Attitudes Toward Personal Health Data Sharing Among People Living With Sickle Cell Disorder, Exemplar For Study Of Rare Disease Populations,
2023
Prometheus Health Technologies; University of Plymouth
Attitudes Toward Personal Health Data Sharing Among People Living With Sickle Cell Disorder, Exemplar For Study Of Rare Disease Populations, Rebecca Baines, Sebastian Stevens, Zainab Garba-Sani, Arunangsu Chatterjee, Daniela Austin, Simon Leigh
Journal of Patient-Centered Research and Reviews
Purpose: Rare conditions are often poorly understood, creating barriers in determining the value treatments can provide. This study explored barriers and facilitators to personal health data sharing among those with one particular group of rare hematologic disorders, ie, sickle cell disorder (SCD) and its variants.
Methods: A single online focus group among those > 18 years of age and living with SCD was conducted. Participants (N = 25) were recruited through a United Kingdom-based SCD charity. Discussions were transcribed verbatim, with data therein analyzed using inductive thematic analysis.
Results: Five primary motivators for sharing health data were identified: improving awareness; knowing …
Understanding The Intentions Of Us Based Firefighters To Be Physically Active By Using The Theory Of Planned Behavior,
2023
Seton Hall University
Understanding The Intentions Of Us Based Firefighters To Be Physically Active By Using The Theory Of Planned Behavior, Patricia Bermudez
Seton Hall University Dissertations and Theses (ETDs)
Background: The study aimed to investigate the factors influencing the intentions of Volunteer Firefighters in the USA to engage in physical activity. The Theory of Planned Behavior (TPB) constructs, including Attitudes, Perceived Behavioral Control, Actual Behavioral Control, and Subjective Norms, alongside three new constructs not linked to TPB—Habits, Environmental Factors, and lack of knowledge—as potential predictors of physical activity intentions.
Purpose: The purpose of this study was to examine the relationship between TPB constructs and the newly emerged factors with the intentions of Volunteer Firefighters to be physically active. By understanding these factors, the study sought to shed light on …
Clinical Decision Support System For Standardization Of Disease-Specific Education,
2023
University of St. Augustine for Health Sciences
Clinical Decision Support System For Standardization Of Disease-Specific Education, Paul Nava
Student Scholarly Projects
The evidence-based, contextually relevant, disease-specific health education materials aim to provide strategies for improvement in health literacy, disease management comprehension, and medication adherence. The health education materials address difficulties many adults experience in understanding health information. The health education system must remain a contextually relevant, patient-specific reference for standardizing disease-specific education according to the patient's mental capability (Fereidouni et al., 2019). Nurse-driven education material system addresses equity, diversity, and inclusion, tailored for all literacy degrees.
Clinical decision-making is a complicated process influenced by a highly variable process that exponentially increases error rates, selection, or exclusion, unintended or not, by presenting …
Comparative Medicaid Policy Analysis Related To Maternal And Infant Birth Outcomes In South Carolina,
2023
University of South Carolina - Columbia
Comparative Medicaid Policy Analysis Related To Maternal And Infant Birth Outcomes In South Carolina, Cassidy L. Lena
Senior Theses
The United States despite being one of the most industrialized and wealthiest nations in the world, has the worst maternal and child health outcomes of any industrialized nation. The rates of maternal morbidity, mortality, and infant mortality have been increasing within the past decade, when many causes of death for this population are preventable. This study conducted a literature review on Medicaid policies and associated programs between three states (South Carolina, North Carolina, and California) in order to gain background information. Secondly, a comparative Medicaid policy analysis was completed using the Centers for Disease Control and Prevention [CDC] framework, which …
Implementasi Kebijakan Bantuan Pangan Non Tunai Dalam Rangka Pengatasan Kemiskinan Di Era Covid - 19,
2023
Universitas Indonesia
Implementasi Kebijakan Bantuan Pangan Non Tunai Dalam Rangka Pengatasan Kemiskinan Di Era Covid - 19, Haura Ariesta, Fentiny Nugroho
Jurnal Ilmu Kesejahteraan Sosial
This study focuses on the implementation of the Non-Cash Food Assistance (BPNT) policy in poverty alleviation efforts in Kembangan District, West Jakarta, during the COVID-19 pandemic. While the BPNT program managed by the Ministry of Social Affairs of the Republic of Indonesia adheres to the distribution procedures, several challenges have emerged, including delays in disbursing aid funds, invalid beneficiary data, issues with E-waroeng (food stalls), account registration, delayed distribution, and occasional inadequacy of food supplies. However, supportive factors such as effective coordination, improved data management, education, active participation from local authorities, and the commitment of E-waroeng owners have contributed to …
