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Treatment Anxiety Education For Pediatric Cardiac Neurodevelopmental Patients, An Evidence Based Project, Mary Nagel

Doctor of Nursing Practice Final Manuscripts

Abstract

Background

Congenital heart disease (CHD) is the most common birth defect and affects almost 1% of all live births. Treatment anxiety is common among children with CHD who undergo multiple procedures early in their lifetime. Dramatically increased life spans for this cardiac population has led to a shift from focusing on survival to their long-term health outcomes.

Methods:

Administration of the Peds QL Cardiac Module 3.0 assesses health related quality of life (HRQOL) during annual visits to a Cardiac Neurodevelopmental (ND) Clinic by evaluating the level of Treatment Anxiety a patient experiences during healthcare appointments. The questionnaire scores are …

Efficacy Of An Adult Congenital Heart Disease Transition Care Program: A Program Evaluation, Sarah Schwaegler

Doctor of Nursing Practice Projects

Transition Care Programs (TCPs) were created with the goal to facilitate transfer of care from pediatric care facilities to adult care facilities, as health deterioration is commonly seen in the adult with pediatric disease. University of Washington Medical Center and Seattle Children’s Hospital created a TCP for youths with congenital heart disease to aid in their transition to appropriate adult specialized care facilities. This program began in 2014 and had yet to have an evaluation. The purpose of this project is to evaluate the success of the current Transition Care Program from Seattle Children’s Hospital’s Heart Center to the University …

Hypoplastic Left Heart Syndrome, Stacey Carey

Nursing Student Class Projects (Formerly MSN)

Hypoplastic left heart syndrome (HLHS) is a severe and rare form of congenital heart disease with no known cause that decreases life expectancy and occurs during fetal cardiac development. Without treatment HLHS is fatal. HLHS consists of the underdevelopment of the left-sided heart structures leading to the failure of the left ventricle to support the systemic circulation resulting in single-ventricle physiology (Mussa & Barron, 2016). Prior to the 1980s HLHS was a universally lethal condition until 1982, when surgical management became available (Mussa & Barron, 2016). However, surgical management is not curative because the heart can never be “normal” (Mussa …

Coarctation Of The Aorta, Megan Berens

Nursing Student Class Projects (Formerly MSN)

Coarctation of the aorta (CoA) is a ductal dependent congenital heart defect that causes decreased blood flow to areas of the body distal to the site of constriction. CoA is one of the most common congenital heart defects, though is often missed in neonatal assessments. Neonatal patients with CoA often present to the hospital in a state of cardiopulmonary collapse. CoA is occasionally diagnosed in older children and adults who have upper extremity hypertension and decreased femoral pulses. CoA repair is performed through surgery or percutaneous catheter interventions. Patients with CoA have an increased likelihood of developing other vascular lesions. …