Social and Behavioral Sciences Commons^™

Death Anxiety, Depression, And Coping In Family Caregivers, Veronica Semenova, Leann Stadtlander

Journal of Social, Behavioral, and Health Sciences

Along with the increase in elderly patients with chronic and disabling conditions, the number of family caregivers continues to rise. Caregiving has been associated with negative physical and psychological impact on the caregivers’ health, as well as, with higher prevalence rates of depression, anxiety, and a higher risk of mortality. The purpose of this study was to examine if death anxiety would be a significant predictor of depression and coping in the sample of adult family caregivers of adult patients. Participants were 46 family caregivers recruited through caregiver websites. Participants completed the Revised Collett–Lester Fear of Death and Dying Scale, …

Living With Traumatic Brain Injury In A Rural Setting: Supports And Barriers Across The Continuum Of Care, Anne L. Harrison, Elizabeth G. Hunter, Heather Thomas, Paige Bordy, Erin Stokes, Patrick H. Kitzman

Physical Therapy Faculty Publications

Purpose: Traumatic brain injury (TBI) is prevalent in Kentucky and comes with a high cost in care and quality of life for individuals and caregivers affected. Many people living with the condition of TBI have unmet needs. Research among people living with TBI in rural areas is limited. The purposes of this study were to (1) increase understanding of the lived experience of people with TBI and caregivers in rural regions of Kentucky across the continuum of their care and (2) provide their perspectives on barriers and facilitators of optimal function and well-being.

Methods: A qualitative descriptive interview study was …

A Portrait Of Five Undergraduate Students Who Serve As Caregivers While Taking University Courses, Emily Owens, Carley Ulibarri, Blake D. Karlin

Ursidae: The Undergraduate Research Journal at the University of Northern Colorado

The purpose of this study was to identify characteristics specific to adults who are caregivers while taking classes from an institution of higher education. We recruited 5 university attending adults through a subject pool and through announcements in various classes through the university setting. Measures on depression, burden, daily activities, and general background were used to assess the experiences of the participants. Self-reports indicated high levels of selfefficacy with regard to the care process, minimal depression, low to moderate levels of burden, and high resiliency among those surveyed. These results indicate while registered as a full time student (12 credits …

Cross Validation Of The Caregiving Helplessness Questionnaire: Associations With Maternal History Of Maltreatment And Intimate Partner Violence, Maegan Calvert

Graduate Theses and Dissertations

Disorganized caregiving has been associated with both maternal childhood history and current experiences of trauma. However, the methods by which disorganized caregiving has been studied have been time intensive and costly. The current study aimed to extend previous research with the Caregiving Helplessness Questionnaire (CHQ; George & Solomon, 2011), which is a self-report measure designed to assess aspects of disorganized caregiving such as caregiving helplessness, role reversal, and frightened/frightening caregiving experiences. Participants (N = 156) were a community sample of mothers of children ages 5 to 10 who were primarily white and who reported a range of traumatic experiences. It …

Differing Perspectives On Older Adult Caregiving, Eve M. Brank, Lindsey E. Wylie

Department of Psychology: Faculty Publications

Informal older adult caregiving allows older adults to stay in their homes or live with loved ones, but decisions surrounding older adult care are fraught with complexities. Related research and case law suggest that an older adult’s need for and refusal of help are important considerations; the current study is the first to examine these factors experimentally. Two samples (potential caregivers and care recipients) provided responses regarding anticipated emotions, caregiver abilities, and allocation of daily caregiving decision making based on a vignette portraying an older adult who had a high or low level of autonomy and who accepted or refused …

Medicare Claims Indicators Of Healthcare Utilization Differences After Hospitalization For Ischemic Stroke: Race, Gender, And Caregiving Effects, David L. Roth, Orla C. Sheehan, Jin Huang, James D. Rhodes, Suzanne Judd, Meredith Kilgore, Brett Kissela, Janeet P. Bettger, William E. Haley

Aging Studies Faculty Publications

Background—Differences in healthcare utilization after stroke may partly explain race or gender differences in stroke outcomes and identify factors that might reduce post-acute stroke care costs.

Aim—To examine systematic differences in Medicare claims for healthcare utilization after hospitalization for ischemic stroke in a United States (US) population-based sample.