Desa Wisata Atau Wisata Desa:Menelaah Fase Kesepian Masyarakat Pasca Pandemi Covid -19,
2023
Universitas Indonesia
Desa Wisata Atau Wisata Desa:Menelaah Fase Kesepian Masyarakat Pasca Pandemi Covid -19, Maureen Wanda Sabrina, Kania Saraswati Harisoesyanti
Jurnal Ilmu Kesejahteraan Sosial
The Tourism Village Policy launched by the government has developed into an ambitious initiative that can boost the community's economy. However, behind this dream, there is a complex discussion about how ready the village community is to undertake this transformation. This article discusses the stages of the community undergoing the tourism village program against the background of Taraju Village having limited access, the existence of newly formed supporting community self-help groups, and even the community's initial rejection of the development of a tourism village. Meanwhile, this tourist village has achieved achievements on a provincial and national scale. The research used …
Exploring Modern Trends And Prevention Strategies For Childhood Obesity: A Comprehensive Literature Review,
2023
University of Nebraska - Lincoln
Exploring Modern Trends And Prevention Strategies For Childhood Obesity: A Comprehensive Literature Review, Anya E. Bogen
Honors Program: Senior Projects (Public)
This literature review seeks to provide an overview of the current research on childhood obesity. The study examines the prevalence and causes of childhood obesity, including genetic, environmental, and behavioral factors. The review also discusses the health consequences associated with childhood obesity, such as the increased risk for chronic diseases and psychological and social problems. Additionally, the review explores the effectiveness of interventions designed to prevent childhood obesity, including individual lifestyle modifications, education from health practitioners and school programs, and global, national, and state programs to promote wellness. The literature review concludes that childhood obesity is a complex and multifactorial …
Peran Program Pengembangan Petani Sebagai Implementasi Csr Pt. Smgp Terhadap Resistensi Masyarakat,
2023
Universitas Indonesia
Peran Program Pengembangan Petani Sebagai Implementasi Csr Pt. Smgp Terhadap Resistensi Masyarakat, Ahmad Taufik, Indra Lestari
Jurnal Ilmu Kesejahteraan Sosial
The presence of mining projects or power plants that utilize or exploit natural resources has the potential for environmental, social, and economic problems for the community. There are many cases of rejection from communities around the project area, which can even lead to conflict and anarchic actions that cause losses for several parties. Meanwhile, there are demands for energy sustainability amidst the current crisis in the availability of fossil energy. Therefore, the government provides support through several policies, one of which is encouraging the implementation of Corporate Social Responsibility so that core project activities can take place with attention to …
Implementasi Tahapan Pengembangan Masyarakat Dalam Program Perhutanan Sosial,
2023
Universitas Indonesia
Implementasi Tahapan Pengembangan Masyarakat Dalam Program Perhutanan Sosial, Ahmad Nur Faizal, Moch. Ilham Noer Sunan
Jurnal Ilmu Kesejahteraan Sosial
The community's dependence on the forest makes the community's position vulnerable when access to the forest is restricted. The restrictions on community access to forests impact on emerging social problems such as poverty, conflict, and illegal logging. Responding to this problem, the government rolled out a social forestry program to improve people's lives. This research uses a qualitative approach with data collection techniques through observation, semi-structured interviews, and documentation to study in depth how the community development stages are implemented in the social forestry program in Burno Village. The results showed that there were community development efforts from CDK Lumajang …
Model Perencanaan Strategis Dalam Service Organization : Sebuah Kajian Literatur,
2023
Universitas Indonesia
Model Perencanaan Strategis Dalam Service Organization : Sebuah Kajian Literatur, Rakhmiana, Johanna Debora Imelda
Jurnal Ilmu Kesejahteraan Sosial
In Indonesia, several types of HSOs include government organizations, private organizations, and non-profit organizations. Strategic planning is crucial for HSOs as it helps them to map their direction and goals, manage their resources, identify opportunities and challenges, coordinate their activities, and measure and evaluate their performance. To assist in strategic planning, various mapping models can be used. One of the models that can be used is Scenario- Based Road Mapping (SBRM). This research is a literature review that discusses different strategic planning models for HSOs, which can help organizations formulate more effective and adaptive strategies. These models can help HSOs …
Perspectives On Psychosis From Dharmashala’S Tibetan Community In Exile,
2023
SIT Study Abroad
