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The Relationship Between Parental Trauma History And Perceptions Regarding Their Child’S Healthcare And Utilization Of Healthcare Services, Krishna Patel

Theses and Dissertations

Abstract

TITLE: The Relationship Between Parental Trauma History and Perceptions Regarding Their Child’s Healthcare and Utilization of Healthcare Services

Adverse child events (ACEs) have been associated with a number of physical and mental health problems and have also been linked to increased health care utilization. While parents who have an ACE history may tend to seek healthcare services for themselves, limited studies have examined the impact of their trauma history on seeking healthcare services for their child. Healthcare utilization may also depend on the parents’ level of health anxiety, as well as their anxiety about their child’s health status. This …

Beyond Representation: Partnerships, Intersectionality, And The Centering Of The Disability, Family, And Community Lived Experience, Lydia Ocasio-Stoutenburg Phd, Julieta Hernandez Phd, Lcsw, Douglene Jackson Phd, Otr/L, Faota

Developmental Disabilities Network Journal

The COVID-19 pandemic introduced a public health crisis, overlaying the disparities in healthcare access, treatment, and outcomes that were already prevalent in Black and Latino communities across the U.S., particularly persons with disabilities (PWD) at the intersection of racial and ethnic identities. In addition, the concurrent social and political climate mirrored the pandemic in its action of magnifying existing systemic inequities for historically marginalized populations, calling for institutions to galvanize efforts toward diversity, equity, and inclusion (EDI). Our University Center on Excellence in Disabilities (UCEDD) serves a range of families whose children have disabilities or complex health care needs and …

Effect Of Family Engagement On The Behavioral Health Of Mentally Ill Offenders, Jessica Rae Horn

Walden Dissertations and Doctoral Studies

In the United States, 40% of incarcerated individuals have been diagnosed with a mental health disorder, but they often lack the support system needed to navigate their incarceration. This study addressed ways to understand how family engagement opportunities can improve the behavioral health of mentally ill offenders. Specifically, five research questions were used to explore the degree to which the practice of family engagement was understood as a method for providing support to mentally ill incarcerated individuals. The study followed the Baldrige Framework of Excellence to identify current organizational leadership and management issues that can help reach its goals, improve …

Increasing Provider Awareness Around Siblings Of Individuals With Intellectual And/Or Developmental Disability (Idd), Louisa Moore

Family Medicine Clerkship Student Projects

Siblings of individuals with intellectual and/or developmental disabilities (IDD) are not often thought of as a group that needs support in the primary care setting. However, the literature on siblings demonstrates that they have a variety of needs, including support with future planning, caregiving, and their mental and physical health. This project aims to increase awareness of the unique experiences of siblings as well as suggest changes that can be implemented in primary care to provide better support.

Food Resources For The Allen Family Center, Anna Kolbjornsrud, Jagrup Kaur, Simran Kaur, Talyn Miller, Chloe Schrader

Nursing Leadership in Community Engagement Projects

Food Resources for the Allen Family Center

Allen Family Center (AFC), a part of the nonprofit organization Mary’s Place, is a family driven resource hub that focuses on the needs and goals of families experiencing or on the verge of homelessness (Mercy Housing, 2022). They use a multigenerational approach to break the cycle of homelessness which promotes inclusivity, safety and provides opportunities to improve health (Mercy Housing, 2022).

When meeting with the team, we identified a concern as the limited food supplies available to AFC and the lack of food outreach they can provide. Providing resources to the community is …

Psychosocial Considerations For The Child With Rare Disease: A Review With Recommendations And Calls To Action., Leslee Belzer, Margaret Wright, Emily J. Goodwin, Mehar N. Singh, Brian S. Carter

Manuscripts, Articles, Book Chapters and Other Papers

Rare diseases (RD) affect children, adolescents, and their families infrequently, but with a significant impact. The diagnostic odyssey undertaken as part of having a child with RD is immense and carries with it practical, emotional, relational, and contextual issues that are not well understood. Children with RD often have chronic and complex medical conditions requiring a complicated milieu of care by numerous clinical caregivers. They may feel isolated and may feel stigmas in settings of education, employment, and the workplace, or a lack a social support or understanding. Some parents report facing similar loneliness amidst a veritable medicalization of their …

