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Gerontology

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Articles 1 - 30 of 83

Full-Text Articles in Medicine and Health Sciences

Tuberculosis Presentation And Outcomes In Older Hispanic Adults From Tamaulipas, Mexico, Belinda Medrano, Miryoung Lee, Gretchen L. Gemeinhardt, Javier E. Rodríguez-Herrera, Moncerrato García-Viveros, Blanca I. Restrepo Oct 2023

Tuberculosis Presentation And Outcomes In Older Hispanic Adults From Tamaulipas, Mexico, Belinda Medrano, Miryoung Lee, Gretchen L. Gemeinhardt, Javier E. Rodríguez-Herrera, Moncerrato García-Viveros, Blanca I. Restrepo

School of Medicine Publications and Presentations

Older people are at high risk of developing and dying from pulmonary infections like tuberculosis (TB), but there are few studies among them, particularly in Hispanics. To address these gaps, we sought to identify host factors associated with TB and adverse treatment outcomes in older Hispanics by conducting a cross-sectional study of TB surveillance data from Tamaulipas, Mexico (2006–2013; n = 8381). Multivariable logistic regressions were assessed for older adults (OA ≥65 years) when compared to young (YA, 18–39 years) and middle-aged adults (40–64 years). We found that the OA had features associated with a less complicated TB (e.g., lower …


The Role Of Occupational Therapy Practitioners In The Care Of Pets And Animals: A Guide To Aging In Place With Pets And Animals, Blake Randell, Mary Jan Greer, Sherry Pidgeon Aug 2023

The Role Of Occupational Therapy Practitioners In The Care Of Pets And Animals: A Guide To Aging In Place With Pets And Animals, Blake Randell, Mary Jan Greer, Sherry Pidgeon

Summer 2023 Virtual OTD Capstone Symposium

This capstone project explored the role of occupational therapy practitioners in the care of pets and animals among older adults which has been referred to as the forgotten instrumental activity of daily living (or IADL) for this population. A needs assessment was conducted to determine how to provide facilitators and remove barriers or hindrances to occupational performance in the care of pets and animals among a group of older adults (with a variety of disability- and non-disability-related needs) in independent living communities. This needs assessment identified compounding health disparities of physical and/or cognitive impairments and lack of financial and necessary …


Occupational Therapists' Perspectives On Nursing Home Culture And Addressing The Psychosocial Needs Of Residents: Mixed Methods Design, Nayeli Mendoza, Mikayla C. Wandersee, Divya Sood Apr 2023

Occupational Therapists' Perspectives On Nursing Home Culture And Addressing The Psychosocial Needs Of Residents: Mixed Methods Design, Nayeli Mendoza, Mikayla C. Wandersee, Divya Sood

The Open Journal of Occupational Therapy

Background: The purpose of this study was to explore occupational therapists’ perspectives on the culture change movement to address the psychosocial components of care among nursing home residents and identify supports and barriers to implementing the culture change movement.

Methods: We used a sequential explanatory mixed methods design. Electronic surveys were completed by 102 occupational therapists who work in nursing home facilities. Three focus groups were conducted via conference call with occupational therapists (n = 9). The survey was analyzed using descriptive statistics and content analysis. Focus groups were analyzed using thematic analysis.

Results: Seventy-four of survey …


Engaging The Aging Process: Unlock The Fountain Of Youth, Abeni El-Amin Ph.D. Jan 2023

Engaging The Aging Process: Unlock The Fountain Of Youth, Abeni El-Amin Ph.D.

Management Faculty Publications

Employment for aging is a significant aspect shaping the aging processes during formative years. Therefore, work opportunities combined and consequential impacts later in life merit special consideration. Given that population aging has become a global pattern with ensuing changes in labor markets far and wide, there is increased concern about the impacts of retirement around the globe and the macroeconomic advantages frequently connected with delaying retirement. It is fundamental for nations with aging populations to maintain profitability, given an aging workforce. Governments must make it simpler for individuals to maintain a significant presence in the workforce. This contribution focuses on …


Implementing Gerontological Education Into Undergraduate Nursing Curricula, Amanda Gleason Jan 2023

Implementing Gerontological Education Into Undergraduate Nursing Curricula, Amanda Gleason

