Social and Behavioral Sciences Commons^™

Building Neuro-Inclusive Community, Strengthening Mental Health: The Autism After 21 Utah Project, Sumiko T. Martinez, Anna Smyth, Ann C. Carrick

Developmental Disabilities Network Journal

Over two decades of research shows strong positive relationships are a consistently powerful indicator of wellbeing and resilience. However, the U.S. Surgeon General notes that loneliness and isolation is an epidemic in the U.S., and that it is exacerbated for individuals with physical and mental disabilities as well as those with isolating economic or environmental situations. A recent review shows that many autistic adults in particular face challenges in finding the connections they want and need. They also often have compounding mental health conditions, such as depression and mental illness, lower incomes, isolating home environments due to a lack of …

Health Care Professionals’ Stigma Toward People With An Opioid Use Disorder: Preliminary Findings On The Effect Of Amount Of Contact Has On Stigma, Gabriela Murza, Cris Meier, Lily Ward, Sydney O'Shay, Rachel Myrer

Transforming Communities

Opioid-related deaths are the leading cause of injury deaths in Utah. Individuals who seek treatment for opioid misuse report stigma from healthcare professionals as the leading barrier to accessing treatment. Health professionals provide a variety of treatment options in efforts of combating high rates of opioid misuse. However, these professionals may not be properly trained in stigma reduction strategies, thus leading to poor client care and outcomes. The current study examined the association between contact with individuals who misuse opioids and stigma perceptions among healthcare professionals. A one-time survey was administered to healthcare professionals who practice in Utah using convenience …

Parents’ Perceptions Of The Philly Goat Project’S All Abilities Ramble: A Qualitative Study Of Animal-Assisted Intervention For Intellectual And Developmental Disorders, Patricia Flaherty-Fischette, Jenée Lee, Yvonne D'Uva-Howard, Elizabeth P. Cramer, Karen Krivit, Sarah Meehan

Developmental Disabilities Network Journal

Individuals with intellectual and developmental disabilities (IDD) are a growing population. Considering the wide diversity in IDD and the financial burden of traditional treatment modalities, Animal-Assisted Interventions (AAI) has emerged as an innovative and non-traditional treatment for individuals with a range of disabilities, including individuals with IDD. To the authors’ knowledge, the present study was one of the first to explore a goat-assisted therapy experience for children with IDD. This study explored the experiences of 23 children with the All Abilities RAMble – a goat-assisted therapeutic activity offered by the Philly Goat Project (PGP). Key themes in our study included …

Caregiver Health: Having A Child With Asd And The Impact Of Child Health Insurance Status, Kristin Hamre, Derek Nord, John Andresen

Developmental Disabilities Network Journal

This study aims to understand the health outcomes of parents with children with autism spectrum disorder (ASD) and the interactive effect of child health insurance status. The study utilized 2014-2018 pooled National Health Interview Survey data to construct weighted national estimates and construct main and interaction effect logistic regression models. Findings show parents of children with ASD experienced significantly poorer health compared to parents of children without autism. Insurance status was found to significantly interact with child ASD status. Compared to parents of children without ASD that used private insurance, parents with a child with ASD who used private insurance, …

Access To Services For New Americans With Intellectual And Developmental Disabilities: Building Capacity Through The Ramirez June Initiative, Cynthia S.B. Stewart, Carmel Lulihi, Laura González-Murphy, Jacqueline Hayes

Developmental Disabilities Network Journal

New Americans with intellectual and developmental disabilities (IDD) are a significantly underserved community in New York State (NY) facing complex barriers accessing IDD services and fully integrating into their communities. New American communities lack connections with IDD service systems and struggle to find culturally and linguistically accessible information about disability services and resources. New Americans may be fearful of engaging with service providers, especially if they lack lawful immigration status and are undocumented. In acknowledgement of these barriers, NY implemented an initiative to create a navigator model that is the first of its kind in the nation. The Initiative is …

Preparing Rural Youth For The Future Of Work Through Remote Work Education, Andrea T. Schmutz, Alison Campbell, Abbey Bean, Amanda D. Ali, Paul Hill, Emy Swadley

Outcomes and Impact Quarterly

With population migration out of Utah's rural communities threatening the future workforce in small towns, Utah State University Extension recognized an opportunity to provide remote work education to rural youth to empower them to remain in their communities and seek remote employment. Teaming up with Utah's Rural Online Initiative program, Utah State University Extension created the virtual 4-H Remote Skills Camp: For College and Career Readiness.

