to identify potential strategies for nonverbal behaviour adaptation to enhance communication with persons living with dementia, based on the Communication Enhancement Model. Studies included a scoping review of NVC strategies for caregivers with persons living with dementia and an analysis of whether NVC strategies used by personal support workers (PSW) co-occurred with verbal communication demonstrating person-centered indicators (recognition, negotiation, validation and facilitation). Video-recorded interactions (n=40) between PSW and simulated persons living with dementia were analysed using a codebook of NVC strategies (facial …

'The Memory Of All That': The Effects Of Music On Paradoxical Lucidity In Older Adults, Sarah Klapman

Electronic Thesis and Dissertation Repository

Some individuals with dementia experience unexplained periods of improved cognition in response to music. We examined the effects of music tempo and familiarity on a cognitively demanding task to replicate this improvement. We had 37 healthy older adults (21 females, mean age 67.5, SD = 5.49) complete a divergent thinking task before and after listening to a 25-minute personalized playlist. Playlists contained music that was either familiar or unfamiliar and either fast or slow. We expected participants in the familiar and fast conditions to score significantly better on the task after listening than those in the unfamiliar and slow conditions, …

Thirty-Five Years Of Computerized Cognitive Assessment Of Aging — Where Are We Now?, Avital Sternin, Alistair Burns, Adrian M. Owen

Brain and Mind Institute Researchers' Publications

Over the past 35 years, the proliferation of technology and the advent of the internet have resulted in many reliable and easy to administer batteries for assessing cognitive function. These approaches have great potential for affecting how the health care system monitors and screens for cognitive changes in the aging population. Here, we review these new technologies with a specific emphasis on what they offer over and above traditional ‘paper-and-pencil’ approaches to assessing cognitive function. Key advantages include fully automated administration and scoring, the interpretation of individual scores within the context of thousands of normative data points, the inclusion of …

'I Honoured Him Until The End': Storytelling Of Indigenous Female Caregivers And Care Providers Focused On Alzheimer's Disease And Other Dementias (Adod), Danielle E. Alcock

Electronic Thesis and Dissertation Repository

Focused on the experiences of Indigenous female caregivers for a loved one diagnosed with Alzheimer’s disease and other dementias (ADOD); this study uses Indigenous methodology of oral storytelling to examine systemic barriers of navigating the Canadian healthcare system. Non-Indigenous healthcare providers who care for families and individuals affected by dementia also share their experiences to give insight to culturally safe care and what institutional supports are needed for frontline staff to achieve this.

Indigenous caregivers were all Anishanaabe and Métis who share stories about caring for their male loved ones. Through their stories of strength and resiliency, the importance of …

Informing Care: Mapping The Social Organization Of Families’ Information Work In An Aging In Place Climate, Nicole K. Dalmer

Electronic Thesis and Dissertation Repository

Within an institutional ethnography method of inquiry, this dissertation makes visible the information work that permeates the care work of families of people living with dementia who are also aging at home. An institutional ethnography privileges people’s everyday work and acknowledges that local contexts are influenced by translocal, ruling relations. To map out the social organization of family caregivers’ information work, this dissertation details four separate, yet interrelated studies. The first study comprises two sets of interviews: one with 13 family caregivers of older adults to understand their experiences of the information work they do and a second with five …

Ipad Use To Enhance Conversations Between Persons With Dementia And Their Family Caregivers, Kelsey Dynes

Electronic Thesis and Dissertation Repository

Electronic conversational memory notebooks, a more current application of previous hardcopy versions, consist of personally relevant photographs and accompanying sentences. The notebooks help persons with dementia access memories during conversations. Person-centred communication (PCC) recognizes the individual, accommodating for personal beliefs and intentions. The purpose of the current study was to determine whether persons with dementia and their family caregivers could be educated and trained to use PCC while using an iPad-based electronic conversational memory notebook. Seven persons with mild to moderate dementia and their family caregiver completed the six-week study. Participants were educated and trained to use PCC while conversing …

Information World Mapping To Explicate The Information- Care Relationship In Dementia Care, Nicole K. Dalmer

FIMS Publications

Information world mapping is a helpful data elicitation technique to make visible the hidden work of finding, using and making sense of information. This methods-based paper explores the utility of a mapping exercise both within an institutional ethnographic study and in eliciting informants’ understandings and descriptions of their care-related information work. Eleven family caregivers of community- dwelling older adults living with dementia drew maps of their information worlds. Each map depicts a unique combination of information resources (people, agencies, texts and websites) accessed, relationships that shape the information work in addition to key locations frequented to access information. Given the …

Personal Constructs In Dementia Caregiving: The Family Caregiving Experience Of People Living With Dementia In Saudi Arabia, Eradah O. Hamad

Electronic Thesis and Dissertation Repository

As observed globally, family (informal and in-home) caregiving of older adults with Alzheimer’s disease or other forms of dementia has become a critical issue in the Arab region, including Saudi Arabia. This doctoral research psychometrically and conceptually evaluates an Arabic version of the Montgomery Borgatta Caregiver Burden Scale for use as a measurement tool to assess family caregivers of older adults living at home with dementia in Saudi Arabia. Currently, there is no published literature that addresses family caregiving for individuals with dementia in Saudi Arabia. Through further examination of family caregiving narratives, this research maps the personal and social …

Ambiguous Loss For Caregivers Of Family Members With Dementia, Ashleigh Vella

Electronic Thesis and Dissertation Repository

This study examined the grief of spousal caregivers, specifically pertaining to how grief reactions and losses shift over the progression of the Alzheimer disease and related dementias, and how caregivers experience ambiguous loss. Five caregivers of spouses with Alzheimer’s disease or related dementias participated in this study, recruited from the Alzheimer’s Society of London and Middlesex and the Alzheimer Outreach Services of McCormick Home. This was a descriptive field study using a qualitative approach to discover each participant’s experiences, which was complimented with two quantitative measures. The findings of this study were consistent with previous research regarding the changes in …

Re-Cognizing Power In The Culture Of Dementia Care Knowledge, Ryan T. Deforge

Electronic Thesis and Dissertation Repository

In light of increasing system demands, system regulations, and constrained resources, those living and working with dementia in the long-term care sector are vulnerable to oppressive care practices. This is true so long as our understanding of how social power affects the ways in which dementia care knowledge is created, shared, and enacted remains limited. Based on prolonged field observations and on informal and formal interviews with care recipients, family members, and staff, the aim of this critical qualitative research was to examine the culture of dementia care knowledge in two sites: a specialized dementia care unit in a long-term …