Perspectives On Psychosis From Dharmashala’S Tibetan Community In Exile, Teddy Daniel
Independent Study Project (ISP) Collection
What is psychosis? The term itself is relatively recent. Yet clinicians and religious figures have tried to explain ‘psychosis’ from pathological and nonpathological perspectives for hundreds of years. From an allopathic, medical standpoint, psychotic disorders are devastating diseases. Up to 3% of the world’s population struggle with hallucinations, delusions, and cognitive impairments that make it difficult or impossible to function in society. Tibetan Buddhism does not have an exact analogue to the clinical term ‘psychotic disorders’. Nevertheless, Tibetan medicine understands some cases of psychosis as pathological. For instance, the Tibetan word smyo nad (སྡོ་ནད་) roughly translates to madness. Yet in …
Are Human Papillomavirus Knowledge And Vaccine Uptake Associated With Hiv Status And Social Determinants Of Health In Young Sexual Minority Men?,
2023
The Texas Medical Center Library
Are Human Papillomavirus Knowledge And Vaccine Uptake Associated With Hiv Status And Social Determinants Of Health In Young Sexual Minority Men?, Trisha L Amboree, Alan G Nyitray, John Schneider, Nick Gargurevich, Jacky Kuo, Elizabeth Y Chiao, Lu-Yu Hwang, Kayo Fujimoto
Faculty, Staff and Student Publications
This brief report examines the relationship, if any, between human immunodeficiency virus (HIV) status, and individual-level and socio-sexual partner-level factors of social determinants of health (SDOH) that are associated with human papillomavirus (HPV) knowledge and vaccine uptake in young sexual minority men (YSMM). We used data from 126 YSMM recruited by network-based sampling during 2015-2016 in Houston, Texas. Descriptive statistics and regression analyses were conducted to test the association between HIV status, SDOH, and HPV knowledge and vaccine uptake. Those living with HIV had lower odds of knowledge of HPV-associated anal cancer (OR: 0.43, 95% CI: 0.18-0.97) and knowledge of …
Suicidality Among College Students From 2000 To 2022: Findings From The National College Health Assessment,
2023
Pepperdine University
Suicidality Among College Students From 2000 To 2022: Findings From The National College Health Assessment, Jackson Gieger, Khanh Bui Dr.
Seaver College Research And Scholarly Achievement Symposium
With suicide being the second leading cause of death for college students, research concerning suicidality is imperative. The National College Health Assessment (NCHA), conducted by the American College Health Association (ACHA) each spring and fall semester since 2000, asks questions regarding suicide ideation and suicide attempts. There have been three versions of NCHA: NCHA-I (spring 2000 - spring 2008), NCHA-II (fall 2008 - spring 2019), and NCHA-III (fall 2019 - present). The analysis of NCHA-I and NCHA-II was limited due to the wording of the questions being different in the fall and spring. This leads to difficulty in comparing data …
Demographic And Psychosocial Factors Associated With Suicide Mortality Among Childbearing-Aged Individuals: A Case-Control Study,
2023
Wayne State University
Demographic And Psychosocial Factors Associated With Suicide Mortality Among Childbearing-Aged Individuals: A Case-Control Study, Katerina A. Furman, Amy Loree Phd, Lyuba Gavrilova Bs, Leah Hecht Phd, Hsueh-Han Yeh, Frances Lynch, Brian Ahmedani, Rebecca Rossom, Anne Beck Phd, Yihe Daida Phd, Gregory Simon Md, Christine Lu Phd, Joslyn Westphal Mph, Ashii Owen-Smith Phd, Stephen Waring, Cathrine Frank Md
Medical Student Research Symposium
Objective: Examine pregnancy-related, demographic, psychosocial and healthcare utilization factors associated with suicide mortality among childbearing-aged women. Methods: Data from nine health care systems in the Mental Health Research Network were included. A case-control study design was used in which 290 childbearing-age women who died by suicide (cases) from 2000-2015 were matched with 2,900 childbearing-age women from the same healthcare system and enrolled during the same time period who did not die by suicide. Conditional logistic regression was used to analyze associations between patient characteristics and suicide. Results: Women who died by suicide were more likely to have mental health or …
Worse Postoperative Outcomes And Higher Reoperation In Smokers Compared To Nonsmokers For Arthroscopic Rotator Cuff Repair,
2023
Wayne State University
Worse Postoperative Outcomes And Higher Reoperation In Smokers Compared To Nonsmokers For Arthroscopic Rotator Cuff Repair, Susan G. Wager, Spencer Brown, Michael Gaudiani, Joshua P. Castle, Eric Jiang, Vasilios Moutzouros, Eric Makhni, Stephanie J. Muh
Medical Student Research Symposium
Introduction: Smoking impairs healing potential and is a significant risk factor for complications following orthopaedic surgeries. The purpose of this study was to determine if a cohort of former or current smokers at time of surgery met the minimally clinical important difference (MCID) for Patient-Reported Outcomes Measurement Information System Upper Extremity (PROMIS-UE), Depression (PROMIS-D), and Pain Interference (PROMIS-PI) scores in comparison to nonsmokers.