Non-Thesis Student Work

The United States has an ever-increasing older adult population, with nearly one-fifth of US citizens over the age of 65 (United States Census Bureau, 2022). America is already in need of nurses trained to work with aging patients and that need is only expected to grow. Many registered nurses (RNs) choose specialties other than gerontological care, with only approximately four percent of RNs currently working in long-term care facilities or retirement or nursing homes (Smiley et al., 2021). Nursing students often, knowingly or unknowingly, have preconceived notions of older adults or older patients that can affect their interest, or lack …


Racial Differences In Depression Indicators Before And After 2008 Financial Crisis In A Sample Of Older Adults, Angelina E. Jackson Jan 2023

Racial Differences In Depression Indicators Before And After 2008 Financial Crisis In A Sample Of Older Adults, Angelina E. Jackson

Electronic Theses and Dissertations

The present study was designed to examine patterns of mental health outcomes in older Black and White adults after the national 2008 financial crisis. The data was acquired from the University of Michigan Health and Retirement Study, a publicly available dataset. This longitudinal study has obtained data from a representative sample of approximately 20,000 older adults in America, aged 55 and older. The hypotheses were (1) rates of mental health indicators related to symptoms of depression will increase after the 2008 financial crisis and (2) that increase will be significantly higher in Black respondents compared to White respondents. The analysis …


Functional Comparison Of Six-Minute Walk Tests Between Shod And Minimalist Footwear Individuals In Mid-Life: A Preliminary Pilot Study Analysis, Camille L. Nguyen, Aaron W. Johnson, Annie Smedley, Sarah T. Ridge Nov 2022

Functional Comparison Of Six-Minute Walk Tests Between Shod And Minimalist Footwear Individuals In Mid-Life: A Preliminary Pilot Study Analysis, Camille L. Nguyen, Aaron W. Johnson, Annie Smedley, Sarah T. Ridge

International Journal of Exercise Science: Conference Proceedings

Research has shown that wearing minimalistic footwear can increase intrinsic and extrinsic foot muscle size and strength,although the effect of transitioning from shod to minimalist footwear on gait functionality–such as performance on a six-minute walk test–is not well documented. PURPOSE: We observed the differences in a six-minute functional walk test between mid-life (45yrs-65yrs) individuals who transitioned to minimalist footwear (MF) over a fourteen month period compared to habitually shod (HS) individuals. METHODS: Twenty mid-life individuals participated in this study. Participants were randomly assigned to either the MF (n=8, age= 56.5 ± 5.18 yrs, height= 162.71 ± 7.69 cm, …


Crafting Well-Being: A Scoping Review Of The Benefits Of Participation In Fibre Craft Communities And Implications For Activities For Older Adults, Ferzana Chaze, Karen Lints, Kimberley Anderson Aug 2022

Crafting Well-Being: A Scoping Review Of The Benefits Of Participation In Fibre Craft Communities And Implications For Activities For Older Adults, Ferzana Chaze, Karen Lints, Kimberley Anderson

Publications and Scholarship

The COVID-19 pandemic brought into sharp focus the need for positive mental health and well-being as communities at large, and older adults in particular, struggle to cope with social isolation, loneliness, stress, anxiety, and uncertainty. At the same time, there has been a resurgence of interest in traditional home-based crafts that are both compatible with social distancing requirements, yet fulfill one’s passion for fibre craft. This paper reviews the literature to understand the ways in which participation in fibre craft communities, organized as informal or formal collectives of people, contributed to their well-being. Nineteen articles that met the inclusion criteria …


Mentorship In The Field Of Aging: Purposes, Pivots, And Priorities, Patricia W. Slattum, Tiffany R. Washington, Sarah Dys, Patricia M. D’Antonio, Tonya J. Roberts, Matthew Lee Smith Aug 2022

Mentorship In The Field Of Aging: Purposes, Pivots, And Priorities, Patricia W. Slattum, Tiffany R. Washington, Sarah Dys, Patricia M. D’Antonio, Tonya J. Roberts, Matthew Lee Smith

Health Behavior Research

The Gerontological Society of America (GSA) is a multi-disciplinary organization dedicated to advancing the field of aging and improving the lives of older adults. With a long-standing commitment to mentorship and career development, this article focuses on GSA’s Mentoring Consultancies and Career Conversations events and their pivot to meet the needs and demands of current and future gerontologists amid the COVID-19 pandemic. This article provides a description of these events in the context of planning, content, and member engagement. Recommendations are provided to other organizations seeking to enrich their membership through mentorship and career development activities.