Assessing Need And Acceptability Of A Youth Mentoring Intervention For Adolescents With Autism By Adults With Autism, Kai Y. Gunty, Lindsey Weiler, Angela Keyzers, Rebekah Hudock

Developmental Disabilities Network Journal

Background: Adult mentors can positively influence development, yet youth with autism spectrum disorders (ASD) have too little access to adult mentors who can provide role modeling, guidance, and support. Furthermore, neurotypical adult mentors (i.e., adult mentors without ASD) may not understand the day-to-day realities that youth with ASD face and the social world they navigate. Therefore, it is possible that adults with ASD may be particularly well-suited as mentors for youth with ASD.

Method: Six semi-structured focus groups of four to seven people each explored the need for a mentoring program to bridge the gap between the supports youth with …

Adapting Participatory Action Research To Include Individuals With Intellectual And Developmental Disabilities During The Covid-19 Global Pandemic, Kaitlyn P. Ahlers, Kara B. Ayers, Suzannah Iadarola, Rosemary B. Hughes, Hyon Soo Lee, Heather J. Williamson

Developmental Disabilities Network Journal

Participatory action research (PAR), or the inclusion of those affected by the issues being studied, is a growing area of emphasis in disability research. The principles of PAR align with those of the disability rights movement, such that full inclusion and “nothing about us without us” extends as much to research as it does to any other area of life. Moreover, PAR allows for meaningful input from people with intellectual and developmental disabilities (I/DD), which enhances the likelihood that research results are relevant and important to the disability community. As research activity resumes and is adapted to the context of …

Person-Centered Practice As Anchor And Beacon: Pandemic Wisdom From The Ncapps Community, Connor Bailey, Martha Barbone, Lydia X.Z. Brown, Alixe Bonardi, Bevin Croft, Marian Frattarola-Saulino, Karyn Harvey, Miso Kwak, Kelly Lang, Nicole Leblanc, Michelle C. Reynolds, Carole Starr

Developmental Disabilities Network Journal

Objective: This article summarizes the individual, systemic, and collective challenges and opportunities presented by the COVID-19 pandemic, based on 16 videos solicited by the National Center on Advancing Person-Centered Practices and Systems (NCAPPS) and submitted by NCAPPS collaborators during the first six months of the pandemic.

Method: Informed by participatory action approaches and content analysis, we describe common themes in a series of 16 videos solicited by NCAPPS from subject matter experts with professional and lived experience of disability and human services systems.

Results: The team organized the findings to identify both specific factors within each of the levels and …

Coming Together During Covid-19: A Mixed Methods Exploratory Study On Collective Efficacy In A State Developmental Disabilities Network, Arden D. Day, Michele Sky Lee, Ronda Jenson, Erica Mcfadden, Maureen Russell, Kelly Roberts, John Mcdermott, Nicholas Blum

Developmental Disabilities Network Journal

Background: Collective efficacy (CE) is a group’s shared belief that through their united efforts they can overcome challenges to achieve common goals (Bandura, 1993; 1997). CE has been shown to be related to professional growth, stress reduction, and overall collaborative impact in studies of groups responding to ongoing challenges as well as unforeseen circumstances (i.e. teachers, first-responders, and community responses to natural disasters) (Benight, 2004; Donohoo, 2016; Prati et al., 2011). COVID-19 has forced organizations serving individuals with disabilities to come together to adapt and change the ways in which they serve the disability community.

Objective: This study examines …

Family Caregiving During The Covid-19 Pandemic, Sharon Milberger, Christina Marsack-Topelewski, Elizabeth Janks, Preethy S. Samuel

Developmental Disabilities Network Journal

Background: The Coronavirus Disease-2019 (COVID-19) pandemic has taken a disproportionate toll on people with intellectual and developmental disabilities (I/DD) as well as their family caregivers. This is especially true for older family caregivers, many of whom assume dual or compound caregiving roles, and provide care as they undergo their own aging experiences. This research brief presents findings from family caregivers of adults with I/DD to better understand how the COVID-19 pandemic has affected their lives. Method: Thirty family caregivers from across the state participated in a one-hour special COVID-19 virtual discussion group. All participant identifiers were deleted from a …

21st Century Teenagers And Young Adults Who Are Deaf Or Hard Of Hearing: Outcomes And Possibilities, Jean S. Moog, Amanda M. Rudge 3730756

