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Public Perceptions And Attitudes Toward Thalassaemia: Influencing Factors In A Multi-Racial Population, Maryanne Jin Ai Tan Maryanne
Public Perceptions And Attitudes Toward Thalassaemia: Influencing Factors In A Multi-Racial Population, Maryanne Jin Ai Tan Maryanne
Mary Anne Tan Jin Ai
Thalassaemia is a common public health problem in Malaysia and about 4.5 to 6% of the Malays and Chinese are carriers of this genetic disorder. The major forms of thalassaemia result in death in utero of affected foetuses (α-thalassaemia) or life-long blood transfusions for survival in β-thalassaemia. This study, the first nationwide population based survey of thalassaemia in Malaysia, aimed to determine differences in public awareness, perceptions and attitudes toward thalassaemia in the multi-racial population in Malaysia. Methods: A cross-sectional computer-assisted telephone interview survey of a representative sample of multi-racial Malaysians aged 18 years and above was conducted between July …
Genotype-Phenotype Diversity Of Beta-Thalassemia In Malaysia: Treatment Options And Emerging Therapies, Maryanne Jin Ai Tan Maryanne
Genotype-Phenotype Diversity Of Beta-Thalassemia In Malaysia: Treatment Options And Emerging Therapies, Maryanne Jin Ai Tan Maryanne
Mary Anne Tan Jin Ai
The haemoglobinopathies and thalassemias represent the most common inherited monogenic disorders in the world1. Beta-thalassaemia major is an ongoing public health problem in Malaysia2. Prior to 2004, the country had no national policy for screening and registry for thalassemia. In the absence of a national audit, the true figure of the extent of thalassemia in the Malaysian population was largely presumptive from micro-mapping studies from various research workers in the country. The estimated carrier rate for beta-thalassemia in Malaysia is 3.5-4%. There were 4768 transfusion dependent thalassemia major patients as of May 2010 (Data from National Thalassemia Registry).