Social and Behavioral Sciences Commons^™

The Impact Of Genetic Disease On The Family: Examining The Relationship Between Psychological Well-Being, Social Support, And Spirituality In Unaffected Carriers Of Leber’S Hereditary Optic Neuropathy, Jonathan W. Dator

Seton Hall University Dissertations and Theses (ETDs)

The current research was undertaken to explore the psychological well-being of mothers and siblings of an individual with vision loss symptoms due to Leber’s Hereditary Optic Neuropathy and whether perceived social support and spiritual involvement and beliefs served as protective factors as these family members coped with their child or sibling acquiring a disability. One hundred seventeen participants, 65 mothers and 52 siblings completed a Demographic Questionnaire, the Outcome Questionnaire-45, the Impact of Event Scale, the Spiritual Involvement and Beliefs Scale, and the Multidimensional Scale of Perceived Social Support via an online internet survey. The data revealed that both mothers …