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Pediatric Nursing

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Policy Brief: Lifespan Respite Care Reauthorization Act, The 2015-2016 Cohort Of New Hampshire Leadership Education In Neurodevelopmental And Related Disabilities (Nh Lend) Program Trainees. May 2016

Policy Brief: Lifespan Respite Care Reauthorization Act, The 2015-2016 Cohort Of New Hampshire Leadership Education In Neurodevelopmental And Related Disabilities (Nh Lend) Program Trainees.

Policy Analysis

The Lifespan Respite Care Act (PL 109-442) provides critical support for families caring for loved ones at home. Family caregivers in the United States provide an estimated $470 billion worth of uncompensated care—a figure that exceeds the total Medicaid budget for 2013 (NAC Task Force, 2016). According to the National Respite Coalition, access to respite care helps protect caregiver health, strengthens families, keeps marriages intact, and prevents the need for expensive institutional long-term care. Reauthorization of the Lifespan Respite Care Act is essential to the well-being of individuals in need of long-term care and their families affected by long-term health …

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Mothers' Lived Experience Of Parenting An Infant/Young Child With Special Needs In A Rural Context, Lauren M. Elford Jan 2015

Mothers' Lived Experience Of Parenting An Infant/Young Child With Special Needs In A Rural Context, Lauren M. Elford

Electronic Thesis and Dissertation Repository

Parenting an infant with special needs requires performing extra care giving duties and mothers living in rural communities face additional challenges obtaining health and social support services. A hermeneutic phenomenological approach was used to explore the lived experience of parenting young children with special needs from rural mothers’ perspectives. Semi-structured interviews were conducted with a sample of 7 mothers. Findings revealed an overarching theme entitled Getting Through It and 6 subthemes: Experiencing the Unexpected; Overcoming the Challenges to Mothering; Unconditional Commitment to Child; The Lived Human Relation as Powerful; Being a Care Co-ordinator; and Being Transformed. Mothers of infants …

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Combating Autism Reauthorization Act Of 2014, Kassandra Mores Jan 2014

Combating Autism Reauthorization Act Of 2014, Kassandra Mores

Policy Analysis

On May 9, 2014, Representative Smith (R-NJ) and Representative Doyle (D-PA) introduced a bill to reauthorize the Combating Autism Act (H.R. 4631) for five years. Senator Menendez (D-NJ) and Senator Enzi (R-WY) are planning to introduce a Senate bill of the Combating Autism Reauthorization Act. The Combating Autism Act of 2011, due to sunset September 30, 2014, provides federal funding for autism research, public education, and early detection and intervention in Maine. We are hoping that you will consider voting in support of the Combating Autism Reauthorization Act.

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