Public Health Commons^™

What Patients Wear Matters: Evidence On Adaptive Hospital Wear, Dignity, And Care Experience, Akhilesh Kumar, Sukhvir Singh

Patient Experience Journal

Traditional hospital gowns can compromise dignity, comfort, and care efficiency by prioritizing procedural access over the lived experience of hospitalization. This narrative review synthesizes interdisciplinary literature published between 2000 and 2025 across patient experience research, nursing, medical textiles, apparel design, and disability studies, with searches conducted in Scopus, Web of Science, and Google Scholar. Across settings, evidence indicates that patient-centered hospital wear—using breathable and antimicrobial textiles, ergonomic closure systems (eg, hook-and-loop, magnetic snaps, modular access flaps), and inclusive sizing—can reduce unwanted exposure, improve perceived dignity and autonomy, simplify dressing for patients and caregivers, and support clinical access when aligned with …

Unlocking Healthcare Navigation: Key Tasks, Challenges, And Facilitators – A Narrative Review, John Zaki

Patient Experience Journal

Background: Healthcare is a complex and costly system that often creates distressing experiences for individuals managing their own or their family's health. Introduced in the United States around 1990 to reduce healthcare disparities, healthcare navigation aims to support patients and caregivers in navigating healthcare systems effectively and efficiently. This review explores the scope and importance of healthcare navigation services across clinical settings. Methods: This narrative review was informed by a broader literature search conducted as part of the author's thesis work, which included database searches, grey literature exploration, and manual screening of key medical journals. However, all studies that met …

Navigating Emergency Care: Understanding Older Adults' Experiences At The Kingston Health Sciences Centre, Nilany Thanabalasinham, Susan A. Bartels, Melanie Walker

Patient Experience Journal

Objectives: Older adults (65+) in Ontario have the highest emergency department (ED) visit rates, yet often face delayed care and unmet healthcare needs. This study investigates how older adults perceive and navigate their ED care experiences at the Kingston Health Sciences Centre (KHSC), compared to younger adults and identifies factors driving their positive and negative care experiences. Methods: A secondary mixed-methods analysis was conducted using cross-sectional data on ED care experiences at the KHSC. Qualitative data included anonymously recorded micronarratives describing participants' ED experiences. Quantitative data included patients' numerical interpretations of their shared experiences through sensemaking triad questions. Quantitative descriptive …

Partnering With Patients: Perspectives Of Doctors, Nurses, And Managers Regarding Patient Participation And Feedback In Hospital Settings In Jamaica, Camelia Thompson, Desmalee Holder Nevins, Dawn Walters, Cameal Chin-Bailey, Elon Thompson, Minerva Thame, Kenneth James

Patient Experience Journal

This study assesses the perspective of doctors and nurses regarding participation of patients in care delivery and explores perspectives of managers on patient feedback mechanisms in two Jamaican hospitals. A mixed-methods convergent parallel design study was employed. The quantitative component involved a cross-sectional survey of 328 doctors and nurses, selected through stratified random sampling, using a self-administered questionnaire assessing patient participation. Qualitative data were collected through semi-structured interviews with 17 senior managers, which were analyzed thematically. Quantitative and qualitative findings were integrated during interpretation. The majority of respondents (90.8%) reported that they very often or always respected and encouraged patient …

Understanding Patient And Family Experience In Pediatric Hemato-Oncology: A Cross-Sectional Study From Morocco, Boujemaa El Marnissi, Sanae Bouramdane, Moussa Benboubker, Fouad Abbas, Salma Chahid, Jalal Dahmani, Khalid Moubtahij, Kenza Elmkadem, Sarra Benmiloud