Methods: A retrospective review of patients who underwent rotator cuff repair was performed. Patients who completed preoperative and 6-month postoperative PROMIS scores were included. The MCID was calculated using a distribution technique with a threshold of 0.5 …
Gender And Financial Implications Of Parental Leave Utilization At A Major Us Academic Institution,
2023
Wayne State University
Gender And Financial Implications Of Parental Leave Utilization At A Major Us Academic Institution, Maurgan Lee, Lucki Word, Mayra Shafique, Julie Crego, Leah Robinson Phd, Anil Aranha Phd, Beena Sood
Medical Student Research Symposium
Background and Purpose: In the United States, women on average are paid $0.83 for every dollar earned by male counterparts. Creating a family can promote heightened obligations for both parents, however, women tend to take on amplified responsibility associated with childrearing. Studies show females are more likely to utilize parental leave (PL) compared to men. Our study aims to evaluate the impact of PL usage on financial and earning potential based on gender.
Methods: Analysis of retrospective human resources data of WSU employees was conducted. Data parameters included: demographics, length, usage, and number of parental leaves. Data was analyzed using …
“Community Members Have More Impact On Their Neighbors Than Celebrities”: Leveraging Community Partnerships To Build Covid-19 Vaccine Confidence,
2023
Boston Medical Center
“Community Members Have More Impact On Their Neighbors Than Celebrities”: Leveraging Community Partnerships To Build Covid-19 Vaccine Confidence, Maria Tjilos Mph, Autumn L. Tamlyn, Elizabeth J. Ragan Mph, Sabrina A. Assoumou Md, Mph, Katherine Gergen Barnett Md, Petrina Martin Mba, Rebecca Perkins Md, Msc, Benjamin P. Linas Md, Mph, Mari-Lynn Drainoni Phd, Med
Medical Student Research Symposium
Vaccines are a strong public health tool to protect against severe disease, hospitalization, and death from COVID-19. Still, inequities in COVID-19 vaccination rates and health outcomes continue to exist among Black and Latino populations. Boston Medical Center (BMC) has played a significant role in vaccinating medically underserved populations, and organized a series of community-engaged conversations to better understand community concerns regarding the COVID-19 vaccine. We accessed and analyzed nine publicly available recordings of the community-engaged conversations which were held between Mar 2021-Sep 2021 (n=8-122 attendees). We employed a Consolidated Framework for Implementation Research-driven codebook to code our data and utilized …
Editorial: Assessing And Addressing Health Inequities And Disparities: The Role Of Health Informatics,
2023
Georgia Southern University, Jiann-Ping Hsu College of Public Health
Editorial: Assessing And Addressing Health Inequities And Disparities: The Role Of Health Informatics, Gulzar H. Shah, Anjum Khurshid, Joanne Chopak-Foss
Health Policy & Community Health: Faculty Publications
No abstract provided.
Syndemics And Social Factors: Infectious Disease Patterns Within The Population Of People Experiencing Homelessness In The United States,
2023
University of Nebraska-Lincoln
Syndemics And Social Factors: Infectious Disease Patterns Within The Population Of People Experiencing Homelessness In The United States, Kathleen Berzonsky
Honors Program: Senior Projects (Public)
Individuals experiencing homelessness are at increased risk of suffering from infectious diseases. This is due to a number of social factors and healthcare disparities, as well as the idea of syndemics, by which diseases cluster together to worsen disease burden. Current intervention strategies approach treatment from a post-infection perspective, but reducing transmission rates of infectious diseases within the population of people experiencing homelessness will require a shift in the healthcare framework. The issue of people experiencing homelessness must be viewed through a biosocial lens, focusing on preventative care and treatment. I provide an overview of the social factors governing infectious …
Mouth Care Is Self-Care,
2023
Seattle Pacific University
Mouth Care Is Self-Care, Abigail Waunch, Katelynn Huot, Aleya J. Germany, Oleksandra Shmatok, Elizabeth M. Cortes, Cortney M. Firns
Nursing Leadership in Community Engagement Projects
In February of 2023, six Seattle Pacific University (SPU) nursing students partnered with a Seattle rehab agency to deliver mouth care education while prioritizing the health literacy level of the community. The agency aims to foster an inclusive and empathetic environment that builds a diverse community for those traumatized by homelessness, addiction, and mental health (Recovery Café, n.d.). The nursing group upheld the agency's mission with honor and respect during each project step. The special projects manager of the agency expressed a lack of health literacy among members. Tailoring health literacy to the appropriate education level has significantly improved dental …