Methods—Claims were examined over a 6-month period after hospitalization for 279 ischemic stroke survivors 65 years or older from the REasons for Geographic and Racial Differences in Stroke (REGARDS) study. Statistical analyses examined differences in post-acute healthcare utilization, adjusted for pre-stroke utilization, as a function of race (African American …

Caregiving: A Qualitative Concept Analysis , Melinda Hermanns, Beth Mastel-Smith

Melinda Hermanns, PhD, RN, BC, CNE, PN/FCN

A common definition of caregiving does not exist. In an attempt to define the concept of caregiving, the authors used a hybrid qualitative model of concept development to analyze caregiving. The model consists of three phases: (a) theoretical, (b) fieldwork, and (c) analytical. The theoretical phase involves conducting an interdisciplinary literature search, examining existing definitions, and developing a working definition of caregiving. In the fieldwork phase, six participants were interviewed using a structured interview guide. Qualitative data analysis led to the development of two overarching themes: Holistic Care and Someone in Need of Help. Responses from participants were compared to …

Examining The Effects Of Caregiver Coping Strategies On Care Recipient Outcomes, Joseph S. Wanzek

All Graduate Theses and Dissertations, Spring 1920 to Summer 2023

Dementia is a progressive syndrome with declines in cognitive and functional abilities. As the world’s population becomes increasingly older, prevalence rates are expected to increase exponentially to over 80 million affected by the year 2040. Individuals with dementia and their caregivers experience various difficulties associated with progression that increases stress for both parties. Caregiving can be burdensome and caregivers may employ a number of strategies to manage problems as they arise. Renewed interest has been focused on the care environment as one way to modify dementia progression as caregivers can be an influential person in the care recipient’s life. Two …

Policy Brief No. 2 - Gender Differences In Family/Friend Caregiving In Canada, Janet Fast, Karen Duncan, Chelsea Dunlop, Jacquie Eales, Norah Keating, Donna Lero, Satomi Yoshino

Population Change and Lifecourse Strategic Knowledge Cluster Research/Policy Brief

Family/friend caregivers comprise the backbone of the Canadian health care system. They provide 70-80% of care to individuals with a chronic health problem or disability at an estimated value of $25-26 billion annually. For those who develop policies and programs to support the family/friend care sector, it is critical to understand the characteristics of current family/friend caregivers. Using data from Statistics Canada’s 2007 General Social Survey (GSS) on family, social support, and retirement, we describe the characteristics of family/friend caregivers age 45 and older in Canada.

The Role Of Workplace Supervisor Support In Cargivers' Marital Relationships, Kenona H. Southwell

Open Access Dissertations

Family caregivers make important contributions to care recipients and the economy. However, providing care for ill or disabled family members can be challenging, particularly when the role of caregiver is accompanied by additional roles such as employee, spouse, and parent ( Hammer & Neal, 2008). There is some evidence that the demands of caregiving may negatively influence the quality of caregivers’ marriages (Bookwala, 2009). Much of caregiving research, however, is focused on the influence of caregiving and multiple caregiving roles on caregivers’ health (see Pinquart & Sörensen, 2011), but less attention has been paid to other aspects of caregivers’ lives …

The Impact Of Family Functioning On Caregiver Burden Among Caregivers Of Veterans With Congestive Heart Failure, Crystal Moore

Crystal Moore

A cross-sectional study of 76 family caregivers of older veterans with congestive heart failure utilized the McMaster model of family functioning to examine the impact of family functioning variables (problem solving, communication, roles, affective responsiveness, and affective involvement) on caregiver burden dimensions (relationship burden, objective burden, stress burden, and uplifts). Regression analyses indicated that the five dimensions of family functioning were significantly related (p < 0.01) to relationship burden (R 2 = .27) and uplifts (R 2 = .29). More specifically, increased relationship burden was associated with problems in family roles, and increased uplifts was related to higher levels of affective …

Patient- And Family-Identified Problems Of Traumatic Brain Injury: Value And Utility Of A Target Outcome Approach To Identifying The Worst Problems, Laraine Winter, Helene J. Moriarty, Catherine V. Piersol, Tracey Vause-Earland, Keith Robinson, Brian Newhart

Journal of Patient-Centered Research and Reviews

Purpose

This study aimed to identify the sequelae of traumatic brain injury (TBI) that are most troubling to veterans with TBI and their families and identify veteran-family differences in content and ranking. Instead of standardized measures of symptom frequency or severity, which may be insensitive to change or intervention effects, we used a target outcome measure for veterans with TBI and their key family members, which elicited open-ended reports concerning the three most serious TBI-related problems. This was followed by Likert-scaled ratings of difficulty in managing the problem.