Patient Experience Journal

Background. Patient- and family-reported experience is a vital indicator of healthcare quality, particularly in pediatric hematology-oncology. This study assessed patient- and family-reported experience and identified its sociodemographic, clinical, and organizational determinants in a newly established pediatric hemato-oncology department of a tertiary university hospital in Morocco. Methods. A cross-sectional survey was conducted between November 2023 and January 2024. Experience was assessed using a validated multidimensional questionnaire covering reception and access, information and communication, human and relational aspects of care, therapeutic management and pain control, accommodation conditions, and logistical and administrative processes. Sociodemographic and clinical variables were collected; bivariate analyses and multivariate …

Challenges Of Family Members Of Admitted Patients In Relationship With Medical Staff In Kurdistan Region: Cross-Sectional Study, Khalid Khudhur Faris, Zuhair Rushdi Mustafa, Hadi Haji Hussain, Ibrahim Baker Khudida, Deldar Morad Abdulah

Patient Experience Journal

Families often play a significant role in advocating for and supporting their patients during illness or hospitalization. Understanding the challenges between family members of patients and medical staff is crucial for improving communication, patient care, and the overall healthcare experience. This study aimed to investigate and understand the challenges and difficulties experienced by family members when dealing with the medical staff. This cross-sectional study conducted at a local teaching hospital in Kurdistan Region. A total of 400 family members of admitted patients from various medical departments were included in this study. Companions reported generally positive interactions with healthcare providers (HCPs). …

Parallel Realities: A Narrative Review Of Differences Between Patients And Their Care Providers, Umair Majid, Hazeema Haq, Ziyad Yahmad

Patient Experience Journal

Differences in how patients and healthcare providers perceive, experience, and deliver care can undermine patient-centered care and health outcomes. Yet, few syntheses have examined these divergences as a primary focus. This narrative review aimed to identify and synthesize evidence on the differences between patients and their providers in terms of priorities, expectations, and experiences of care, and to explore how these differences can potentially influence relationships and outcomes. A database search was conducted to identify English-language studies published from January 2019 to January 2025 that included both patients and providers in the same sample and compared their perspectives. Data from …

Exploring The Lived Experiences Of Familial Caregivers To Individuals With Prader-Willi Syndrome: The Impact Of Caregiver Burden, Louisa Williams, Eden Morley

Patient Experience Journal

Caregiver burden (CB) is an under-researched topic among familial caregivers (parents, siblings, aunts, uncles and grandparents) supporting someone with Prader-Willi Syndrome (PWS). CB is defined as the physical and mental toll resulting from caring for someone with additional needs, which has not yet been explored in PWS familial caregivers. PWS causes hyperphagia (insatiable hunger) and violent behaviours that can be hard to manage. Research demonstrates primary caregivers have a decreased quality of life and increased mental health (MH) problems, with quantitative literature highlighting the risk of CB. This study aimed to qualitatively highlight the experiences of CB in familial caregivers …

Information Continuity And Experiences Of Mental Healthcare: A Conceptual Framework, Timothy Kariotis, Megan Prictor, Kathleen Gray, Shanton Chang

Patient Experience Journal

Objectives: Information continuity is a key element of continuity of care and service users' experience of care. However, models of continuity of care have not considered how to operationalise information continuity and balance it with service users' privacy concerns. The aim of this paper was to develop a conceptual framework of the information practices that contribute to service users' experience of information continuity in the mental healthcare system. Methods: We undertook a narrative review to identify studies on service users' experiences of mental healthcare and analysed them using a thematic synthesis method to identify the information practices of care professionals …

Health Information For Patients And Families: Sources, Data Types, And Tools For Evaluating Accessibility, Preeti Pandey, Richard I. Zraick, Vinaya Manchaiah

Patient Experience Journal

This review summarizes key sources and formats of health information for patients and families, and outlines tools used to evaluate their accessibility. Health information appears across online and offline platforms in formats such as text, images, and video. Evaluation tools assess dimensions like readability, accuracy, quality, suitability, and actionability, though they vary in validity and scope. This paper offers guidance for healthcare professionals and researchers aiming to improve the accessibility and effectiveness of patient-facing health materials.

