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Edith Cowan University

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Full-Text Articles in Rehabilitation and Therapy

An Exploration Of The Relationship Between Aphasia Therapy, Depression And Quality Of Life In Post-Stroke Patients After Rehabilitation At 12 And 26 Weeks After Stroke: A Verse Sub-Study, Alia Rashid Khan Jan 2021

An Exploration Of The Relationship Between Aphasia Therapy, Depression And Quality Of Life In Post-Stroke Patients After Rehabilitation At 12 And 26 Weeks After Stroke: A Verse Sub-Study, Alia Rashid Khan

Theses: Doctorates and Masters

Background: Depression is a common consequence of stroke, and people with aphasia (PWA) post-stroke have a higher risk of developing depression compared to stroke survivors without aphasia. However, current stroke interventions featuring aphasia therapy tend to neglect the effect of the treatment on mood. There is also a lack of evidence on the impact of stroke education and counselling on PWA in early stroke recovery. Additionally, the research on post-stroke depression often excludes or insufficiently describes PWA in study populations. The influence of direct aphasia therapy on depression in PWA is undetermined. This sub-study investigated: i) the effect of …


The Impact Of Singing On Pulmonary Function And Quality Of Life In Patients With Muscular Dystrophy, Mia Simonette Jan 2020

The Impact Of Singing On Pulmonary Function And Quality Of Life In Patients With Muscular Dystrophy, Mia Simonette

Theses : Honours

Muscular dystrophy is a congenital disorder that results in progressive deterioration of muscle strength and function. The genetic disorder is caused by the absence of dystrophin protein which helps to keep muscle cells together, the absence of this protein causes muscles to become weak and fragile. Despite impairment of motor function and muscle strength, a major issue is the progressive impact on the respiratory muscles. Weak pulmonary function can lead to secondary issues such as atelectasis, decreased lung compliance, repeated infections, ineffective cough and ventilation-perfusion during sleep1. Respiratory failure is said to be the most common cause of death in …


Nutrition, Body Composition And Physical Activity In Malignant Pleural Disease: Associations With Patient Outcomes And Response To An Exercise Intervention, Emily Jeffery Jan 2020

Nutrition, Body Composition And Physical Activity In Malignant Pleural Disease: Associations With Patient Outcomes And Response To An Exercise Intervention, Emily Jeffery

Theses: Doctorates and Masters

Background: Patients with malignant pleural disease (MPD) have advanced cancer and high symptom burden. Goals of patient care are to optimise health-related quality-of-life (HR-QoL) and participation in daily physical activities. Supportive care interventions such as nutrition and exercise could offer benefit to patients. However, there is a lack of information on the prevalence of low muscle mass (i.e., pre-sarcopenia), malnutrition, inactivity and poor physical functioning in patients with MPD. Additionally, little is known about the factors associated with development of pre-sarcopenia and malnutrition or their associations with patient outcomes.

Purpose: The objectives were to: 1) characterise physical activity levels and …


The Relationship Between Physical Exercise And Cognition In Children With Typical Development And Neurodevelopmental Disorders, Beron Wei Zhong Tan Jan 2017

The Relationship Between Physical Exercise And Cognition In Children With Typical Development And Neurodevelopmental Disorders, Beron Wei Zhong Tan

Theses: Doctorates and Masters

This research project sought to investigate the relationship between physical exercise and cognition in children with and without a neurodevelopmental condition. To achieve this aim, three approaches were undertaken to explore the exercise and cognition relationship. The first approach sought to understand the efficacy of exercise interventions on cognition in individuals with a neurodevelopmental disorder. The second approach was to understand the effectiveness of an exercise activity when compared to a cognitively-engaging tablet game activity on measures of implicit learning and attention in children with and without a neurodevelopmental condition. The third approach was to investigate if psychophysiological measures could …


Activity Behavior And Physiological Profile Of Advanced-Stage Ovarian Cancer Survivors, Christelle Schofield Jan 2017

Activity Behavior And Physiological Profile Of Advanced-Stage Ovarian Cancer Survivors, Christelle Schofield

Theses: Doctorates and Masters

Background: Advanced-stage ovarian cancer survivors (OCS) often experience a multitude of disease symptoms and treatment-related side-effects. Additionally, most OCS are older, have comorbidities, are overweight or obese, and report being insufficiently physically active. Ovarian cancer survivors may benefit from exercise oncology interventions to reduce symptom-burden, manage comorbidities, minimize functional decline and maximize health-related quality of life (HRQoL). However, current knowledge gaps regarding the physiological characteristics of OCS throughout the entire survivorship spectrum challenge the development of tailored exercise interventions.

