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Community-Based Research

University of Kentucky

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Articles 1 - 30 of 48

Full-Text Articles in Social and Behavioral Sciences

Evaluating The Association Between Depressive Symptoms And Glycemic Control Among Residents Of Rural Appalachia, Brittany L. Smalls, Adebola Adegboyega, Ellen Combs, Eli W. Travis, Felipe De La Barra, Lovoria B. Williams, Nancy Schoenberg Jan 2023

Evaluating The Association Between Depressive Symptoms And Glycemic Control Among Residents Of Rural Appalachia, Brittany L. Smalls, Adebola Adegboyega, Ellen Combs, Eli W. Travis, Felipe De La Barra, Lovoria B. Williams, Nancy Schoenberg

Journal of Appalachian Health

Introduction: Type 2 diabetes mellitus (T2DM) is associated with a range of co-morbid physical and psychological conditions, including depression. Yet there is a dearth of evidence regarding the prevalence of depression among those in Appalachia living with T2DM; this gap persists despite the higher regional prevalence of T2DM and challenging social determinants of health.

Purpose: This study aimed to provide greater detail about the relationships between T2DM and depressive symptoms in adults living in Appalachia Kentucky.

Methods: The present study was a cross-sectional analysis of baseline data derived from an ongoing study of Appalachia Kentucky adults living with T2DM. Outcome …


Exploring The Distinction Between Support And Enabling In Families With Substance Use Disorder, Krystal N. King Jan 2023

Exploring The Distinction Between Support And Enabling In Families With Substance Use Disorder, Krystal N. King

Theses and Dissertations--Family Sciences

Substance use disorders (SUD) are a pervasive public health problem facing families in the United States. Although families are frequently urged to support loved ones who have SUD and cautioned against enabling them, there is a dearth of literature that distinguishes between supporting and enabling. Through qualitative interviews, this phenomenological study examined the experiences of eight parents with adult children with SUD who were currently in recovery. Five themes emerged from the data including: (a) living in despair, (b) addiction and recovery knowledge, (c) support group philosophy, (d) coping with addiction, and (e) differentiation. The results from this study suggest …


Evaluating Social Support And T2d Risk Factors Among Members Of Rural-Dwelling Grandparent-Headed Households, Brittany L. Smalls, Abebola Adegboyega, Kelly Nb Palmer, Jennifer Hatcher Jul 2022

Evaluating Social Support And T2d Risk Factors Among Members Of Rural-Dwelling Grandparent-Headed Households, Brittany L. Smalls, Abebola Adegboyega, Kelly Nb Palmer, Jennifer Hatcher

Journal of Appalachian Health

Purpose: This study examines the associations of social support and type 2 diabetes (T2D) risk factors among members of rural-dwelling, grandparent-headed households (GHH).

Methods: Prospective data were collected from rural-dwelling members of GHH with no known diagnosis of T2D. Data collected on family characteristics, T2D clinical risk factors, and social support were assessed.

Results: Sixty-six grandparents and 72 grandchildren participated in the study. The average age and HbA1Cs were 59.4 years and 6.2% ± 1.4 for grandparents and 11.8 years and 4.9% ± 0.6 for grandchildren. Most grandparents were found to have prediabetes or undiagnosed diabetes. The number of people …


The Resiliency And Thriving Of Underrepresented Agricultural Educators: A National Mixed Methods Study, Caleb Michael Hickman Jan 2022

The Resiliency And Thriving Of Underrepresented Agricultural Educators: A National Mixed Methods Study, Caleb Michael Hickman

Theses and Dissertations--Community & Leadership Development

Gay men in agricultural education do not have comprehensive support within the agricultural education profession. When gay men decide to become agriculture educators, they often keep their identity private. This national mixed methods study aims to seek if gay agriculture educators are resilient and thrive in rural communities. The thriving elements of spiritual influence, personal competence, peer support, and family cohesion were surveyed and analyzed using a resiliency lens. Findings include gay male agricultural educators thriving in a heteronormative profession. Recommendations include ensuring LGBTQIA+ teachers have a voice in agricultural education.