When Decision-Making Styles Do Not Predict Communication Preferences: Rethinking Personalization In Healthcare Experience, Victoria Sze Min Ekstrom

Patient Experience Journal

Background: Healthcare systems increasingly attempt to personalize risk communication by matching messages to patients' decision-making styles. This approach is resource intensive, yet evidence that it improves patient experience or decision quality remains limited. Methods: We conducted a cross-cultural experimental study with adults from the UK (n=330, recruited via Prolific) and Singapore (n=220, recruited via professional networks). Participants viewed three healthcare scenarios with risks of 1%, 10%, and 20%, presented in either positive (``99% no complications'') or negative (``1% complications'') frames displayed side-by-side in randomized order. Decision-making styles were assessed using the Control Preferences Scale, categorizing participants as information-seeking, shared decision-making, …

Reflections On Factors That Led To A Dehydration Hospitalization: Lived Experience To Inform Systems Change For Nursing Home Residents, Lucas Kandia, Jodi Dunmeyer Stookey

Patient Experience Journal

This personal narrative describes a family's journey through a preventable dehydration crisis during the COVID-19 pandemic. When a 93-year-old nursing home resident tested positive for COVID-19, her family prepared for the worst. Instead, she nearly died from severe dehydration, not the virus, and was hospitalized for hypovolemic shock, only to be discharged four and a half days later, still COVID-positive, having recovered with rehydration alone. Medical documentation reveals deterioration from inadequate oral intake (300 mL per day) to pre-shock hypotension to frank shock (72/56 mmHg at 17:20), while oxygen saturation remained normal throughout. The admission diagnosis hierarchy (Acute Kidney Injury, …

15 October 2021: Living With The Consequences Of A Cardiac Event — A Patient Perspective, Bruce H. Knox

Patient Experience Journal

This first-person narrative explores the long-term consequences of a rare but catastrophic complication during a premature ventricular contraction (PVC) ablation, resulting in left ventricular rupture, acute cardiac tamponade, and emergency open-heart surgery. While the surgical intervention was life-saving, the subsequent years were marked by profound changes in autonomic function, multisystem instability, and a sustained alteration in quality of life. The account reflects on living with cardiac autonomic vulnerability before the event, the immediate crisis, and the prolonged recovery that followed—characterized not by restoration, but by renegotiation of capacity, identity, and participation. Particular emphasis is placed on the experience of navigating …

The Phantom Fifth Chair Of Patient Experience, Kathy Saldana

Patient Experience Journal

Over the past three years, the author has openly shared her journey as a certified patient experience professional facing triple negative breast cancer. The firsthand gravity of treatment became instantly apparent to her in the chemo chair. Resisting the temptation to crumble under the fear of it, she chose to view treatment as an unwanted yet precious opportunity to study her profession of patient experience from a deeply personal space. Determined not to waste the difficult long-term experience of treatment, she was compelled to write and speak about her convictions regarding the necessity of honoring patients by soliciting, documenting, believing, …

More Than A Buzzword: Why Trauma-Informed Care Needs Widespread Practice, Christine Lee Frost

Patient Experience Journal

This narrative illustrates the personal story about the difficulty of obtaining a diagnosis for endometriosis. As someone who endured a chaotic childhood, I struggled with complex trauma and medical issues for decades without understanding the connection between the two. In this narrative, I make a case for practicing trauma-informed care across the healthcare industry, and detail the statistics that show why it's so vital. While online communities can make ``trauma-informed care'' feel like just another trendy term, it's a concept with an abundance of data to back up the necessity for it. In addition to people living with mental illness, …

Consumer, Customer, Or Patient?... It's All About Context, Sven Gierlinger

Patient Experience Journal

Today's healthcare industry is at a pivotal juncture, navigating the complex intersection of traditional care delivery with rapidly evolving consumer expectations and unprecedented transparency. This personal narrative is intended to provide a nuanced, experience-driven framework for understanding the distinct yet interconnected roles of ``consumer,'' ``customer,'' and ``patient'' - vital for healthcare organizations striving to build trust and loyalty.