African-American Lay Pastoral Care Facilitators’ Perspectives On Dementia Caregiver Education And Training, Nik M. Lampe, Nidhi Desai, Tomeka Norton-Brown, Alexandra C. H. Nowakowski, Robert L. Glueckauf

The Qualitative Report

The African-American Alzheimer’s Caregiver Training and Support Project 2 (ACTS 2) is a faith-integrated, skills-training and support program for distressed African American family caregivers of persons living with dementia across Florida. Caregivers participate in a 12-week, telephone-based, skills-building and support program led by faith community workers (i.e., lay pastoral care facilitators) who provide volunteer services to their denominations. In this case study, we examined facilitators’ perspectives and recommendations for supplementary audiovisual and written training materials to optimize group process and goal-setting skills. Utilizing a qualitative approach, we explored facilitators’ needs, experiences in using current training materials, and recommendations for supplementary …

Promoting Health Independence Through Accessible Health Resources, Haylee R. Gilman, Lucy Carrasco Flores, Keenan Haack, Hui Jean Liew, Gebrehiwot Abrha

Nursing Leadership in Community Engagement Projects

Introduction

The U.S. Department of Housing and Urban Development (HUD, 2018) defines an individual or family as homeless, as someone who lacks “fixed, regular, and adequate nighttime residence”. As of January 2020, there were an estimated 11,751 individuals experiencing homelessness in Seattle/King County (King County Regional Homelessness Authority, 2020). National Alliance to End Homelessness (2020) explains that health and homelessness are inextricably linked, where an acute physical or behavioral health crisis or any long-term disabling condition may lead to homelessness; homelessness itself can exacerbate chronic medical conditions. To reduce the number of homeless families on the streets in King County, …

Lessons From Our Living Rooms: Illuminating Lockdowns With Technology Domestication Insights, Sun Sun Lim, Yang Wang

Research Collection College of Integrative Studies

With at least half of humanity under lockdown to arrest the spread of COVID-19 (Sandford, 2020), adults have been working from home and children engaging in home schooling for months on end. Competing for scarce resources such as digital devices, bandwidth, as well as physical and personal space, families have had to contend with rising tensions around the quality of digital engagement, children’s learning abilities, parent-child relationships and overall familial wellbeing. This fraught situation shone the spotlight on the household context of technology use but also enabled us to marshal academic insights to advance advocacy and public education. The pandemic …

Assisting Students And Families During The Covid-19 Crisis: Diversity & Equity In Action Through A Educator-Family-Community Health Worker Intersection, Eric J. López, Oscar J. Muñoz, Eva Menchaca-López

Northwest Journal of Teacher Education

The current COVID-19 crisis has exposed new and existing issues related to access and equity for our students and families. The following article discusses a model for interconnecting educators, families, and community health workers (CHW) that can integrate diversity and equity for practitioners and educator preparation programs. Integrating CHWs provides a unique opportunity to utilize their cultural responsive skills and knowledge. Implications for practitioners and educator preparation programs are discussed.

Conversations With Health Care Providers And Parents Before Autism Diagnosis: A Qualitative Study, Norah L. Johnson, Wendy Krueger, Elizabeth Jilek, Kristin Haglund

College of Nursing Faculty Research and Publications

Introduction

The purpose of this study was to explore communication with health care providers from the perceptions of parents before their child's diagnosis of autism spectrum disorder and provide some examples of how communication may contribute to the autism diagnosis.

Method

This study used a qualitative descriptive design with multiple individual structured in-person interviews.

Results

Three themes captured parents’ (n = 8) descriptions of the phases of communication during their children's diagnoses including, (1) anguished questioning, (2) urgently seeking help, and (3) expecting a diagnosis. In addition, three themes characterized the communication style that parents needed, although not always …

Implementation Of Family Psychosocial Risk Assessment In Pediatric Cancer With The Psychosocial Assessment Tool (Pat): Study Protocol For A Cluster-Randomized Comparative Effectiveness Trial, Anne E Kazak, Janet A Deatrick, Michele A Scialla, Eric Sandler, Rebecca E Madden, Lamia P Barakat

Department of Pediatrics Faculty Papers

BACKGROUND: Childhood cancer affects and is affected by multiple levels of the social ecology, including social and relational determinants of health (e.g., economic stability, housing, childcare, healthcare access, child and family problems). The 2015 Standards of Psychosocial Care in Pediatric Cancer outline optimal psychosocial care sensitive to these ecological factors, starting with assessment of psychosocial healthcare needs to promote medical and psychosocial outcomes across all children with cancer. To address the first standard of family psychosocial assessment, the Psychosocial Assessment Tool (PAT) is a validated screener ready for broad implementation.