Ambiguous Appalachianness: A Linguistic And Perceptual Investigation Into Arc-Labeled Pennsylvania Counties, Crissandra J. George Jan 2022

Ambiguous Appalachianness: A Linguistic And Perceptual Investigation Into Arc-Labeled Pennsylvania Counties, Crissandra J. George

Theses and Dissertations--Linguistics

The Appalachian Regional Commission (2022) designates 52 of Pennsylvania’s 67 counties as Appalachia, excluding only the southeast portion of the state. Matthew Ferrence, in Appalachia North, states that his "home is sometimes called Appalachia, sometimes Rust Belt, other times Midwest, even though very few who live there would accept any of those labels as correct" (xi). This ambiguous and fluid identity is due to the shaping, forming, and changing of Pennsylvania’s role within society from a founding colony to a thriving state with industry, unselfishly spoiling others, to the grounds of converging identities (Ferrence xi). This ambiguous identity makes …


Community-Oriented Policing: Building Trust And Collaborative Relationships With The Black Community, Tunice M. Cole Jan 2022

Community-Oriented Policing: Building Trust And Collaborative Relationships With The Black Community, Tunice M. Cole

DSW Capstone Projects

Black people die at the hands of police at a disproportionate rate. In the United States, Black citizens are three times more likely to be killed by police than White citizens. This, along with other factors, has caused a lack of trust, legitimacy, and relationships between police and the Black community. Examining this problem from a socio-ecological and social constructivist perspective suggests that the solution encompasses the use of community feedback and experiences to build and develop a model of community-oriented policing that addresses the issues of the community being served.

Product one of this capstone was a systematic literature …


The Value Of Values-Based Supply Chains: Farmer Perspective, Hikaru Hanawa Peterson, Gail Feenstra, Marcia Ostrom, Keiko Tanaka, Christy Anderson Brekken, Gwenael Engelskirchen Aug 2021

The Value Of Values-Based Supply Chains: Farmer Perspective, Hikaru Hanawa Peterson, Gail Feenstra, Marcia Ostrom, Keiko Tanaka, Christy Anderson Brekken, Gwenael Engelskirchen

Community & Leadership Development Faculty Publications

In the last few decades, the emergence of mid-scale, intermediated marketing channels that fall between commodity and direct markets has attracted growing interest from scholars for their potential to preserve small and mid-sized farms while scaling up alternative agrifood sourcing. When such mid-scale supply chains are formed among multiple business partners with shared ethics or values related to the qualities of the food and the business relationships along the supply chain, they may be termed "values-based supply chains (VBSCs)." Most of the research on VBSCs to date has relied primarily on a case study approach that investigates the performance of …


Reconsidering Extension: Defining Urban Extension In Kentucky, Kristina D. Hains, Jeff Young, Addie Reinhard, Bryan J. Hains May 2021

Reconsidering Extension: Defining Urban Extension In Kentucky, Kristina D. Hains, Jeff Young, Addie Reinhard, Bryan J. Hains

Community & Leadership Development Faculty Publications

As the vast majority of the population in the United States shifts to dwelling within large population centers, it is necessary to examine the responsibility and role that Cooperative Extension has to serve urban communities. Throughout its history, the land-grant system, through Cooperative Extension, has demonstrated the ability to impact the lives of individual citizens and communities positively. Within this theoretical discussion, we illuminate Cooperative Extension’s responsibility to serve urban communities in the 21st Century and highlight essential milestones in the development of urban Extension throughout the past 100 years. Also, we explore the foundations and relevance of recently developed …


Unboxing The Japanese Sojourning Mom’S Pediatric-Going Experience: A Phenomenlogical Study Of Culturally And Linguistically Appropriate Health Services, Carolyn Oldham Jan 2021