Purpose: The overall purpose of this thesis was to provide a more comprehensive physiological and activity behavior profile of post-treatment advanced-stage …


Investigating The Practice And Capacity Of Paediatric Occupational Therapists To Promote The Physical Activity Levels Of Children In Western Australia, Sally Coombs Jan 2017

Investigating The Practice And Capacity Of Paediatric Occupational Therapists To Promote The Physical Activity Levels Of Children In Western Australia, Sally Coombs

Theses: Doctorates and Masters

Reorientation of the Australian health care system to meet the increasing burden of disease requires health workers to develop a focus on disease prevention and health promotion. In Western Australia (WA) a priority area for the promotion of health involves increasing the physical activity levels (PAL) of children in accordance with Australia’s Physical Activity and Sedentary Behaviour Guidelines. There is substantial support in the literature for paediatric occupational therapists, who assist children to participate in a range of meaningful occupations, to incorporate the promotion of children’s PAL into their service. However, there is a dearth of research world-wide regarding occupational …


Communication: How Do Females With Rett Syndrome Perform This Activity And What Factors Influence Performance?, Anna Urbanowicz Jan 2016

Communication: How Do Females With Rett Syndrome Perform This Activity And What Factors Influence Performance?, Anna Urbanowicz

Theses: Doctorates and Masters

Background Rett syndrome is a neurodevelopmental disorder primarily caused by mutations in the X-linked methyl-Cp2G-binding protein 2 (MECP2) gene. The disorder affects approximately 1 in 9000 females and is usually associated with language, physical and intellectual impairments, each of which contributes to difficulties with communication. In Rett syndrome, eye gaze is considered a common form of communication and conventional methods, such as talking and gestures, less common. Females appear to use these forms of communication to serve a number of functions including choice making, requesting, social convention, bringing attention to themselves, and to reject, comment and answer. However, the literature …


The Experience Of Role Balance Among Australian Working Women With Multigenerational Caring Responsibilities, Kiah Lee Evans Jan 2016

The Experience Of Role Balance Among Australian Working Women With Multigenerational Caring Responsibilities, Kiah Lee Evans

Theses: Doctorates and Masters

Approximately 10% of women in developed countries are working sandwich generation women, who combine paid employment with ongoing multigenerational caring responsibilities for at least one child under 18 years and one parent or parent-in-law. This role combination is expected to become more common due to the increased workforce participation of women, childbirth at an older age, reduced fertility rates, an ageing population and a trend towards community based care. Although there are numerous benefits related to membership in the working sandwich generation, there are also a range of costs related to role participation and quality of life. In particular, these …


Early Intervention Of Parent-Infant Interactions In Preterm Infants: A Systematic Review, Stacey Osborne Jan 2015

Early Intervention Of Parent-Infant Interactions In Preterm Infants: A Systematic Review, Stacey Osborne

Theses : Honours

Every year approximately 15 million babies are born preterm. These infants are at an increased risk of language, and other developmental delays due to their immature brain development and higher incidence of brain abnormalities. They also have poorer health outcomes in the early stages of life which may go on to hinder successful parent-infant interactions. Successful parent-infant interactions are important for infant developmental outcomes such as language, cognition and behaviour. While interventions targeting the promotion of positive interactions have been found to have positive effects in a number of populations to date, interactions involving preterm infants have not been explored. …


Identifying The Enablers And Barriers To Community Participation Amongst Older Adults, Nicole Papageorgiou Jan 2015

Identifying The Enablers And Barriers To Community Participation Amongst Older Adults, Nicole Papageorgiou

Theses : Honours

The older adult population in Western Australia (WA) has significantly increased over the last decade and continues to grow, highlighting the importance of maintaining their health, wellbeing and independence. This may be achieved by facilitating active ageing, enabling older adults to continue to live meaningful and fulfilling lives, contribute positively to society, and lower the demand on costly health and human services. Conversely, a lack of social engagement and community participation may hinder healthy ageing and lead to social isolation, which is adversely related to the quality of life and health status of older adults. Occupational participation is critical to …


Construct Validity Of The Developmental Test Of Visual-Perception Third Edition (Dtvp-3) In Western Australian Primary School Children, Kirsten Clarke Jan 2015

