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Different Caregiver, Different Collaboration, Helle Rønn-Smidt, Janet K. Shim, Amber Fitzsimmons, Kristian Larsen, Hanne Pallesen

Journal of Social, Behavioral, and Health Sciences

The quality of the collaboration between health professionals and caregivers is of great significance to outcome and recovery. Severe brain injuries after a stroke can leave patients unable to communicate their needs and wishes with health professionals, in which case the role of the caregiver(s) becomes even more important. This position is highly differentiated, and there are substantial variations in how caregivers participate in the collaboration. Using the Bourdieusian concept of cultural health capital, we aimed to develop a broader understanding of the role played by the patient’s caregiver and how inequality is produced in the encounter with professionals. This …