Unboxing The Japanese Sojourning Mom’S Pediatric-Going Experience: A Phenomenlogical Study Of Culturally And Linguistically Appropriate Health Services, Carolyn Oldham

Theses and Dissertations--Education Sciences

This study explores how twelve former Lexington-area Japanese sojourning mothers define culturally and linguistically appropriate services and how culture, gender and language shaped their health care beliefs, behaviors and experiences in pediatric settings. It is a naturalistic, pragmatic line of inquiry born in collaboration with Japanese sojourning moms across cups of matcha 末茶 and mugicha 麦茶. Framed by constructivist and intersectionality research lenses, this phenomenological study seeks to understand how study participants perceived the cultural and linguistic appropriateness of their interactions with Lexington-area pediatric offices and to begin to ascertain the meanings they created based on their subjective experiences. Its …


Beyond Choice: An Intersectional Analysis Of Identity And Labor In Online Sex Work, Shawna F. Felkins Jan 2021

Beyond Choice: An Intersectional Analysis Of Identity And Labor In Online Sex Work, Shawna F. Felkins

Theses and Dissertations--Gender and Women's Studies

This intersectional project seeks to understand the complex labor, social lives, and community building of online sex workers. Building on the work of foundational sex work researchers, this project utilizes in-depth interviews, a survey, social media posts, and published writing and research from online sex workers to understand how marginalization and identity impacts participation and success in online sex work. Providing analysis on how race, gender, class, and ability intersect in the digital sexual marketplace, this project critiques the rise of neoliberal feminism in sex work spaces that stems from the centering of white and otherwise privileged sex workers using …


Bio-Spatial Policing In Theory And Practice: Examining Impacts And Resistance Through Mobilities And Children's Everyday Life, Emily Kaufman Jan 2021

Bio-Spatial Policing In Theory And Practice: Examining Impacts And Resistance Through Mobilities And Children's Everyday Life, Emily Kaufman

Theses and Dissertations--Geography

Despite decades of reforms and technological innovations, increasing evidence shows that state securitization disproportionately harms already racially, spatially, and socio-economically marginalized communities. My research investigates uneven impacts of state securitization, from punitive welfare programs to school surveillance to policing. Across sites, I focus on scales, voices and the everyday lived experiences often left out of scholarly discourse and sensational media. In the current climate of growing awareness and scholarship on police violence, my dissertation addresses three less-studied areas: 1) the interplay between racial, gendered, spatial, and technified police practices; 2) how these practices impact the everyday lives of those racially …


Living In Gang-Controlled Neighborhoods: Impacts On Electoral And Nonelectoral Participation In El Salvador, Abby Córdova Apr 2019

Living In Gang-Controlled Neighborhoods: Impacts On Electoral And Nonelectoral Participation In El Salvador, Abby Córdova

Political Science Faculty Publications

Gangs’ territorial control affects the lives of residents in thousands of neighborhoods across Latin America, particularly in northern Central American countries. I argue that gang dominance constrains the ability of neighborhood residents to mobilize politically and consequently resist gang violence through institutionalized channels. Living in gang-controlled neighborhoods results in fewer incentives and opportunities to make political elites accountable for one’s personal safety. Even residents who have already experienced crime firsthand are discouraged from turning to politics as a strategy to change the status quo. My theoretical insights identify mechanisms through which gangs’ neighborhood control affects nonelectoral and electoral participation. To …


Going Beyond The "T" In "Ctc": Social Practices As Care In Community Technology Centers, David Nemer Jun 2018

Going Beyond The "T" In "Ctc": Social Practices As Care In Community Technology Centers, David Nemer

Information Science Faculty Publications

Community technology center (CTC) is a term usually associated with facilities that provide free or affordable computer and internet access, and sometimes training, to people in underserved communities. Despite the large number of studies done on CTCs, the literature has focused primarily on the use of ICTs as the main, if not the only, activity in these centers. When it comes to addressing social concerns, the literature has often seen them as an outcome of ICT use. It does not highlight CTCs as an inherent and important social space that helps to tackle social issues. Thus, in this study, I …