Human-Centered Quality: Reframing Quality Around What Matters To People, Vita Steina, Jason Wolf

Patient Experience Journal

Each encounter one has in healthcare is an experience. It is everything someone lives through. It is what they remember and all they perceive. It is their lasting story. When we see the experience one has in healthcare from that lens, then all the components that shape that story are parts of their experience. From this perspective, for as much as the clinical framing of experience as metrics on a survey has seen experience identified as a dimension of quality, we would suggest the opposite. Quality is but one part of the experience someone has in healthcare today. It is …

Affordability: A Critical Issue At The Heart Of Human Experience, Jason A. Wolf

Patient Experience Journal

Affordability is a human experience issue. One that reaches well beyond the edges of healthcare. In our current global economy, rising costs dominate the headlines. They weigh heavily on the pocketbooks of families around the world. Affordability may be no more prevalent than in healthcare. It too is the place where it may have the most significant and lasting impact.If we are willing to think of affordability as an experience issue, we can begin to address the solution in new ways. But it will require untangling years of wiring of how healthcare has operated to rewire what it can be. …

Advanced Practice Provider-Physician Collaboration And Medical Staff Governance: A Framework For Patient Safety, Nicholas Testa, Kaysha Hervey, Cynthia Borum

HCA Healthcare Journal of Medicine

The growth of advanced practice providers (APPs) is occurring in parallel with persistent and projected physician shortages. One important solution and increasingly visible response to these workforce challenges is the expanding role of APPs. Strong physician-APP partnerships can help distribute workload, improve access, and support sustainable practice with the delivery of safe, quality patient care. The future of clinical care will depend on effective APP-physician collaboration grounded in sound credentialing, clearly defined supervision and practice expectations, and robust medical staff monitoring programs. We describe the governance and oversight processes in a large health care system to assess and support APP …

A Conceptual Framework For Clinical Quality Oversight In Telehealth-Enabled Home-Based Urgent Care, Taylor Spencer, Jason P. Williams

HCA Healthcare Journal of Medicine

Background

Home-based urgent care serving frail older adults should aspire to high-quality clinical care with optimal patient outcomes. However, monitoring and ensuring this quality can be challenging. For example, telemedicine and value-based frameworks introduce substantial complexity to clinical quality monitoring.

Purpose

We describe the conceptual framework for a multidimensional quality monitoring program within a national home-based urgent care model.

Framework Description

Medical care was delivered via a multi-state home-based primary, palliative, and urgent care practice serving medically complex Medicare Advantage (MA) populations. Our model of care incorporated distributed clinical and operational teams delivering 24/7 care via telephonic triage, video-enabled encounters, …

Pharmacovigilance As An Act Of Awareness And Mindfulness, Mahima Silas, Hale Z. Toklu

HCA Healthcare Journal of Medicine

The term “pharmacovigilance” defines the activities related to the collection, detection, assessment, monitoring, and prevention of adverse reactions due to pharmaceuticals. While it is often framed as a technical and regulatory discipline, it can also be understood through a more reflective lens as a form of mindfulness practice. At its core, pharmacovigilance requires a way of thinking that closely mirrors mindfulness, including sustained attention, openness to uncertainty, and deep awareness of human experience. Viewing pharmacovigilance in this way reframes it not just as a safety mechanism, but as a thoughtful, patient-centered approach to medicine.