The Role Of Physical Activity In Supporting Treatment Of Coxarthrosis Symptoms In Elderly Patients, Malgorzata Kawa, Malgorzata Kowza-Dzwonkowska, Agnieszka Schenk Mar 2022

The Role Of Physical Activity In Supporting Treatment Of Coxarthrosis Symptoms In Elderly Patients, Malgorzata Kawa, Malgorzata Kowza-Dzwonkowska, Agnieszka Schenk

Baltic Journal of Health and Physical Activity

Background: Next to degenerative changes of the spine, osteoarthritis of the hip is one of the most common diseases of the musculoskeletal system in people after the age of 65. The purpose of this study is to compare and evaluate the analgesic effectiveness treatments with exercises on a bicycle ergometer in osteoarthritis of the hip in patients. Material/Methods: The study involved 30 persons with degenerative disease of the hip referred to 10-day rehabilitation with a weekend break. In Group A 14 patients were subjected to treatments with local cryotherapy and laser therapy; in Group B 16 this treatment together exercises …


Evaluation Of Analgesic Effectiveness Of Infrared Radiation And Interference Currents In Degenerative Diseases, Malgorzata Kawa, Ewa Muszynska, Malgorzata Kowza-Dzwonkowska Mar 2022

Evaluation Of Analgesic Effectiveness Of Infrared Radiation And Interference Currents In Degenerative Diseases, Malgorzata Kawa, Ewa Muszynska, Malgorzata Kowza-Dzwonkowska

Baltic Journal of Health and Physical Activity

No abstract provided.


Prostate-Specific Antigen Screening According To Health Professional Counseling And Age In The United States, Seth A. Otto, Ray M. Merrill Mar 2022

Prostate-Specific Antigen Screening According To Health Professional Counseling And Age In The United States, Seth A. Otto, Ray M. Merrill

Library/Life Sciences Undergraduate Poster Competition 2022

To determine the prevalence of PSA testing in men according to age, reasons for undergoing testing, and whether a discussion about harms and benefits took place with a doctor prior to testing.


The Remote Assessment And Dynamic Response Program: Development Of An In-Home Dementia-Related Care Needs Assessment To Improve Well-Being, Lindsey M. Miller, Diane N. Solomon, Carol J. Whitlatch, Shirin O, Hiatt, Chao-Yi Wu, Christina Reynolds, Wan-Tai Michael Au-Yueng, Jeffrey Kaye, Joel Steele Feb 2022

The Remote Assessment And Dynamic Response Program: Development Of An In-Home Dementia-Related Care Needs Assessment To Improve Well-Being, Lindsey M. Miller, Diane N. Solomon, Carol J. Whitlatch, Shirin O, Hiatt, Chao-Yi Wu, Christina Reynolds, Wan-Tai Michael Au-Yueng, Jeffrey Kaye, Joel Steele

Psychology Faculty Publications and Presentations

Background and Objectives

The Remote Assessment and Dynamic Response (READyR) Program was developed in order to address the current lack of early-stage dementia care planning programs that assess the care needs of persons with dementia. The goal was to create a program informed by care values and ongoing ecologically valid data. The objectives of this study are to describe the development and design process of the READyR Program, and to evaluate the utility of the READyR Program for identifying dementia-related care needs.

Research Design and Methods

A prototype of the web-based READyR Program tool was first created using digital activity …


The Imaginal Lexicon Of Aging Studies, William Ebenstein Jan 2022

The Imaginal Lexicon Of Aging Studies, William Ebenstein

Publications and Research

Aging Studies focuses on the cultural, humanistic and experiential aspects of aging insofar as these are already embedded in literature, art, language and everyday life. The lexicon of this multi-disciplinary field has evolved in response to shifts in cultural attitudes, social roles, and conceptual frameworks. At the same time, many age-related words have links to poetic imagery and ancient myths, and to evocative etymologies that conjure an historical context. The article looks at the ongoing and surprisingly difficult effort to find the right word to call an older person. It reviews the language and literary genres associated with longevity. And, …


Occupational Engagement Of Older Adults With Age-Related Vision Loss (Arvl): Understanding The Influences Of Social Networks, Ji Won Kang May 2021

Occupational Engagement Of Older Adults With Age-Related Vision Loss (Arvl): Understanding The Influences Of Social Networks, Ji Won Kang