Construct Validity Of The Developmental Test Of Visual-Perception Third Edition (Dtvp-3) In Western Australian Primary School Children, Kirsten Clarke

Theses : Honours

Visual perception is the ability to identify, organise, make meaning of and provide sense to what is seen in the world in which we live. Visual perceptual skills continuously develop in primary school children as seen in academic performance. If visual perceptual difficulties are unaddressed, the cumulative academic result can be detrimental throughout life. Thus, visual perceptual difficulties must be identified using tests that possess sound measurement properties to allow for early intervention. The purpose of the research was to determine the construct validity of the Developmental Test of Visual Perception Third Edition (DTVP-3). The DTVP-3 was designed and standardised …


A Comparative Acoustic Examination Of Infant Cries: Children At High Risk Versus Low Risk For Autism Spectrum Disorder Development, Ildiko Eva Bruz Jan 2015

A Comparative Acoustic Examination Of Infant Cries: Children At High Risk Versus Low Risk For Autism Spectrum Disorder Development, Ildiko Eva Bruz

Theses : Honours

Background: Early interventions for individuals with Autism Spectrum Disorders (ASD) have shown positive gains in children who enter therapy at a young age. However, commencement of early intervention is often hindered by challenges with diagnosis. Due to the complex nature of ASD, the age of detection can range from 2 years old into adulthood. This highlights the need for methods of early detection. Previous research has found infants at risk for ASD to present atypical cry characteristics, possibly as a result from damage to the brainstem. In particular, measures of fundamental frequency appear to be the most sensitive to …


The Clinical Utility Of Multidisciplinary Rehabilitation In Individuals With Huntington’S Disease, Travis Miles Cruickshank Jan 2015

The Clinical Utility Of Multidisciplinary Rehabilitation In Individuals With Huntington’S Disease, Travis Miles Cruickshank

Theses: Doctorates and Masters

Background

Huntington’s disease (HD) is a chronic neurodegenerative disorder characterised by a progressive loss of cognitive function, motor control and psychiatric features. Individuals also display a variety of systemic features. Progressive neuronal dysfunction and neuronal cell death are thought to underlie the onset and progression of many clinical features of HD.

Despite scientific progress, there is still no cure or disease modifying therapy for HD, and available pharmaceutical agents only provide partial relief of motor and psychiatric features. An emerging body of evidence indicates that lifestyle enrichment may delay the onset and progression of clinical features, and exert favourable effects …


Enablers And Barriers Experienced By Grandparents Who Become Primary Caregivers Of Grandchildren: An Occupational Perspective, Janice Du Preez Jan 2014

Enablers And Barriers Experienced By Grandparents Who Become Primary Caregivers Of Grandchildren: An Occupational Perspective, Janice Du Preez

Theses : Honours

Aim: The aim of this review was to identify current issues affecting grandparents who are raising their grandchildren in Australia.

Method: The study systematically reviewed twelve studies that evaluated supports for grandparents. The Checklist Analysis of Research for Systematic Review and the Quantitative and Qualitative Checklist were used to evaluate the studies.

Findings: Five support issues affecting grandparent-headed families were evidenced in the literature as being of priority. These include stress, intergenerational conflict, community support, legal and financial aspects, policies and service frameworks.

Conclusions: The paucity of research implies that further funding for large-scale research is required. Implications for informal …


Letter Reversal Assessments: A Systematic Review Of Measurement Properties, Administration Guidelines And Reversal Content And Richmond Reversal Rating: Construct Validity In Relation To Visual-Spatial Abilities, Lucinda Venter Jan 2014

Letter Reversal Assessments: A Systematic Review Of Measurement Properties, Administration Guidelines And Reversal Content And Richmond Reversal Rating: Construct Validity In Relation To Visual-Spatial Abilities, Lucinda Venter

Theses : Honours

Background: With several assessments available that purport to measure the letter reversal rates of young school-aged children, the question was raised how reliable and comparable these assessments are and to what extent each assessment addresses the concept of letter reversals? A systematic review of these assessments was performed to evaluate the measurement properties and administration guidelines, and to compare the reversal content of these assessments.

