Open Access. Powered by Scholars. Published by Universities.®
- Discipline
-
- Social and Behavioral Sciences (5)
- Medical Specialties (4)
- Pediatrics (4)
- Psychology (4)
- Anatomy (2)
-
- Cardiology (2)
- Cardiovascular System (2)
- Congenital, Hereditary, and Neonatal Diseases and Abnormalities (2)
- Diseases (2)
- Law (2)
- Mental and Social Health (2)
- Sociology (2)
- Analytical, Diagnostic and Therapeutic Techniques and Equipment (1)
- Behavior and Behavior Mechanisms (1)
- Bioethics and Medical Ethics (1)
- Child Psychology (1)
- Clinical Psychology (1)
- Communication (1)
- Courts (1)
- Domestic and Intimate Partner Violence (1)
- Education (1)
- Family, Life Course, and Society (1)
- Health Psychology (1)
- Legislation (1)
- Medical Sciences (1)
- Neurosciences (1)
- Politics and Social Change (1)
- Psychiatry and Psychology (1)
- School Psychology (1)
- Institution
- Publication
- Publication Type
Articles 1 - 9 of 9
Full-Text Articles in Medicine and Health Sciences
Parent- Versus Child-Reported Functional Health Status After The Fontan Procedure., Linda M. Lambert, L Luann Minich, Jane W. Newburger, Minmin Lu, Victoria L. Pemberton, Ellen A. Mcgrath, Andrew M. Atz, Mingfen Xu, Elizabeth Radojewski, Darlene Servedio, Brian W. Mccrindle, Pediatric Heart Network Investigators, Girish S. Shirali
Parent- Versus Child-Reported Functional Health Status After The Fontan Procedure., Linda M. Lambert, L Luann Minich, Jane W. Newburger, Minmin Lu, Victoria L. Pemberton, Ellen A. Mcgrath, Andrew M. Atz, Mingfen Xu, Elizabeth Radojewski, Darlene Servedio, Brian W. Mccrindle, Pediatric Heart Network Investigators, Girish S. Shirali
Manuscripts, Articles, Book Chapters and Other Papers
OBJECTIVE: We sought to compare perceptions of functional health status between children who had undergone a Fontan procedure and their parents.
METHODS: Fontan procedure survivors 10 to 18 years of age were included in the study if the child completed the Child Health Questionnaire (CHQ) and the parent completed the parent form to assess the child's functional health status. Comparisons were made between raw domain scores for the parent- and child-completed CHQs.
RESULTS: Between March 2003 and April 2004, 1078 Fontan survivors were screened. Of the 546 eligible and consented patients, 354 were 10-18 years of age and 328 parent/child …
Chromosomal Anomalies Influence Parental Treatment Decisions In Relation To Prenatally Diagnosed Congenital Heart Disease., Sinai C. Zyblewski, Elizabeth G. Hill, Girish S. Shirali, Andrew Atz, Geoffrey Forbus, Javier Gonzalez, Anthony Hlavacek
Chromosomal Anomalies Influence Parental Treatment Decisions In Relation To Prenatally Diagnosed Congenital Heart Disease., Sinai C. Zyblewski, Elizabeth G. Hill, Girish S. Shirali, Andrew Atz, Geoffrey Forbus, Javier Gonzalez, Anthony Hlavacek
Manuscripts, Articles, Book Chapters and Other Papers
This study aimed to identify the variables that influence parental treatment decisions after a prenatal diagnosis of congenital heart disease (CHD). The authors reviewed all cases of prenatally diagnosed structural CHD from August 1998 to December 2006 at their center. The following variables were studied as potential predictors of parental intent to treat: maternal age, race, insurance status, obstetric history, fetal gender, univentricular versus biventricular cardiac physiology, and fetal chromosomal abnormality. Uni- and multivariable logistic regression analyses were performed. In the review, 252 consecutive cases of prenatally diagnosed CHD were identified. Of these, 204 women pursued full medical treatment, whereas …
Genetic Enhancements And Expectations, Kelly Sorensen
Genetic Enhancements And Expectations, Kelly Sorensen
Philosophy and Religious Studies Faculty Publications
Some argue that genetic enhancements and environmental enhancements are not importantly different: environmental enhancements such as private schools and chess lessons are simply the old-school way to have a designer baby. I argue that there is an important distinction between the two practices—a distinction that makes state restrictions on genetic enhancements more justifiable than state restrictions on environmental enhancements. The difference is that parents have no settled expectations about genetic enhancements.
