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Fatigue In Children And Adolescents With Duchenne Muscular Dystrophy, Basmah El-Aloul
Fatigue In Children And Adolescents With Duchenne Muscular Dystrophy, Basmah El-Aloul
Electronic Thesis and Dissertation Repository
Fatigue was recently reported to be the largest predictor of poor health-related quality of life (HRQOL) in children and adolescents with Duchenne muscular dystrophy (DMD). The objectives of this thesis were to describe fatigue from patients’ and parents’ perspectives and to explore associations of patient characteristics with fatigue in children and adolescents with DMD using a multicentre cross-sectional study design. Eligible patients and their parents were identified via the Canadian Neuromuscular Disease Registry and received mailed paper questionnaires. Children and adolescents with DMD experienced greater fatigue compared to healthy controls from published data. Fatigue was a significant issue in children …