Key Drivers Of Revisit Intention In Dental And Oral Teaching Hospital, Mega Denada Aldila, Wahyu Sulistiadi

Jurnal ARSI : Administrasi Rumah Sakit Indonesia

Digital transformation in dental and oral teaching hospitals demands strategies that not only ensure clinical quality but also sustain patient loyalty. This study examines the effects of digital storytelling and service quality on outpatient revisit intention at the Dental and Oral Hospital of Universitas Jenderal Soedirman (RSGMP Unsoed), with brand image and patient satisfaction as mediating variables. A quantitative cross-sectional design was applied to 115 outpatients aged ≥18 years who had completed one full episode of dental treatment. After exposure to a standardized digital storytelling video about RSGMP Unsoed, respondents completed a structured Likert-scale questionnaire. Data were analyzed using Partial …

Kepuasan Pasien Terhadap Pelayanan Di Rumah Sakit Pemerintah Dan Rumah Sakit Swasta: Tinjauan Literatur, Bahar Syah, Mardiati Nadjib

Jurnal ARSI : Administrasi Rumah Sakit Indonesia

Patient satisfaction is an important indicator for assessing the quality and performance of hospital services as it reflects patients’ experiences through the healthcare delivery process; this study explore how patient satisfaction toward hospital services in public and private hospitals by analyzing 23 selected scientific articles published between 2015 and 2024 and gathered from ProQuest, Scopus, PubMed, and ScienceDirect databases from an initial total of 176 articles founded based on inclusion and exclusion criteria, and the findings indicate that service quality has a significant impact toward patient satisfaction in both types of hospitals, with private hospitals generally demonstrating higher satisfaction levels …

Evaluasi Penerapan Rekam Medis Elektronik Terhadap Kinerja Perawat Di Unit Rawat Inap Rs Grha Permata Ibu Kota Depok Tahun 2025, Ratna Dian Andriani, Dicky Yulius Pangkey, Ahdun Trigono

Jurnal ARSI : Administrasi Rumah Sakit Indonesia

Electronic Medical Records (EMR) adoption aims to improve documentation efficiency and nurses’ performance; however, system instability and limited continuous training remain obstacles. This study examined the effects of EMR features and functionality, technical support and training, and users’ perceptions and attitudes on nurses’ performance at Grha Permata Ibu Hospital. This study employed an analytic observational design with a cross-sectional approach, using a quantitative survey conducted among 74 inpatient nurses through a Likert-scale questionnaire. Descriptive analysis, Spearman correlations, and multiple linear regression were employed. Results indicate that features and functionality (X1) have a strong positive association with performance (p = 0.652; …

Efektivitas Implementasi Raspro Terhadap Pola Resistensi Dan Biaya Antibiotik Di Rsud Kabupaten Bekasi, Irmawati Hasan, Helen Andriani

Jurnal ARSI : Administrasi Rumah Sakit Indonesia

The increasing use of antibiotics over recent decades has significantly affected global public health, primarily through the emergence of antimicrobial resistance (AMR), which contributes to higher morbidity, mortality, and economic burden. As a regional referral hospital, Bekasi Regency General Hospital faces substantial challenges related to high resistance rates, with multidrug-resistant organisms (MDROs) showing MRSA at 22.22% and ESBL at 40% in 2024. This study evaluated the implementation of the Prospective System Antimicrobial Regulation Program (RASPRO) in relation to resistance patterns, antibiotic cost efficiency, and supporting roles of governance, human resources, and monitoring systems. A quantitative prospective cohort design was applied, …

Kualitas Hidup Pasien Penyakit Gagal Ginjal Kronik Dan Kepuasan Pelayanan Di Unit Hemodialisis Rumah Sakit Alia Depok: Studi Mixed-Methods, Bimo Kusumo, Vetty Yulianty Permanasari

Jurnal ARSI : Administrasi Rumah Sakit Indonesia

The prevalence of chronic kidney disease (CKD) in Indonesia remains a high-incidence condition and most of it underwent hemodialysis in Hospital. This study aims to analyze the quality of life of patients with chronic kidney disease and satisfaction with services in the hemodialysis unit. This study is a mixed-methods study with a quantitative study using the World Health Organization Quality of Life (WHOQOL-BREF) and Service Quality (SERVQUAL) questionnaires, and a qualitative study with in-depth interviews related to hospital services from both service providers (healthcare professionals) and service recipients (patients). The study found predominantly moderate scores on the WHOQOL-BREF and poor …

