Social and Behavioral Sciences Commons^™

Using The Motivated Information Management Theory And The Social Support Theory To Understand Caregiver Perspectives Of Currently Available Health Communication Regarding Dementia: A Qualitative Study, Sara J. Alig

Doctoral Dissertations and Projects

Dementia brings a cascade of changes into the life of not only the person facing it, but also the lives of the supporting family and caregivers. Dementia manifests with a gradual decline, or in some cases, a variably progressive decline in cognitive abilities. This decline requires the individual to rely more and more on caregivers. Caregiving necessitates the giving of oneself for another’s sake and oftentimes results in negative physical and social-emotional side effects. To navigate through the changes that are happening to their loved ones, as well as to themselves, caregivers need educational and social support. The purpose of …

Shared Disposition Decision Making In The Emergency Department For Persons Living With Dementia, Justine Seidenfeld, Fernanda Bellolio, Anita Vashi, Courtney Van Houtven, Susan Hastings

Journal of Geriatric Emergency Medicine

N/A

Investigating Nonverbal Strategies To Support Communication With Persons Living With Dementia, Emma Bender

Electronic Thesis and Dissertation Repository

Many persons living with dementia experience difficulties comprehending language and benefit from nonverbal communication (NVC). This research aimed to identify potential strategies for nonverbal behaviour adaptation to enhance communication with persons living with dementia, based on the Communication Enhancement Model. Studies included a scoping review of NVC strategies for caregivers with persons living with dementia and an analysis of whether NVC strategies used by personal support workers (PSW) co-occurred with verbal communication demonstrating person-centered indicators (recognition, negotiation, validation and facilitation). Video-recorded interactions (n=40) between PSW and simulated persons living with dementia were analysed using a codebook of NVC strategies (facial …

Bridging The Gap: Relationship Building Through The Use Of Dance Movement Therapy With Older Adults With Dementia: Literature Review, Goni Rubel Zlotnik

Expressive Therapies Capstone Theses

The purpose of this capstone thesis is to examine how the use of dance movement therapy (DMT) can be a beneficial intervention for relationship building when working with older adults with dementia. Studies have shown that dementia is a state where body and mind are in distress (Hill, 2009; Karkou & Meekums, 2017). Therefore, caring and understanding of dementia treatment is vital for maintaining relationships and developing new ones. Person-centered care (PCC) has been used in this thesis as a theoretical psychological framework to support relationship building with elders with dementia. Karkou and Meekums (2017) suggested that due to the …

The Monument Of Memories As A Place/Space Of Multifarious Rhetorical Action, Meagan K. Winkleseth

Master's Theses and Doctoral Dissertations

The number of people living with some form of dementia globally is growing. The absence of a cure, combined with this rapidly increasing presence of dementia, has directed attention away from fostering an understanding of the disease as it is socially experienced and toward the intricacies of determining its neurological properties. This study analyzes the Alzheimer Society of Windsor and Essex County’s Monument of Memories as a cultural form with the potential to (re)frame how the experience of dementia is socially conceptualized in Windsor, Ontario, and beyond. Specifically, I employ theoretical and methodological insights from participatory critical rhetoric, postmodern architectural …

Conversation Goals, Communication Satisfaction, And Relational Dynamics While Navigating Alzheimer’S Disease: A Pre- And Post-Diagnosis Dyadic Examination Of Family Communication, Elizabeth A. Spencer

Theses and Dissertations--Communication

Currently there are more than 16 million unpaid Alzheimer’s disease and dementia caregivers in the United States. These caregivers are often family members of the person living with dementia, and as they navigate the process of giving care to the patient, they must also maintain relationships with each other. Families enter the dementia experience with a history of their relational experiences, and their relational experiences potentially change as they navigate family experiences after the dementia diagnosis. Much existing scholarship examining family communication in the context of progressive Alzheimer’s disease and other related dementias has focused on the perspectives of one …

Family History And Genealogy: The Benefits For The Listener, The Storyteller And The Community, Anna Lima

Journal of Cape Verdean Studies

Thanks to the internet, discovering one’s ancestry is just a few clicks sway. Family histories and genealogies with intricate family trees filled with dates of birth, marriage dates, and death dates are meticulously documented for posterity. This process entails hours of research through census, immigration, baptism, and obituary records if you’re able to access them. There’s nothing greater for a genealogist to discover another generation of previously unknown ancestors and to tell the rest of your family. One would think that genealogy is a very new area of research since our ancestors obviously didn’t bother to pass this information on …

Health Information Seeking As A Coping Strategy To Reduce The Stress Of Informal Caregivers Of Individuals With Alzheimer’S Disease And Other Forms Of Dementia, Nia Francis Mason

LSU Doctoral Dissertations

This study explored the relationship between information seeking and the perceived stress levels of informal Alzheimer’s and dementia caregivers. An additional component was added to determine whether health literacy and emotional state moderated the relationship.