A Longitudinal Analysis Of The Impact Of Child Custody Loss On Drug Use And Crime Among A Sample Of African American Mothers, Kathi L. H. Harp, Carrie B. Oser Mar 2018

A Longitudinal Analysis Of The Impact Of Child Custody Loss On Drug Use And Crime Among A Sample Of African American Mothers, Kathi L. H. Harp, Carrie B. Oser

Health Management and Policy Faculty Publications

This study examines the influence of child custody loss on drug use and crime among a sample of African American mothers. Two types of custody loss are examined: informal custody loss (child living apart from mother but courts not involved), and official loss (child removed from mother’s care by authorities).

Methods—Using data from 339 African American women, longitudinal random coefficient models analyzed the effects of each type of custody loss on subsequent drug use and crime.

Results—Results indicated that both informal and official custody loss predicted increased drug use, and informal loss predicted increased criminal involvement. Findings demonstrate …


Growing Economic Possibility In Appalachia: Stories Of Relocalization And Representation On Stinking Creek, Kathryn Engle Jan 2018

Growing Economic Possibility In Appalachia: Stories Of Relocalization And Representation On Stinking Creek, Kathryn Engle

Theses and Dissertations--Sociology

This project explores the agricultural heritage and current social landscape of the Stinking Creek community of Knox County, Kentucky, and the legacy of the local nonprofit organization the Lend-A-Hand Center. Through participatory research, this project presents a reflexive account of the Lend-A-Hand Center Grow Appalachia Gardening Program examining the diverse economy of the Stinking Creek watershed and possibilities for new economic imaginings and post-coal futures for central Appalachia. This dissertation includes an oral history project, a theoretical examination, and an ethnographic reflection, bridging several literatures in the fields of agricultural history, Appalachian Studies, Participatory Action Research, research within the diverse …


Between A Rock And A Hard Place: Urbanormativity And Rural Located Private Higher Education, Jonathan Jared Friesen Jan 2018

Between A Rock And A Hard Place: Urbanormativity And Rural Located Private Higher Education, Jonathan Jared Friesen

Theses and Dissertations--Sociology

As urban areas have come to increasing dominate the social landscape, rurality is often defined in negative ways such as being backwards, simple, or even deviant. Urbanormativity is a theoretical approach developed to capture the normative and structural impacts and implications of privileging the urban. The result is not only the construction of urban as correct and positive and rurality as abnormal and backwards, the cultural ideology impacts the structural flow of resources which negatively impacts and results in a marginalization of rural areas.

The primary question motivating this research is how does urbanormativity shape the interactions between rural towns …


Determining Millennial Food Buying Preferences: Based On Product Marketing With “Buzzwords”, Victoria N. Hamilton Jan 2018

Determining Millennial Food Buying Preferences: Based On Product Marketing With “Buzzwords”, Victoria N. Hamilton

Theses and Dissertations--Community & Leadership Development

This research focuses on the importance on the Millennial Generation and their perceptions of food buzzwords. Since the Millennial Generation is the largest group purchasing and preparing their own foods, the food industry is becoming dependent on their buying preferences. A survey reflected the participants’ demographics and their buying preferences based on a series of food buzzwords when they are purchasing foods. Results show the Millennial Generation prefers “local” buzzwords. As the Millennial Generation continues to purchase foods for themselves and their families, it can be expected their choices will encourage others to do the same based on their family …


Identifying Perceived Risks To Environmental Pollutants And Needs For Risk Communication In A Rural Appalachian Community, Elizabeth H. Travis Jan 2018

Identifying Perceived Risks To Environmental Pollutants And Needs For Risk Communication In A Rural Appalachian Community, Elizabeth H. Travis