Persepsi Dokter Terhadap Kompetensi Perawat Di Rsud Siti Aisyah Lubuklinggau: Analisis Domain Komunikasi, Profesionalisme, Dan Kolaborasi Tim, Novita Purnamasari, Wiku Bakti Bawono Adisasmito

Jurnal ARSI : Administrasi Rumah Sakit Indonesia

This study analyzes doctors' perceptions of nurses' competencies at Siti Aisyah Regional Hospital in Lubuklinggau across three domains: communication, professionalism, and team collaboration. Doctors' perceptions are important for supporting interprofessional collaboration, quality of patient care, and patient outcomes. The study results are expected to identify competency gaps and provide an evidence-based foundation for developing measurable and effective nurse training programs. The study used a quantitative descriptive design with a cross-sectional approach, with a sample of 24 doctors who evaluated nurses' overall competencies in their work units. Data were collected through a structured questionnaire containing 11 Likert-scale items and were analyzed …

Implementation Of A Low-Cost Tobacco-Free Intervention In A Permanent Supportive Housing Program To Address Cancer Disparities Among People Who Have Experienced Homelessness, Ammar D. Siddiqi, Phoebe Wong, Cathy Crouch, Lorraine R. Reitzel

Advances in Cancer Education and Quality Improvement

Objectives: Permanent supportive housing residents who have experienced homelessness use tobacco products at elevated rates, contributing to higher cancer risk. Agencies that provide wraparound support services to this group are committed to rebuilding their stability by improving their health. Yet, their delivery of tobacco screening and cessation care is limited, as is information about their clients’ tobacco use behaviors. Here, we evaluated a low-cost intervention for an Albert Schweitzer Fellowship project conducted in a permanent supportive housing program with 650 adults who had experienced homelessness in Houston, Texas.

Materials and Methods: Between August 2024 and February 2025, client-facing staff members …

Beyond Screening In Amyotrophic Lateral Sclerosis: A Domain-Standardized, Measure-Flexible Framework For Comprehensive Neuropsychological Assessment, Etiane Navarro

Archives of Assessment Psychology

Amyotrophic lateral sclerosis (ALS) is a multisystem neurodegenerative disorder in which cognitive, behavioral, language, and social-cognitive changes may occur across clinical phenotypes, including the ALS-frontotemporal spectrum. Neuropsychological assessment is important for characterizing nonmotor manifestations and identifying changes relevant to autonomy, everyday functioning, and clinical management. This systematic review examined literature identified through APA PsycINFO, PubMed, Google Scholar, and supplementary searching to characterize neuropsychological domains, measures, phenotype-related findings, and disease-specific limitations relevant to comprehensive assessment. Two hundred records underwent title and abstract screening, 150 reports were reviewed in full text, and 61 resources were retained for synthesis. ALS-specific screening instruments, including …

Health Insurance And Moud: Predicting Oud Treatment Success, Amy S. White, Jennifer I. Manuel

Publications and Research

Background

Opioid use disorder (OUD) is a chronic condition with low rates of treatment success; use of medication for OUD (MOUD) is inconsistent across treatment settings. The purpose of this study was to examine the independent and interactive associations of MOUD and health insurance status with successful treatment completion across residential and outpatient treatment settings.

Methods

We conducted multilevel random-effects logistic regression analyses of the 2022 Treatment Episode Dataset–Discharge (TEDS-D) to estimate associations among MOUD receipt, insurance status (Medicaid, Medicare, private insurance, uninsured), and treatment completion. Models adjusted for demographic and clinical characteristics and stratified by treatment setting. The sample …