The study involved conducting qualitative interviews followed by collecting survey data to answer the following research questions: 1) What motivating factors lead informal AD caregivers to seek out information? How do their information needs change? Why do informal caregivers choose to utilize certain resources more than others? Is there a correlation between information seeking and resulting stress levels? Does health literacy moderate the association between …

The Relationship Between Instruction Specificity And Resistiveness To Care During Activities Of Daily Living In Persons With Dementia, Jeffrey Buchanan, Britta Dejager, Sandra Garcia, Daniel Houlihan, Carolina Sears, Kathleen Fairchild, Adam Sattler

Psychology Department Publications

It is common for persons with dementia to display resistant behaviors during activities of daily living (ADLs) and caregiver communication skills can influence the likelihood of these behaviors. Previous research suggests that the type of instructions issued by caregivers is related to rates of compliance during ADLs in persons with dementia. It is unclear, however, if these instruction types affect the likelihood resistiveness to care (RTC) during ADLs. The purpose of the current study was to examine how the use of different types of instructions relate to instances of RTC during ADLs. Results indicated that vague and ambiguous instructions (i.e., …

Patients With Dementia Are Easy Victims To Predators, Ronald C. Hamdy, J. V. Lewis, Rebecca Copeland, Audrey Depelteau, Amber E. Kinser, T. Kendall-Wilson, Kathleen Whalen

Amber E. Kinser

Patients with dementia, especially Alzheimer’s disease and particularly those in early stages, are susceptible to become victims of predators: Their agnosia (see Case 1) prevents them from detecting and accurately interpreting subtle signals that otherwise would have alerted them that they are about to fall for a scam. Furthermore, their judgment is impaired very early in the disease process, often before other symptoms manifest themselves and usually before a diagnosis is made. Patients with early stages of dementia are therefore prime targets for unscrupulous predators, and it behooves caregivers and health care professionals to ensure the integrity of these patients. …

Too Many Choices Confuse Patients With Dementia, R. C. Hamdy, J. V. Lewis, Amber Kinser, A. Depelteau, Rebecca Copeland, T. Kendall-Wilson, K. Whalen

Amber E. Kinser

Choices are often difficult to make by patients with Alzheimer Dementia. They often become acutely confused when faced with too many options because they are not able to retain in their working memory enough information about the various individual choices available. In this case study, we describe how an essentially simple benign task (choosing a dress to wear) can rapidly escalate and result in a catastrophic outcome. We examine what went wrong in the patient/caregiver interaction and how that potentially catastrophic situation could have been avoided or defused.

Hallucinations Are Real To Patients With Dementia, R. C. Hamdy, Amber E. Kinser, J. V. Lewis, Rebecca Copeland

Amber E. Kinser

In this case study, we present a patient with preexistent posttraumatic stress disorder and psychosis who has been recently diagnosed with Dementia with Lewy Bodies. He is experiencing vivid hallucinations. What went wrong between him and his wife as a result of these hallucinations is presented. Alternative actions that could have been used are suggested.

Hallucinations Are Real To Patients With Dementia, R. C. Hamdy, Amber E. Kinser, J. V. Lewis, Rebecca Copeland

ETSU Faculty Works

In this case study, we present a patient with preexistent posttraumatic stress disorder and psychosis who has been recently diagnosed with Dementia with Lewy Bodies. He is experiencing vivid hallucinations. What went wrong between him and his wife as a result of these hallucinations is presented. Alternative actions that could have been used are suggested.

Patients With Dementia Are Easy Victims To Predators, Ronald C. Hamdy, J. V. Lewis, Rebecca Copeland, Audrey Depelteau, Amber E. Kinser, T. Kendall-Wilson, Kathleen Whalen

ETSU Faculty Works

Patients with dementia, especially Alzheimer’s disease and particularly those in early stages, are susceptible to become victims of predators: Their agnosia (see Case 1) prevents them from detecting and accurately interpreting subtle signals that otherwise would have alerted them that they are about to fall for a scam. Furthermore, their judgment is impaired very early in the disease process, often before other symptoms manifest themselves and usually before a diagnosis is made. Patients with early stages of dementia are therefore prime targets for unscrupulous predators, and it behooves caregivers and health care professionals to ensure the integrity of these patients. …

Students Host “Virtual Dementia” Experience, Mark D. Weinstein

News Releases

Cedarville University nursing students will host a community presentation called “Decoding Dementia” at the Madison County Senior Center in London, Ohio, on Wednesday, Dec. 6, at 1 pm. It is free and open to the public.