METHOD: The PAT will be implemented across a national sample …

Formative Research To Inform The Development Of A Healthy Eating Social Marketing Campaign In Mississippi, Rahel Mathews, Laura H. Downey, Patrick Gerard

Journal of Human Sciences and Extension

Mississippi leads the nation in child obesity, chronic diseases, poverty, and food insecurity. Stemming the long-term consequences of high obesity rates will require a cultural attitude and behavioral shift towards healthy eating. This study explored the perceptions, beliefs, practices, and self-efficacy towards healthy eating among limited resource Mississippi parents to inform a SNAP-Ed social marketing campaign. A statewide telephone survey was conducted with income-eligible or current SNAP recipients who provided or prepared food for children in their household. Likert-type scale questions measured intrapersonal factors, self-efficacy, and practices regarding healthy eating, such as shopping and meal planning. A total of 206 …

Increasing Autism Awareness In The Somali Community, Safiya Ahmed

Theses and Graduate Projects

Autism spectrum disorder has become more prevalent in recent years, especially in the Somali community in Minneapolis. Early detection, diagnosis and interventions are essential for children with this disorder. A recent study on the prevalence of autism spectrum disorder in Minneapolis, Minnesota reported that Somali children not only have the highest prevalence of this disorder among all races and ethnicity but also receive late diagnosis and interventions. A comprehensive literature review identified lack of awareness, cultural stigma, and difficulty to access services as barriers for early diagnosis and interventions for Somali children. The literature also supported the importance of early …

Family-Centered Care In The Neonatal Intensive Care Unit, Madison Winter

The Eleanor Mann School of Nursing Undergraduate Honors Theses

Family-centered care can be useful in any clinical scenario, but more so in the Neonatal Intensive Care Unit (NICU). Having a preterm infant admitted into the NICU is not an ideal situation, and can cause high levels of apprehension for the parents. “Stress experienced by parents whose infant is hospitalized in the NICU is strongly correlated with anxiety, fatigue, depression, and sleep disruption” (Busse et al., 2013). [excerpt]

A Phenomenological Study Of The Experiences Of Military Families, Who Have Children With Disabilities And Maladaptive Behavior, With School-Based Mental Health Personnel, Londi J. Segler

Electronic Theses and Dissertations

This qualitative study used a phenomenological approach to capture the lived experiences of military families who have children with disabilities and maladaptive behavior to note risk and protective factors that might impede the mental health development of that population of student. Through interviews with at-home-caregivers, I explored their experiences with public school staff, outside mental health services, and school psychologists. Study findings revealed that participants felt they were going to battle with school staff who were not willing to incorporate culturally responsive practices when working with their children. School staff who implemented regular bi-directional communication were more likely to gain …

School-Based Telemental Health And Family Psychoeducation: A Program Evaluation, Ainat Koren

Doctor of Nursing Practice (DNP) Projects

Background: Telemental Health has been established as an effective model of care in the adult population. There are few studies that addressed the effects of providing child and parent telehealth services in underserved communities where mental health services are sparse. Families who attend face to face mental health support report high levels of satisfaction, show increased knowledge about mental illness/treatment, and youth have a lower risk of relapse.

Purpose: The purpose of this DNP project was to evaluate an innovative Telemental Health model offering timely social/behavioral health support for children/families’ mental health services in rural Massachusetts.

