Social and Behavioral Sciences Commons^™

Streaming Physiological Data: General Public Perceptions Of Secondary Use And Application To Research In Neonatal Intensive Care, Carolyn P. Mcgregor, Jennifer A. Heath, Yvonne Choi

Senior Deputy Vice-Chancellor and Deputy Vice-Chancellor (Education) - Papers

High speed physiological data represents one of the most untapped resources in healthcare today and is a form of Big Data. Physiological data is captured and displayed on a wide range of devices in healthcare environments. Frequently this data is transitory and lost once initially displayed. Researchers wish to store and analyze these datasets, however, there is little evidence of any engagement with citizens regarding their perceptions of physiological data capture for secondary use. This paper presents the findings of a self-administered household survey (n=165, response rate = 34%) that investigated Australian and Canadian citizens' perceptions of such physiological data …