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Information Revolution: “Choice Of Control” To “Choice And Control”, Subhajit Basu, Christina Munns
Information Revolution: “Choice Of Control” To “Choice And Control”, Subhajit Basu, Christina Munns
Subhajit Basu
Please do not cite without permission of the authors.
In this article, we critically analyse whether the ‘privacy framework’ for health records is ‘fit-for-purpose’ for the NHS’s ‘information revolution’ and argue that the NHS’s ‘proxy-individual’ information-guardian role could inadvertently mask individuals’ intended roles, effectively circumventing autonomy-based laws by limiting the power of individuals to be autonomous. We suggest that moving ‘choice of control’ to individuals will render ‘privacy’ redundant whilst validating ‘confidentiality’ via consent from empowered individuals. This power shift would expose the overdue need for options to increase levels of individual ‘control/privacy,’ moving from the NHS’s paternal ‘proxy-individual’ conception …