Defining Family: Naming, Orientation, And Redemption In The Case Of Terri Schiavo, M. Chad Mcbride, Karen L. Taas, Paige W. Toller
Defining Family: Naming, Orientation, And Redemption In The Case Of Terri Schiavo, M. Chad Mcbride, Karen L. Taas, Paige W. Toller
Communication Faculty Publications
This paper undertakes a detailed analysis of the Terri Schiavo case as it was covered in popular media. Drawing on Burkean theory, we argue a critical issue in the case was a struggle between Terri's parents and husband to be seen as the more legitimate family in order to determine the duration and extent of Terri 's medical care. We discuss how the private debate over Terri's health and the decision to remove her feeding tube entered into the public scenes of legal and political action. This shift to the public scene represented problems for the parties directly involved in …
Discovering The Complexities Of Adolescent Compliance To Treatment, Megan Song, Hatim A. Omar
Discovering The Complexities Of Adolescent Compliance To Treatment, Megan Song, Hatim A. Omar
Pediatrics Faculty Publications
To explore the challenges faced in enhancing adolescent treatment compliance and to understand the roles of key players in this endeavor: the adolescent, parent and healthcare provider. Obtaining compliance from adolescents requires collaboration from the adolescent, caregiver and provider and depends on well-established relationships between each person in the triad: adolescent-provider, adolescent-caregiver, and caregiver-provider. Ensuring and improving adherence to treatment by adolescents is a challenging task but crucial to overall health outcomes. It requires the collaboration of the adolescent, parent and physician to create the optimal treatment plan, specifically tailored to the adolescent. For the clinician, maintaining good communication and …
Confronting The Unknown: Mothers’ Reactions, Challenges, And Ways Of Coping With A Child's Diagnosis Of Long Qt Syndrome, Twain Gonzales
Confronting The Unknown: Mothers’ Reactions, Challenges, And Ways Of Coping With A Child's Diagnosis Of Long Qt Syndrome, Twain Gonzales
PCOM Psychology Dissertations
Long QT syndrome (LQTS) is a life-threatening inherited cardiac condition. It is caused by a disturbance in the ion channel genes that control cardiac repolarization, resulting in ventricular arrhythmias that can lead to syncope, sudden cardiac arrest (SCA), or sudden cardiac death (SCD). Most deaths occur in children, adolescents, and young adults. Although congenital LQTS occurs in 1/3000 to 1/5000 individuals, to date, little research has been conducted on the psychosocial effects of LQTS. Mothers who are confronted with a new diagnosis of their children’s LQTS are likely to have never heard of the disease prior to diagnosis, and few …
An Investigation Of The Knowledge And Beliefs Held By Teachers And Parents In A Parochial School System Regarding Attention-Deficit/Hyperactivity Disorder And The Variables That Predict Their Knowledge, Kendra-Lee Yvonne Pearman
An Investigation Of The Knowledge And Beliefs Held By Teachers And Parents In A Parochial School System Regarding Attention-Deficit/Hyperactivity Disorder And The Variables That Predict Their Knowledge, Kendra-Lee Yvonne Pearman
Dissertations
Problem
Attention-Deficit/Hyperactivity Disorder (ADHD) is one of the most prevalent childhood disorders affecting 3 to 5% of school populations in the United States and other countries. Due to the behavioral and/or academic challenges of children with ADHD, they are at risk for grade retention, dropping out of high school, and teenage delinquency, which can lead to negative consequences in society. Children with ADHD are found in every school setting, including parochial schools. Past studies have found teachers and parents have inadequate knowledge about ADHD, which can negatively affect these children. This study investigated what teachers and parents of children in …
Posttraumatic Stress Disorder And Other Consequences Of A Picu Admission, Stephanie Ann Stowman
Posttraumatic Stress Disorder And Other Consequences Of A Picu Admission, Stephanie Ann Stowman
UNLV Theses, Dissertations, Professional Papers, and Capstones
Currently, there is a paucity of literature regarding children's experiences in a pediatric intensive care unit (PICU) relative to caregivers' experiences. Children admitted to a PICU and their caregivers are at risk for various psychopathology. Disorders commonly identified in seriously ill children include depression, anxiety, acute stress disorder, and posttraumatic stress disorder. Caregivers of seriously ill children are at increased risk of depression, generalized anxiety disorder, acute stress disorder, and posttraumatic stress disorder. Researchers often fail to examine all relevant psychopathology and contributing factors and stressors, such as family environment, in seriously ill children and their caregivers. This study assessed …
Alchoholism And Intimate Partner Violence: Effects On Children's Psychosocial Adjustment, Keith Klostermann, Michelle L. Kelley
Alchoholism And Intimate Partner Violence: Effects On Children's Psychosocial Adjustment, Keith Klostermann, Michelle L. Kelley
Psychology Faculty Publications
It is widely recognized that alcoholism and relationship violence often have serious consequences for adults; however, children living with alcoholic parents are susceptible to the deleterious familial environments these caregivers frequently create. Given the prevalence of IPV among patients entering substance abuse treatment, coupled with the negative familial consequences associated with these types of behavior, this review explores what have been, to this point, two divergent lines of research: (a) the effects of parental alcoholism on children, and (b) the effects of children's exposure to intimate partner violence. In this article, the interrelationship between alcoholism and IPV is examined, with …