Electronic Thesis and Dissertation Repository

The present study sought to understand how older adults’ social networks facilitate and constrain their engagement in meaningful occupations after being diagnosed with age-related vision loss (ARVL). A constructivist paradigm and narrative inquiry methodology were used to elicit and make sense of the participants’ unique stories. The participants consisted of five older adults 60 years and older, living with ARVL, including one of the following conditions; macular degeneration, glaucoma, and diabetic retinopathy. Participants were recruited from the Canadian National Institute for the Blind (CNIB) and Society for Learning and Retirement (SLR). Data was collected through three sessions of semi-structured, audio-recorded …


Senior Cohousing: The Social Architecture Of Cohousing, Community Design & Well Being, Michael Mandelman May 2021

Senior Cohousing: The Social Architecture Of Cohousing, Community Design & Well Being, Michael Mandelman

Theses and Dissertations

The world is facing a situation without precedent, due to the anticipated growth in and increasing longevity of elderly people. Where and how people live is and can be a determinant of health. There is substantial research on inadequate housing for older people and its adverse effects on health. However, less is known about how senior cohousing affects the health of its residents. Further research is needed to improve strategies for senior living environments that promote social interaction and facilitate well-being. This study aims to bolster design and policy strategies by investigating how senior cohousing residents perceive how their living …


The Relationship Between New Graduate Registered Nurse Knowledge, Experiences, Attitudes, And Age Bias Toward The Older Adult, Michelle Fox Mar 2021

The Relationship Between New Graduate Registered Nurse Knowledge, Experiences, Attitudes, And Age Bias Toward The Older Adult, Michelle Fox

USF Tampa Graduate Theses and Dissertations

There had been a lack of research on the relationship between a new graduate Registered Nurses’ knowledge, experiences, attitudes, and age bias toward older adults. The purpose of this study was to investigate whether there was a relationship between new graduate Registered Nurses’ knowledge, experiences, attitudes, and age bias toward older adults.

The researcher used correlational, non-experimental, quantitative design for this study. The instruments used in this study were the Facts on Aging Quiz, the Kogan Attitude Toward Old People scale, and a demographic questionnaire. Descriptive statistics were used to analyze the demographic data and correlation coefficients were used to …


Psychological Sense Of Community Among Older Adults In Puerto Rico Two Years After Hurricane María, Thomas D. Buckley Jan 2021

Psychological Sense Of Community Among Older Adults In Puerto Rico Two Years After Hurricane María, Thomas D. Buckley

Theses and Dissertations

Hurricane María devastated Puerto Rico in 2017 and resulted in adverse long-term outcomes. Psychological sense of community (PSOC) may serve as a protective factor against the effects of Hurricane María for older adults in Puerto Rico. Using a three-paper format, this dissertation draws on a resilience framework and theories of PSOC and the Ecological Theory of Aging to examine the role of PSOC among older adults in Puerto Rico two years after Hurricane María.

Paper one is a scoping review of the concept of PSOC in research with community dwelling older adults. I begin by presenting findings on study characteristics …


Evaluation Of Aging And Genetic Mutation Variants On Tauopathy, Amber M. Tetlow Nov 2020

Evaluation Of Aging And Genetic Mutation Variants On Tauopathy, Amber M. Tetlow

USF Tampa Graduate Theses and Dissertations

Alzheimer’s disease (AD) is characterized by amyloid β plaques and neurofibrillary tau tangles (NFTs). While research has demonstrated amyloid pathology occurs prior to tau pathology, or tauopathy, tau has proven to be more toxic. Tauopathy is associated with cognitive declines and neurodegeneration. These findings have highlighted the importance of further understanding tauopathy. In the progression of tauopathy, there is an observable immune response that can be measured by glial cells such as microglia. Activated microglia are known to exacerbate tauopathy rather than reducing the pathology. Research has indicated that with increased age there is an increased risk for AD-related tauopathy …


A Qualitative Analysis Of The Barriers Faced By Nursing Assistants And Medication Aides In The Care Of Dysphagia Residents, Lauren Kreuzberg May 2020

A Qualitative Analysis Of The Barriers Faced By Nursing Assistants And Medication Aides In The Care Of Dysphagia Residents, Lauren Kreuzberg