Theses and Dissertations--Nutrition and Food Systems

The goal of this study is to determine issues rural Appalachian residents consider most important, their perceived environmental health risk, and how community engagement can potentially improve those issues. The University of Kentucky Superfund Research Center held the Appalachian Community Health and Well-being Forum at the Letcher County Cooperative Extension Office in Eastern Kentucky. A four-member panel consisted of two local health officials, a nutrition expert, and a federal scientist; answered questions from community members. The expert panel and audience members shared concerns, success stories, and highlighted efforts to promote health in the region. Community members completed a questionnaire collecting …


Changing Minds Or Transforming Social Worlds? Re-Envisioning Media Literacy Education As Feminist Arts-Activism, Margaret Louise Mcgladrey Jan 2018

Changing Minds Or Transforming Social Worlds? Re-Envisioning Media Literacy Education As Feminist Arts-Activism, Margaret Louise Mcgladrey

Theses and Dissertations--Sociology

This dissertation project seeks to address the sociological processes, dynamics, and mechanisms inflecting how and why U.S. society reproduces a sexually dimorphic, binary gender structure. The project builds upon the work of sociologists of gender on the doing gender framework, intersectional feminist approaches to identity formation, and hegemonic masculinity and relational theories of gender. In a 2012 article in Social Science and Medicine presenting contemporary concepts in gender theory to the health-oriented readers of the journal, R. W. Connell argues that much public policy on gender and health relies on categorical understandings of gender that are now inadequate. Connell contends …


Expression And Reception: An Analytic Method For Assessing Message Production And Consumption In Cmc, Kang Namkoong, Dhavan V. Shah, Bryan Mclaughlin, Ming-Yuan Chih, Tae Joon Moon, Shawnika Hull, David H. Gustafson Apr 2017

Expression And Reception: An Analytic Method For Assessing Message Production And Consumption In Cmc, Kang Namkoong, Dhavan V. Shah, Bryan Mclaughlin, Ming-Yuan Chih, Tae Joon Moon, Shawnika Hull, David H. Gustafson

Community & Leadership Development Faculty Publications

This article presents an innovative methodology to study computer-mediated communication (CMC), which allows analysis of the multi-layered effects of online expression and reception. The methodology is demonstrated by combining the following three data sets collected from a widely tested eHealth system, the Comprehensive Health Enhancement Support System (CHESS): (1) a flexible and precise computer-aided content analysis; (2) a record of individual message posting and reading; and (3) longitudinal survey data. Further, this article discusses how the resulting data can be applied to online social network analysis and demonstrates how to construct two distinct types of online social networks—open and targeted …


Cultivating A Culture Of Food Justice: Impacts Of Community Based Economies On Farmers And Neighborhood Leaders In The Case Of Fresh Stop Markets In Kentucky, Heather Hyden Jan 2017

Cultivating A Culture Of Food Justice: Impacts Of Community Based Economies On Farmers And Neighborhood Leaders In The Case Of Fresh Stop Markets In Kentucky, Heather Hyden

Theses and Dissertations--Community & Leadership Development

In this thesis, I focus on two tensions within the alternative agro-food movement. First is a question of who/what community is allowed to define food systems problems and then implement solutions. For example, food desert metaphors rely discursively on defining communities as being “without”, which perpetuates needs-based narratives, in which only professional “experts” know how to solve problems of food access. These representations ignore the creativity, agency, and resiliency of everyday food justice mobilizations happening at the grassroots level. Second, what form can solutions take within hegemonic constructions of development? I build a theoretical model based on Black geographies (McKittrick, …


“I Wonder What You Think Of Me”: A Qualitative Approach To Examining Stereotype Awareness In Appalachian Students, Chelsea G. Adams Jan 2017

“I Wonder What You Think Of Me”: A Qualitative Approach To Examining Stereotype Awareness In Appalachian Students, Chelsea G. Adams