Method: Relevant assessments and studies were identified through literature searches. For each of the assessments the measurement properties, quality of the studies that report the measurement properties, and administration guidelines were evaluated, and the content …


Speech And Swallowing Rehabilitation In The Home: A Comparison Of Two Service Delivery Models For Stroke Survivors, Katy J. E. Stewart Jan 2014

Speech And Swallowing Rehabilitation In The Home: A Comparison Of Two Service Delivery Models For Stroke Survivors, Katy J. E. Stewart

Theses: Doctorates and Masters

Background and Aims

Speech and swallowing difficulties are common sequelae for people who have suffered a stroke. Recently, there has been an increase in early discharge, community rehabilitation and the use of therapy assistants to support health professionals in stroke rehabilitation. However, the impact of these factors on communication and swallowing outcomes remains under researched. This research explored Rehabilitation in the Home (RITH) Speech Pathology (SP) services for stroke survivors with dysarthria and dysphagia. More specifically, this research investigated whether traditional speech pathology interventions, supplemented with a home practice program are effective, as well as compare usual treatment to that …


Role Of Physical Exercise In Reducing Depression And Improving Mental Health In Cancer Survivors, Gregory Levin Jan 2014

Role Of Physical Exercise In Reducing Depression And Improving Mental Health In Cancer Survivors, Gregory Levin

Theses: Doctorates and Masters

Cancer survivors are more than twice as likely as the general population to suffer the debilitating effects of depression. This comorbid condition is associated with several negative consequences, such as reduction in compliance with cancer treatments, and hastened mortality. Recent research has examined the therapeutic effect of exercise on depression and reported excellent results of similar magnitude to those achieved with pharmacotherapy or psychological intervention. However, no research, to date, has examined the effectiveness of exercise on reducing depression in depressed cancer survivors. In order to address this important question this thesis reviewed previous literature in the area of cancer …


The Identity Of The Heart Patient In The Context Of The Gift Economy: Heartnet And Media Framing, Lynsey Uridge Jan 2014

The Identity Of The Heart Patient In The Context Of The Gift Economy: Heartnet And Media Framing, Lynsey Uridge

Theses: Doctorates and Masters

This health communication research examines the identity levels of the heart patient on a therapeutic website HeartNET through an empirical investigation of site interactions as manifestations of a gift economy. The thesis also explores the media’s representation of heart health in both television and print.

This research utilised a longitudinal qualitative ethnographic and netnographic approach involving twenty-six participants who completed two in-depth interviews. The first one-on-one interview occurred during the early stages of the participants’ heart journey, explored their heart story and use of interactive technology for heart health support. The second interview occurred six to twelve months later, and …


Improving Functional Outcomes For Children And Adolescents With Anxiety Related Disorders Through Occupational Thrapy : A Narrative Review ; Perceptions Of The Role Of Occupational Therapy In Community Child And Adolescent Mental Health Services (Camhs), Paula J. Anderson Jan 2013

Improving Functional Outcomes For Children And Adolescents With Anxiety Related Disorders Through Occupational Thrapy : A Narrative Review ; Perceptions Of The Role Of Occupational Therapy In Community Child And Adolescent Mental Health Services (Camhs), Paula J. Anderson

Theses : Honours

Background/Aim: Children and adolescents experiencing anxiety find it challenging to maintain optimal occupational performance, thus the specific role of occupational therapy in the management of anxiety requires investigation. This narrative review examines the current available literature surrounding the use of occupational therapy approaches for children and adolescents experiencing anxiety.

Methods: Academic journals as well as a variety of sources were considered, due to the paucity of literature surrounding this topic. Articles were included if they discussed the occupational therapy role in treatment of children experiencing anxiety symptoms, including anxiety related disorders such as post traumatic stress disorder (PTSD) and obsessive …


A Model Of Management Learning For Occupational Therapists In Small Business In Australia, Jeannine Millsteed Jan 2013

A Model Of Management Learning For Occupational Therapists In Small Business In Australia, Jeannine Millsteed

Theses: Doctorates and Masters

This research sought to identify factors that contribute to occupational therapists developing management competencies when they become small business owners providing professional clinical services. This is an important for several reasons and precipitated by the Australian government’s introduction of incentives that encourage health professions to move from employment in public hospitals into the private sector, coupled with a recognition that occupational therapists receive no formal business training in their professional education, and the reported high levels of business failure in the small business sector. A review of the literature established the value of small business to the Australian economy, growth …


Pediatric Medical Traumatic Stress : The Impact On Children, Parents And Staff, Sarah Mcgarry Jan 2013

Pediatric Medical Traumatic Stress : The Impact On Children, Parents And Staff, Sarah Mcgarry

Theses: Doctorates and Masters

Burns are one of the most painful and traumatising injuries an individual can sustain and constitute a serious global health threat to children. Despite the magnitude of this public health problem, little research has examined the psychological burden of these injuries. This study used a mixed-methods approach to investigate the effect of paediatric medical trauma on children who have sustained a burn, their parents and the healthcare professionals caring for these patients. The paediatric medical traumatic stress model provided a theoretical framework for this study.