Honors Theses

Dysphagia refers to the symptom of difficulty in swallowing that accompanies several prevalent conditions in the older adult population, including amyotrophic lateral sclerosis (ALS, Lou Gehrig’s Disease), stroke, Parkinson’s Disease, Multiple Sclerosis, dementia, various cancers, and brain tumors (Allari, 2014). Many older adults who suffer from these conditions reside in nursing facilities, where most of their care is provided by certified nursing assistants (CNAs) and medication aides (MAs). However, the extent of these workers’ knowledge and competence in providing care to nursing home residents with dysphagia is vastly under-researched. The qualitative analysis investigates themes among interviews with fifteen CNAs and …


Creating Covid-19 Work-Arounds For Vulnerable Older Adults, Edward F. Ansello Jan 2020

Creating Covid-19 Work-Arounds For Vulnerable Older Adults, Edward F. Ansello

Director's Editorials from Age in Action

In response to disruptions in care due to the COVID-19 pandemic, the Geriatrics Workforce Enhancement Program (GWEP) has decided to focus energies on vulnerable populations, specifically: low income older adults in the Richmond Health and Wellness Program (RHWP), which delivers healthcare coordination at rental assistance housing complexes in Richmond, who had been receiving regular in-person help from interprofessional teams of faculty and students; residents with dementia and staffs of long-term care facilities who’d been intended to participate on-site in a non-pharmacological dementia care intervention called TimeSlips, as well as family caregivers of individuals in the community with dementia; and older …


The Agony Of Da Feet: Reexamining The Foundation To Fitness, Amanda M. Lutter, Christopher B. Stewart Jan 2020

The Agony Of Da Feet: Reexamining The Foundation To Fitness, Amanda M. Lutter, Christopher B. Stewart

Case Studies from Age in Action

Educational Objectives

1. Explain the role of podiatry in helping older adults maintain wellbeing.

2. Provide an overview of common foot and ankle conditions that older adults should be concerned about.

3. Discuss newer services and techniques provided by podiatrists.

4. Review several cases in which podiatry supported patients’ health through early interventions.


Occupational Responses Of Older Adults Following Partner Loss, Carol Huang, Jane Song, Peter Behr, Stephanie Sterner May 2019

Occupational Responses Of Older Adults Following Partner Loss, Carol Huang, Jane Song, Peter Behr, Stephanie Sterner

Occupational Therapy | Graduate Capstone Projects

Spousal loss has been frequently identified as a life stressor that can greatly impede one’s ability to age at home. The purpose of this study is to identify the occupational changes that commonly result after this event and their impacts on one’s ability to age in place. This study utilized a qualitative phenomenological research design. Eight participants were recruited from an educational program for older adults and were interviewed using a semi-structured interview format. Researchers transcribed and coded all interviews to determine emergent themes. Two major categories of themes were found: occupational and intrinsic responses. The areas of occupation that …


Preconceptional Health Behavior Change In Women With Overweight And Obesity: Prototype For Smart Strong Healthy Women Intervention, Frank T. Materia, Joshua M. Smyth, Kristin E. Heron, Marianne Hillemeier, Mark E. Feinberg, Patricia Fonzi, Danielle Symons Jan 2018

Preconceptional Health Behavior Change In Women With Overweight And Obesity: Prototype For Smart Strong Healthy Women Intervention, Frank T. Materia, Joshua M. Smyth, Kristin E. Heron, Marianne Hillemeier, Mark E. Feinberg, Patricia Fonzi, Danielle Symons

Psychology Faculty Publications

Background: The prevalence of maternal perinatal obesity is rising, and in turn, increases health risks and morbidity for both mother and child. Past evidence suggests the preconceptional Strong Healthy Women (SHW) intervention can reduce multiple biobehavioral risk factors for adverse perinatal health. The SHW intervention, however, was time- and resource-intensive to deliver. Mobile health (mHealth) technologies provide an opportunity to expand intervention reach while reducing implementation cost and burden. Previous research suggests that preconceptional women are broadly supportive of using smartphones for behavior change, yet few studies have elicited their specific preferences for a targeted mHealth intervention. The objective of …


Occupational Responses Of Older Adults Following Partner Loss, Carol Huang, Jane Song, Peter Behr, Stephanie Sterner Jan 2018

Occupational Responses Of Older Adults Following Partner Loss, Carol Huang, Jane Song, Peter Behr, Stephanie Sterner