Theses and Dissertations--Educational, School, and Counseling Psychology

Historically, Appalachia has been stereotyped as being a culture bred in poverty and ignorance. Much research has shown that stereotyping reveals a pattern of behavioral change and an impact on psychological well-being for the stereotyped (e.g., Pinel, 1999; Woodcock, Jernandez, Estrada, & Schultz, 2012), and has largely been centered on race and gender (e.g., Byrnes, 2008; Tuckman & Monetti, 2011). Less is known about the development of culture-specific stereotypes such as those related to Appalachians – a highly stigmatized group (Daniels, 2014; Otto, 2002). The purpose of this study was to gain an understanding of how adolescents in rural Appalachia …


Effects Of Participant Controlled Video Prompting On Novel Tasks In A Vocational Setting For Adults With Autism Spectrum Disorder, Amanda M. Hogue Jan 2017

Effects Of Participant Controlled Video Prompting On Novel Tasks In A Vocational Setting For Adults With Autism Spectrum Disorder, Amanda M. Hogue

Theses and Dissertations--Early Childhood, Special Education, and Counselor Education

The purpose of this study was to evaluate the effectiveness of teaching self-instructional skills to navigate to a mobile device to access video prompts to teach novel behaviors to two adults with autism spectrum disorder (ASD) in a vocational setting. This study used a multiple probe across conditions design to evaluate effectiveness. In baseline, the researcher directed the participants to complete a novel task and collected data on correct steps completed. In technology training the researcher used a system of least prompts procedure to teach participants to initiate the use of the mobile device, navigate to an app, navigate to …


Offline Social Relationships And Online Cancer Communication: Effects Of Social And Family Support On Online Social Network Building, Namkoong Kang, Dhavan V. Shah, David H. Gustafson Nov 2016

Offline Social Relationships And Online Cancer Communication: Effects Of Social And Family Support On Online Social Network Building, Namkoong Kang, Dhavan V. Shah, David H. Gustafson

Community & Leadership Development Faculty Publications

This study investigates how social support and family relationship perceptions influence breast cancer patients’ online communication networks in a computer-mediated social support (CMSS) group. To examine social interactions in the CMSS group, we identified two types of online social networks: open and targeted communication networks. The open communication network reflects group communication behaviors (i.e., one-to-many or “broadcast” communication) in which the intended audience is not specified; in contrast, the targeted communication network reflects interpersonal discourses (i.e., one-to-one or directed communication) in which the audience for the message is specified. The communication networks were constructed by tracking CMSS group usage data …


Rural Reality: How Reality Television Portrayals Of Appalachian People Impact Their View Of Their Culture, Ivy Jude Elise Brashear Jan 2016

Rural Reality: How Reality Television Portrayals Of Appalachian People Impact Their View Of Their Culture, Ivy Jude Elise Brashear

Theses and Dissertations--Community & Leadership Development

Appalachian people have faced stereotyping of their culture and region in popular culture, news media, and art for generations. For more than 150 years, images of the region have been extracted by outside media makers and disseminated widely, solidifying the “hillbilly” stereotype in the national lexicon. This study focuses on such images in reality television shows about Appalachia, and seeks to determine whether or not those images, and the proliferation of them, has an impact on the ways in which Appalachian people understand and accept their own culture.


Gender Matters: Masculinities Among African American Men Farming In North Carolina, Marcus K. Bernard Jan 2016

Gender Matters: Masculinities Among African American Men Farming In North Carolina, Marcus K. Bernard

Theses and Dissertations--Sociology

The residue of racism, institutional discrimination, and class warfare continue to displace constructions of masculinity for African-American men in farming by shifting the drive for success onto the sidewalk of survival. The shifting focus migrates from goals of economic and political gain to simply shielding masculinity through acts of providing for and protecting the family. African-American men’s failure to acknowledge these quandaries in Western society’s social structure entraps their masculine identity by keeping their focus on issues of race and social class which overshadow the broad gender transformations. The deceptive social forces underlying this social structure hurl African conditions are …


Agriculture Of The Middle Participation In State Branding Campaigns: The Case Of Kentucky, Alicia M. Hullinger, Keiko Tanaka Oct 2015