Firstly, this study aimed to gain an understanding of the lived experience of children who …


An Analysis Of Treatment Retention And Attrition In An Australian Therapeutic Community For Substance Abuse Treatment, Mark Robert Porter Jan 2013

An Analysis Of Treatment Retention And Attrition In An Australian Therapeutic Community For Substance Abuse Treatment, Mark Robert Porter

Theses: Doctorates and Masters

Research undertaken in the last three decades has consistently reported that the length of time spent in inpatient and outpatient alcohol and other drug (AOD) treatment programs predicts treatment success (De Leon, Melnick, Kressel, & Jainchill, 1994; Hubbard, Craddock, & Anderson, 2003; Simpson, Joe, Fletcher, Hubbard, & Anglin, 1999). However, treatment attrition rates are high and present a major problem for improving treatment outcomes. Various factors that have been reportedly associated with increased AOD treatment attrition rates include being female, younger clients, clients using methamphetamines, and clients with elevated psychopathology scores. The aim of this thesis is to improve understanding …


The Impact Of Powered Mobility Devices On Occupational Performance : A Systematic Review ; And, The Experience Of Being A Motorised Mobility Scooter User, Ryan Fomiatti Jan 2012

The Impact Of Powered Mobility Devices On Occupational Performance : A Systematic Review ; And, The Experience Of Being A Motorised Mobility Scooter User, Ryan Fomiatti

Theses : Honours

The impact of powered mobility devices on occupational performance: A systematic review

Purpose: To systematically review the impact powered mobility devices have on engagement in independent occupations for adults with acquired mobility limitations. Method: The following databases were searched electronically: CINAHL Plus, Medline, PsychInfo, OT Seeker, Joanna Briggs Institute and Physiotherapy Evidence Database. The search terms used a combination of words to encompass all terms which are used for powered mobility. Studies were included if they evaluated adults’ use of a motorised mobility device, and if individuals used a powered mobility device due to acquired mobility limitation. Results: Eleven studies …


Aphasia Incidence And Intervention In The Acute Hospital Setting, Dominique Lidia Ferreira Jan 2012

Aphasia Incidence And Intervention In The Acute Hospital Setting, Dominique Lidia Ferreira

Theses : Honours

Background: Current research highlights the significance of providing early and intensive aphasia therapy to maximise neural plasticity and enhance communication gains. Acute speech pathology service delivery in Australia does not consistently meet best practice standards recommended by the National Stroke Foundation. Aims: This study aimed to: i) investigate the incidence of post-stroke aphasia in the acute setting; ii) determine the referral rate to speech pathology for patients with aphasia; iii) investigate the amount of language therapy provided to people with aphasia and iv) explore the relative proportion of aphasia service delivery within the overall caseload management of speech pathologists. Method …


Constraint Induced Aphasia Therapy In The Very Early Phase Of Recovery Following Stroke, Sarah D'Souza Jan 2012

Constraint Induced Aphasia Therapy In The Very Early Phase Of Recovery Following Stroke, Sarah D'Souza

Theses : Honours

Background and purpose: Research suggests communication outcomes following stroke may be greater when treatment is administered in the acute phase of recovery. In addition, treatment outcomes are improved when therapy is provided at a greater intensity. Constraint Induced Aphasia Therapy (CIAT) has addressed the issue of treatment intensity by delivering therapy for three hours per weekday for two weeks, but its effectiveness has largely been investigated in the chronic phase of recovery. Treatment outcomes have typically been assessed on standardised tests and few studies have used connected speech and discourse measures to assess change. This research investigated daily intervention in …


Vocational Training Programs, Transition Programs And Work Experience Placements For Employment Of Young Adults With Intellectual Disability: A Systematic Review & A Description Of Employment Patterns And Day Occupations Of Young Adults With Intellectual Disability Residing In Queensland, Sophia Davidson Jan 2011

