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Social and Behavioral Sciences Commons

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Full-Text Articles in Social and Behavioral Sciences

"I Stayed There The Whole Night": Exploring Caregivers' Experiences With The Healthcare System When Caring For A Parent At The End Of Life, Lillian Mehran Jun 2023

"I Stayed There The Whole Night": Exploring Caregivers' Experiences With The Healthcare System When Caring For A Parent At The End Of Life, Lillian Mehran

Dissertations and Theses

Background: In the United States, there are nearly 53 million individuals serving as caregivers to a loved one. Half of all caregivers are caring for a parent or parent-in-law, and 79% of caregivers are caring for a person aged 50 or older. In New York State, there are an estimated 4.1 million caregivers who collectively provide over 2.6 billion hours of unpaid care, with those caring for a person at the end of life providing twice as many hours of caregiving per week compared to other caregivers. The number of individuals requiring caregiving is expected to increase as a significant …


Resource Utilization Among Informal Caregiver Of Lung Cancer Patients Undergoing Treatment, Charlotte T. Lee, Clarelle L. Gonsalves, Jenny Gao-Kang, Wyatt G. Pickrell, Ruth F. Barker Apr 2022

Resource Utilization Among Informal Caregiver Of Lung Cancer Patients Undergoing Treatment, Charlotte T. Lee, Clarelle L. Gonsalves, Jenny Gao-Kang, Wyatt G. Pickrell, Ruth F. Barker

Patient Experience Journal

The objective of this study is to explore patient and caregiver factors that shape the use of available resources to support caregiving for lung cancer patients undergoing treatment. A mixed-method study was conducted at one regional cancer centre within the Province of Ontario, Canada, using concurrent triangulation design. Adult patients with lung cancer (n=46) and their caregivers (n=42) (37 patient-caregiver dyads) were invited to complete a one-time study survey. Informal caregivers (n=20) also participated in a one-time semi-structured interview. Descriptive statistics and Pearson’s correlation were used to examine patterns of resource utilization and associations among study variables. Content analysis was …


Influenza Vaccine Uptake In Caregivers And Non-Caregivers: Implications For Policy And Practice, Nicholas Mercado May 2021

Influenza Vaccine Uptake In Caregivers And Non-Caregivers: Implications For Policy And Practice, Nicholas Mercado

NYMC Student Theses and Dissertations

Background: Caregivers are a critical and highly utilized healthcare resource. Previous research suggests that caregivers experience adverse physical and mental health outcomes and practice less self-care while serving their role. Influenza, or the flu, is a common and infectious disease caused by a virus that is responsible for millions of doctor visits, hospitalizations, and approximately 43,000 deaths annually. The most effective measure for addressing the flu is primary prevention, which includes a seasonal flu vaccine. Methods: Behavioral Risk Factor Surveillance System (BRFSS) data from 2016-2018 were analyzed. The study population included 154,170 respondents from 27 states and the District of …


Gay And Lesbian Elders: History, Law, And Identity Politics In The United States, Nancy J. Knauer Dec 2009

Gay And Lesbian Elders: History, Law, And Identity Politics In The United States, Nancy J. Knauer

Nancy J. Knauer

The approximately two million gay and lesbian elders in the United States are an underserved and understudied population. At a time when gay men and lesbians enjoy an unprecedented degree of social acceptance and legal protection, many elders face the daily challenges of aging isolated from family, detached from the larger gay and lesbian community, and ignored by mainstream aging initiatives. Drawing on materials from law, history, and social theory, this book integrates practical proposals for reform with larger issues of sexuality and identity. Beginning with a summary of existing demographic data and offering a historical overview of pre-Stonewall views …


We Were There, Irene Burns Jan 1988

We Were There, Irene Burns

New England Journal of Public Policy

Irene Burns and Robin Macdonald are friends. Neither knew Mitchell Holsman or Gretta Wren. And neither did Mitchell or Gretta know each other. All four live and work in New York City — Irene as a telecommunications consultant; Robin as a paralegal; Gretta as an office administrator; and Mitchell as a fashion designer — and all four were friends of John Krieter. It was the love inspired by that friendship that brought them together to care for him. He died of AIDS on January 24, 1988.