Methods: Process …

Estimating The Heritability Of Experiencing Child Maltreatment In An Extended Family Design, Katharina Pittner, Marian J. Bakermans-Kranenburg, Lenneke R. A. Alink, Renate S. M. Buisman, Lisa J. M. Van Den Bergo, Laura H. C. G. C. Compier-De Block, Alexandra Voorthuis, Bernet M. Elzinga, Jolanda Lindenberg, Marieke S. Tollenaar, Marielle Linting, Vincent P. Diego, Marinus H. Van Ijzendoorn

School of Medicine Publications and Presentations

Child-driven genetic factors can contribute to negative parenting and may increase the risk of being maltreated. Experiencing childhood maltreatment may be partly heritable, but results of twin studies are mixed. In the current study, we used a cross-sectional extended family design to estimate genetic and environmental effects on experiencing child maltreatment. The sample consisted of 395 individuals (225 women; M _age = 38.85 years, range_age = 7–88 years) from 63 families with two or three participating generations. Participants were oversampled for experienced maltreatment. Self-reported experienced child maltreatment was measured using a questionnaire assessing physical and emotional abuse, and physical …

Development Of Mechanical Ventilator Educational Brochure For Patients/Families, Cathy Palleschi, Wendy Osgood, Mark Parker

Operations Transformation

Patients on mechanical ventilation often have no memory of events while being ventilated. In addition, families during this time, are often overwhelmed and unable to retain information provided to them by caregivers.

In attempt to address these issues, a team of care providers in an tertiary academic hospital established a goal to create a mechanical educational brochure with the goal to reduce associated anxiety and improve overall understanding of information provided.

As part of a clinical transformation project, a root cause analysis was conducted and a number of countermeasures were initiated. Some of these included a survey to capture feedback …

First Responders' Narratives Of Drowning: Perceptions Of Family And Community Impacts And Policy Implications, John Wells Phd, Michael Bergin Phd, John Connolly B.Ed., Ma In Ed., Suzanne Denieffe Phd

International Journal of Aquatic Research and Education

This is an exploratory study of the impacts of drowning death on local communities and families in the Republic of Ireland as perceived by first responders. The impact of a death may be particularly stressful. The identified population of interest were members of the Garda and first responders from Community Rescue Boats Ireland. The principal data collection method was one-to-one narrative interviews followed by a focus group. Questioning involved asking interviewees to talk about specific events rather than providing general opinions. Community identity was a source of impact, an urban or rural setting was a significant factor, social media was …

Intensive Care To Intermediate Care Bridge Program, Natasha Bartlett, Sally Langerak, Lindsey Lucas, Jonathan Archibald, Tayla Robbins, Miranda Thompson, Patrice Tetu, Calla Hastings, Megan Garland, Suneela Nayak, Stephen Tyzik, Ruth Hanselman, Amy Sparks

Operations Transformation

To deliver the highest quality of care across the continuum, a large academic tertiary medical center envisioned a project that would provide an internal source of cross trained nurses for their medical intensive care unit (SCU2) and their medical intermediate care unit (R4/IMC/AVU). The hope for this program was to improve communication and collaboration between nurses and enhance the care that they provide to patients and their families.

A highly qualified team of nurses was established to create a performance improvement project. The overall goal of this endeavor was to build a more collaborative relationship between the units and ultimately …

A Family's Perception Of Occupation-Based Activity Sessions During Their Transition To Permanent Housing, Laura Opie, Lauren Goldstein, Ashton Roth, Ella Savalox

Community Based

This study aimed to evaluate families' perceptions of occupation-based activity sessions during their transition from homelessness to permanent housing. A phenomenological design was selected to identify families' perceptions. Results identified potential benefits of providing occupation-based activity sessions to families in transition and indicated the importance of empowering families to enact their own sense of agency to successfully resolve their transition to permanent housing.