Too Many Choices Confuse Patients With Dementia, R. C. Hamdy, J. V. Lewis, Amber Kinser, A. Depelteau, Rebecca Copeland, T. Kendall-Wilson, K. Whalen

ETSU Faculty Works

Choices are often difficult to make by patients with Alzheimer Dementia. They often become acutely confused when faced with too many options because they are not able to retain in their working memory enough information about the various individual choices available. In this case study, we describe how an essentially simple benign task (choosing a dress to wear) can rapidly escalate and result in a catastrophic outcome. We examine what went wrong in the patient/caregiver interaction and how that potentially catastrophic situation could have been avoided or defused.

Images Of Alzheimer’S: A Visual Analysis Of The Imagery Used To Globally Market Alzheimer’S Services Online​, Elizabeth Spencer, Alicia Mason

Faculty Submissions

Currently more than 46 million people are living with dementia globally (ADI, 2015). The World Health Organization (WHO) reports the worldwide population of persons 60 years of age and older will more than triple between 2000 and 2050 to two billion. The concept of Western patients receiving long-term dementia care in foreign countries is a new and emerging phenomenon (Gray, 2013; Pomareda, 2014; Wegerer, 2014). This study examines the visual images within Alzheimer’s care facility websites (n=105) and uses a cross cultural comparison lens to contrast differences in patient representations and treatment facilities. The goal of this study is to …

The Person We Knew: Perceptions Of The Identity Of Loved Ones With Dementia By Family Caregivers, Amber Jannusch, Dena Huisman

Speaker & Gavel

While several studies have looked at the identity of dementia patients, most focus on the point of the view of the patient. However, caretakers’ and family members’ view of the identity of the dementia patient is unstudied. This study attempts to see how family caregivers’ view of their family member’s dementia manifests in communication about the loved one. This study is a preliminary examination of family caregivers’ constructions of the identity of their loved one, revealing that caretakers have one of three views: the patient without an identity, the patient as a different person, or the patient as “not lost” …

Interpersonal Communication In The Context Of Dementia: Examining Family Caregivers' Appraisals And Burden, Stacy Lynn Barnes

Dissertations (1934 -)

Purpose and Objectives: The purpose of this study was to explore dementia family caregivers' appraisals of communication behaviors and strategies, and their relationships to caregiver burden. Study objectives were to investigate: 1) the relationship between frequency of dementia-related communication behaviors and caregivers' appraisals of frustration; 2) the relationship between caregivers' use of communication strategies and appraisals of helpfulness; 3) the structural relationships between communication behavior appraisal, communication strategy appraisal, problem behaviors, and caregiver burden; and 4) caregiver education level as a moderating variable of the final structural model. Methods: A written, mailed questionnaire was developed to capture dementia family caregivers' …

Idaho Careline 2-1-1 Data Analysis And Update To Idaho Legislators, Catherine Dickson, Adiya Jaffari

College of Health Sciences Presentations

The Idaho CareLine 2-1-1 Data Analysis and Update to Legislators project has consisted of analyzing and organizing data collected by the 2-1-1 CareLine throughout 2013 regarding Alzheimer’s information. Once significant data trends had been identified, a PowerPoint presentation was developed and presented to the Idaho House Health and Welfare Subcommittee, the Greater Idaho Chapter Alzheimer’s Association, and incorporated into a community education film evening on Alzheimer’s.

Re-Cognizing Power In The Culture Of Dementia Care Knowledge, Ryan T. Deforge

Electronic Thesis and Dissertation Repository

In light of increasing system demands, system regulations, and constrained resources, those living and working with dementia in the long-term care sector are vulnerable to oppressive care practices. This is true so long as our understanding of how social power affects the ways in which dementia care knowledge is created, shared, and enacted remains limited. Based on prolonged field observations and on informal and formal interviews with care recipients, family members, and staff, the aim of this critical qualitative research was to examine the culture of dementia care knowledge in two sites: a specialized dementia care unit in a long-term …

Implications Of Skinner's Verbal Behavior For Studying Dementia, Jeffrey Buchanan, Daniel Houlihan, Peter J.N. Linnerooth

Psychology Department Publications

Persons with dementia experience continual declines in a number of abilities. Language abilities are particularly hard hit and become increasingly impaired as the underlying disease progresses. These language impairments make verbal communication very challenging for family and professional caregivers. As a result, caregivers may inadvertently punish verbal behavior, thereby exacerbating the deterioration of verbal repertoires. Although the topography of language impairments associated with dementia have been well described, less empirical work has been conducted concerning how to minimize these impairments and their deleterious effects. In 1957 B.F. Skinner outlined his conceptualization of language and cognition in his book Verbal Behavior. …