Journal of Early Hearing Detection and Intervention

The purpose of this study was to document demographics, characteristics, and long-term outcomes of teenagers and young adults who are deaf or hard of hearing (DHH) and who all attended the Moog Center for Deaf Education for preschool and/or a portion of elementary school. Data were obtained via an online survey that was designed to assess educational, personal, and professional outcomes of individuals who were currently in high school and beyond. Survey questions were about the lives of these individuals after leaving the Moog Center. Participants included 108 individuals who were DHH, ranging from 15 to 32 years of age. …

Wildlife Damage To Crops Adjacent To A Protected Area In Southeastern Mexico: Farmers’ Perceptions Versus Actual Impact, Gabriel Can-Hernández, Claudia Villanueva-García, Elías José Gordillo-Chávez, Coral Jazvel Pacheco-Figueroa, Elizabeth Pérez-Netzahual, Rodrigo García-Morales

Human–Wildlife Interactions

Human–wildlife conflicts occur when wildlife has an adverse effect on human activities (e.g., predation of livestock, crop raiding). These conflicts are increasing, particularly in areas surrounding natural protected areas, where villagers engage in subsistence agriculture. Crop damage may cause farmers to retaliate and harm wildlife species considered responsible for the damage. Among the factors that determine the intensity of the conflict are the frequency of the damage and the amount of biomass consumed relative to the perceptions, values, and cultural history of the farmers affected. To better understand the conflicts between farmers and wildlife, we compared farmer perceptions of wildlife …

The Gunnison Basin Sage-Grouse Strategic Committee: A Colorado County’S Fight For Conservation Self-Determination, James Cochran, Jonathan Houck, Greg Peterson

Human–Wildlife Interactions

Since 1995, sage-grouse (Centrocercus spp.) conservation planning in the western United States has largely been based upon local working groups comprised of federal, state and local governments, environmental groups, landowners, interested citizens. In this article, we review the history and process of these local working groups in western Colorado. These groups are generally convened by one or more government agencies, operate on the general principle of consensus, and have little or no administrative or financial support. The local working groups were generally comprised of field biologist, rancher/landowners, members of local environmental groups and occasionally representatives from local governments. The …

Utah’S Watershed Restoration Initiative: Restoring Watersheds At A Landscape Scale, Alan G. Clark, Tyler W. Thompson, Jason L. Vernon, Alison Whittakker

Human–Wildlife Interactions

Abstract: The Utah Watershed Restoration Initiative (WRI) is a partnership-based program, administered by the Utah Department of Natural Resources, which seeks to improve the functional capacity of high priority watersheds throughout the state. Since its inception in 2006, the WRI partnership has completed nearly 1,500 projects to restore and rehabilitate over 526,091 ha in Utah watersheds. The WRI program is unique to the west, in that it transcends jurisdictional boundaries, and local, state, and federal management authority to focus finite resources on completing high priority conservation projects. We surveyed selected WRI selected participants in 2015 to determine what factors they …

Participatory Research In Sage-Grouse Local Working Groups: Case Studies From Utah, Lorien R. Belton, S. Nicole Frey, David K. Dahlgren

Human–Wildlife Interactions

Across the range of greater sage-grouse (Centrocercus urophasianus; sage-grouse), collaborative groups focused on local-scale sage-grouse management, known as local working groups (LWGs), have been a core component of state-level efforts toward conservation of this species. In Utah, LWGs have been highly involved in designing and implementing the research which forms the body of knowledge upon which sage-grouse management decisions are made in the state. The LWG process encourages participatory research involving a wide array of interested stakeholders, including university scientists. Utah’s LWGs are facilitated by Utah State University Extension faculty and staff. These personnel provide support for securing …

A “Hammer Held Over Their Heads”: Voluntary Conservation Spurred By The Prospect Of Regulatory Enforcement In Oregon, Katherine L. Wollstein, Emily Jane Davis

Human–Wildlife Interactions

When the U.S. Fish and Wildlife Service determined that greater sage-grouse (Centrocercus urophasianus; sage-grouse) did not warrant listing under the Endangered Species Act (ESA) in 2015, the agency recognized a coordinated effort of private landowners, nongovernmental organizations (NGOs), and state and federal agencies that effectively reduced threats to the species. This effort exemplified an alternative model to species conservation that relies on voluntary conservation of private landowners to preclude government regulation. Through one in-depth case study of private landowners’ voluntary sage-grouse conservation efforts in Lake County, Oregon, we explored features of these voluntary arrangements that motivate participating private …