Methods

In this cross-sectional study, interviews were conducted in veterans’ homes. Participants …

Factors Associated With Unmet Needs Among African-American Dementia Care Providers, P. J. Desin, Allison M. Caban-Holt, Erin L. Abner, Linda J. Van Eldik, Frederick A. Schmitt

Sanders-Brown Center on Aging Faculty Publications

Racial and ethnic minorities currently comprise 20% of the U.S. population; in 2050, this figure is expected to rise to 42%. As a result, Alzheimer’s disease (AD), the 5th leading cause of death for people aged 65 and older, is likely to increase in these groups. Most dementia caregiving for these populations comes from family and friends, especially among families with lower socioeconomic status. A convenience sample of 30 African-American dementia caregivers was interviewed to determine unmet needs. Participants expressed a limited desire for formal services, such as support groups, legal advice, case management, and homemaker services. Instead, commonly expressed …

“What Doraemon, The Earless Blue Robot Cat From The 22nd Century, Can Teach Us About How Japan’S Elderly And Their Human Caregivers Might Live With Emotional Care Robots.”, Robert C. Marshall

Anthropology Faculty and Staff Publications

Structural analysis of the phenomenally popular and enduring Japanese anime Doraemon helps us think about what we might hope to see in the not too distant future from Japan’s promised surge in development of socially assistive robots (SARs) designed for the care of the elderly. Doraemon, the earless blue robot cat from the 22nd century, is assigned the conjoined tasks of caring for the 10-year-old boy Nobi Nobita as his constant companion, which he does by reproducing the ideal caregiving characteristic of Japanese expectations for mothers, endlessly affectionate indulgence; and of improving Nobita’s character, at which he is unsuccessful because …

The Aids House: Orphan Care And The Changing Household In Lesotho, Ellen Block

Sociology Faculty Publications

HIV/AIDS has brought the connections between care and relatedness into sharp relief. In the midst of social change driven largely by the AIDS epidemic, the house has emerged as the most stable element connecting kin in Lesotho. Houses provide spaces that frame human actions, transform relationships, and reflect the social order. The house is a key crossroads for human movement. It is also the site where physical connections, emotional bonds, and feelings of love and affection are nurtured. Most significantly, it is the site where physical acts of caring take place. Based on extensive ethnographic research, I demonstrate that the …

An Examination Of Quality Of Life Of Parents Of Adult Children Diagnosed With Autism Spectrum Disorder, Christina Noel Marsack

Wayne State University Dissertations

Previous research on parental caregivers has focused primarily on caregivers of individuals with intellectual and developmental disabilities, rather than focusing specifically on parents of adult children diagnosed with autism spectrum disorder (ASD). Most research on ASD has centered on parents of young children with this diagnosis, but not on parents of adult children with ASD. Understanding the experiences of parents caring for adult children with ASD is important given the increase in the prevalence of individuals with ASD and the lack of information regarding parents of adult children with ASD. A nonexperimental, quantitative, correlational design was used to examine effects …

The Role Of Unpaid Volunteers In A Group Caregiving Approach : Validation Of The Sharetm The Care Program, Amy Hegener

Legacy Theses & Dissertations (2009 - 2024)

The growing population of older adults will lead to a change in the age structure in the United States, with older people outnumbering younger people for the first time. The changing age structure will affect the current workforce and place demands on the health and long term services and supports system. Moreover, with the suspension of many government programs and hospitals working to cut readmissions the burden on caregivers is increasing. On the other hand, the new generation of older adults will be healthier and better educated than previous generations. They are expected to be more productive and civically engaged, …

The Complicated Process Of Caregiving: The Case Of Mr. S (James) And Ms. Q (Sherry), Nicole Saint-Louis

Publications and Research

In the midst of the daily chaos of healthcare and hospital social work, there are tender moments shared with those we serve—moments that make it a privilege to share their journey. The story of two patients is recounted by the social worker that cared for them.

Filial Responsibility In The Family Of Origin Experiences Of Social Workers, Aphrodite Easton

Theses, Dissertations, and Projects

This exploratory quantitative study examined social workers’ family of origin experiences of filial responsibility, including emotional and instrumental caregiving. Additionally, this investigation explored the relationship between social workers’ past and current caregiving experiences, reported coping strategies, and the perceived fairness of their families of origin. This research was carried out through an anonymous, online survey of 46 part- and full-time MSW students and MSW graduates using self-report measures including a demographic survey, the Filial Responsibility Scale-Adult, and the Proactive Coping Inventory.

In support of the study’s main hypothesis, participants’ childhood experiences of filial responsibility were significantly correlated with adulthood experiences …

Parent Participation In Child Therapeutic Settings, Robert Doss

All Graduate Theses, Dissertations, and Other Capstone Projects

Researchers agree that more caregiver participation and higher levels of engagement in child therapeutic settings lead to better outcomes. However, challenges arise in families of low socioeconomic status (SES) where resources are already spread thin. The current study evaluates the efficacy of implementing a single caregiver participation session during an eight-week physical activity and play group for kids aged 6 to 9 years old. Results indicate that the group as a whole is useful in improving some emotional and behavioral issues in children, but the participation session did not seem to have an impact on improvement. A discussion of results, …