Vocational Training Programs, Transition Programs And Work Experience Placements For Employment Of Young Adults With Intellectual Disability: A Systematic Review & A Description Of Employment Patterns And Day Occupations Of Young Adults With Intellectual Disability Residing In Queensland, Sophia Davidson

Theses : Honours

OBJECTIVE: To review the research examining the effectiveness of vocational training programs, transition programs and work experience placements and describe their impact on work and employment attainment and maintenance for young adults with intellectual disability. METHOD: Electronic searches of six data bases and manual searches of references lists locating all available evidence of programs and interventions to assist young adults with intellectual disability to find paid employment. Interventions described as vocational training, work placements and experience and transition programs aimed at securing employment were included. Two reviewers undertook data extraction and quality assessment and a systematic review was possible. RESULTS: …


School To Post-School Transition Programs For Young Adults With Intellectual Disabilities: A Systematic Review, And; The Meaning Of Well-Being From The Perspective Of Young Adults With Down Syndrome, Melissa Scott Jan 2011

School To Post-School Transition Programs For Young Adults With Intellectual Disabilities: A Systematic Review, And; The Meaning Of Well-Being From The Perspective Of Young Adults With Down Syndrome, Melissa Scott

Theses : Honours

OBJECTIVE: To review the effectiveness of school to post-school transition programs for young adults with intellectual disability and their impact on community participation, friendships and quality of life. METHODS: Electronic searches of six databases and manual searches of reference lists were conducted to obtain evidence of programs supporting the transition of young adults with intellectual disability from school to post-school. Transition programs or services and postsecondary education programs targeted at increasing participation and peer interaction were included. Two reviewers undertook data extraction and quality assessment. A systematic review was possible. RESULTS: All eight articles reviewed, with a total of 573 …


The Impact Of Online Social Participation On Social Capital And Mental Health Outcomes Of Young Adults: A Systematic Review & Participation And Quality Of Life Of Young Adults Living In Western Australia: Research Report, Robyn Earl Jan 2011

The Impact Of Online Social Participation On Social Capital And Mental Health Outcomes Of Young Adults: A Systematic Review & Participation And Quality Of Life Of Young Adults Living In Western Australia: Research Report, Robyn Earl

Theses : Honours

Introduction: The widespread acceptance and availability of the Internet and subsequent advent of social networking sites, is believed, in part, to be responsible for the reduction of face-to-face interaction, particularly among young adults. This has lead to suggestions that while virtual participation may enhance our ability to communicate with others; it may in fact come at the detriment of wellbeing. Depression is one of the leading causes of mental illness for young people, with social isolation and exclusion being identified as key risk factors for depression among this group. The aim of this review was to systematically review available research …


The Outcome Star: A Tool For Recovery Orientated Services; And, Exploring The Use Of The Outcome Star In A Recovery Orientated Mental Health Service, Emma-Louise Keen Jan 2010

The Outcome Star: A Tool For Recovery Orientated Services; And, Exploring The Use Of The Outcome Star In A Recovery Orientated Mental Health Service, Emma-Louise Keen

Theses : Honours

Objective: The primary objective of this review was to examine the Outcome Star and its utility as a tool for use in recovery oriented mental health services. The secondary objective was to examine similar instruments and their use within mental health services. Methods: Electronic databases Psycinfo, CINAHL, Medline and Proquest were searched. Manual searches of reference lists of retrieved articles and specific journals were undertaken to identify research relevant to describing the structure and properties of the Outcome Star, and its use in mental health settings. Results: A review of the literature revealed that there is a paucity of research …


Pubertal Trajectory And The Management Of Menstruation In Females With Rett Syndrome And Down Syndrome, Olivia Annelies Knight Jan 2010

Pubertal Trajectory And The Management Of Menstruation In Females With Rett Syndrome And Down Syndrome, Olivia Annelies Knight

Theses : Honours

Background: Puberty is a challenging transition for all young women and particularly so for those with an intellectual disability. Individuals with an intellectual disability often experience both cognitive and physical impairment and a wide range of comorbidities. This review explores research into the pubertal trajectory and the management of menstruation in two syndromes within intellectual disability. Rett syndrome which is a severe neurodevelopmental disorder and Down syndrome which is a chromosomal birth disorder. Aim: The purpose of this review was to identify research exploring pube1ial trajectory and menstrual management in females with Rett syndrome and Down syndrome and …