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Privacy Concerns About Genetic Testing: Does Ethnicity Matter?, Queen Deinde-Smith
Privacy Concerns About Genetic Testing: Does Ethnicity Matter?, Queen Deinde-Smith
KSU Journey Honors College Capstones and Theses
The direct-to-consumer genetic testing market is predicted to reach $340 million by 2020 (Seward, 2018). DTC genetic tests (DTC-GTs) are DNA kits purchased and taken by consumers in their homes to learn about their ancestry, trait/disease propensity, etc. Although, many companies state in their privacy policies that they share genetic information with third parties, it’s not evident that consumers completely understand how their information will be used e.g., for research or law enforcement. Prior research has found some ethnicities have low awareness of DTC-GTs e.g., African Americans and Hispanic Americans (Salloum et. al, 2018) but it’s not clear if this …