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Men As Caregivers At The End Of Life, Erik K. Fromme, Linda L. Drach, Susan W. Tolle, Patricia Ebert, Pamela Miller, Nancy Perrin, Virginia P. Tilden

School of Social Work Faculty Publications and Presentations

Background: Few studies have focused on men as caregivers at the end-of-life. The objective of this secondary data analysis was to examine the experiences of men involved in end-oflife caregiving, focusing on caregiver strain.

Methods: We used a random sample of Oregon death certificates to telephone survey family caregivers of Oregonians who had died 2 to 5 months earlier in private homes, nursing homes, and other community-based settings. Measurements included single-item indicators and embedded scales to measure caregiver strain and perceived decedent symptom distress. For the 25 husbands, sons, wives, and daughters who reported the highest levels of strain, we …