Agriculture Of The Middle Participation In State Branding Campaigns: The Case Of Kentucky, Alicia M. Hullinger, Keiko Tanaka

Community & Leadership Development Faculty Publications

In the past decade, statewide agricultural branding campaigns have blossomed. Examining the case of the Kentucky Proud™ (KyP) program, this paper investigates the potential benefit of a state-level marketing strategy for the declining class of midsize farms, referred to as Agriculture of the Middle (AOTM). First, we discuss why AOTM farms are important to maintaining a viable agriculture structure. Second, we introduce the context of state branding and explain how KyP developed as part of the transition from highly tobacco-dependent agriculture. Using recent agricultural census data and a survey of KyP members, we compare the key characteristics between three sets …


Building The Capacity For Community Food Work: The Geographic Distribution Of Usda Community Food Projects Competitive Grant Program Grantees, Keiko Tanaka, Erica Indiano, Graham T. Soley, Patrick H. Mooney May 2015

Building The Capacity For Community Food Work: The Geographic Distribution Of Usda Community Food Projects Competitive Grant Program Grantees, Keiko Tanaka, Erica Indiano, Graham T. Soley, Patrick H. Mooney

Community & Leadership Development Faculty Publications

Projects Competitive Grants Program, or USDA CFPCGP, supports community efforts to address food system issues. Over the last 15 years the program has funded diverse community-based projects across the nation, including youth education programs on healthy eating, farm-to-table initiatives, and community food assessments. In this initial study, we endeavor to understand the contribution of the CFPCGP in building a community's capacity to address its own challenges for food security. To analyze funding patterns of the CFPCGP program between 1996 and 2012, we used the websites of the CFPCGP and the WhyHunger Network to identify 420 competitive grant applications successfully funded …


Better Engaging Communities: Moving Beyond Cardinal Rules, Anna G. Hoover Mar 2015

Better Engaging Communities: Moving Beyond Cardinal Rules, Anna G. Hoover

Anna G. Hoover

“Cardinal rules” and best practice approaches have guided governmental risk communication efforts at chronic risk sites for more than two decades, playing an important role in how those most affected by contamination make sense of risk. In addition to providing information, however, communication approaches themselves can affect community perceptions indirectly, through stakeholder interpretations of the processes by which risk information is shared. It is increasingly necessary to evaluate not only whether risk communication approaches have been effective for increasing knowledge but if, in fact, the ways in which information is shared has had unintended consequences that change how stakeholders perceive …


Chess Improves Cancer Caregivers' Burden And Mood: Results Of An Ehealth Rct, Lori L. Dubenske, David H. Gustafson, Kang Namkoong, Robert P. Hawkins, Amy K. Atwood, Roger L. Brown, Ming-Yuan Chih, Fiona Mctavish, Cindy L. Carmack, Mary K. Buss, Ramaswamy Govindan, James F. Cleary Oct 2014

Chess Improves Cancer Caregivers' Burden And Mood: Results Of An Ehealth Rct, Lori L. Dubenske, David H. Gustafson, Kang Namkoong, Robert P. Hawkins, Amy K. Atwood, Roger L. Brown, Ming-Yuan Chih, Fiona Mctavish, Cindy L. Carmack, Mary K. Buss, Ramaswamy Govindan, James F. Cleary

Community & Leadership Development Faculty Publications

OBJECTIVE: Informal caregivers (family and friends) of people with cancer are often unprepared for their caregiving role, leading to increased burden or distress. Comprehensive Health Enhancement Support System (CHESS) is a Web-based lung cancer information, communication, and coaching system for caregivers. This randomized trial reports the impact on caregiver burden, disruptiveness, and mood of providing caregivers access to CHESS versus the Internet with a list of recommended lung cancer websites.

METHODS: A total of 285 informal caregivers of patients with advanced nonsmall cell lung cancer were randomly assigned to a comparison group that received Internet or a treatment group that …