Social and Behavioral Sciences Commons^™

Paradox As Resistance In Male Dominated Fields And The Value Of (Sur)Facing Enthymematic Narratives, Jennifer J. Mease (Also Peeksmease), Bronwyn Neal

Department of Communication Studies: Faculty Publications

Women working in masculine organizational contexts face a challenge of balancing (1) access to power by co-opting masculine discourse in ways that risk reinforcing it, with (2) challenging and resisting practices that privilege masculinity. In this manuscript, we address one communication strategy for navigating that challenge: The denial/acknowledgment paradox in which women explicitly deny that gender affected their experience, but also describe the many ways it affected their experience. To do so, we examined transcripts of interviews with 11 women candidates who ran in the 2017 Virginia House of Delegates election in the United States and demonstrated this paradoxical communication …

Video Tools In Pediatric Goals Of Care Communication: A Systematic Review, Caitlin M. Nalda, Megan L. Mcsherry, Cynthia M. Schmidt, Marie L. Neumann, Renee D. Boss, Meaghann S. Weaver

Department of Communication Studies: Faculty Publications

Medical advancesmean a growing array of interventions, therapies, and technologies are available to support care for children with chronic and serious conditions. Some of these approaches are supported by robust data drawn from populations that perfectly reflect an individual patient's physiologic, psychologic, and social situation. But much more often, clinicians and families face decisions in the context of some—or much—uncertainty about whether the intervention will do a child more harm than good. This is particularly true for seriously ill children with a limited lifespan— whether the child is a neonate born with a life-threatening brain anomaly or an adolescent with …

Difficult Conversations Concerning Identity And Difference: Diverse Approaches And Perspectives, Jordan Soliz, Srividya Ramasubramanian

Department of Communication Studies: Faculty Publications

This essay is an introduction to the special issue on “Difficult Conversations Concerning Identity and Difference.” The essay begins with our argument that inquiries into difficult conversations are important as these interactions are key to addressing social inequities, creating and/or maintaining community and relational solidarity, amplifying voices of marginalized populations and/or diverse experiences, and enacting social change. Following this, we introduce the articles in the special issue highlighting the theoretical frameworks and methodological pluralism across the various relational and social contexts represented in the research (e.g., health care, higher education, community organizations, personal relationships). To complement the implications discussed by …

Exploring The Impact Of Pediatric Short Bowel Syndrome On Parent Well‐Being Using A Disease‐Specific Pilot Survey, Marie L. Neumann, Jessica Y. Allen, Amy Ladner, Swapna Kakani, Meaghann S. Weaver, David F. Mercer

Department of Communication Studies: Faculty Publications

Background: Children with short bowel syndrome (SBS) have complex care needs, most of which are met in the home by family caregivers who may experience a range of stressors unique to this experience. Prior research suggests that parents of children with SBS have poorer health‐related quality of life than peers parenting children without health needs, but the mechanisms shaping parent outcomes are understudied.

Methods: A pilot survey was developed using a community‐driven research design to measure the impact of disease‐specific items on parent‐perceived well‐being. The cross‐sectional survey, which included both closed‐ended and open‐ended items, was distributed to a …

Advocating For A Patient‐ And Family Centered Care Approach To Management Of Short Bowel Syndrome, Vanessa J. Kumpf, Marie L. Neumann, Swapna R. Kakani

Department of Communication Studies: Faculty Publications

Patient‐ and family centered care (PFCC) is a model of providing healthcare that incorporates the preferences, needs, and values of the patient and their family and is built on a solid partnership between the healthcare team and patient/family. This partnership is critical in short bowel syndrome (SBS) management since the condition is rare, chronic, involves a heterogenous population, and calls for a personalized approach to care. Institutions can facilitate the practice of PFCC by supporting a teamwork approach to care, which, in the case of SBS, ideally involves a comprehensive intestinal rehabilitation program consisting of qualified healthcare practitioners who are …

Exploring The Impact Of Pediatric Short Bowel Syndrome On Parent Well‐Being Using A Disease‐Specific Pilot Survey, Marie L. Neumann, Jessica Y. Allen, Amy Ladner, Swapna Kakani, Meaghann S. Weaver, David F. Mercer

Department of Communication Studies: Faculty Publications

Background: Children with short bowel syndrome (SBS) have complex care needs, most of which are met in the home by family caregivers who may experience a range of stressors unique to this experience. Prior research suggests that parents of children with SBS have poorer health‐related quality of life than peers parenting children without health needs, but the mechanisms shaping parent outcomes are understudied.

Methods: A pilot survey was developed using a community‐driven research design to measure the impact of disease‐specific items on parent‐perceived well‐being. The cross‐sectional survey, which included both closed‐ended and open‐ended items, was distributed to a …

Advocating For A Patient‐ And Family Centered Care Approach To Management Of Short Bowel Syndrome, Vanessa J. Kumpf, Marie L. Neumann, Swapna R. Kakani

Department of Communication Studies: Faculty Publications

Patient‐ and family centered care (PFCC) is a model of providing healthcare that incorporates the preferences, needs, and values of the patient and their family and is built on a solid partnership between the healthcare team and patient/family. This partnership is critical in short bowel syndrome (SBS) management since the condition is rare, chronic, involves a heterogenous population, and calls for a personalized approach to care. Institutions can facilitate the practice of PFCC by supporting a teamwork approach to care, which, in the case of SBS, ideally involves a comprehensive intestinal rehabilitation program consisting of qualified healthcare practitioners who are …