Family Behaviors As Unchanging Obstacles In End-Of-Life Care: 16-Year Comparative Data, Jasmine Burson Jenkins

Theses and Dissertations

Background: Critical care nurses (CCNs) provide end-of-life (EOL) care for critically ill patients. CCNs face many obstacles while trying to provide quality EOL care. Some research has been published focusing on obstacles CCNs face while trying to provide quality EOL care; however, research focusing on family behavior obstacles is limited.Objective: To determine if magnitude scores (obstacle item size x obstacle item frequency of occurrence) have changed since previous magnitude score data were first gathered in 1999.Methods: A random geographically dispersed sample of 2,000 members of the American Association of Critical-Care Nurses (AACN) was surveyed. Responses from quantitative Likert- type items …

Enmeshment In Military Families, Alexus Hamilton

Electronic Theses and Dissertations

While most research regarding enmeshment has been decidedly negative, researchers analyzing diverse cultures have found that enmeshment can act as a healthy tool for family members. This thesis examines the limits of healthy enmeshment and focuses on military families. It strives to answer whether enmeshment can be a tool utilized to keep the family safely together. This thesis combines narrative and grounded analysis to determine that military families can experience variations of enmeshment that can be healthy and safe.

Ibusy: Research On Children, Families, And Smartphones, Bill R. Garris, Lindsay Lester, Erin Doran, Andrea Lowery

Bill R. Garris

Within the past 10 years, mobile devices have been widely adopted by adults and are now present in the lives of almost all U.S. children. While phones are common, our understanding of what effect this technology has upon children's development is lagging. Bioecological theory and attachment theory suggest that this new technology may be disruptive, especially to the degree to which it interferes with the parent-child relationship. This article reflects a National Organization for Human Services conference presentation and shares preliminary results from semi-structured interviews conducted with 18 youth, ages 7 through 11. Only four of eighteen interviewees voiced any …

Disseminating Your Ideas: A Conversation With The Editors Of Families, Systems, & Health, Jodi Polaha, Nadiya Sunderji, L. Mauksch, C. Fogarty

ETSU Faculty Works

No abstract provided.

Family Experiences In Engaging In Employment: How Do We Improve Outcomes?, John Kramer, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Session 018: Abolishing Exploitive Labour Practices Room: Freedom H

Sponsors: Disability Youth, Aging, and the Life Course

Organizer, Presider &

Discussant: Katherine Caldwell, University of Illinois at Chicago

Papers:

“Differences in Earnings among Persons with and without Disabilities,” Alexandra Krause, Florida State University

“Family Experiences in Engaging in Employment: How Do We Improve Outcomes?” John Kramer, University of Massachusetts Boston

“Shifting the Paradigm through Entrepreneurship,” Katherine Caldwell, University of Illinois at Chicago

Families And Employment Of People With Intellectual And Developmental Disabilities: Results From A Scoping Study, John Kramer, Jennifer Bose, Jean Winsor, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Purpose: Recent policy changes expanding community employment for people with intellectual/developmental disabilities (IDD) and awareness of the important role of family members as facilitators of these opportunities motivated this scoping review of the literature on family engagement with the IDD service system.

Methods: Researchers used Arksey and O’Malley’s six-stage scoping review methodology (2005) to map a wide range of literature to discover the resources and strategies available to families supporting people with IDD to find employment; the resources and strategies to support people with IDD and families to develop a vision of employment; and the resources and strategies to support …

Partners For Excellence: Committed To Meaningful Partnerships With Patients And Families In Pediatrics, Rachel Biblow, Msw, Sara Toomey Md, Mphil, Mph, Msc

Patient Experience Journal

Although the landscape in pediatrics continues to shift and change, one of the keys to our continued success remains the same… it’s about partnership. It’s clear the element of partnership is well woven through our organizations as illustrated by many of us having patient and family advisory councils, family consultants, and family partners. While this foundation is strong and essential, we must do more to truly listen, recognize the value of patient and family involvement, act upon the information shared, openly discuss issues, and strive for better together. True partnership with patients and families requires us to shift the paradigm …

Exploring The Experiences Of Clinicians Dually-Trained In Behavior Analysis And Family Therapy Working With Families Facing Autism, Janessa Dominguez

Department of Family Therapy Dissertations and Applied Clinical Projects

The main aim of this dissertation is to identify the importance of utilizing both a behavior analytic lens and systemic thinking lens when working with families with children diagnosed with Autism Spectrum Disorder (ASD). Currently, the prevalence of ASD is on the rise, which means more families are in need of services. Services are typically available for the individual with ASD or the family; however, it is the researcher’s belief that services delivered utilizing a both/and lens are more impactful. Through the use of transcendental phenomenology, trained behavior analysts and marriage and family therapists were interviewed to gain insight into …