Student Research Posters

Spousal loss has been frequently identified as a life stressor that can greatly impede one’s ability to age at home. The purpose of this study is to identify the occupational changes that commonly result after this event and their impacts on one’s ability to age in place. This study utilized a qualitative phenomenological research design. Eight participants were recruited from an educational program for older adults and were interviewed using a semi-structured interview format. Researchers transcribed and coded all interviews to determine emergent themes. Two major categories of themes were found: occupational and intrinsic responses. The areas of occupation that …


Exploring The Lived Experiences Of Female Retirement Living Seniors And Their Social Relationships, Kathy Procyk Jan 2018

Exploring The Lived Experiences Of Female Retirement Living Seniors And Their Social Relationships, Kathy Procyk

Theses and Dissertations (Comprehensive)

Objective

This research examines the lived experiences of seniors living within a retirement home (RH) and their social relationships with friends, family, and RH peers. The phenomena is explored through two perspectives (the senior and their support person) in order to better understand how retirement home living affects individuals’ social patterns and social well-being.

Methods

The theoretical orientation used to guide this study was phenomenology. After completing a background questionnaire, one-on-one semi-structured interviews were conducted with 11 women living in a retirement home and 7 primary support persons. Interviews were transcribed verbatim for further data analysis. Field notes, member checks, …


Improving Transitions In Care For People With Dementia: The Cared Tool, Yuwen Deng, Jamie Bisset, Silk Lim, Maryssa Edwards Dec 2017

Improving Transitions In Care For People With Dementia: The Cared Tool, Yuwen Deng, Jamie Bisset, Silk Lim, Maryssa Edwards

Community Engaged Learning Final Projects

Transitions in Care are challenging for people with dementia due to impairments in communication and disorientation from being in a foreign environment. Transitions in care have lead to incidents of unnecessary physical and chemical restraints of this vulnerable population. To investigate how to optimize care transitions, qualitative descriptive information was collected through three personal interviews to gain a broader understanding of mechanisms of care transitions in London, ON. After conducting interviews and literature review, the CARED Tool was developed. The CARED Tool promotes social inclusion of patients with dementia through recognizing that people with dementia have complex needs, thereby allowing …


Legacy Of Research In Japanese Gerontology, Elijah Beaudoin Nov 2017

Legacy Of Research In Japanese Gerontology, Elijah Beaudoin

International ResearchScape Journal

No abstract provided.


Enduring Chronic Kidney Disease: An Investigation Of Psychosocial Factors And Life Satisfaction In Older Adults Receiving Dialysis Treatment, Bailee Sobotka Aug 2017

Enduring Chronic Kidney Disease: An Investigation Of Psychosocial Factors And Life Satisfaction In Older Adults Receiving Dialysis Treatment, Bailee Sobotka

Honors Theses

Chronic kidney disease is a condition during which the kidneys begin to shut down and no longer filter blood efficiently. Once the disease has progressed far enough, dialysis treatments are mandatory to sustain life. To further understand how older adults receiving dialysis treatments cope with their disease, psychosocial factors were evaluated to investigate possible correlations with life satisfaction using a Life Satisfaction Index Z (LSI-Z). Expected correlations with life satisfaction were sociability, financial satisfaction, importance of spirituality, and activities of daily living scores. Interviews were conducted with 30 dialysis patients and results were analyzed using various statistical measures. Significant correlations …


In The Information Age, Do Dementia Caregivers Get The Information They Need? Semi-Structured Interviews To Determine Informal Caregivers’ Education Needs, Barriers, And Preferences, Kendra Peterson, Howard Hahn, Amber J. Lee, Catherine A. Madison, Alireza Atri Sep 2016

In The Information Age, Do Dementia Caregivers Get The Information They Need? Semi-Structured Interviews To Determine Informal Caregivers’ Education Needs, Barriers, And Preferences, Kendra Peterson, Howard Hahn, Amber J. Lee, Catherine A. Madison, Alireza Atri

Dartmouth Scholarship

Most patients with dementia or cognitive impairment receive care from family members, often untrained for this challenging role. Caregivers may not access publicly available caregiving information, and caregiver education programs are not widely implemented clinically. Prior large surveys yielded broad quantitative understanding of caregiver information needs, but do not illuminate the in-depth, rich, and nuanced caregiver perspectives that can be gleaned using qualitative methodology. We aimed to understand perspectives about information sources, barriers and preferences, through semi-structured interviews with 27 caregivers. Content analysis identified important themes