Open Access. Powered by Scholars. Published by Universities.®
Articles 1 - 1 of 1
Full-Text Articles in Rehabilitation and Therapy
A Fine Balance And A Shared Learning Journey: Exploring Healthcare Engagement Through The Experiences Of Youth With Neuromuscular Disorders, V Travlos, C Bulsara, S Patman, J Downs
A Fine Balance And A Shared Learning Journey: Exploring Healthcare Engagement Through The Experiences Of Youth With Neuromuscular Disorders, V Travlos, C Bulsara, S Patman, J Downs
Physiotherapy Papers and Journal Articles
BACKGROUND: Youth with Neuromuscular Disorders (NMD) who are wheelchair users can now survive well into adulthood if their multisystem comorbidities are prudently managed. Uptake of health behaviors may optimize their health outcomes.
OBJECTIVE: To explore youths’ perceptions of health, health behaviors and healthcare engagement.
METHODS: This qualitative study purposefully recruited 11 youth with NMD from a concurrent, population-based study for variability of age, gender, type of NMD and their ratings of motivation and engagement. Interview data were analyzed and synthesized by thematic content.
RESULTS: Participants perceived healthcare engagement as being given tools (knowledge and responsibility) and using them to maintain …